THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 23, 2006 12:00 PM Friday; Rod Welch

Millie meeting at Kaiser evaluate cancer relapse rising CA 15-3.

1...Summary/Objective
2...Agenda Develop Work Plan Stage IV Breast Cancer 8 Mos after Mastectomy
3...Vitals Show Stable Medical Condition
4...CA 15-3 Cancer Marker 63 Rise from 44 Past 8 Weeks
5...CA 15-3 63 Cancer Marker Signals Relapse Rises Above Target Level 39
6...Blood Tests Reports Pending from Kaiser Patient Requested on 060615
7...PET Scan Test Findings FDG Right Axilla Left Supraclavicular
8...CT and PET Scan Testing Shows Patient No Evidence Metastatic Disease
9...NED CT Image Test Conflicts Examination Finding IBC Relapse
10...CT Contrast Study FDG Right Axillary Left Supraclavicular Pending
11...Esophagitis Not Compared in Current CT Test with Prior PET Test Report
12...Cancer Treatment Delayed Pending Xray Verify Pneumonia Recovery
13...Penumonia Recovery Verified by Xray to Enable Start Cancer Treatment
14...Right Axillary FDG SUV 2.5 Rises from 1.9 Examination Finds No Lump
15...Lymphedema Left Arm Lump Under Arm Diagnosis Not Cancer
16...Post Operation Localized Edema Left Axillary Swelling Reduced
17...Dental Care Limitations for Lymphedema Check with Physical Therapist
18...Radiation Treatment Cancer Relapse Left Supraclavicular and IBC
19...Left Supraclavicular Examination PET Test Report Finding SUV 4.5
20...Prognosis Stage IV Metastatic Disease Relapse IBC Seems Likely
21...Lumps in Neck Reported 040309 Establish Stage IV Metastatic Cancer
22...Cancer Metastatic Disease Evident Inflammation Left Breast
23...Diagnosis IBC Relapse Left Breast at Mastectomy Incision Wound
24...Examination Left Breast IBC Inflammation Mastectomy Incision Wound
25...IBC Inflammation Left Breast Incision for Mastectomy Surgery on 051021
26...Emotional Trauma Eased by Engagement with Work Family and Exercise
27...Exercise Vigor Strength Engagement Ease Distress Living with Cancer
28...Behavior Medical Specialist (BMS) Emotional Counseling Not Effective
29...MRI Head Ordered Evaluate Caner in Light of Rising CA 15-3
30...Dizziness Occurs Occasionally Treatment Ordered by HEENT Cerumen Plug
31...Treatment Deferred to Verify Recovery from Pneumonia
32...Treatment Holiday Ends IBC Relapse Planning Treatment
33...Holiday Treatment Ends IBC Relapse Rising Red Rash Test Ordered
34...Treatment Options for Relapse Navelbine Capecitabine Taxotere
35...Navelbine Capecitabine Taxotere Treatment Options for Relapse
36...Radiation Treatment Left Supraclavicular Per Tumor Board
37...Port Catheter Flush Performed at Kaiser to Maintain Chemo Treatment
38...Status Change Retest Biopsy 040419 Treatment Options
39...Treatment Options Status Change Retest Biopsy 040419
40...Disability Recovery from Cancer Millie Returning to Work
41...Work Plan Doctor Submits Doctor/Patient Partnership Communications
42...Communications Doctor Submits Work Plan Doctor/Patient Partnership
43...Doctor/Patient Partnership Communications Doctor Submits Work Plan


..............
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CONTACTS 

SUBJECTS
Meeting Doctor Examine Red Rash Possibility IBC Relapse After Mastec

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 82 0000. ref SDS 72 0000.
040502 -
040503 - Red rash on left breast indicates likely IBC relapse, ref SDS 0 025H,
040504 - reconciles rising CA 15-3. ref SDS 0 GJ5M  Treatment of cancer
040505 - deferred to verify recovery from pneumonia. ref SDS 0 TV5G  Concurrent
040506 - treatment of red rash with Lamisil in case problem is not IBC.
040507 - ref SDS 0 FO5O  MRI on head ordered to evaluate continuing dizziness
040508 - symptoms. ref SDS 0 PT4K  Esophagitis not treated; symptoms still
040509 - mild. ref SDS 0 I36N
040510 -
040511 -
040512 -
040513 -
040514 -
040515 -
040517 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Agenda Develop Work Plan Stage IV Breast Cancer 8 Mos after Mastectomy
040902 -
040903 - Follow up ref SDS 82 SM6M, ref SDS 72 SM6M.
040904 -
040905 - Meeting scheduled for 1200 began at 1300 due to doctor's heavy
040906 - schedule.
040908 -  ..
040909 - Millie's daughter Pam attended the meeting today.
040911 -  ..
040912 - Prior to meeting with the doctor the nurse asked Millie to sign a
040913 - Kaiser form 90258 (REV 5-04) HIPPA Compliant Athorization for Use and
040914 - or Dislosure of Member/Patient Health Information.  She listed Rod and
040915 - Pam.
040917 -  ..
040918 - This is the 5th review meeting with primary care physician following
040919 - mastectomy surgery on 051021, ref SDS 64 0001, and following post op
040920 - examination by the surgeon on 051027 when Millie's status was reported
040921 - "no evidence of disease (NED)". ref SDS 5 M58G  Recently, on 060607
040922 - the doctor raised prospect of planning for treatment of relapse.
040923 - ref SDS 92 D56U
040925 -  ..
040926 - Millie submitted the agenda prior to the meeting so the doctor could
040927 - be prepare.  Prior to the meeting, Millie listed the agenda on the
040928 - marking board in the examination room to guide discussions...
040929 -
040930 -    1.  CA 15-3 cancer marker report............... ref SDS 0 GJ5M
040931 -    2.  PET test review............................ ref SDS 0 NL4N
040932 -    3.  CT contrast study with PET test............ ref SDS 0 II4L
040933 -    4.  Esophagitis................................ ref SDS 0 DH4O
040934 -    5.  Pneumonia recovered........................ ref SDS 0 TV5G
040935 -    6.  Lump under right arm....................... ref SDS 0 II4L
040936 -    7.  Lymphedema improving with treatment........ ref SDS 0 MW8J
040937 -    8.  Breast exam new IBC inflamation??.......... ref SDS 0 025H
040938 -    9.  Dizziness.................................. ref SDS 0 PT4K
040939 -   10.  Treatment plan............................. ref SDS 0 AW5G
040940 -   11.  Status change treatment options............ ref SDS 0 ZR6J
040942 -  ..
040943 - Scheduled next meeting in 2 weeks on July 11, 2006
040944 -
040945 -
040946 -
040947 -
040948 -
040949 -
0410 -

