THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: December 23, 2008 04:21 PM Tuesday; Rod Welch

Millie letter from Doctor Stritter for 2nd opinioner treatment options.

1...Summary/Objective
2...Stritter Medical Consulting Beyond the Second Opinion
3...Please Complete and Return this Questionaire


..............
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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 41 0000. ref SDS 40 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Background on Millie meeting Doctor Stritter is reported on 081018 in
040902 - connection with a seminar presentation at the Wellness Community
040903 - cancer support group. ref SDS 34 PQ6X  At that time, the doctor asked
040904 - for copies of Millie's correspondence with the medical team on
040905 - response to sunitinib targeted drug for cancer at UCSF that supports
040906 - Doctor Stritter's research on advanced cancer treatments. ref SDS 34
040907 - 1Y4G
040909 -  ..
040910 - Background on 081219 Millie was confused, worried, and emotional about
040911 - plans to maintain strong recovery from cancer and reduce side effects
040912 - by adjusting treatments to tolerable levels next week on 081226,
040913 - presented during the meeting at UCSF on 081218, ref SDS 38 QW48, as set
040914 - out in the letter confirming understandings to the medical team.
040915 - ref SDS 39 GF4V
040917 -  ..
040918 - Millie has been suffering with rising side effects of cancer
040919 - treatments for several weeks reported on 081218, ref SDS 37 6E7G, and
040920 - yesterday was even worse, which is why the doctor changed the
040921 - treatment on 081218, ref SDS 39 GF9X, responding to Millie's report the
040922 - day before on 081217. ref SDS 36 YJ6R
040924 -  ..
040925 - Millie submitted a copy of the letter on 081218 to the medical team
040926 - reporting results of the examination at UCSF on 081218. ref SDS 39 4P7F
040928 -  ..
040929 - Millie sent a letter to the primary care physician at Kaiser yesterday
040930 - morning to further guide discussion, ref SDS 40 KY8Q, with agenda
040931 - issues for meeting at 1140 with the doctor to perform regularly
040932 - scheduled oversight of Millie's care on referral to UCSF, and
040933 - complementing agenda issues from the letter sent to Kaiser and the
040934 - medical team on 081218 reporting understandings meeting with UCSF.
040935 - ref SDS 39 N55I
040937 -  ..
040938 - On 081220, Millie sent a letter to Doctor Stritter transmitting the
040939 - report on meeting with the medical team at UCSF on 081218, and also
040940 - sending a copy of Millie's letter to the primary care physician to
040941 - discuss during a meeting at Kaiser in the late morning on 081219
040942 - complex decision on adjusting treatments for IBC, and further
040943 - explaining objectives for getting a second opinion on Millie's
040944 - treatment with sunitinib staying at full strength and reducing or
040945 - ending treatment with cyclophosphamide to reduce side effects.
040947 -  ..
040948 - Today, Millie received a response from Doctor Stritter saying...
040949 -
040950 -    1.  Subject: Re: Meeting Agenda at Kaiser Dec 19th
040951 -        Date: Tue, 23 Dec 2008 15:04:57 -0800
040958 -         ..
040959 -    2.  The San Antonio Breast Cancer Symposium was awesome this year
040960 -        as always.
040962 -         ..
040963 -    3.  Thank you for your interest in my services.  I am sorry to hear
040964 -        of your problems with breast cancer.  I agree that your case is
040965 -        quite complicated and I really look forward to helping you in
040966 -        any way I can.
040968 -         ..
040969 -    4.  Attached you will find your information packet (2 .pdf files).
040970 -        It will help you determine whether my style of practice will
040971 -        work for you.  It contains the following:
040972 -
040973 -        a.  A brief fact sheet
040974 -
040975 -        b.  A detailed overview of my practice
040977 -             ..
040978 -        c.  A questionnaire
040979 -
040980 -               [...below in the record today on 081223, information for
040981 -               questionnaire. ref SDS 0 UK4O
040983 -         ..
040984 -    5.  Please read the practice overview carefully.
