THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: September 29, 2006 03:00 PM Friday; Rod Welch

Millie meeting at Kaiser evaluate treatment plan IBC relapse.

1...Summary/Objective
2...Agenda Progress Review Assess Work Plan and New Symptoms PE
3...Vitals Show Stable Medical Condition
4...CA 15-3 Cancer Marker 51 Another Significant Drop
5...CA 15-3 51 Cancer Marker Improving Faster than IBC Rash Subsides
6...Esophagitis Not Compared in Current PET Test with Prior Report
7...Left Axillary No Evidence Lymphadenopathy
8...Fall Finger Injury Rising Swelling Lymphedema Complications
9...Lymphedema Left Arm Swelling Complications Fall Sprained Left Finger
10...Post Operation Localized Edema Left Axillary Swelling Reduced
11...Right Axillary FDG SUV 2.5 Lump Discomfort Not Reported by Patient
12...Left Supraclavicular Examination PET Test Report Finding SUV 4.5
13...Prognosis Stage IV Metastatic Disease Relapse IBC Seems Likely
14...Lumps in Neck Reported 040309 Establish Stage IV Metastatic Cancer
15...2nd Opinion UCSF Received from Kaiser on Consultation 060821
16...Examination Left Breast IBC Inflammation Red Rash Stable Slow Response
17...IBC Inflammation Left Breast Rash Stable Slow Response to Treatment
18...Response to Treatment Slow IBC Inflammation Left Breast Red Rash Stable
19...Blood Vessels Removed Mastectomy Surgery Slow Response Treatment
20...Slow Response to Treatment Mastectomy Removed Blood Vessels
21...Expectations Recovery Rate Tempered by Mastectomy Surgery
22...Mastectomy Removes Blood Vessels Slows Rate Recovery IBC Relapse
23...Treatment Options Expand Pool of Drugs Biopsy Test for Status Change
24...Biopsy to Determine Biology of IBC and Guide Choice of Treatment
25...Status Change Did Not Occur Retest Biopsy 040419 Treatment Options
26...Treatment Options Limited Status Not Changed by Retest Biopsy 040419
27...CT Image Testing Distant Metastasis and Pulmonary Emboli Scheduled
28...Scheduled CT Image Testing Distant Metastasis and Pulmonary Emboli
29...Distant Metastasis Pulmonary Emboli CT Test Scheduled Assess Risks
30...Emotional Trauma Rising Falling Cancer Symptoms Risks Image Testing
31...Exercise Vigor Strength Engagement Ease Distress Living with Cancer
32...Behavior Medical Specialist (BMS) Emotional Counseling Not Effective
33...Pool Chemotherapy Drugs Available to Treat IBC
34...Work Up Patient Profile Develop Options Strategy Treatment IBC Relapse
35...Strategy Treatment Options Scenarios Planning Patient Work Up Deferred
36...Treatment Continue 4th Cycle Taxotere and Capecitabine (Xeloda)
37...4th Cycle Taxotere and Capecitabine (Xeloda) Treatment Continue
38...Taxotere and Capecitabine (Xeloda) 4th-Cycle Treatment Continue
39...Schedule Treatment Continue Prescription Taxotere Capecitabine Xeloda
40...Tired Breathing Difficulty Routine Activity Signals Pulmonary Emboli
41...Coumadin Treatment Pulmonary Emboli Family History Genetic Cause
42...Pulmonary Emboli Genetic Cause Hypercoabullary Work Up Family History
43...Work Plan Received Communications Doctor/Patient Partnership
44...Communications Doctor Submits Work Plan Doctor/Patient Partnership
45...Doctor/Patient Partnership Communications Doctor Submits Work Plan


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CONTACTS 

SUBJECTS
Meeting Doctor Examination Prepare for 12th Cycle Treatment 3rd Rela

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS D9 0000. ref SDS D2 0000.
040502 -
040503 - Significant drop in CA 15-3 seems conflicting with stable IBC red rash
040504 - on left breast. ref SDS 0 GJ5M  Examination shows continuing slow
040505 - response to treatment. ref SDS 0 FQ6G  The doctor ordered treatment
040506 - with Taxotere and capecitabine (Xeloda) to continue. ref SDS 0 PF3O
040507 - Mastectomy surgery last year removed blood vessels which may be
040508 - preventing delivery of chemotherapy treatment to infected tissue.
040509 - ref SDS 0 T53L  Surgery also removed lympatics which caused lymphedema
040510 - in the left arm.  A few weeks ago Millie was tired and possibly
040511 - disoriented, causing her to fall down.  Injury to a finger on the left
040512 - hand increased lymphedema swelling that was previously under control.
040513 - ref SDS 0 UT8M  Millie reported continuing fatigue, shortness of
040514 - breath, and heaviness in the chest, which are symptoms of chemotherapy
040515 - treatment and loss of fitness due to loss of energy from regular
040516 - cancer treatments. ref SDS 0 B56N  The doctor requested a coagulapathy
040517 - lab study performed on a family member to help assess Millie risks for
040518 - pulmonary embolism recurrence. ref SDS 0 QT6N  The doctor further
040519 - ordered a CT scan test for pulmonary emboli. ref SDS 0 DY5M
040520 -
040521 -       [...in another record today, UCSF 2nd opinion prepared by
040522 -       Doctor Benz is reviewed. ref SDS E3 0001
040524 -        ..
040525 -       [On 061002 CT test positive for pulmonary emboli; Millie must
040526 -       resume treatment previously ended on 051007. ref SDS E5 MI5I
040528 -        ..
040529 -       [On 061012 CT test findings enlarged right ventricle complicate
040530 -       pulmonary embolism. ref SDS E6 7E5L
040532 -        ..
040533 -       [On 061027 Millie hospitalized temperature 102.6, ref SDS F1
040534 -       HP52, severe red rash envelops left arm and shoulder; diagnosis
040535 -       cellulitus complications of lymphedema, reaction to tramua from
040536 -       fall and breaking finger on 060914. ref SDS F1 V759
040537 -
040538 -
040539 -
040540 -
040542 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Agenda Progress Review Assess Work Plan and New Symptoms PE
040902 -
040903 - Follow up ref SDS D9 SM6M, ref SDS D2 SM6M.
040904 -
040905 - This is the 4th review meeting to start the 4th (12th overall)
040906 - treatment with Taxotere and capecitabine (Xeloda) chemotherapy,
040907 - ref SDS E2 407N, since start of recovery on 060711 for 3rd relapse of
040908 - IBC. ref SDS B7 SM6M  It is the 3rd meeting with the primary care
040909 - physician, and the 2nd since he returned from vacation on 060825.
040910 - ref SDS D9 SM6M
040912 -  ..
040913 - There was an innovation today with the primary care physician meeting
040914 - the patient during treatment.  This reduced the overall time at the
040915 - Kaiser facility today by about 50%, from 4 hours to only 2.  After
040916 - treatment was started in the Infusion Clinic, Angela assisted Millie
040917 - walking along with IV equipment connected through the halls to the
040918 - doctor's examination room, as reported in another record. ref SDS E2
040919 - 5I6K  Meeting with the doctor was held while Millie received treatment
040920 - concurrently.
040922 -  ..
040923 - Millie submitted an agenda for the doctor to be prepared.  Prior to
040924 - meeting, Millie listed the agenda on the marking board to guide
040925 - discussions in the examination room...
040926 -
040927 -    1.  CA 15-3 review seems favorable............. ref SDS 0 GJ5M
040928 -    2.  Lymphedema rising broken finger............ ref SDS 0 MW8J
040929 -    3.  PET CT Exam defer.......................... ref SDS 0 EY5O
040930 -    4.  Breast exam IBC relapse diagnosis.......... ref SDS 0 025H
040931 -    5.  UCSF Dr Benz 2nd Opinion trials............ ref SDS 0 025H
040932 -    6.  Treatment plan strategy.................... ref SDS 0 K36G
040934 -  ..
040935 - The doctor scheduled next the meeting in about 5 weeks to start the
040936 - 5th cycle of treatment on October 20, 2006 for recovery from the 3rd
040937 - IBC relapse.
040938 -
040939 -
040940 -
040941 -
040942 -
040943 -
0410 -