SUBJECTS
Vitals Show Stable Medical Condition Meeting Primary Care Physician

0603 -
060401 -  ..
060402 - Vitals Show Stable Medical Condition
060403 -
060404 - Follow up ref SDS 82 KB5L, ref SDS 72 KB5L.
060406 -                           ..
060407 -                          Bld Prssr   Pulse   Temp   Weight  SaO2
060408 -     ..
060409 -    060623................. 141 87     71     98.0    147     99%
060410 -    060428................. 129 73     80     99.4    149     99%
060411 -    060217................. 153 81     61     98.6    150     99%
060412 -
060413 - ...per Doctor's report, shown below. ref SDS 0 JQ4J
060414 -
060415 -
060416 -
060417 -
060418 -
060419 -
0605 -

SUBJECTS
CA 15-3 63 and 24 Above 39 Signals Relapse IBC Growing Red Rash and

1603 -
160401 -  ..
160402 - CA 15-3 Cancer Marker 63 Rise from 44 Past 8 Weeks
160403 -
160404 - Follow up ref SDS 82 087J, ref SDS 72 087J.
160405 -
160406 - The most recent blood test on 060616 shows CA 15-3 now at 63 continues
160407 - rising; since dropping to 28 on 051202 there has been accelerated rise
160408 - until 060522, then slightly reduced rate of increase.  The test report
160409 - received today shows...
160411 -           ..
160412 -          Test Date                         Date Received
160413 -          060616......... 63 H............. 060623, ref SDS 0 UQ5Q
160414 -          060522......... 59 H............. 060605, ref SDS 91 UQ5Q
160415 -          060501......... 49 H............. 060522, ref SDS 88 MC4F
160416 -          060421......... 44 H............. 060428, ref SDS 82 087J
160417 -          060330......... 40 H............. 060428, ref SDS 82 087J
160418 -          060303......... 36............... 060428, ref SDS 82 087J
160419 -          060210......... 33............... 060217, ref SDS 10 087J
160420 -          060109......... 34............... 060126, ref SDS 9 KV59
160421 -          051223......... 34............... 060106, ref SDS 8 087J
160422 -          051202......... 28............... 060106, ref SDS 8 087J
160423 -          051116......... 31............... 051121, ref SDS 7 087J
160424 -          051109......... 30............... 051121, ref SDS 7 087J
160425 -          051102......... 34............... 051121, ref SDS 7 087J
160478 -
160479 -
160481 -  ..
1605 -
1606 -
1607 - Analysis
1608 -
160801 - CA 15-3 63 Cancer Marker Signals Relapse Rises Above Target Level 39
160802 -
160803 - Follow up ref SDS 82 GJ5M, ref SDS 72 GJ5M.
160804 -
160805 - Red rash on left breast at mastectomy incision may indicate IBC
160806 - relapse, per below. ref SDS 0 025H
160808 -  ..
160809 - The most recent CA 15-3 test on 060616 rose slightly from 59, and is
160810 - now 63, well above the cancer signal level of 39, and 19 points higher
160811 - than reported in the meeting on 060428. ref SDS 82 KV59
160813 -  ..
160814 - Examination shows evidence of IBC relapse left breast metastatic
160815 - disease, ref SDS 0 025H, consistent with rising CA 15-3. ref SDS 0
160816 - KV59  Image testing indicates no evidence of distant metastasis,
160817 - reported during the meeting on 060428, ref SDS 81 OW9N, and supported
160818 - by subsequent contrast CT test study, reported today, per below.
160819 - ref SDS 0 II4L
160820 -
160821 -
160822 -
160823 -
160824 -
160825 -
160826 -
160827 -
1609 -

SUBJECTS
Blood Tests on 060109 All Normal 1st Time 4 Years No Evidence Relaps

1803 -
180401 -  ..
180402 - Blood Tests Reports Pending from Kaiser Patient Requested on 060615
180403 -
180404 - Follow up ref SDS 82 SZ9L, ref SDS 72 SZ9L.
180405 -
180406 - There were no general blood tests this period.
180407 -
180408 -    The doctor's medical chart lists a blood test report that is not
180409 -    dated. ref SDS 0 128S  This may be from treatment in the ER for
180410 -    pneumonia on 060607. ref SDS 92 YS6O
180412 -     ..
180413 -    On 060615 Millie submitted a letter to the attending physician,
180414 -    requesting results of blood tests. ref SDS 94 6I3H  As of today,
180415 -    Kaiser has not submitted the reports.
180416 -
180417 -
180418 -
180419 -
180420 -
180421 -
180422 -
1805 -