040985 -
040986 -        If you then wish to make a phone appointment, please fill out
040987 -        the enclosed questionnaire and return it at your earliest
040988 -        convenience.  A one-page summary of your health problem is
040989 -        helpful (in particular, I need the names and dates of all
040990 -        treatments to date). It is also very useful if I could have the
040991 -        following medical records before your first appointment:
040992 -
040993 -        a.  All pathology reports
040995 -             ..
040996 -        b.  The last 2 MRI or CT scan reports
040998 -             ..
040999 -        c.  The last 2 PET or PET/CT scan reports, if done
041001 -             ..
041002 -        d.  Any relevant operative reports
041004 -         ..
041005 -    6.  Do not send your complete medical records unless you would like
041006 -        me to review them all (I charge extra for this service).
041008 -         ..
041009 -        I charge $300 for the first phone appointment.  This includes
041010 -        the preliminary research, a 60- to 90-minute phone appointment
041011 -        and long-distance charges (I will call you).  Please send in
041012 -        your check beforehand (payable to "Stritter Medical
041013 -        Consulting") as it prevents a high rate of last-minute
041014 -        appointment cancellation or rescheduling.   Sometimes people
041015 -        wish a comprehensive evaluation of their medical records before
041016 -        the first appointment.  I charge separately for this service.
041017 -
041018 -            [On 090106 Millie submitted payment to Stritter Medical
041019 -            Consulting called out in this section. ref SDS 44 S34O
041021 -         ..
041022 -        At the end of the first appointment, you and I will decide
041023 -        together whether you need further services.  Sometimes, you are
041024 -        on the right track and I may only add a few ideas. On the other
041025 -        hand, I usually suggest other approaches or areas to research
041026 -        and we will need to schedule a follow-up appointment.  Fees for
041027 -        the follow-up appointment and all services subsequent to the
041028 -        first appointment are billed on an hourly basis.  Please see
041029 -        the practice overview for more information on my fees.
041031 -         ..
041032 -        Finally, I find that a photograph helps me put a face to the
041033 -        person(s) with whom I am talking on the telephone.  So, I
041034 -        really appreciate it when people send a photo of themselves;
041035 -        any photo of you will do whether it is before your illness,
041036 -        with your family or while your are on vacation.
041038 -          ..
041039 -        <RO778
041040 -        Take care and please do not hesitate to call if you have any
041041 -        questions.
041043 -         ..
041044 -    7.  I hope you and your family have a meaningful and joyful holiday
041045 -        season...
041047 -         ..
041055 -
041056 -
041058 -  ..
041059 - Stritter Medical Consulting Beyond the Second Opinion
041060 - Please Complete and Return this Questionaire
041061 -
041062 - The doctor attached a Questionnaire pdf file requesting case
041063 - management information, as cited in the doctor's letter today, per
041064 - above. ref SDS 0 AR6M  Our computer is not configured for entering
041065 - information online in the pdf file.  We need Adobe Acrobat software
041066 - for this level of support.
041068 -             ..
041069 -            [On 090106 7 year patient history was summarized for
041070 -            Stritter Medical Consulting to issue an opinion about
041071 -            treatments that may help Millie recover from IBC.
041072 -            ref SDS 44 IP6H
041074 -             ..
041075 -            [On 090106 Millie's letter to Stritter Medical Consulting
041076 -            submitted patient history and scope of services,
041077 -            ref SDS 44 PQ6Q, along with payment of $300. ref SDS 44
041078 -            6G5Y
041080 -             ..
041081 -            [On 090120 telephone call Doctor Stritter requested Millie
041082 -            fill out the questionnaire, ref SDS 47 CM66, received today
041083 -            on 081223, per below. ref SDS 0 UK4O
041085 -             ..
041086 -            [On 090121 Millie submitted a letter transmitting
041087 -            information, ref SDS 48 C57O, requested in the
041088 -            questionnaire set out in this record on 081223 as
041089 -            follows...
041091 -  ..
041092 - Here is the information requested in the questionaire....
041093 -
041094 -    1.  Today's date:  081223
041095 -
041097 -         ..
041098 -    2.  Person for whom help is being sought:
041099 -
041100 -        Name................. Millie
041101 -        Age.................. 73
041102 -        Type of Work......... Secretary
041103 -        Education............ High School degree (12 years)
041104 -        Address..............