SUBJECTS
Vitals Pending Primary Care Physician Not Submitted with Doctor's Pr

0603 -
060401 -  ..
060402 - Vitals Show Stable Medical Condition
060403 -
060404 - Follow up ref SDS D9 KB5L, ref SDS D2 KB5L.
060406 -                           ..
060407 -                          Bld Prssr   Pulse   Temp   Weight  SaO2
060408 -     ..
060409 -    060929 1452............ 141 78     66     98.3
060410 -    060908 1335............ 139 79     73     98.1
060411 -    060814 1610............ 139 80     59     98.2
060412 -    060808.................
060413 -    060711................. 172 87     54     97.5    147
060414 -    060623................. 141 87     71     98.0    147     99%
060415 -    060428................. 129 73     80     99.4    149     99%
060416 -    060217................. 153 81     61     98.6    150     99%
060417 -
060418 -
060419 -
060420 -
060421 -
0605 -

SUBJECTS
CA 15-3 51 Only 12 Above 39 Another Big Drop fromn 87 Improvement In

1603 -
160401 -  ..
160402 - CA 15-3 Cancer Marker 51 Another Significant Drop
160403 -
160404 - Follow up ref SDS D9 087J, ref SDS D2 087J.
160405 -
160406 - There have been two (2) tests since the last meeting on 060825.  The
160407 - test for treatment on 060908 was not available at that time, and was
160408 - received about a week later showing 68.  The more recent test
160409 - yesterday on 060928 for treatment today shows another significant drop
160410 - to 51.
160412 -           ..
160413 -          Test Date                         Date Received
160414 -          060928......... 51 H............. 060929, ref SDS 0 087J
160415 -          060907......... 68 H............. 060929, ref SDS 0 087J
160416 -          060813......... 73 H............. 060817, ref SDS D7 U24M
160417 -          060809......... 87 H............. 060810, ref SDS D5 2N5J
160418 -          060708......... 71 H............. 060711, ref SDS B7 087J
160419 -          060616......... 63 H............. 060623, ref SDS B5 UQ5Q
160420 -          060522......... 59 H............. 060605, ref SDS B0 UQ5Q
160421 -          060501......... 49 H............. 060522, ref SDS A7 MC4F
160422 -          060421......... 44 H............. 060428, ref SDS A0 087J
160423 -          060330......... 40 H............. 060428, ref SDS A0 087J
160424 -          060303......... 36............... 060428, ref SDS A0 087J
160425 -          060210......... 33............... 060217, ref SDS 90 087J
160426 -          060109......... 34............... 060126, ref SDS 89 KV59
160427 -          051223......... 34............... 060106, ref SDS 88 087J
160428 -          051202......... 28............... 060106, ref SDS 88 087J
160429 -          051116......... 31............... 051121, ref SDS 86 087J
160430 -          051109......... 30............... 051121, ref SDS 86 087J
160431 -          051102......... 34............... 051121, ref SDS 86 087J
160432 -          050909......... 45 H............. 051007, ref SDS 79 087J
160433 -          050826......... 45 H............. 050913, ref SDS 73 087J
160434 -          050819......... 45 H............. 050913, ref SDS 73 087J
160435 -          050812......... 39 .............. 050819, ref SDS 66 3K6L
160436 -          050729......... 45 H............. 050819, ref SDS 66 EA5G
160437 -          050708......... 46 H............. 050729, ref SDS 65 087J
160438 -          050701......... 37 .............. 050729, ref SDS 65 087J
160439 -          050617......... 45 H............. 050729, ref SDS 65 087J
160440 -          050527......... 56 H............. 050610, ref SDS 62 087J
160441 -          050512......... 67 H............. 050520, ref SDS 60 087J
160442 -          050506......... 80 H............. 050520, ref SDS 60 087J
160443 -  ..
160444 -          050415.........105 H............. 050422, ref SDS 57 087J
160445 -          050325.........100 H............. 050329, ref SDS 55 087J
160446 -          050318.........101 H............. 050325, ref SDS 54 2N5J
160447 -          050304......... 88 H............. 050311, ref SDS 52 087J
160448 -          050225......... 95 H............. 050308, ref SDS 51 0001
160449 -          050211......... 78 H............. 050214, ref SDS 50 02BB
160450 -          050128......... 67 H............. 050204, ref SDS 49 087J
160451 -          041228......... 56 H............. 041230, ref SDS 48 087J
160452 -          041204......... 43 H............. 041210, ref SDS 47 087J
160453 -          041007......... 39............... 041104, ref SDS 43 087J
160454 -          040923......... 49 H............. 041005, ref SDS 42 087J
160455 -          040908......... 44 H............. 040909, ref SDS 41 087J
160456 -          040825......... 47 H............. 040909, ref SDS 41 087J
160457 -          040811......... 42 H............. 040812, ref SDS 40 087J
160458 -          040728......... 43 H............. 040729, ref SDS 38 2N5J
160459 -          040712......... 47 H............. 040713, ref SDS 37 087J
160460 -          040614......... 55 H............. 040615, ref SDS 36 PX6X
160461 -          040517......... 78 H............. 040601, ref SDS 34 2N5J
160462 -          040311......... 70 H............. 040318, ref SDS 28 SM6M
160463 -          040205......... 60 H............. 040211, ref SDS 26 SM6M
160464 -          031201......... 62 H............. 031205, ref SDS 25 SM6M
160465 -          030912......... 66 H............. 030915, ref SDS 24 SM6M
160466 -          030708......... 68 H............. 030710, ref SDS 23 SM6M
160467 -          030503......... 54 H............. 030508, ref SDS 21 SM6M
160468 -          030403......... 45 H............. 030508, ref SDS 21 SM6M
160469 -          030215......... 46 H............. 030220, ref SDS 20 5E6L