SUBJECTS
PET Scan Test 040414 Doctor Reports No Evidence Distant Metastasis H

3403 -
340401 -  ..
340402 - PET Scan Test Findings FDG Right Axilla Left Supraclavicular
340403 -
340404 - Follow up ref SDS 82 NL4N, ref SDS 72 NL4N.
340405 -
340406 - On 060428 the doctor ordered a contrast CT test study, ref SDS 81
340407 - K64X, as recommended by the analyst for the PET scan test on 060414.
340408 - ref SDS 81 MU5M  On 060523 the CT test failed to compare with the PET
340409 - scan test, and so is still pending, ref SDS 88 006P, based on the
340410 - doctor's letter on 060607. ref SDS 92 4C6G
340411 -
340412 -
340413 -
340414 -
340415 -
3405 -

SUBJECTS
CT Test Mistakes Failure Perform Contrast Study Compare with PET Sca

3803 -
380401 -  ..
380402 - CT and PET Scan Testing Shows Patient No Evidence Metastatic Disease
380403 - NED CT Image Test Conflicts Examination Finding IBC Relapse
380404 - CT Contrast Study FDG Right Axillary Left Supraclavicular Pending
380405 -
380406 - Follow up ref SDS 82 II4L, ref SDS 72 II4L.
380407 -
380408 - Contrast CT test was performed on 060505, per above, ref SDS 0 NL4N,
380409 - and reviewed a few weeks ago on 060523. ref SDS 88 E355
380411 -  ..
380412 - On 060523 favorable CT test report findings NED, including the right
380413 - axillary, ref SDS 88 4O8P, aligns generally with PET scan test, per
380414 - above, ref SDS 81 A544, that previously supported deferring
380415 - considerations of treatment planning despite rising CA 15-3.
380416 - ref SDS 88 4R82  However, CT test results reviewed on 060523 conflict
380417 - with PET scan test a few weeks earlier which found progression of
380418 - swelled nodes in left supraclavicular. ref SDS 88 4R82  On 060607
380419 - doctor does not indicate progress on ordering study comparing CT test
380420 - with PET scan test on 060414. ref SDS 92 EB9J
380422 -         ..
380423 -        [...below, conflict between PET and CT tests further noted.
380424 -        ref SDS 0 TF6I
380426 -         ..
380427 -        [On 060929 Doctor Benz 2nd opinion notes that failure of CT
380428 -        test to report findings in left supraclavicular where PET test
380429 -        finds nodes progressing in size raises concerns. ref SDS 98
380430 -        WI4I
380432 -  ..
380433 - On 060607 the doctor indicated cancer may be forming in areas that
380434 - have not been tested, e.g., head. ref SDS 92 D45K  MRI ordered to test
380435 - head for cancer that reconciles rising CA 15-3 cancer marker, and
380436 - continued dizziness. ref SDS 0 PT4K
380438 -  ..
380439 - Can treatment planning be aided by further testing for cause of rising
380440 - CA 15-3, or might cancer be everywhere but too small for image
380441 - testing, per anlaysis on 060607? ref SDS 92 7O51
380443 -  ..
380444 - Today, comparing the CT test on 060505 with the PET scan test on
380445 - 060414, per planning on 060428, ref SDS 81 K64X, was dropped from the
380446 - work plan, because focus shifted to initial reports of IBC relapse
380447 - shown by slight rash on left breast area, where IBC was previously
380448 - treated, per below. ref SDS 0 025H
380449 -
380450 -
380451 -
380452 -
380453 -
380454 -
380455 -
3805 -