041105 -        Phones...............
041106 -
041108 -         ..
041109 -    3.  Your name/information (if different from above):
041110 -
041112 -         ..
041113 -    4.  If you are not the person for whom help is being sought,
041114 -        please indicate (by circling) which address/phone number(s) we
041115 -        should use to set up the initial appointment.
041116 -
041118 -         ..
041119 -    5.  How or from whom did you hear about my practice?
041120 -
041121 -        On 081018 at the Wellness Community, Pleasant Hill, CA, Doctor
041122 -        Stritter gave an excellent presentation, ref SDS 34 IS5L, on
041123 -        research identifying cutting edge treatments for cancer.
041124 -        ref SDS 34 IT68
041125 -
041127 -         ..
041128 -    6.  What is the general nature of the medical problem(s) for which
041129 -        you are seeking help?  Give the diagnoses, if possible.  At the
041130 -        end of this questionnaire, you will be asked to describe in
041131 -        more detail the specific problems you are seeking to resolve.
041133 -         ..
041134 -        Secondary Inflammatory Breast Cancer (IBC) diagnosed with
041135 -        biopsy on 040419, and disclosed during a meeting at Kaiser a
041136 -        month later on 040517. ref SDS 9 7D6F
041137 -
041138 -            [On 090106 patient history summarized. ref SDS 44 IP6H
041140 -         ..
041141 -        Symptoms of IBC were first presented in a report for a PET scan
041142 -        at Kaiser on 020218, later received during at meeting at Kaiser
041143 -        on 030109. ref SDS 4 L66M  At that time on 030109, red rash on
041144 -        left breast was treated for Cellulitis. ref SDS 4 KW5F
041146 -         ..
041147 -        Pulmonary embolism was diagnosed with CT test on 041103,
041148 -        reviewed with Kaiser on 041104. ref SDS 10 QP6S  Millie is
041149 -        currently treated with daily Coumadin to control pulmonary
041150 -        embolism.
041152 -         ..
041153 -        Triple negative status, shown by biopsy from sentinel node
041154 -        surgery on 020312, and reported in the record at Kaiser on
041155 -        020321. ref SDS 3 6Q6J  UCSF ordered test for status change to
041156 -        expand treatment options.  On 081107 Kaiser performed core
041157 -        biopsy, and on 081121 results shows not change in triple
041158 -        negative status. ref SDS 35 5O8G
041160 -         ..
041161 -        Millie has recovered with treatment and relapsed 5 times since
041162 -        040517.
041163 -
041164 -            [On 090114 Millie's treatment history is listed.
041165 -            ref SDS 44 K87F
041166 -
041168 -         ..
041169 -    7.  How long has this problem been going on? (be specific)
041170 -
041171 -            7 years 0 months.  February 2002 - January 2009
041173 -         ..
041174 -    8.  In total, how many physicians been seen for this problem?
041175 -
041176 -            Answer:  9
041177 -
041179 -         ..
041180 -    9.  Please list their names and specialties, and approximately when
041181 -        they were first seen.  Circle the ones that are currently
041182 -        involved with the case, with a star by the one(s) primarily in
041183 -        charge of the case. (Don't worry, none of them will be
041184 -        contacted without first clearing it with you.)
041186 -         ..
041187 -        Doctor Johnson is the primary care physician in Oncology at
041188 -        Kaiser in Walnut Creek, and supervises care on referral to UCSF
041189 -        in San Francisco, performed by Doctor Rugo.
041190 -
041191 -            1.  Doctor Robert Johnson primary care physician Oncology Kaiser Walnut Creek
041192 -            2.  Doctor Kara Riley-Paull surgeon at Kaiser
041193 -            3.  Doctor Nicole Daamen head and neck specialist at Kaiser
041194 -            4.  Doctor Christopher Benz at UCSF 2nd opinion IBC relapse 2004 and 2006
041195 -            5.  Doctor Alice (Elly) Guardino at Stanford 2nd opinion IBC relapse treatment 2004
041196 -            6.  Doctor Veronica Shim Kaiser in Oakland for mastectomy 2nd opinion 2005
041197 -            7.  Doctor Lisa Bailey in Berkeley for mastectomy 2nd opinion 2005
041198 -            8.  Doctor Nima Grissom San Francisco mastectomy 2nd opinion 2005
041199 -            9.  Doctor Hope Rugo Oncology at UCSF referral from Kaiser 2007
041200 -
041202 -         ..