160470 -          030106......... 37 H............. 030109, ref SDS 19 SM6M
160471 -          021202......... 41 H?............ 021204, ref SDS 18 SP5G
160472 -          021111......... 36 H?............ 021113, ref SDS 17 Y65I
160473 -          021023......... 33 H?............ 021023, ref SDS 16 SQ5I
160474 -          020930......... 33 H?..39........ 021002, ref SDS 15 SQ5I
160475 -          020917......... 36 H?............ 020924, ref SDS 14 SQ5I
160476 -          020717......... 59 H?............ 020726, ref SDS 13 YN5K
160477 -          020629......... 75 H ............ 020705, ref SDS 11 UX6I
160478 -          020608........  67 H ............ 020614, ref SDS 9 0001
160479 -          020603........ 108 H ............ 020607, ref SDS 8 X67F
160480 -          020511........ 117 H ............ 020603, ref SDS 7 PJ4J
160481 -          020419......... 81 H ............ 020430, ref SDS 5 7N5H
160482 -          020321......... 85 H ............ 020405, ref SDS 4 6T8K
160483 -
160484 -
160485 -
160486 -
160488 -  ..
1605 -
1606 -
1607 - Analysis
1608 -
160801 - CA 15-3 51 Cancer Marker Improving Faster than IBC Rash Subsides
160802 -
160803 - Follow up ref SDS D9 GJ5M, ref SDS D2 GJ5M.
160804 -
160805 - Consistent fall of CA 15-3 cancer marker since 060817 combined with
160806 - another big drop in the cancer marker today seems inconsistent with
160807 - slow recovery from IBC red rash on left breast cited by the patient in
160808 - a letter to Kaiser on 060922, ref SDS E1 MG6F, and further shown by
160809 - examination today, reported below. ref SDS 0 025H
160811 -  ..
160812 - The doctor feels this supports continuing current treatment.
160813 -
160814 -
160815 -
160816 -
160817 -
160818 -
1609 -

SUBJECTS
Esophagitis Continued Mild Refulx Treated with Tums Meeting Primary

1903 -
190401 -  ..
190402 - Esophagitis Not Compared in Current PET Test with Prior Report
190403 -
190404 - Follow up ref SDS D9 JP6K, ref SDS D2 JP6K.
190405 -
190406 - Background beginning on 060126 when testing reported "likely
190407 - esophagitis" is summarized in the record on 060825, ref SDS D9 JP6K,
190408 - citing the record on 060711 when the doctor deferred further action
190409 - until symptoms increase. ref SDS B7 4R6K
190411 -  ..
190412 - There continue to be mild episodic digestion issues commonly described
190413 - as "heart burn," which is treated with over-the-counter remedies like
190414 - Tums.
190416 -  ..
190417 - There was no discussion of esophagitis today, shown by the doctor's
190418 - record. ref SDS 0 1248
190419 -
190420 -
190421 -
190422 -
190423 -
190424 -
1905 -

SUBJECTS
Left Axillary Lymphadenopathy Patient No Complaint Swelling Discomfo

3003 -
300401 -  ..
300402 - Left Axillary No Evidence Lymphadenopathy
300403 - Fall Finger Injury Rising Swelling Lymphedema Complications
300404 - Lymphedema Left Arm Swelling Complications Fall Sprained Left Finger
300405 - Post Operation Localized Edema Left Axillary Swelling Reduced
300406 -
300407 - Follow up ref SDS D9 MW8J, ref SDS D2 MW8J.
300409 -  ..
300410 - Patient history of left axillary lymphadenopathy and lymphedema is
300411 - reported on 060106. ref SDS 88 S164
300413 -  ..
300414 - Examination today found no evidence of cancer in left axilla.  The
300415 - patient made no complaint of lumps or discomfort from swelling.
300416 - Imaging tests in April and May were reviewed during the meeting on
300417 - 060623, and showed no findings of lymphadenopathy at this time,
300418 - ref SDS B5 MW8J, therefore, suggesting cancer relapse seems primarily
300419 - local.
300421 -  ..
300422 - On 060710 physical therapist found lymphedema has significantly
300423 - improved; Kaiser ended physical therapy, since the patient is making
300424 - good progress with self-care, ref SDS B6 Q05H, further reported during
300425 - the examination on 060711. ref SDS B7 U433
300427 -  ..
300428 - On 060914 Millie fell at the BART station as a result of fatigue, and
300429 - injured the middle finger on her left hand; since this was the side of
300430 - mastectomy surgery on 051021, lymphedema increased causing the left
300431 - arm to swell. ref SDS E0 ZQ5I  Over the next week, swelling increased,
300432 - so on 060922 Millie notified Kaiser of significant swelling.
300433 - ref SDS E1 0D5Y
300435 -  ..
300436 - Examination showed swelling continues throughout the left arm and
300437 - hand.  The doctor feels this is a complication of lymphedema from the
300438 - fall on 060914. ref SDS 0 1248  Below left elbow still measures 11.5
300439 - inches, listed in case study on 060509. ref SDS A5 HO7F
300441 -  ..
300442 - The doctor continued prescription of home therapy and treatment by
300443 - Kaiser's Physicial Therapy clinic, described as "Return to Lymphedema
300444 - Clinic" in the Progress Notes. ref SDS 0 125V
300445 -
300446 -    [On 061016 Millie had her finger examined at Kaiser to assess slow
300447 -    healing from fall on 060914; xrays showed the finger is broken,
300448 -    requiring a cast for a week to facilitate healing. ref SDS E8 IP5I
300450 -     ..
300451 -    [On 061019 orthopedic doctor removed the cast, and prescribed
300452 -    continued exercise to maintain range of motion; prognosis is
300453 -    long slow healing process. ref SDS E9 087I
300455 -     ..
300456 -    [On 061027 Millie hospitalized temperature 102.6, ref SDS F1 HP52,
300457 -    severe red rash envelops left arm and shoulder; diagnosis
300458 -    cellulitus complications of lymphedema, reaction to tramua from
300459 -    fall and breaking finger on 060914. ref SDS F1 V759
300460 -
300461 -
300462 -
300463 -
300464 -
3005 -

