THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: January 16, 2009 01:00 PM Friday;
Rod Welch
Millie Neupogen canceled at Kaiser because blood counts rise.
1...Summary/Objective
2...Neupogen Treatment at Kaiser Prescribed at UCSF for Clinical Trial
3...Schedule Neupogen Treatments Extended through August
4...Side Effects Neupogen Treatments Increase May Be Chemotherapy
..............
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CONTACTS
SUBJECTS
Neupogen Side Effects Bone Pain Fatigue No Headache Suffered Today A
1503 -
1503 - ..
1504 - Summary/Objective
1505 -
150501 - Follow up ref SDS F0 0000. ref SDS E7 0000.
150502 -
150503 -
150504 -
150505 -
150506 -
150507 -
150509 - ..
1506 -
1507 -
1508 - Progress
1509 -
150901 - Neupogen Treatment at Kaiser Prescribed at UCSF for Clinical Trial
150902 -
150903 - Follow up ref SDS F0 9W9I, ref SDS E7 9W9I.
150904 -
150905 - Patient history of low blood counts for NEUTS (ANC at Kaiser) showing
150906 - missing treatments at UCSF, and including Millie's current treatments
150907 - with sunitinib for the 5th relapse of IBC are reported in the record
150908 - on 081205. ref SDS C6 EC5N
150910 - ..
150911 - Case study on 060809 shows Millie has often received chemotherapy when
150912 - blood counts are below the standard for safe treatments, and on some
150913 - occassions has received Neupogen to increase blood counts. ref SDS 9
150914 - HV45
150916 - ..
150917 - Research on neutropenia was reported on 070301, ref SDS 10 O59H, when
150918 - Doctor Rugo was concerned about holding blood counts with weekly
150919 - Carboplatin treatments. ref SDS 10 VF6O
150921 - ..
150922 - Background on Neupogen treatment is reported on 081107. ref SDS B9
150923 - 1M9O Tara gave instructions at UCSF on 081126 to defer Neupogen with
150924 - NEUTS 1.50 until labs at UCSF on 081218. ref SDS C5 AT8U On 081205,
150925 - Doctor Rugo clarified that Neupogen should not be self-medicated, and
150926 - is not needed until neutrophils are low. ref SDS C9 JE5I On 081210
150927 - the primary care physician ordered Neupogen treatments according to
150928 - Kaiser standards and practices when NEUTS drop below 1.00 (ANC 1000).
150929 - ref SDS D4 J43V
150931 - ..
150932 - On 090108 Doctor Rugo prescribed a blood test today on 090116 to
150933 - evalute requirements for Neupogen, shown by Millie's letter to the
150934 - medical team on 090109, ref SDS E5 UF3W, and citing Glenna's letter
150935 - from UCSF the day before on 090108. ref SDS E4 UX4V
150937 - ..
150938 - The blood test was performed by Debbie at Kaiser in the Oncology
150939 - Infusion Clinic using Millie's Power Port today, and reported in
150940 - another record on 090116 1030. ref SDS F1 6Z4F
150942 - ..
150943 - Debbie did not have time to call Millie with results.
150945 - ..
150946 - At 1315 visited the Oncology customer counter.
150948 - ..
150949 - The attendant said that Arlette is at lunch. She said that Debbie who
150950 - did the blood draw is at lunch, and so are Florida, Bella, Laura.
150951 - Seemed everyone was at lunch. Asked for Cisi. Cisi talked to the
150952 - attendant. The attendant said she made a mistake. Debbie is
150953 - available and will bring out the results of the blood test this
150954 - morning.
150956 - ..
150957 - Debbie visited in the customer lobby for the Oncology Infusion Clinic
150958 - and submitted a copy of the report for the blood test this morning.
150960 - ..
150961 - ANC 1768 for the test today is a very substantial rise from 870 last
150962 - week at UCSF and is well above the criteria of 1000 which Doctor
150963 - Johnson discussed on 081210 for Millie getting Neupogen. ref SDS D4
150964 - J43V On 081223 Glenna called and advised that the medical team orders
150965 - Neupogen treatment for Millie when blood counts fall below NEUTS 1.000
150966 - (ANC 1000), ref SDS E1 4P4K; Millie sent a letter confirming UCSF
150967 - guidance on Neupogen. ref SDS E1 CV4M On 090108 Glenna's letter
150968 - presented NEUTS 1.00 (ANC 1000) as the criteria for evaluating
150969 - Millie's treatments. ref SDS E4 UX4V
150971 - ..
150972 - ANC 1768 therefore does not require Millie to get Neupogen today and
150973 - tomorrow.
150975 - ..
150976 - Debbie will cancel the treatment tomorrow in Kaiser's computer.
150977 -
150978 -
150979 -
150980 -
1510 -
SUBJECTS
Default Null Subject Account for Blank Record
1603 -
1604 - 1430
160501 - ..
160502 - Schedule Neupogen Treatments Extended through August
160503 -
160504 - Follow up ref SDS F0 WJ4O, ref SDS E7 WJ4O.
160506 - ..
160507 - In the afternoon, called Bella.
160509 - ..
160510 - Turned out that Debbie had not canceled Neupogen for tomorrow, per
160511 - results of blood test today. ref SDS 0 YS8H Bella canceled treatment
160512 - tomorrow.
160514 - ..
160515 - Bella changed the schedule for Neupogen on 090213 from 0830 to 1100,
160516 - which is still a mistake, because this takes 5 minutes, and Millie
160517 - has a meeting with the doctor at 1140, which then requires waiting
160518 - for 35 minutes to an hour.
160520 - ..