SUBJECTS
Esophagitis CT Scan Test Findings Nodes Within Right Paratracheal Re

6203 -
620401 -  ..
620402 - Esophagitis Not Compared in Current CT Test with Prior PET Test Report
620403 -
620404 - Follow up ref SDS 82 DH4O, ref SDS 72 DH4O.
620406 -  ..
620407 - Has Millie been diagnosed with esophagitis.  Did antibiotics treatment
620408 - for pneumonia on 060607 - 060609, discussed below, ref SDS 0 TV5G,
620409 - treat esophagitis; is further examination needed for assesment of
620410 - treatment plan for esophagitis?
620412 -  ..
620413 - Background...
620415 -  ..
620416 - On 060217 patient met with the doctor and received a report for a PET
620417 - scan test on 060120.  After meeting on 060217 the patient discovered
620418 - the PET scan test listed findings of esophagitis. ref SDS 72 DH4O  On
620419 - 060320 the patient submitted a letter reporting mild symptoms that
620420 - align with PET scan findings of esophagitis. ref SDS 75 X93U
620422 -  ..
620423 - During the meeting on 060428, the patient asked the doctor about
620424 - treatment for esophagitis, based on the letter submitted on 060320.
620425 - At that time on 060428, the doctor did not recall the letter dated on
620426 - 060320, nor findings of esophagitis in Kaiser's imaging test reports.
620427 - ref SDS 81 PR9J  The doctor tried to access the report for the PET
620428 - scan test on 060120 to review findings of esophagitis.
620430 -  ..
620431 - At that time, on 060428, there was difficulty manipulating Kaiser's
620432 - data base using the computer in the examination room. ref SDS 81 KC5K
620433 - The doctor was reluctant to look at the report listed in the record on
620434 - 060126. ref SDS 71 DH4O  The doctor then tried to open the actual
620435 - images for the PET scan test on 060120, and in order to make a spot
620436 - analysis for esophagitis.  There was further difficulty using the
620437 - computer that prevented access to the test imaging files.  As a
620438 - result, consideration of esophagitis was deferred.
620440 -  ..
620441 - On 060523 CT contrast study for PET scan test on 060414 shows findings
620442 - of less than 1 cm lymph nodes within the "right paratracheal" region,
620443 - which may relate to esophagitis, ref SDS 88 PA5G, reported in the PET
620444 - scan test on 060116. ref SDS 71 DH4O
620446 -  ..
620447 - The doctor did not recall reading this finding in the CT scan test,
620448 - and since it is not included in the summary impression, ref SDS 88
620449 - 014T, there has been no clinical correlation.
620451 -  ..
620452 - On 060607 Millie was treated in Kaiser's Emergency Room as a cancer
620453 - patient with an elevated temperature of 104.2.  At that time, xray
620454 - testing found pneumonia, ref SDS 92 PT7S  The attending physician
620455 - further disclosed that Kaiser's computer shows Millie has been
620456 - diagnosed with esophagitis, and the doctor asked how esophagitis is
620457 - being treated? ref SDS 92 K66E
620459 -  ..
620460 - Research on 060607 indicates possible correlation between esophagitis
620461 - and pneumonia. ref SDS 92 I24L
620463 -  ..
620464 - During the meeting today, the doctor again did not recall the issue of
620465 - esophagitis.  The patient reported symptoms are mild.  The doctor was
620466 - still unable to find Kaiser's computer files for either the CT test on
620467 - 060505, nor for the PET scan test on 060120 that report this issue, as
620468 - set out in the review on 060523. ref SDS 88 4O8P
620470 -  ..
620471 - Since the doctor was an hour behind schedule, ref SDS 0 SM6M, there
620472 - was reluctance to invest a few minutes to review analysts' reports on
620473 - the patient's computer, and to look up on Kaiser's computer reports on
620474 - Millie's treatment in the Emergency Room on 060607 that inquired about
620475 - esophagatis. ref SDS 92 K66E
620477 -  ..
620478 - There was brief discussion today about correlations between pneumonia
620479 - and esophagitis, cited by the ER physician on 060607. ref SDS 92 LN6M
620480 - Since the doctor could not access the tests nor the ER reports, this
620481 - issue was deferred in light of primary focus on findings of IBC
620482 - relapse, and planning to start treatment, discussed below. ref SDS 0
620483 - 025H
620485 -             ..
620486 -            [On 060711 primary care physician reports patient has not
620487 -            been diagnosed with esophagitis on the basis of imaging
620488 -            tests, since patient reports only mild, occassional
620489 -            symptoms. ref SDS 96 4R6K
620491 -             ..
620492 -            [On 061110 patient reports rising indigestion; symptoms
620493 -            still too infrequent to treat esophagatis. ref SDS A0 0R8J
620495 -  ..
620496 - The medical chart for today says...
620497 -
620498 -            Esophagitis on PET only, not symptomatic
620499 -            ref SDS 0 7M5H
620500 -
620501 - ...which may conflict with the report on 060523 for the CT test on
620502 - 060505 citing less than 1 cm nodes within the right paratrachael
620503 - region. ref SDS 88 4O8P
620504 -
620505 -
620506 -
620507 -
620508 -
6206 -

SUBJECTS
Cancer Treatment Delayed Pending Xray Verify Pneumonia Recovery Chem

6603 -
660401 -  ..
660402 - Cancer Treatment Delayed Pending Xray Verify Pneumonia Recovery
660403 - Penumonia Recovery Verified by Xray to Enable Start Cancer Treatment
660404 -
660405 - Follow up ref SDS 92 PT7S.
660406 -
660407 - Millie was treated in the ER on 060607 for temperature of 104+, and
660408 - diagnosis was pneumonia. ref SDS 92 PT7S
660410 -  ..
660411 - Her letter dated 060615 to the attending physician in the Respiratory
660412 - Department reported full recovery. ref SDS 94 TC4T
660414 -  ..
660415 - Today, the doctor examined the patient and concurred that pneumonia
660416 - seems fully cleared.
660418 -  ..
660419 - The doctor advised that pneumonia complicates starting chemotherapy
660420 - treatment for cancer relapse.  Chemotherapy reduces white blood cell
660421 - (WBC) count that maintains the immune system.  If WBC drops and
660422 - pneumonia is not yet fully cured, then pneumonia could quickly
660423 - escalate to life threatening disease.
660425 -  ..
660426 - The doctor ordered an xray to verify pneumonia is clear from the lungs
660427 - as a predicate to starting chemotherapy for IBC relapse, per above.
660428 - ref SDS 0 GJ5M
660429 -
660430 -    [On 060711 follow up xray shows pneumonia resolved, lungs clear.
660431 -    ref SDS 96 FF3K
660432 -
660433 -
660434 -
660435 -
660436 -
6605 -

SUBJECTS
Right Axillary Clinical Examination Finds No Lump Patient Complains

7103 -
710401 -  ..
710402 - Right Axillary FDG SUV 2.5 Rises from 1.9 Examination Finds No Lump
710403 -
710404 - Follow up ref SDS 82 CZ8L.
710405 -
710406 - PET test findings that FDG SUV increased from 1.9 to 2.5, ref SDS 82
710407 - OX68, aligns with rising CA 15-3. ref SDS 82 UC8L  CT test report of
710408 - no lymphadenopathy by size criteria, reported on 060523, ref SDS 88
710409 - E64I, and failure to perform contrast study, per above, ref SDS 0
710410 - II4L, presents a record with no evidence of cancer in the right
710411 - axillary at this time.
710412 -
710413 -     [On 061020 CT scan test for pulmonary embolism also examined the
710414 -     right axillary and reported finding no evidence of lymphadenopathy
710415 -     in the axilla. ref SDS 99 8T4S
710417 -  ..
710418 - Doctor made another clinical examination.  There is still no evidence
710419 - of lumpiness in the right axillary.  Patient has not complained of
710420 - discomfort under right arm, which occurred throughout the 4 years of
710421 - lymphadenopathy in left axilla, see study on 040517 citing complaint
710422 - on 020603, ref SDS 29 SU9W and further citing the record on 030109.
710423 - ref SDS 29 UF3L
710425 -  ..
710426 - Attention on completing contrast study reported on 060607, ref SDS 92
710427 - D443, diverted today by examination findings of red rash, which
710428 - indicates likely IBC relapse. ref SDS 0 025H
710429 -
710430 -
710431 -
710432 -
710433 -
710434 -
710435 -
710436 -
7105 -