SUBJECTS
Right Auxillary Lymphadenopathy Patient No Complaint Swelling Discom

3503 -
350401 -  ..
350402 - Right Axillary FDG SUV 2.5 Lump Discomfort Not Reported by Patient
350403 -
350404 - Follow up ref SDS D9 3D6K, ref SDS D2 3D6K.
350405 -
350406 - Patient history of rising FDG SUV activity by PET testing, reported on
350407 - 060428, ref SDS A0 CZ8L, and no adenopathy found in contrast CT test
350408 - on 060505, as reported on 060523, ref SDS A7 4O8P, which further
350409 - failed to perform contrast study with prior PET test findings,
350410 - ref SDS A6 WT6M, was reviewed during a meeting with the doctor on
350411 - 060623. ref SDS B5 CZ8L
350413 -  ..
350414 - The doctor examined the right axillary and found no evidence of
350415 - swelling.  The patient does not complain of discomfort in this region.
350416 -
350417 -
350418 -
350419 -
350420 -
350421 -
3505 -

SUBJECTS
Left Neck Supraclavicular No Examination Benz 2nd Opinion Finds No E

4303 -
430401 -  ..
430402 - Left Supraclavicular Examination PET Test Report Finding SUV 4.5
430403 - Prognosis Stage IV Metastatic Disease Relapse IBC Seems Likely
430404 - Lumps in Neck Reported 040309 Establish Stage IV Metastatic Cancer
430405 -
430406 - Follow up ref SDS D9 8R6M, ref SDS D2 8R6M.
430407 -
430408 - Background of image testing, and consideration for radiation treatment
430409 - of left supraclivicular is reported on 060623. ref SDS B5 8R6M
430411 -  ..
430412 - Like the left and right axillary, the patient made no complaint of
430413 - swelling or discomfort in the left supraclavicular, consistent with
430414 - image testing reported on 060623, though also noting conflict between
430415 - PET and CT reports. ref SDS B5 8R6M
430417 -  ..
430418 - Examination of left supraclavicular found no evidence of swelling or
430419 - other indication of cancer.
430420 -
430421 -    [On 060929 Doctor Benz 2nd opinion notes that failure of CT test on
430422 -    060505 to report findings in left supraclavicular where PET test
430423 -    finds nodes progressing in size raises concerns, ref SDS E3 WI4I,
430424 -    as related in analysis on 060523. ref SDS A7 4R82
430425 -
430426 -
430427 -
430428 -
4305 -