041203 -   10.  How good is the communication between you and the physician(s)
041204 -        primarily in charge of your case (circle one)
041205 -
041206 -                  Not very good
041207 -                  Reasonably good
041208 -               *  Extremely good
041210 -            ..
041211 -           Communications among the patient, the primary care physician
041212 -           at Kaiser, and Doctor Rugo on referral at UCSF are excellent
041213 -           within limited time doctors have for coordination, explained
041214 -           on 080403. ref SDS 26 S26I  At that time, Doctor Rugo noted
041215 -           advantates of patient support for UCSF to communicate with
041216 -           Kaiser for coordinated care. ref SDS 26 4U9O
041217 -
041219 -         ..
041220 -   11.  From your viewpoint, which of the following describes the
041221 -        physician(s) primarily in charge (circle all that apply):
041222 -
041223 -               *  Too busy
041224 -               *  Very patient
041225 -               *  Always in a hurry
041226 -                  Thorough
041227 -               *  Caring
041228 -               *  Goes the extra mile
041229 -                  Doesn't return phone calls
041230 -                  Too business-like
041231 -                  Other...
041233 -            ..
041234 -           Doctors are always in a hurry, illustrated by the scenario
041235 -           in NWO. ref OF 15 VP7L  This makes daily medical practice
041236 -           too busy for thorough deliberation, since doctors are
041237 -           scheduled to see patients every 15 minutes all day long,
041238 -           shown by Kaiser's Healthwise Handbook reviewed on 990625.
041239 -           ref SDS 2 5740  When doctors are not seeing patients, they
041240 -           are meeting with colleagues, business managers, attending
041241 -           conferences, and managing staff.  This leaves no time for
041242 -           deliberation.
041244 -            ..
041245 -           Within this framework, Millie has been blessed to get ample
041246 -           time with her doctors at Kaiser and UCSF, averaging from 30
041247 -           to 75 minutes per visit, reflecting complexity of her case
041248 -           shown by 43 medical problems to track listed on 070330.
041249 -           ref SDS 21 LU3J
041251 -            ..
041252 -           The primary care physician at Kaiser is supported by
041253 -           Knowledge Management technology that leverages time with the
041254 -           patient by enabling a stronger effort capturing medical
041255 -           history during meetings with efficient access to test
041256 -           reports, and case management data.  Challenges learning to
041257 -           use Kaiser technology that impair patient care were recently
041258 -           reviewed on 081229. ref SDS 43 A46I
041260 -            ..
041261 -           Doctor Rugo has several assistants that do a great job
041262 -           capturing a traditional manual record of daily work.
041263 -           Technology at UCSF is less advanced than Kaiser, but labs
041264 -           and schedules can be accessed efficiently on the UCSF
041265 -           computer system.  Frustrations from difficulty finding
041266 -           patient history were cited by the doctor in a meeting on
041267 -           080219. ref SDS 25 L18L
041269 -            ..
041270 -           Doctor Johnson stands out for "going the extra mile."  Often
041271 -           doctors in a big hospital tell the patient to the tell the
041272 -           nurse or an attendant that the doctor wants "xyz."  Just as
041273 -           often, staff resists performance and tells the patient they
041274 -           cannot do "xyz" until the doctor issues a written order.  An
041275 -           attendant tells the patient "Doctor wants this or that." The
041276 -           patient tells the attendant the doctor just said to do
041277 -           "xyz," check with the doctor.  The attendant says they
041278 -           cannot disturb the doctor.  They are afraid.
041280 -            ..
041281 -           This presents a management loop.
041283 -            ..
041284 -           Doctor Johnson has on many occassions taken time to leave a
041285 -           meeting and go give direct instructions, so that treatment
041286 -           is not delayed, and the patient, nurses, and admin staff do
041287 -           not suffer emotional tramua coordinating work.  An example
041288 -           was coordinating Millie's CT test on 080627.  At that time
041289 -           the doctor was annoyed because of conflicting requirements,
041290 -           and so went to the Infusion Clinic and developed a work plan
041291 -           to resolve conflicts. ref SDS 27 GO3G
041292 -
041294 -         ..