SUBJECTS
Left Axillary Lump Under Arm No Discomfort Examination Finds Size of

8303 -
830401 -  ..
830402 - Lymphedema Left Arm Lump Under Arm Diagnosis Not Cancer
830403 - Post Operation Localized Edema Left Axillary Swelling Reduced
830404 - Dental Care Limitations for Lymphedema Check with Physical Therapist
830405 -
830406 - Follow up ref SDS 82 MW8J, ref SDS 72 MW8J.
830408 -  ..
830409 - Background on patient history of left axillary lymphadenopathy and
830410 - possible lymphedema is also reported on 060106. ref SDS 70 S164
830412 -  ..
830413 - The doctor's letter on 060607 cited swelled lymph nodes as possible
830414 - cause of rising CA 15-3. ref SDS 92 D45K
830416 -  ..
830417 - The patient reports no swelling or discomfort in the left axillary
830418 - region.  PET scan test report received on 060428 reports no evidence
830419 - of cancer in left axillary. ref SDS 82 OX68  CT test on 060505
830420 - reported no findings of swelled lymph nodes that signify possible
830421 - cancer, as reported in the record on 060523. ref SDS 88 Q95L  This
830422 - evidence indicates the left axillary, which that has long been a
830423 - problem area, shown by patient history reported on 040517, ref SDS 29
830424 - OW3I, currently seems clear of identifiable metastatis.
830425 -
830426 -        [...above, conflict between PET and CT tests also noted.
830427 -        ref SDS 0 II4L
830429 -         ..
830430 -        [On 060929 Doctor Benz 2nd opinion notes that failure of CT
830431 -        test to report findings in left supraclavicular where PET test
830432 -        finds nodes progressing in size raises concerns. ref SDS 98
830433 -        WI4I
830435 -         ..
830436 -        [On 061020 CT scan test for pulmonary embolism also examined
830437 -        the right axillary and reported finding no evidence of
830438 -        lymphadenopathy in the axilla. ref SDS 99 6Q6H
830440 -  ..
830441 - Lymphedema condition in left arm currently seems stable at near normal
830442 - level; the elblow still has swelling, reported in patient history
830443 - today. ref SDS 95 HO7F
830445 -  ..
830446 - On 060508 physical therapist indicated there is no risk for Millie to
830447 - have dental work performed. ref SDS 86 X59N
830448 -
830449 -
830450 -
830451 -
830452 -
830453 -
8305 -

SUBJECTS
Left Supraclavicular Neck CT Test Contrast Study on 060505 Finds No

9103 -
910401 -  ..
910402 - Radiation Treatment Cancer Relapse Left Supraclavicular and IBC
910403 - Left Supraclavicular Examination PET Test Report Finding SUV 4.5
910404 - Prognosis Stage IV Metastatic Disease Relapse IBC Seems Likely
910405 - Lumps in Neck Reported 040309 Establish Stage IV Metastatic Cancer
910406 -
910407 - Follow up ref SDS 82 8R6M, ref SDS 72 8R6M.
910408 -
910409 - Patient history of left supraclavicular cancer activity is reported in
910410 - the record on 060127. ref SDS 10 YS4J
910412 -  ..
910413 - PET test report finding left supraclavicular rising to FDG SUV 4.5,
910414 - reported on 060428. ref SDS 82 OX68   CT scan ordered for contrast
910415 - study with PET scan test was performed on 060505.  The report received
910416 - on 060523 shows analyst failed to make the correct comparison,
910417 - ref SDS 88 006P, and further fails to present findings on left
910418 - supraclavicular region.  This presents possibility of cancer missed by
910419 - the CT scan analyst, or even by the scanning technology for the CT
910420 - test itself.
910422 -  ..
910423 - On 060607 correspondence with doctor on test comparison. ref SDS 92
910424 - D443
910425 -
910426 -        [On 060929 Doctor Benz 2nd opinion notes that failure of CT
910427 -        test to report findings in left supraclavicular where PET test
910428 -        finds nodes progressing in size raises concerns. ref SDS 98
910429 -        WI4I
910431 -         ..
910432 -        [On 061020 CT scan test for pulmonary embolism also examined
910433 -        axillary and other regions; reported finding no evidence of
910434 -        lymphadenopathy. ref SDS 99 LP5G
910436 -  ..
910437 - There will be an issue whether this area can be further radiated,
910438 - following treatment during 2002, based on planning reported on 020708.
910439 - ref SDS 11 ZO5N, as considered again recently on 060428. ref SDS 81
910440 - HT6H
910442 -  ..
910443 - Attention was diverted today by IBC relapse in the left breast,
910444 - reported below, ref SDS 0 025H, from consideration for radiation of
910445 - left supraclavicular post surgery considered by the Tumor Board on
910446 - 040416, shown in the record on 040517. ref SDS 29 F78G
910448 -  ..
910449 - As a result, there was no examination of the left supraclivucular
910450 - today.
910451 -
910452 -
910453 -
910454 -
910455 -
910456 -
910457 -
9105 -