SUBJECTS
Examination IBC Red Rash Seems Unchanged from 060825 Conflicts 30% D

5703 -
570401 -  ..
570402 - 2nd Opinion UCSF Received from Kaiser on Consultation 060821
570403 - Examination Left Breast IBC Inflammation Red Rash Stable Slow Response
570404 - IBC Inflammation Left Breast Rash Stable Slow Response to Treatment
570405 - Response to Treatment Slow IBC Inflammation Left Breast Red Rash Stable
570406 -
570407 - Follow up ref SDS D9 025H, ref SDS D2 025H.
570408 -
570409 - Background on prior relapse examinations is listed on 060711.
570410 - ref SDS B7 8Y7O
570412 -  ..
570413 - Millie asked the doctor if Kaiser has received the 2nd opinion from
570414 - consultation with Doctor Benz at UCSF on 060821?
570416 -  ..
570417 - The doctor left the room.  He returned in a few minutes and submitted
570418 - a copy of the 2nd opinion from UCSF following up the meeting with
570419 - Doctor Benz on 060821. ref SDS D8 0001  For some reason UCSF failed to
570420 - submit the report to the patient, who ordered the work on 060725,
570421 - ref SDS C6 ST9O, and later paid for the work.  Additionally, the
570422 - patient expedited UCSF's support on 060809, ref SDS D4 YK6N, and
570423 - further facilitated handling of patient history to save time and money
570424 - and increase the quality of UCSF's work, also reported on 060809.
570425 - ref SDS D4 I73H
570426 -
570427 -        [...in another record today, UCSF 2nd opinion prepared by
570428 -        Doctor Benz is reviewed. ref SDS E3 0001
570430 -  ..
570431 - Today, the doctor looked briefly at the red rash on the left breast
570432 - area, and noted stable to somewhat improved conditions with red rash
570433 - possibly slightly less or slightly more spread out.  Without
570434 - measurements this issue is indeterminate, because of slow change in
570435 - the spread and severity of the rash.
570436 -
570437 -        [...below, doctor's progress notes describe "decreasing
570438 -        lesions. ref SDS 0 ZL5W
570440 -  ..
570441 - Observation indicates IBC rash seems stable relative to the #2
570442 - scenario framework reported on 060825. ref SDS D9 8Z8G
570444 -  ..
570445 - There is little change since the prior examination by the primary care
570446 - physician on 060825 citing worsening of IBC since 060711, then some
570447 - improvement. ref SDS D9 025H  The 2nd opinion from UCSF received today
570448 - from Kaiser describes conditions found on 060821 by Doctor Benz,
570449 - ref SDS D8 KR6I, and represents current progress, with some minor
570450 - improvement or worsening, i.e., essentially stable after two more
570451 - treatments. ref SDS E3 WQ8V
570453 -  ..
570454 - The doctor feels today that CA 15-3 at 51, 30% drop from examination
570455 - on 060825, per above, ref SDS 0 087J, may not be fully represented as
570456 - yet by slow recovery from IBC rash on the left breast.
570457 -
570458 -        [On 060929 Benz 2nd opinion finds red rash on left breast area
570459 -        previously found by biopsy on 040419 to be IBC, and later found
570460 -        clear of IBC disease by biopsy on 051021 is not established as
570461 -        recurrent IBC by biopsy this year in 2006, ref SDS E3 WY79;
570462 -        caution presented in the Benz examination resisting association
570463 -        of red rash lesions and inflammation on the left breast area
570464 -        with IBC disease, and in relation to rising CA 15-3 cancer
570465 -        marker, doctor indicates there may be wide spread distant
570466 -        metastasis too small for recognition by image testing and
570467 -        currently being treated systemcially with chemotherapy.
570468 -        ref SDS E3 WQ8V
570470 -         ..
570471 -        [On 061110 doctor reports IBC rash on left breast area is
570472 -        "stable," ref SDS F5 ZL5W, indicating recovery is very slow,
570473 -        because on 051021 blood vessels were removed from the treatment
570474 -        area by mastectomy surgery, per analysis of expectations in the
570475 -        record today. 060929. ref SDS 0 EH3F
570477 -  ..
570478 - Mastectomy surgery effect on slow response to treatment is reviewed
570479 - below. ref SDS 0 EH3F
570481 -  ..
570482 - Review on 060922 indicates that evident slow response to treatment for
570483 - IBC relapse of red rash on the left breast area may be misleading, and
570484 - that recovery this year could actually be ahead of recovery in 2005.
570485 - ref SDS E1 0D4T
570487 -  ..
570488 - The doctor ordered a CT test to evaluate distant metastasis, as
570489 - reported below discussing the 2nd opinion from UCSF, ref SDS 0 J44G,
570490 - and further to investigate pulmonary emboli, also, reported below.
570491 - ref SDS 0 CV5L
570492 -
570493 -        [On 061012 CT test results show no evidence of distant
570494 -        metastatis and make no findings of any kind for cancer.
570495 -        ref SDS E6 2967
570497 -         ..
570498 -        [On 061020 meeting with doctor at Kaiser, primary care
570499 -        physician seems to concur that CT test on 060930 shows no
570500 -        evidence of cancer. ref SDS F0 YQ6I
570501 -
570502 -
570503 -
570504 -
570505 -
570506 -
5706 -

SUBJECTS
Mastectomy Removes Blood Vessels Slows Rate Recovery IBC Relapse Exp

6303 -
630401 -  ..
630402 - Blood Vessels Removed Mastectomy Surgery Slow Response Treatment
630403 - Slow Response to Treatment Mastectomy Removed Blood Vessels
630404 - Expectations Recovery Rate Tempered by Mastectomy Surgery
630405 - Mastectomy Removes Blood Vessels Slows Rate Recovery IBC Relapse
630406 -
630407 - Follow up ref SDS D9 G57I, ref SDS D8 NN3H.
630408 -
630409 - Background of mastectomy surgery performed on 051021 with impacts on
630410 - expectations for recovery from IBC red rash is reported on 060825,
630411 - ref SDS D9 G57I, citing a case study on 041210 considering mastectomy
630412 - surgery for Millie, ref SDS 47 657F, including 2nd opinion review on
630413 - 060821. ref SDS D8 NN3H
630415 -  ..
630416 - A letter to the doctor on 060922 cites slower recovery from IBC rash
630417 - with the same treatment used in 2005. ref SDS E1 MG6F  Subsequent
630418 - analysis develops factors that contribute to slower response to
630419 - treatment. ref SDS E1 9E6L
630421 -  ..
630422 - Mastectomy surgery on 051021 removed blood vessels and capillaries
630423 - from the breast area.  Review on 060922 reviewed impact on slow
630424 - response to treatment based on 2nd opinions. ref SDS E1 ML3I
630426 -  ..
630427 - Analysis of Doctor Smith' report received from the primary care
630428 - physician on 051007, ref SDS 79 KO49, and supported by Doctor Bailey a
630429 - few days later on 051011, explaining that loss of blood vessels with
630430 - removal of the breast could reduce effectiveness of treatment for
630431 - future IBC relapse, ref SDS 80 G65S, may account for disparity in
630432 - large decline of CA 15-3 cancer marker, and slower decline of IBC red
630433 - rash on the left chest wall, noted by examination today, per above.
630434 - ref SDS 0 FQ6G
630435 -
630436 -        [On 061020 sudden rise CA 15-3 cancer marker and stable to
630437 -        worsening IBC red rash left breast area may indicated that
630438 -        effectiveness of treatment has expired under scenario #2
630439 -        reviewed on 060808, ref SDS D2 HT5K, or that treatment is not
630440 -        being delivered because mastectomy surgery removed blood
630441 -        vessels. ref SDS F0 EH3F
630443 -         ..
630444 -        [On 061110 doctor reports IBC rash on left breast area is
630445 -        "stable," ref SDS F5 ZL5W, indicating recovery is very slow,
630446 -        because on 051021 blood vessels were removed from the treatment
630447 -        area by mastectomy surgery, per analysis today of expectations,
630448 -        shown here. ref SDS 0 EH3F
630449 -
630450 -
630451 -
630452 -
630453 -
630454 -
6305 -