041295 -   12.  Is there a primary care physician (general practitioner/family
041296 -        physician)?
041297 -
041298 -               *  Yes:
041299 -                  No:
041301 -         ..
041302 -        If so, please give names and location:
041303 -
041304 -                  Doctor Robert A. Johnson
041305 -                  Kaiser Oncology Department
041306 -                  Walnut Creek, CA
041308 -         ..
041309 -        Are they still involved in the case?
041310 -
041311 -               *  Yes.......................... ref SDS 0 JE60
041312 -                  No
041314 -         ..
041315 -   13.  To your knowledge, in regard to this case, have your physicians
041316 -        consulted with physician-specialists outside of the local
041317 -        medical community (i.e. elsewhere in the country)?
041318 -
041319 -                  Yes
041320 -                  No
041321 -               *  Don't Know
041322 -                  Doubt it
041324 -         ..
041325 -        On 070610 the primary care physician reported good
041326 -        communication within the medical team coordinating Millie's
041327 -        care at UCSF by Doctor Rugo. ref SDS 22 OG7F
041329 -         ..
041330 -        There is nothing in the record showing substantive
041331 -        consultations between UCSF and Kaiser, between UCSF and others,
041332 -        nor between Kaiser and other doctors.  There are no writings,
041333 -        and no verbal expressions in several hundred meetings over
041334 -        seven (7) years that indicate consultations.
041335 -
041337 -         ..
041338 -   14.  To your knowledge, has a medical literature search been done,
041339 -        i.e. a computer or Medline search, or, if it applies, a PDQ
041340 -        (Physician's Data Query, from the National Cancer Institute,
041341 -        which has listings of possible treatment protocols)?
041342 -
041343 -                  Yes
041344 -                  No
041345 -               *  Don't Know
041346 -                  Doubt it
041348 -         ..
041349 -        Within the doctor patient partnership model, numerous computer
041350 -        searches have been done to assist the medical team identify
041351 -        treatment for IBC, i.e., on 040517. ref SDS 9 6M9H
041353 -         ..
041354 -        UCSF routinely uses the computer during meetings to research
041355 -        issues in Millie's case.  There is no record of search at
041356 -        Kaiser nor at UCSF of computer search for IBC treatments.  This
041357 -        may have been done outside of meetings with the patient.
041358 -
041360 -         ..
041361 -   15.  Did the physician(s) provide you with articles or in-depth
041362 -        information on the condition?
041363 -
041364 -                  Yes
041365 -               *  No....................... 040517, ref SDS 9 6T5G
041367 -         ..
041368 -        When Millie was diagnosed with breast cancer, during the first
041369 -        meeting in Oncology on 020321, the doctor provided copies of
041370 -        pages from "AJCC Cancer Staging Handbook" with guidance that
041371 -        identified Millie was initially a stage II cancer patient.
041372 -        ref SDS 3 6Q4U
041374 -         ..
041375 -        On 030508 Millie asked about rising cancer marker CA 15-3
041376 -        indicates relapse that requires treatment, since at that time
041377 -        she was off treatment during all of 2003?  The doctor submitted
041378 -        a Kaiser pamphlet with the title...
041379 -
041380 -               Patient's Guide, Follow-up Care for Breast Cancer
041382 -         ..
041383 -        This was presented to support a representation during the
041384 -        meeting that ASCO does not recognize the cancer marker CA 15-3
041385 -        to assess breast cancer, and so not to worry about the rise
041386 -        indicating treatment was needed.  The content in the pamphlet
041387 -        seems to say otherwise. ref SDS 5 M28G
041388 -
041390 -         ..
041391 -   16.  At any point, did you request the physician(s) to do more work
041392 -        on your case (i.e. additional research, consultations, etc.)?
041393 -
041394 -               *  Yes
041395 -                  No
041397 -         ..
041398 -        If YES, what did you request?
041399 -        If YES, what was the response to the request?