SUBJECTS
Examination Inflammation Surgery Incision Wound Cancer Relapse IBC M

A203 -
A20401 -  ..
A20402 - Cancer Metastatic Disease Evident Inflammation Left Breast
A20403 - Diagnosis IBC Relapse Left Breast at Mastectomy Incision Wound
A20404 - Examination Left Breast IBC Inflammation Mastectomy Incision Wound
A20405 - IBC Inflammation Left Breast Incision for Mastectomy Surgery on 051021
A20406 -
A20407 - Follow up ref SDS 82 025H, ref SDS 72 025H.
A20408 -
A20409 - The incision for the left breast mastectomy performed on 051021 is
A20410 - beginning to show signs of IBC inflammation that requires treatment;
A20411 - reconciles rising CA 15-3 despite no evidence of disease in image
A20412 - testing, per above. ref SDS 0 QM5X  Inflammation previously
A20413 - demonstrated IBC symptoms, reported for example on 030109, ref SDS 18
A20414 - KW5F, and again on 040318. ref SDS 27 IM6J
A20416 -  ..
A20417 - The doctor observed a few sparse red dots lightly sprinkled along a
A20418 - thin line from the sternum on an angle above the incision line, and
A20419 - another below the incision line.  There is definite concentration near
A20420 - the sternum.  There is, as yet, no general inflammation.
A20421 -
A20422 -     [On 070130 similar light sprinkles of red dots observed during
A20423 -     examination at UCSF expanding toward abdomen and wrapping toward
A20424 -     the back. ref SDS A1 M68J
A20426 -  ..
A20427 - IBC relapse following mastectomy surgery was considered on 051007
A20428 - based on prospects that microscopic cancer cells remain. ref SDS 61
A20429 - I482
A20431 -  ..
A20432 - During the meeting on 060428 the doctor seemed to indicate that IBC
A20433 - relapse is the most likely scenario, ref SDS 81 K05F, in the event
A20434 - that rising CA 15-3 and FDG SUV 4.5 PET scan test findings for the
A20435 - left supraclavicular, ref SDS 82 OX68, turn out to presage metastatic
A20436 - disease.
A20438 -  ..
A20439 - Previously, on 060428 there was no examination of the left breast
A20440 - mastectomy incision to treat IBC on 051021, ref SDS 65 YG4R; the
A20441 - patient reported there had been no change in favorable recovery, and
A20442 - indicated the wound is still healing normally without complications,
A20443 - which extends findings on 060106. ref SDS 8 VN7I
A20445 -  ..
A20446 - Possibility "wide mastectomy" on 051021 was not wide enough to remove
A20447 - all infected IBC tissue. ref SDS 65 MM6M  Maybe it couldn't have been
A20448 - wide enough??
A20450 -  ..
A20451 - The doctor used a stethoscope to examine lung and heart function.  He
A20452 - seemed satisfied with these conditions, as shown below in the doctor's
A20453 - report. ref SDS 0 BU7I
A20455 -  ..
A20456 - The doctor changed patient status to consideration of IBC relapse.
A20457 - ref SDS 0 1248
A20459 -  ..
A20460 - Lamisil cream was prescribed today on the chance that rising CA 15-3
A20461 - and beginning red rash on left chest is not IBC. (see medical chart,
A20462 - ref SDS 0 125V)  On 040318 treatment for cancer was delayed to treat
A20463 - red rash on left breast for cellulitus. ref SDS 27 IM6J
A20465 -  ..
A20466 - Biopsy on 040419 identified IBC, reported on 040517. ref SDS 29 6T5G
A20468 -  ..
A20469 - Today, discussed taking another biopsy to help evaulate treatment
A20470 - options.  Does IBC have a variety of forms?  Can the current form be
A20471 - determined through laboratory testing to optimize chances of
A20472 - effective treatment by selecting drugs targeted against the biology
A20473 - of recurrent disease?
A20475 -  ..
A20476 - Patient not enthusiastic about another biopsy.
A20478 -  ..
A20479 - Today, the doctor decided to defer consideration of another biopsy
A20480 - until the next meeting in 2 weeks.
A20481 -
A20482 -            [On 060711 doctor decided biopsy would not be cost
A20483 -            effective because IBC disease is established by visible
A20484 -            observation.
A20486 -  ..
A20487 - Pneumonia reported on 060607 requires verification of recovery prior
A20488 - to starting chemoterapy to treat cancer relapse, per above.
A20489 - ref SDS 0 TV5G
A20491 -  ..
A20492 - Doctor scheduled follow up examination in 2 weeks after results of
A20493 - xray test are available to verify recovery from pneumonia, so that
A20494 - treatment for cancer relapse can begin, per medical chart plan.
A20495 - ref SDS 0 125V
A20496 -
A20497 -
A20498 -
A20499 -
A20500 -
A20501 -
A206 -

SUBJECTS
Emotional Trauma Eased by Engagement with Work Family and Exercise V

AC03 -
AC0401 -  ..
AC0402 - Emotional Trauma Eased by Engagement with Work Family and Exercise
AC0403 - Exercise Vigor Strength Engagement Ease Distress Living with Cancer
AC0404 - Behavior Medical Specialist (BMS) Emotional Counseling Not Effective
AC0405 -
AC0406 - Follow up ref SDS 82 Y642, ref SDS 72 Y642.
AC0407 -
AC0408 - On 060524 Millie's letter to the doctor explains a big emotional lift,
AC0409 - ref SDS 89 KG5S, from favorable CT test report on 060523, ref SDS 88
AC0410 - 014T, which seems to confirm earlier favorable PET scan test received
AC0411 - on 060428 finding no evidence of disease. ref SDS 81 A544
AC0413 -  ..
AC0414 - Dramatic change of status today with rising spread of red rash
AC0415 - indicating IBC relapse presents traumatic event that requires
AC0416 - emotional support, illustrated by reluctance to discuss esophagitis,
AC0417 - ref SDS 0 463H, and reluctance to verify IBC recurrence with biopsy,
AC0418 - and to investigate expanding treatment options with status change.
AC0419 - ref SDS 0 6Z4N  Having Pam here today was very helpful.
AC0420 -
AC0421 -
AC0422 -
AC0423 -
AC0424 -
AC0425 -
AC05 -