SUBJECTS
Status Change Biopsy Tissue IBC Recurrence Update Biopsy 040419 for

6803 -
680401 -  ..
680402 - Treatment Options Expand Pool of Drugs Biopsy Test for Status Change
680403 - Biopsy to Determine Biology of IBC and Guide Choice of Treatment
680404 - Status Change Did Not Occur Retest Biopsy 040419 Treatment Options
680405 - Treatment Options Limited Status Not Changed by Retest Biopsy 040419
680406 -
680407 - Follow up ref SDS D9 KT7J, ref SDS D2 KT7J.
680408 -
680409 - Can a biopsy contribute to patient work up for developing a strategy
680410 - and treatment plan, discussed on 060711? ref SDS B7 K36G
680412 -  ..
680413 - Alternate theories on changes in patient status are listed in the
680414 - record of the meeting on 060808, ref SDS D2 J16O, and were not further
680415 - reviewed today.
680417 -  ..
680418 - Considerations for biopsy to verify IBC disease, check for status
680419 - change to expand pool of treatment drug agents, and to qualify for
680420 - drug trials, and based on 2nd opinions from Doctor Grissom, and Doctor
680421 - Benz at UCSF were reviewed recently with Kaiser during a meeting on
680422 - 060825. ref SDS D9 KT7J
680423 -
680424 -        [On 060929 Benz 2nd opinion finds red rash on left breast area
680425 -        previously found by biopsy on 040419 to be IBC, and later found
680426 -        clear of IBC disease by biopsy on 051021 is not established as
680427 -        recurrent IBC by biopsy this year in 2006, ref SDS E3 WY79;
680428 -        caution presented in the Benz examination resisting association
680429 -        of red rash lesions and inflammation on the left breast area
680430 -        with IBC disease, and in relation to rising CA 15-3 cancer
680431 -        marker, doctor indicates there may be wide spread distant
680432 -        metastasis too small for recognition by image testing and
680433 -        currently being treated systemcially with chemotherapy.
680434 -        ref SDS E3 WQ8V
680436 -  ..
680437 - There was no further work on these issues today.
680438 -
680439 -
680440 -
680441 -
680442 -
6805 -

SUBJECTS
IBC Image Tests CT Scan Scheduled Investigate Symptoms Pulmonary Emb

7303 -
730401 -  ..
730402 - CT Image Testing Distant Metastasis and Pulmonary Emboli Scheduled
730403 - Scheduled CT Image Testing Distant Metastasis and Pulmonary Emboli
730404 - Distant Metastasis Pulmonary Emboli CT Test Scheduled Assess Risks
730405 -
730406 - Follow up ref SDS D9 EY5O, ref SDS D2 EY5O.
730407 -
730408 - Patient history of image tests following surgery on 051021 have not
730409 - identified cancer, as reported in the CT test reviewed with the doctor
730410 - on 060623. ref SDS B5 II4L  In fact, PET scan and CT imaging tests
730411 - listed on 060711, ref SDS B7 FE8F, have never reported distant
730412 - metastasis.
730414 -  ..
730415 - Following mastectomy surgery on 051021, the primary care physician
730416 - planned to assess patient NED status with CA 15-3 blood tests every 2
730417 - weeks complemented by image testing every 3 months, reported on
730418 - 051121. ref SDS 86 NL4N  Recently, on 060802 a 2nd opinion by Doctor
730419 - Grissom, who helped guide Millie's surgery on 051021, proposed another
730420 - PET scan test for distant metastasis in light of rising IBC symptoms,
730421 - including CA 15-3 rising for the past 6 months. ref SDS C8 IT8U  The
730422 - last PET scan test was on 060414.  Quarterly testing calls for a test
730423 - in July.  Since a contrast CT test was done on 060505 (received on
730424 - 060523, ref SDS A7 E355), adjusting for this date would make August an
730425 - appropriate time for another image test within the diagnostic plan
730426 - schedule.
730428 -  ..
730429 - UCSF 2nd opinion received today indicates disease is likely
730430 - progressing slowly based on rising CA 15-3 and no firm evidence of IBC
730431 - relapse, reported in another record today. ref SDS E3 WQ8V
730433 -  ..
730434 - As a result, the doctor ordered a CT test today to assess distant
730435 - metastasis since the test on 060505, and it will also test for
730436 - pulmonary emboli.  Based on growing concerns, reported below,
730437 - ref SDS 0 B56N, the doctor ordered a comparison with the prior test on
730438 - 041103 that first identified pulmomary embolism. ref SDS 0 DY5M
730439 -
730440 -
730441 -
730442 -
730443 -
730444 -
730445 -
730446 -
730447 -
7305 -

SUBJECTS
Emotional Trauma Rises Pulmonary Emboli Symptoms Rise Failure Invest

7803 -
780401 -  ..
780402 - Emotional Trauma Rising Falling Cancer Symptoms Risks Image Testing
780403 - Exercise Vigor Strength Engagement Ease Distress Living with Cancer
780404 - Behavior Medical Specialist (BMS) Emotional Counseling Not Effective
780405 -
780406 - Follow up ref SDS D9 Y642, ref SDS D2 Y642.
780407 -
780408 - Recent fall due to fatigue on 060914, ref SDS E0 ZQ5I, and rise of
780409 - other symptoms for pulmonary emboli, reported below, ref SDS 0 CV5L,
780410 - report of family member recurrence, and challenge of timely
780411 - investigation shown by research on 060722, ref SDS C2 346F, and
780412 - patient history, reported on 060825, ref SDS D9 9W4L, and together
780413 - with slow recovery from IBC compared to prior experience, per above,
780414 - ref SDS 0 TV7L, along with prospects that mastectomy surgery may have
780415 - diminished response to treatment, per below, ref SDS 0 EH3F, all
780416 - present emotional waves of growing concern.
780418 -  ..
780419 - Current plan to restore testing regimen, ref SDS 0 J446, and
780420 - investigate PE symptoms, ref SDS 0 QT6N, help restore emotional
780421 - equilibrium.
780422 -
780423 -
780424 -
7805 -

SUBJECTS
Strategy Treatment Plan IBC 3rd Relapse Scope Strategy Options Plann

8303 -
830401 -  ..
830402 - Pool Chemotherapy Drugs Available to Treat IBC
830403 - Work Up Patient Profile Develop Options Strategy Treatment IBC Relapse
830404 - Strategy Treatment Options Scenarios Planning Patient Work Up Deferred
830405 -
830406 - Follow up ref SDS D9 K36G, ref SDS D2 K36G.
830407 -
830408 - Background on requirements and challenge performing planning and
830409 - proactive management, including Tumor Board support, in time for
830410 - action to be effective is reported on 060825. ref SDS D9 K36G
830411 -
830412 -
830413 -
830414 -
830415 -
830416 -
8305 -

