THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: January 8, 2009 02:53 PM Thursday; Rod Welch

Millie received letter from UCSF on work plan from meeting today.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 15 0000. ref SDS 14 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie submitted an agenda to the medical team for the meeting at UCSF
040902 - this morning on 090108 at 0830 to review progress recovering from the
040903 - 5th relapse of IBC, and to get a blood draw. ref SDS 15 NF70
040905 -  ..
040906 - Millie met with the medical team this morning at 0900, as planned in
040907 - the letter on 090108.
040909 -  ..
040910 - This afternoon, Millie received a letter from Glenna confirming
040911 - understandings on meeting with the medical team...
040912 -
040913 -    1.  Subject:  Agenda Meeting Medical Team UCSF Jan 8 0830
040914 -        Date: Thu, 8 Jan 2009 14:37:47 -0800
040921 -         ..
040922 -    2.  Here is a brief summary from our clinic visit today, 1/8/09.
040923 -
040924 -            [On 090109 Millie submitted UCSF letter to Kaiser for
040925 -            implementating the treatment plan. ref SDS 16 UF5Q
040927 -         ..
040928 -    3.  We would like you to have an EKG performed to evaluate your
040929 -        heart function based on your low heart rate today (49).  Please
040930 -        forward results when this is completed.
040932 -         ..
040933 -    4.  Because your neutrophils are low (0.87), we are asking you to
040934 -        do two things:
040935 -
040936 -        1.  Get neupogen Friday 1/9/09 and Saturday 1/10/09
040938 -             ..
040939 -        2.  Make the following change to your study drug dosing:  HOLD
040940 -            off taking the Cyclophosphamide until you have a repeat lab
040941 -            which shows that your neutrophils have returned to a level
040942 -            of 1.0 or above.
040944 -         ..
040945 -    5.  Once your neutrophils have returned to 1.0 or above, you will
040946 -        resume taking the Cyclophosphamide, but will change the dosing
040947 -        from every day to 5 days out of 7.
040949 -  ..
040950 - UCSF letter today does not expressly prescribe a blood test next week
040951 - on 090116 to evaluate blood counts for getting another Neupogen
040952 - treatment and for evaluating starting treatment with cyclophosphamide;
040953 - doing a follow up blood test next week on 090116 was indicated during
040954 - the meeting with the medical team this morning.
040956 -  ..
040957 - The expression in UCSF's letter today for "neutrophils returned to 1.0
040958 - or above," is misleading, because labs at Kaiser include a test for
040959 - neutrophils, which is only part of the scope for "NEUTS" presented in
040960 - UCSF labs.  Kaiser uses ANC correlates to NEUTS and multiplied by
040961 - 1000.  UCSF letter therefore saying "neutrophils 1.0 or above," means
040962 - ANC above 1000 for Millie's blood work at Kaiser.
040964 -  ..
040965 - UCSF letter from Glenna continues...
040966 -
040967 -    6.  We will base the start date of the 5-days on the day following
040968 -        your labwork reflecting neutrophils of 1.0 or above.
040969 -
040970 -               [On 090109 Millie letter to medical team confirms UCSF
040971 -               work plan to pause cyclophosmphamide, add Neupogen
040972 -               treatment, do blood test next week on 090116; if blood
040973 -               counts rise NEUTS 1.00 > then resume cyclophosphamide
040974 -               with reduced treatment from 7 to 5 days per week.
040975 -               ref SDS 16 UF3W
040977 -                ..
040978 -               [On 090109 Arlette ordered blood test for Millie at
040979 -               Kaiser to accomplish care prescribed by UCSF.
040980 -               ref SDS 17 BF5N
040982 -                ..
040983 -               [On 090110 Bella will add lab for blood test when Millie
040984 -               comes to Kaiser on 090116 1030 for Neupogen. ref SDS 18
040985 -               6U9I
040987 -         ..
040988 -    7.  I have attached a new study drug diary for you to use for this
040989 -        cycle - please leave the Cyclophosphamide spaces blank until
040990 -        the date you do resume taking it.
040992 -         ..
040993 -    8.  As we discussed, please put your old Sunitinib pill bottles
040994 -        aside, and begin taking the Sunitinib from the pills I gave you
040995 -        in clinic today.  Please return ALL the bottles you have when
040996 -        you come in to see us next on  1/29/09 at  900AM.
040998 -         ..
040999 -    9.  Future appointments booked to date are as follows:
041000 -
041001 -        1/29/09:  0900
041002 -        2/19/09:  0900
041003 -        3/12/09:  0830
041004 -        4/02/09:  0830
041005 -
041006 -           [On 090115 Millie submitted a letter to Catherine and Diane
041007 -           asking for assistance getting blood tests scheduled at UCSF.
041008 -           ref SDS 19 485J
041009 -
041016 -
041017 -
041018 -
041019 -
041020 -
041021 -
041022 -
0411 -