SUBJECTS
MRI Head Evaluate Dizziness Cancer Distant Metastasis in Light of Ri

AG03 -
AG0401 -  ..
AG0402 - MRI Head Ordered Evaluate Caner in Light of Rising CA 15-3
AG0403 - Dizziness Occurs Occasionally Treatment Ordered by HEENT Cerumen Plug
AG0404 -
AG0405 - Follow up ref SDS 82 PT4K, ref SDS 72 PT4K.
AG0406 -
AG0407 - Patient reported continuing mild dizziness when waking up in the
AG0408 - morning, previously reported on 060428. ref SDS 81 PT4K
AG0410 -  ..
AG0411 - On 060428 contrast CT test was ordered; there was consideration to
AG0412 - include the head. ref SDS 81 245J  On 060504 the doctor limited the
AG0413 - test to not include the head. ref SDS 84 II4L
AG0415 -  ..
AG0416 - Prior tests listed on 060428 therefore omitted the head, ref SDS 81
AG0417 - OW9N,
AG0419 -  ..
AG0420 - Since dizziness symptoms persist, doctor ordered MRI of head to rule
AG0421 - out cancer that may be driving CA 15-3, though physical examination
AG0422 - showing possible IBC red rash seems more likely the cause of rising CA
AG0423 - 15-3, per above. ref SDS 0 025H
AG0424 -
AG0425 -
AG0426 -
AG0427 -
AG0428 -
AG0429 -
AG05 -

SUBJECTS
Treatment Deferred IBC Relapse Left Breast Verify Recovery from Pneu

BF03 -
BF0401 -  ..
BF0402 - Treatment Deferred to Verify Recovery from Pneumonia
BF0403 - Treatment Holiday Ends IBC Relapse Planning Treatment
BF0404 - Holiday Treatment Ends IBC Relapse Rising Red Rash  Test Ordered
BF0405 -
BF0406 - Follow up ref SDS 82 AW5G, ref SDS 72 AW5G.
BF0407 -
BF0408 - Treatment "holiday" has been in effect following last chemotherapy on
BF0409 - 050916, ref SDS 56 407N, and continues today in alignment with
BF0410 - examination showing patient status now questionable for NED, but not
BF0411 - sufficient evidence of relapse to require treatment, per above.
BF0412 - ref SDS 82 025H
BF0414 -  ..
BF0415 - On 060523 favorable CT test report findings NED, and aligned with
BF0416 - recent PET scan test report received on 060428, ref SDS 81 A544,
BF0417 - together defer considerations of treatment schedule despite rising CA
BF0418 - 15-3. ref SDS 88 014T
BF0420 -  ..
BF0421 - On 060607 the doctor discussed treatment planning to address rising CA
BF0422 - 15-3. ref SDS 92 D56U
BF0424 -  ..
BF0425 - Strength, stamina, vigor, and engagement has been significantly
BF0426 - restored, per report above. ref SDS 82 Y642
BF0428 -  ..
BF0429 - Lamisil cream was prescribed today on the chance the red rash is not
BF0430 - cancer. (see medical chart, ref SDS 0 125V)  On 040318 treatment for
BF0431 - cancer was delayed to treat red rash on left breast for cellulitus.
BF0432 - ref SDS 27 IM6J
BF0434 -  ..
BF0435 - Pneumonia recovery required before starting chemotherapy treatments;
BF0436 - doctor ordered xray to evaluate recovery, per above. ref SDS 0 6W9G
BF0437 -
BF0438 -
BF0440 -  ..
BF0441 - Treatment Options for Relapse Navelbine Capecitabine Taxotere
BF0442 - Navelbine Capecitabine Taxotere Treatment Options for Relapse
BF0443 -
BF0444 - Follow up ref SDS 82 K36G.
BF0445 -
BF0446 - Strategy and planning for treatment of IBC 3rd relapse can be aided by
BF0447 - Tumor Board to consider drug agents available, surgery options, and
BF0448 - additional radiation in the neck, discussed further below, ref SDS 0
BF0449 - Z26K, and previously in Millie's letter to Kaiser on 060512.
BF0450 - ref SDS 87 4T3S
BF0452 -  ..
BF0453 - The doctor asked about the scope for a Tumor Board hearing?
BF0454 -
BF0455 -        [On 060721 the doctor submitted a list of issues that require
BF0456 -        review to develop a new treatment plan for Millie's complex
BF0457 -        case. ref SDS 97 21A6
BF0459 -  ..
BF0460 - Surgery originally proposed to re-build left breast with skin grafts
BF0461 - may still be an option, based on planning with plastic surgeon on
BF0462 - 050928, ref SDS 60 253H, considering 2nd opinions from Doctor Grissom
BF0463 - on 050920, ref SDS 57 GT3M, and follow up telephone consultation on
BF0464 - 051010. ref SDS 62 GW4I  Doctor Baily's letter further discussed
BF0465 - reconstructive surgery to prevent relapse, reported on 050922.
BF0466 - ref SDS 58 XD8P
BF0468 -  ..
BF0469 - "Status change" required to fully evaluate treatment options, reviewed
BF0470 - during the meeting on 060428. ref SDS 82 ZR6J
BF0472 -  ..
BF0473 - Discussed treatment options from prior considerations on 060428,
BF0474 - ref SDS 81 K36G, and mentioned again in the doctor's letter on 060607
BF0475 - calling for discussion of next round of treatment. ref SDS 92 D56U
BF0477 -  ..
BF0478 - On 060428 the doctor proposed consideration of treatment with
BF0479 - Navelbine chemotherapy drugs to complement capecitabine (Xeloda) and
BF0480 - Taxotere, ref SDS 81 9H5I, that was effective last year, reported on
BF0481 - 050520, ref SDS 50 887S, and later on 051007. ref SDS 61 IE5R
BF0482 -
BF0484 -  ..
BF0485 - Radiation Treatment Left Supraclavicular Per Tumor Board
BF0486 -
BF0487 - Follow up ref SDS 82 Z26K.
BF0488 -
BF0489 - Radiation - as noted, on 040517 Kaiser's Tumor Board considered
BF0490 - further radiation of left supraclavicular in a hearing on 040416.
BF0491 - ref SDS 82 HT6H  Since left supraclavicular may present recurrance of
BF0492 - metastatic disease, indicated by PET test report today, ref SDS 82
BF0493 - OX68, should radiologist be consulted on radiating this area?
BF0495 -  ..
BF0496 - On 060512 Millie's letter to doctor asks about updating Tumor Board
BF0497 - considerations for radiation of left neck, ref SDS 87 4T3S, as part of
BF0498 - treatment strategy considered above. ref SDS 0 K36G
BF0500 -  ..
BF0501 - On 060523 favorable CT test report defers consideration of radiation
BF0502 - of left supraclavicular for treatment option. ref SDS 88 4T3S
BF0504 -  ..
BF0505 - The doctor was running behind schedule today, per above. ref SDS 0
BF0506 - SM6M  Decided to defer consideration of Tumor Board support until the
BF0507 - next meeting.
BF0508 -
BF0509 -
BF0510 -
BF0511 -
BF0512 -
BF0513 -
BF06 -