041400 -
041401 -        a.  On 030606 Millie requested a PET scan test and biopsy of
041402 -            the left breast to evaluate rising inflammation along with
041403 -            rising cancer marker. ref SDS 6 P97J
041405 -             ..
041406 -            This was deferred.
041408 -             ..
041409 -        b.  On 030710 PET scan test descirbed symptoms of IBC which at
041410 -            that time were not known by the patient.  Millie requested
041411 -            biopsy to "correlate clinically," recommended in the PET
041412 -            scan report. ref SDS 7 XX4G
041414 -             ..
041415 -            This was deferred, ref SDS 7 WS3M, until 9 months later on
041416 -            040419, when the patient asked the surgeon to perform an
041417 -            addon biopsy after minor procedure to implant a port
041418 -            catheter, ref SDS 8 789F; a month later the biopsy report
041419 -            diagnosed IBC on 040517. ref SDS 9 7D6F
041421 -             ..
041422 -        c.  On 041130 Kaiser was asked for a written work up on
041423 -            Millie's case listing treatment options, following
041424 -            discovery on 041104 of pulmonary embolism that required
041425 -            ending treatment for IBC on the bevecizumab and Taxol
041426 -            clinical study. ref SDS 11 YR8F
041428 -             ..
041429 -            This was resisted. ref SDS 11 8P8F
041431 -             ..
041432 -        d.  On 050329 the primary care physician planned to discuss
041433 -            with the surgeon criteria for mastectomy surgery in
041434 -            Millie's case. ref SDS 12 T89H
041436 -             ..
041437 -            Surgeon advised on 050724 that she has received several
041438 -            telephone messages from the primary care physician, and has
041439 -            returned calls and left messages, but so far there has not
041440 -            been enough time for discussions. ref SDS 14 H85G
041442 -             ..
041443 -        e.  On 050913 Kaiser was asked to perform Kaiser's
041444 -            requirements, ref SDS 15 T46F, for "Time Out" review of
041445 -            proposed surgery. ref SDS 15 Q95M
041447 -             ..
041448 -            This was resisted. ref SDS 15 5T5N
041450 -             ..
041451 -        f.  On 050913 patient requests joint meeting between oncology
041452 -            and surgery departments to aid collaboration that has been
041453 -            difficult to accomplish previously; this was rejected
041454 -            because team care practice and collaboration are not
041455 -            practical due to conflicting schedules. ref SDS 15 6W4L
041457 -             ..
041458 -            On 050916 primary care physician reported during a brief
041459 -            meeting with the patient in the Chemotherapy Clinic that he
041460 -            had met and discussed Millie's case with the surgeon.
041461 -            Results of the meeting were not presented. ref SDS 16 PF3G
041463 -             ..
041464 -            On 050923 the surgeon reported on meeting with the primary
041465 -            care physician in the hallway for a brief discussion.
041466 -            ref SDS 17 LP6H
041468 -             ..
041469 -        g.  On 080109 UCSF was asked for written analysis of findings
041470 -            from photographic review, as part of annual patient review,
041471 -            prognosis, and planning, ref SDS 23 4P9K, similar to the
041472 -            Benz report on 060929. ref SDS 19 KS8H  Doctor Rugo updated
041473 -            the Benz analysis in a report on 070130, and so set a
041474 -            benchmark for annual review. ref SDS 20 795I
041476 -             ..
041477 -            This was refused on 080110. ref SDS 24 BF66
041479 -             ..
041480 -        h.  On 080917 UCSF was asked for a work plan to provide follow
041481 -            on treatment, ref SDS 31 SH5T, based on findings by the
041482 -            primary care physician on 080829, ref SDS 30 RP8T, which
041483 -            confirmed UCSF finding possible progression of disease a
041484 -            week earlier on 080821. ref SDS 29 4C6O
041486 -             ..
041487 -            This was not performed.
041489 -             ..
041490 -        i.  On 081015 UCSF was asked for future treatment options
041491 -            proposed previously for discussion on 080918, ref SDS 32
041492 -            9W6H Is there a list, with analysis of pros and cons?
041493 -            Would it be helpful to meet with Doctor Benz for a review
041494 -            to get a written list of treatment options for the future?