SUBJECTS
Treatment IBC 5th Relapse Continue Chemotherapy Agents Taxotere Cape

8803 -
880401 -  ..
880402 - Treatment Continue 4th Cycle Taxotere and Capecitabine (Xeloda)
880403 - 4th Cycle Taxotere and Capecitabine (Xeloda) Treatment Continue
880404 - Taxotere and Capecitabine (Xeloda) 4th-Cycle Treatment Continue
880405 -
880406 - Follow up ref SDS D9 PF3O, ref SDS D2 PF3O.
880407 -
880408 - The doctor proposed continuing current treatment, and ordered two
880409 - more cycles of Taxotere and capecitabine (Xeloda).
880410 -
880411 -
880412 -
880413 -
8805 -

SUBJECTS
Schedule Treatment 061020 on Friday for 5th Cycle Taxotere Capecitab

9003 -
900401 -  ..
900402 - Schedule Treatment Continue Prescription Taxotere Capecitabine Xeloda
900403 -
900404 - Follow up ref SDS D9 N96O, ref SDS D2 N96O.
900405 -
900406 - The doctor scheduled the next meeting for 061020, after chemotherapy
900407 - treatment.
900408 -
900409 -
900410 -
900411 -
9005 -

SUBJECTS
Pulmonary Emboli Blood Clots Lungs Rising Symptoms Fatigue Normal Ac

9503 -
950401 -  ..
950402 - Tired Breathing Difficulty Routine Activity Signals Pulmonary Emboli
950403 - Coumadin Treatment Pulmonary Emboli Family History Genetic Cause
950404 - Pulmonary Emboli Genetic Cause Hypercoabullary Work Up Family History
950405 -
950406 - Follow up ref SDS D9 CV5L, ref SDS D2 CV5L.
950407 -
950408 - On 060711 chemotherapy treatment was reviewed in connection with
950409 - patient history of blood clots, ref SDS B7 S33L, first reported in a
950410 - CT test received on 041104, while being treated with Avastin
950411 - chemotherapy drugs. ref SDS 43 RZ4I  Millie was treated with Coumadin
950412 - until 051121; at that time, she was removed from Coumadin treatment,
950413 - ref SDS 86 RZ4I, because treatments with Avastin were ended, presented
950414 - earlier on 051007. ref SDS 79 XN7K
950416 -  ..
950417 - The doctor further proposed on 051121 that hypercoagulable state work
950418 - up recommended in Doctor Bailey's 2nd opinion is not helpful, because
950419 - pulmonary emboli was associated with the Avastin drug trial for breast
950420 - cancer. ref SDS 86 GW7G
950422 -  ..
950423 - On 060724 Kaiser was notified of a current medical study that found
950424 - genetic disposition for blood clot problems, ref SDS C5 NL5Q, when a
950425 - family member was treated for recurrence of pulmonary emboli from two
950426 - (2) years earlier. reported on 060722. ref SDS C2 3D9T, The doctor has
950427 - not previously commented on updated family history in relation to
950428 - Millie's high risk for pulmonary emboli, reviewed on 060722,
950429 - ref SDS C2 6G6O, and as shown by the doctor's Progress notes in the
950430 - record on 060825.
950432 -  ..
950433 - Today, Millie reported being tired the past week or so.  Normally,
950434 - after the first week of treatment with Taxotere and capecitabine
950435 - (Xeloda), energy begins to rise, and is normal by the 3rd week.
950436 - Earlier today, Millie expected treatment would be delayed by low blood
950437 - counts because she has been unusually tired all week.  She was
950438 - surprised to learn blood counts are actually high today. ref SDS E2
950439 - P560 ref SDS E2 QU8K
950441 -        ..
950442 -       [On 061012 CT test report received; confirms pulmonary embolism
950443 -       recurrence, reconciles pattern of symptoms, ref SDS E6 N26L;
950444 -       current conditions seem less severe than PE on 041103,
950445 -       ref SDS E6 7E7G, except new finding of enlarged right ventricle
950446 -       presents new problem of heart disorder. ref SDS E6 7E5L
950448 -  ..
950449 - Millie also advised that she has been increasingly fatigued walking
950450 - two (2) blocks from the BART station at Market and Davis to her office
950451 - at Embarcadero Two in San Francisco.  She has difficulty breathing
950452 - climbing the stairs at BART and at home.  The fall suffered at BART on
950453 - 060914 occurred from tiring quickly with normal effort, discussed
950454 - above as causing complications of lymphedema. ref SDS 0 UT8M  Last
950455 - year, on 050729, the doctor attributed these symptoms to loss of
950456 - fitness from lack of exercise while on chemotherapy for a year.
950457 - ref SDS 65 JP9J  At that time, pulmonary emboli was not evaluated
950458 - because Millie was already being treated with Coumadin. ref SDS 65
950459 - RZ4I
950460 -
950461 -       [On 061002 primary care physician leaves message that CT test is
950462 -       positive for pulmonary emboli; Millie must resume treatment
950463 -       previously ended on 051007. ref SDS E5 MI5I
950465 -        ..
950466 -       [On 061012 review of CT test discloses findings of enlarged
950467 -       right ventricle that complicates pulmonary embolism. ref SDS E6
950468 -       7E5L
950470 -        ..
950471 -       [On 061020 symptoms may have reduced, but continue. ref SDS F0
950472 -       VD4G
950474 -        ..
950475 -       [On 061108 Millie cough, clearing throat PE symptoms more
950476 -       prominent; chronic fatigue continues. ref SDS F4 VR6F
950478 -  ..
950479 - The doctor indicated that notice to Kaiser on 060724 of a first-degree
950480 - relative suffering recurrent pulmonary emboli, ref SDS C5 NL5Q, should
950481 - be reviewed to assess Millie's risks for recurrence, listed on 060722,
950482 - ref SDS C2 6G6O, and consequent urgency for proactive management,
950483 - including resuming treatments, in light of research on 060722 showing
950484 - that 45% of recurrent pulmonary emboli patients die. ref SDS C2 BI5J
950486 -  ..
950487 - The doctor asked Millie to request the hypercoagulable state work up
950488 - that shows a DNA inherited or acquired increased genetic risk for
950489 - pulmonary emboli, as cited in the Progress Notes today describing a
950490 - "coagulapathy" lab report prepared by the other doctor. ref SDS 0 125V
950491 -
