CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 16 0000, ref SDS 15 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie submitted an agenda to the medical team for the meeting at UCSF
040902 - on 090108 to review progress recovering from the 5th relapse of IBC,
040903 - and to get a blood draw.  This follows up the agenda for the previous
040904 - meeting at UCSF on 081218, ref SDS 5 5G5H, submitted to the medical
040905 - team on 081217. ref SDS 3 VZ5I   As well, Millie met with the primary
040906 - care physician at Kaiser the next day on 081219, ref SDS 6 QW5J,
040907 - implementing the agenda submitted the day before on 081218.
040909 -  ..
040910 - Millie submitted the following letter...
040911 -
040912 -    1.  Subject: Agenda Meeting Medical Team UCSF Jan 8 0830
040913 -        Date: Tue, 06 Jan 2009 12:38:47 -0800
040927 -         ..
040928 -    2.  Thanks for confirming in the telephone call this morning the
040929 -        schedule meeting with Doctor Rugo, you and Tara on Thursday,
040930 -        090108 0830, after getting a blood draw in the Infusion Clinic
040931 -        at 0800.  Please check through my schedule shown in the record
040932 -        on 081218 and let me know of any changes. ref SDS 4 PN6F
040934 -         ..
040935 -    3.  Please submit the order to the Infusion Clinic for the blood
040936 -        draw at 0800, per planning this morning.  Include CA 15-3 and
040937 -        INR for the Coagulation Control Clinic at Kaiser.
040939 -         ..
040940 -    4.  Thanks to Arlette in Oncology at Kaiser in Walnut Creek for
040941 -        submitting reports via fax to UCSF this morning on the CT test
040942 -        at Kaiser performed last week on 081230. ref SDS 11 3G5I  Heads
040943 -        up - this was published again in 2 separate reports, like
040944 -        reports that caused confusion for the test on 081107 [received
040945 -        on 081113. ref SDS 1 RU6R]  Doctor Johnson is sending me a copy
040946 -        of these reports today electronically through Kaiser's
040947 -        Knowledge Management System. ref SDS 14 B47I  This provides
040948 -        time for review to be prepared for the meeting on Thursday.
040950 -                ..
040951 -               [On 090109 Millie's letter to the medical team reports
040952 -               UCSF did not receive CT test reports from Kaiser.
040953 -               ref SDS 17 UE6U
040955 -         ..
040956 -    5.  Chris in Kaiser's Radiology Department has a call pending for
040957 -        Al Hutchins, Manager of the department to discuss implementing
040958 -        Doctor Johnson's order in the referral on 081219 for findings
040959 -        to be consolidated into a single [CT test] report. ref SDS 16
040960 -        OO4S  Hopefully, this capability will be online in time for the
040961 -        next CT test at the end of the month.
040963 -         ..
040964 -    6.  I went to exercise class this morning.  Energy is now low
040965 -        again. [reviewed at Kaiser on 081219 with primary care
040966 -        physician citing cytopenia, ref SDS 6 LS6K]  I tried to hike
040967 -        Lafayette reservoir on Saturday [it was actually Friday
040968 -        090101], and barely made one lap with help getting pushed up
040969 -        the 2 steepest hills. ref SDS 12 3E4K  I did a flatter hike the
040970 -        next day and made that okay. ref SDS 13 3E4K [this is the
040971 -        second time Millie has hiked Lafayette reservoir, reported to
040972 -        the medical team on 081230. ref SDS 10 4W9S]
040973 -
040974 -            [On 090109 Millie letter to medical team reports results of
040975 -            meeting at UCSF; doctor continues sunitinib and pauses
040976 -            cyuclophosphamide chemotherapy to reduce side effects until
040977 -            blood counts increase. ref SDS 17 UF3Q
040979 -         ..
040980 -    7.  As previously reported IBC rash increased on 081224 and 081225,
040981 -        then seemed better the next day on 081226. ref SDS 8 505G [as
040982 -        reported in letter to medical team on 081230, ref SDS 10 JV5M].
040983 -        There have been perhaps two occasions about 3 days ago when I
040984 -        seemed to feel slight pain or discomfort in the breastbone area
040985 -        where there is a concentration of IBC nodules.  I think we are
040986 -        now on another improvement cycle.  After resuming treatment for
040987 -        5 days the nodules and rash seem again to be subsiding.
040988 -
040989 -               [On 090109 Millie's letter to medical team reports
040990 -               examination on 090108 finding IBC increased particularly
040991 -               in the breastbone area after pausing treatment for 1
040992 -               week ordered during the meeting at UCSF on 081218, and
040993 -               further treatment was adjusted and continued to evaluate
040994 -               possibility of another recovery from consistent
040995 -               treatment with sunitinib. ref SDS 17 UE6R
040997 -                ..
040998 -               [On 090121 Glenna requested patient history on UCSF
040999 -               planning follow on treatments for Millie. ref SDS 19
041000 -               Y67L
041002 -                ..
041003 -               [On 090122 Glenna advised that Doctor Rugo ended Millie's
041004 -               treatment with sunitinib a week early in order to remove
041005 -               toxicities so that Millie can start the next treatment on
041006 -               090129.
041008 -         ..
041009 -    8.  The agenda for Thursday is blood counts, per Doctor Rugo's plan
041010 -        on 081218.  I'm hoping counts are high enough to continue with
041011 -        sunitinib at maximum amount 37.5 mg per day [discussed with
041012 -        primary care physician at Kaiser on 081219 explaining low blood
041013 -        counts cause cytopenia, ref SDS 6 LS6K, presented in Millie's
041014 -        letter to the medical team on 081223, ref SDS 7 BW3V, and
041015 -        supported by case study on 081230. ref SDS 10 I87N]
041016 -
041017 -               [On 090109 Millie letter to medical team reports blood
041018 -               counts very low again, NEUTS 0.87, confirms UCSF
041019 -               treatment plan on 090108 continues sunitinib at full
041020 -               strenth, and pauses cyclophosphamice until blood counts
041021 -               rise to NEUTS 1.00. ref SDS 17 UF3Q
041023 -                ..
041024 -               [On 090115 1522 Millie's letter reports continued side
041025 -               effects from chemotherapy that reflects continuing low
041026 -               blood counts that risk cytopenia. ref SDS 18 5J9Y
041028 -         ..
041029 -    9.  We need to decide about Neupogen treatments scheduled for
041030 -        Friday and Saturday.  Do we cancel or get treatments?  What
041031 -        about cutting back on cyclophosphamide if blood counts are real
041032 -        low??
041033 -
041034 -               [On 090109 Millie letter to medical team confirms UCSF
041035 -               work plan for Neupogen treatment on 090109 and 090110.
041036 -               ref SDS 17 UF3Q
041038 -         ..
041039 -   10.  Kaiser's blood test on 081226 was partially reported to the
041040 -        team on 081230 showing favorable results for continuing
041041 -        treatments at full does. ref SDS 10 JV5M  Here are the complete
041042 -        results including CA 15-3 202, and the panel for cholesterol
041043 -        which looks okay. ref SDS 9 S65I
041045 -         ..
041046 -   11.  The lab on Thursday will update the cancer marker after
041047 -        resuming treatment without Methotrexate on 081226.
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0411 -