041495 -            ref SDS 33 K45V
041497 -             ..
041498 -            This was not performed.
041499 -
041501 -         ..
041502 -   17.  Please rate your level of frustration with the overall medical
041503 -        system you have been dealing with (circle one):
041504 -
041505 -               *  Not frustrated
041506 -                  Somewhat frustrated
041507 -                  Very frustrated
041509 -         ..
041510 -        Timely care to recover from cancer has been frustrated by
041511 -        limited resources of time, money, and expertise striving to
041512 -        deliver the greatest care to the greatest number.  Doctors,
041513 -        nureses, administrative staff get very frustrated by the
041514 -        growing number of patients and expanding treatment options that
041515 -        extend life, which greatly complicates health care.  Living
041516 -        longer makes maintaining a well ordered record essential for
041517 -        effective care more complicated, and eventually overwhelms all
041518 -        business systems, reviewed on 970710. ref SDS 1 0108
041520 -         ..
041521 -        Everybody gets annoyed by the level of effort required for
041522 -        accurate, timely care, noted by the surgeon on 080708.
041523 -        ref SDS 28 O65F  The surgeon noted that coordinating complex
041524 -        case management becomes very annoying. ref SDS 28 OK8M  This
041525 -        becomes frustrating the longer a patient lives.
041526 -
041528 -         ..
041529 -   18.  Please describe what research, reading, and work you've done on
041530 -        your own to try to solve this problem.
041532 -         ..
041533 -        Patient history in SDS records helps health care providers
041534 -        understand complex problems.
041536 -         ..
041537 -        Examples of independent research include...
041538 -
041539 -            Kaiser Healthwise Handbook
041540 -            reviewed for case management
041541 -            procedures........................ 990625, ref SDS 2 4185
041543 -             ..
041544 -            IBC............................... 040517, ref SDS 9 6M9H
041546 -             ..
041547 -            Pulmonary embolism relapse
041548 -            close call........................ 060722, ref SDS 18 BP7M
041550 -             ..
041551 -            Pulmonary embolism wicked problem
041552 -            disagnosis complex, very
041553 -            difficult......................... 060722, ref SDS 18 346F
041555 -             ..
041556 -            Alternative treatments............ 050712, ref SDS 13 0001
041557 -
041559 -         ..
041560 -   19.  Please describe self-care approaches, groups,
041561 -        alternative/complementary therapies that you may be using or
041562 -        have tried in the past.  Put a star by the ones that you feel
041563 -        have helped.
041564 -
041565 -            *  Exercise........................ 081223, ref SDS 42 X64F
041566 -            *  Doctor patient/partnership...... 990625, ref SDS 2 4185
041567 -            *  Patient assistance.............. 990625, ref SDS 2 JY9J
041568 -            *  SDS technology for creating
041569 -               a well ordered record........... POIMS, ref OF 5 XX6N
041570 -
041572 -         ..
041573 -   20.  Please state as simply and clearly as possible the problem(s)
041574 -        you want help resolving.  Include any additional comments to
041575 -        further clarify the above answers and better explain the
041576 -        situation.  It also may be helpful for you to write and attach
041577 -        to this questionnaire a brief summary of the medical history.
041578 -        Please try to limit it to one page.  If there are essential
041579 -        medical documents, such as a biopsy or pathological reports,
041580 -        include that as well, but, please, don't send a complete set of
041581 -        medical records at this time.
041582 -
041583 -            [On 090106 Millie submitted to Doctor Stritter...
041584 -
041585 -               a.  Patient history................... ref SDS 44 IP6H
041586 -               b.  Labs.............................. ref SDS 44 XD9M
041587 -               c.  Image tests....................... ref SDS 44 AJ8M
041588 -               d.  Treatment history................. ref SDS 44 K87F
041589 -               e.  Scope of services for Stritter
041590 -                   Consulting........................ ref SDS 44 PQ6Q
041592 -             ..
041593 -            [On 090114 Doctor Stritter requested Millie's pathology
041594 -            history. ref SDS 45 U271
041595 -
041596 -
041597 -
041598 -
041599 -
041600 -
041601 -
041602 -
0417 -