950492 -    [On 061102 coagulapathy report received; indicates possible
950493 -    grounds for finding Millie has increased genetic risk for blood
950494 -    clots, which includes pulmonary embolism. ref SDS F2 KJ3H
950496 -     ..
950497 -    [On 061110 primary care physician received the coagulapathy
950498 -    report on first-degree relative submitted today on 061103,
950499 -    ref SDS F3 VR6F; the paragraph on risks and follow up to
950500 -    treat pulmonary emboli, ref SDS F3 N18S, was highlighted in
950501 -    the doctor's printed version, ref SDS E4 N18S; the doctor
950502 -    advised that the report shows positive findings for
950503 -    acquired rather than inherited DNA genetic risk for blood
950504 -    clots, and in this case pulmonary emboli, ref SDS E4 626L;
950505 -    the doctor recommended against further measures to evaluate
950506 -    patient profile, including defer hypercoagulable state work
950507 -    up, and indicated no adjustments required in diagnosis and
950508 -    treatment. ref SDS E4 JT6N
950510 -  ..
950511 - Millie asked about getting a CT test to evaluate pulmonary emboli and
950512 - distant metastatis, per planning on 051121 for quarterly testing
950513 - following up mastectomy surgery. ref SDS 86 FV6L
950515 -  ..
950516 - The doctor asked when image testing was last performed?
950518 -  ..
950519 - Millie recalled the last CT test was on 060505, and reported in the
950520 - record on 060523, ref SDS A7 4O60, and was ordered by the doctor on
950521 - 060428 for a contrast study recommended by the PET scan test on
950522 - 060414, and reviewed on 060428. ref SDS 99 MU5M
950524 -  ..
950525 - The doctor calculated that ordering another CT test today would be
950526 - about 5 months after the last one.  He therefore ordered another test.
950528 -  ..
950529 - The doctor asked when the CT test was performed that originally
950530 - diagnosed pulmonary emboli several years ago?  He wants the test and
950531 - the analyst to compare the location where pulmonary emboli was first
950532 - found, similar to the contrast study recommended by the PET scan
950533 - analyst for the CT contrast study proposed on 060428. ref SDS 99 MU5M
950534 - The doctor explained that earlier image testing could have missed
950535 - pulmonary emboli because attention was focused on cancer locations in
950536 - the axilla, supraclavicular, and left chest areas.  By specifying
950537 - where to test, there is a better chance to avoid overlooking problems,
950538 - as occurred previously on 060523. ref SDS A7 006P
950540 -  ..
950541 - Millie advised that patient history shows pulmonary emboli was
950542 - diagnosed in a CT test on 041103 received from the backup doctor the
950543 - next day on 041104. ref SDS 43 RZ4I
950545 -  ..
950546 - The doctor entered this date of 041103 in the order for a CT test to
950547 - evaluate whether pulmonary emboli has relapsed.  Review on 060722
950548 - indicates that in 2004 studies show that 10% of pulmonary emboli
950549 - patients suffer recurrence, and that 45% of patients who recur for
950550 - pulmonary emboli die. ref SDS C2 BI5J
950552 -  ..
950553 - The doctor said the CT test should be in the next 10 days or so, and
950554 - the results should be available for the next meeting on 061020.
950555 -
950556 -       [On 040930 Kaiser called and scheduled CT test the same day.
950557 -       ref SDS E4 MI5I
950558 -
950559 -       [On 061002 primary care physician leaves message that CT test is
950560 -       positive for pulmonary emboli; Millie must resume treatment
950561 -       previously ended on 051007. ref SDS E5 MI5I
950563 -        ..
950564 -       [On 061012 CT test report received; analyst failed to perform
950565 -       comparison with prior test on 041103 that discovered pulmonary
950566 -       embolism. ref SDS E6 M431
950568 -        ..
950569 -       [On 061013 letter to Kaiser asks how to get comparison
950570 -       ordered by the doctor for effective trend analysis.
950571 -       ref SDS E7 I75V
950573 -        ..
950574 -       [On 061020 primary care physician did not have time to make
950575 -       comparison during examination. ref SDS F0 N96N and further
950576 -       reported in discussion of pulmonary embolism. ref SDS F0 UQ5G
950578 -        ..
950579 -       [On 061020 symptoms may have reduced, but continue. ref SDS F0
950580 -       VD4G
950582 -        ..
950583 -       [On 061108 Millie cough, clearing throat symptoms more
950584 -       prominent; chronic fatigue continues. ref SDS F4 VR6F
950585 -
950586 -
950587 -
950588 -
9506 -

SUBJECTS
Work Plan Doctor Submits Doctor/Patient Partnership Communications I

A003 -
A00401 -  ..
A00402 - Work Plan Received Communications Doctor/Patient Partnership
A00403 - Communications Doctor Submits Work Plan Doctor/Patient Partnership
A00404 - Doctor/Patient Partnership Communications Doctor Submits Work Plan
A00405 -
A00406 - Follow up ref SDS D9 FE4I, ref SDS D2 FE4I.
A00408 -  ..
A00409 - The doctor did not mention during the meeting nor in Progress Notes
A00410 - for the medical chart the patient's letter submitted on 060922,
A00411 - ref SDS E1 0001, giving notice of change in patient status to guide
A00412 - being prepared for the meeting, per above. ref SDS 0 UT8M
A00414 -  ..
A00415 - Progress continues toward good management using the doctor patient
A00416 - partnership for timely review of patient history, called out in
A00417 - Kaiser's Healthwise Handbook, reviewed on 990625, ref SDS 2 TD5S, and
A00418 - recently reported on 060106. ref SDS 88 FE4I
A00419 -
A00420 -    1.  09/29/2006     15:00 PM
A00421 -
A00422 -            Wcr-ONnc2 > Main Campus
A00425 -         ..
A00426 -    2.  Your primary care clinician is listed as...
A00427 -
A00429 -
A00664 -
A00665 -
A00666 -
A00667 -
A00668 -
A00669 -
A00670 -
A007 -






































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