160521 - Still need to cancel Neupogen tests scheudle on 0901223 and 090124,
160522 - because Millie will not get another blood test until the meeting at
160523 - UCSF on 090129.
160524 -
160525 - [On 090122 called and cancelled Neupogen on 090123 and
160526 - 090124; Millie fell and dislocated her shoulder; treatment
160527 - in Emergency Department reported blood counts very high, so
160528 - Neupogen not needed this week. ref SDS F2 W456
160530 - ..
160531 - Neupogen schedule....
160532 -
160533 - UCSF Treatment Prescription
160534 - Cyclophos Metho
160535 - Neupogen Sunitinib phamide trexate
160536 - # Date Time NEUTS MCG # MG # MG # MG Neupogen IBC Treatment
160537 - =================================================================================================
160538 - 1. 081205 1300 0.624 480 22 826.0 8 400 3 15 .. ref SDS C8 KV84 and ref SDS C6 PY5I
160539 - 2. 081206 0900 960 23 863.5 9 450 4 20 .. ref SDS D1 BI4 and ref SDS D0 PY5I
160540 - 081210 1302 1.085 27 1013.5 13 650 4 20 .. ref SDS D3 QY6H and ref SDS D2 X59G
160541 - 081212 1300 canceled
160542 - 081213 0900 canceled
160543 - 081218 0700 35 1312.5 21 1050 6 30 .. ref SDS D5 MF5H
160544 - 081218 0830 0.740.........paused.....paused.....canceled.. ref SDS D6 QY6H
160545 - 3. 081219 1130 1440................................... ref SDS D8 UZ7K
160546 - 4. 081220 0900 1920................................... ref SDS E0 UZ7K
160547 - 081226 1030 1.710......................................... ref SDS E2 QY6H
160548 - 081226 0930 canceled
160549 - 081227 0930 canceled
160550 - 090102 0800 canceled
160551 - 090103 0930 canceled
160552 - 090108 0820 0.87.......................................... ref SDS E3 QY6H
160553 - 090109 0700 50 1875.0..paused............... ref SDS E6 6C4J
160554 - 5. 090109 0830 2400................................... ref SDS E7 UZ7K
160555 - 090110 0700 51 1910.5..paused............... ref SDS E9 UV5H
160556 - 6. 090110 0930 2880................................... ref SDS F0 UZ7
160557 - 090116 1030 1.768......................................... ref SDS F1 QY6H
160558 - 090116 1030 canceled................................ ref SDS 0 649J
160559 - 090117 0930 canceled................................ ref SDS 0 649J
160560 - 090123 0830 canceled...........notified .....090122, ref SDS F2 SV4H
160561 - 090124 0930 canceled...........notified......090122, ref SDS F2 SV4H
160562 - 7. 090130 0830
160563 - 8. 090131 0930
160564 - 9. 090206 1400
160565 - 10. 090207 0915
160566 - 11. 090213 1100 change to 1140 when Millie meets doctor
160567 - 12. 090214 0930
160568 - 13. 090220 1030
160569 - 14. 090221 0900
160570 - 15. 090227 0930
160571 - 16. 090228 0900
160572 -
160573 -
160574 -
1606 -
SUBJECTS
Default Null Subject Account for Blank Record
1703 -
170401 - ..
170402 - Side Effects Neupogen Treatments Increase May Be Chemotherapy
170403 -
170404 - Follow up ref SDS F0 SB8I, ref SDS E7 SB8I.
170405 -
170406 - Research on Neupogen side effects was reported on 080629. ref SDS 43
170407 - RQ9I
170409 - ..
170410 - Millie last reported side effects on 081018 experiencing bone pain,
170411 - headache, and fatigue associated with Neupogen and chemotherapy.
170412 - ref SDS A3 Y17L Prior to yesterday on 081219, ref SDS D8 UZ7K, Millie
170413 - had Neupogen treatments previously on 081205 and 081206. ref SDS D1
170414 - BI4J The record today shows side effects of fatigue began OA 081130
170415 - about 4 days after starting treatment for cancer that added
170416 - chemotherapy to sunitinib. ref SDS D9 EV6J Joint pain side effects
170417 - can occurs with Neupogen and commonly occur with cancer treatments.
170418 - Side effects of Neupogen last 2 - 3 days. Millie began reporting
170419 - joint pain on 081216, ref SDS D9 V15F, about 10 days after her last
170420 - Neupogen treatment on 081206. This patient history suggests daily
170421 - cancer treatments are causing continual joint pain side effects,
170422 - possibly compounded when Millie gets Neupogen treatments.
170424 - ..
170425 - Bella took vitals today...
170426 -
170427 - BP 173 83 48 Temp 97.3
170429 - ..
170430 - Side effects of Neupogen reported on...
170431 -
170432 - 081018................, ref SDS A3 Y17L
170433 - 081011................, ref SDS 96 FL4H
170434 - 081010................, ref SDS 95 SB8I
170435 - 081006................, ref SDS 93 3E4K
170436 - 081004................, ref SDS 92 Y17L
170437 - 081002................, ref SDS 90 Y17L
170438 - 080930................, ref SDS 89 Y17L
170439 - 080923................, ref SDS 85 K16F
170440 - 080915................, ref SDS 81 9W9I
170441 - 080810................, ref SDS 63 9W9I
170442 - 080803................, ref SDS 59 9W9I
170443 - 080726................, ref SDS 56 9W9I
170444 - 080721................, ref SDS 54 9W9I
170445 - 080713................, ref SDS 48 RM94
170446 - 080629................, ref SDS 43 6Q5J
170447 - 080628................, ref SDS 41 6Q5J
170448 -
170449 -
170450 -
170451 -
170452 -
170453 -
170454 -
170455 -
170456 -
170457 -
1705 -