SUBJECTS
Port Catheter Flush Schedule at Kaiser Martinez to Maintain Chemo Tr

BH03 -
BH0401 -  ..
BH0402 - Port Catheter Flush Performed at Kaiser to Maintain Chemo Treatment
BH0403 -
BH0404 - Follow up ref SDS 82 SH5N, ref SDS 72 SH5N.
BH0406 -  ..
BH0407 - Millie had the port catheter flushed on 060501.
BH0409 -  ..
BH0410 - She was in the hospital on 060607 for treatment of pneumonia, and the
BH0411 - port catheter was used for antibiotics. ref SDS 92 K645
BH0413 -  ..
BH0414 - Port catheter flush not needed for 4 - 6 weeks OA 060715.
BH0415 -
BH0416 -
BH0417 -
BH0418 -
BH0419 -
BH0420 -
BH05 -

SUBJECTS
Status Test for Change More Urgent with Signs of Relapse ER PR HER2/

BK03 -
BK0401 -  ..
BK0402 - Status Change Retest Biopsy 040419 Treatment Options
BK0403 - Treatment Options Status Change Retest Biopsy 040419
BK0404 -
BK0405 - Follow up ref SDS 82 ZR6J, ref SDS 72 ZR6J.
BK0406 -
BK0407 - Background on status change is reported in the record of the meeting
BK0408 - on 060428. ref SDS 81 ZR6J
BK0410 -  ..
BK0411 - Since there is now strong evidence of IBC relapse, can a biopsy to
BK0412 - verify IBC also demonstrate whether there is a status change that
BK0413 - increases treatment options, per analysis of Doctor Shim on 050909
BK0414 - that proposed retest of the biopsy on 040419 that identified IBC?
BK0415 - ref SDS 54 P58N
BK0416 -
BK0417 -        [On 060711 computer access problem solved, primary care
BK0418 -        physician reports status change was reviewed with biopsy on
BK0419 -        040419 and was negative. ref SDS 96 SW7O
BK0420 -
BK0421 -
BK0422 -
BK0423 -
BK05 -

SUBJECTS
Disability Patient No Evidence of Disease Return to Work Meeting Doc

BO03 -
BO0401 -  ..
BO0402 - Disability Recovery from Cancer Millie Returning to Work
BO0403 -
BO0404 - Follow up ref SDS 82 J29L, ref SDS 72 J29L.
BO0405 -
BO0406 - On 060322 letter to the doctor asks about status of filing signed
BO0407 - disability entitlement form. ref SDS 4 LS6N
BO0409 -  ..
BO0410 - At this time the issue seems resolved?
BO0411 -
BO0412 -
BO0413 -
BO0414 -
BO0415 -
BO0416 -
BO05 -

SUBJECTS
Work Plan Doctor Submits Doctor/Patient Partnership Communications I

BT03 -
BT0401 -  ..
BT0402 - Work Plan Doctor Submits Doctor/Patient Partnership Communications
BT0403 - Communications Doctor Submits Work Plan Doctor/Patient Partnership
BT0404 - Doctor/Patient Partnership Communications Doctor Submits Work Plan
BT0405 -
BT0406 - Follow up ref SDS 82 FE4I, ref SDS 72 FE4I.
BT0407 -
BT0408 - Doctor patient communication improving.  Contemporaneous notes of work
BT0409 - in progress provided in printed media takes hours to render for
BT0410 - precision access and connection.  There remains resistance from
BT0411 - cultural latency to provide the record electronically (sometimes this
BT0412 - is done, and other times not) for efficient work up into medical
BT0413 - intelligence, e.g., on 060523. ref SDS 88 MC6M
BT0415 -  ..
BT0416 - Overall, progress continues toward good management using the doctor
BT0417 - patient partnership for timely review of medical chart, called out in
BT0418 - Kaiser's Healthwise Handbook, reviewed on 990625, ref SDS 3 TD5S, and
BT0419 - recently reported on 060106. ref SDS 8 FE4I
BT0420 -
BT0421 -    1.  6/23/06     12:00 PM
BT0422 -
BT0423 -            Wcr-ONnc2 > Main Campus
BT0426 -         ..
BT0427 -    2.  Your primary care clinician is listed as...
BT0428 -
BT0430 -
BT0677 -
BT0678 -
BT0679 -
BT0680 -
BT0681 -
BT0682 -
BT0683 -
BT07 -