THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: January 10, 2008 08:30 AM Thursday; Rod Welch

Millie meeting at UCSF evaluate 13th cycle clinical trial treat IBC.

1...Summary/Objective
2...Case Study Written 2nd Opinions Significant Factor Millie's Recovery

ACTION ITEMS.................. Click here to comment!

1...Brigid advised that UCSF has never performed an annual review of

CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 37 0000. ref SDS 33 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040508 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie had a blood draw in Infusion Clinic this morning at 0800.
040902 - ref SDS 41 546N
040904 -  ..
040905 - The doctor was sick today.
040907 -  ..
040908 - Brigid displayed results of the blood test on the computer screen.
040910 -  ..
040911 - WBC was low again for the 2nd straight month.
040913 -  ..
040914 - This caused NEUTS to fall to 1.25, ref SDS 41 QY6H, significantly
040915 - below 1.5 standard for safe treatment.  Brigid approved treatment
040916 - today consistent with prior practice approving treatment with NEUTS as
040917 - low as 1.23, reported on 070301. ref SDS 19 P560
040919 -  ..
040920 - NEUTS 1.25 on the UCSF standard correlates to 1250 at Kaiser where
040921 - the standard for treatment is 1500.
040923 -  ..
040924 - Millie asked why Magnesium is not in the blood test this morning to
040925 - evaluate effectiveness of treatment, ref SDS 41 5K8H, ordered to
040926 - remedy low Magnesium the month before on 071213? ref SDS 38 HH5I
040928 -  ..
040929 - Brigid advised that Magnesium was not tested today, because UCSF
040930 - requires only occassional testing for this diagnostic.
040932 -  ..
040933 - Testing "occassionally" for Magnesium appears conflicting with the
040934 - Chemotherapy order reported on 070201, specifying a test for Magnesium
040935 - every 4 weeks to start a new cycle of treatment, ref SDS 18 5594, as
040936 - involved here.
040938 -  ..
040939 - Additionally, since Magnesium fell below requirements, testing should
040940 - continue to demonstrate recovery or that further treatment is needed.
040941 -
040942 -        [On 080117 Catherine submitted another report on the labs for
040943 -        080110 and it shows Magnesium was in fact tested with the Labs
040944 -        today, and was at the low end of the target range, indicating
040945 -        response to treatment with improvement today from the labs last
040946 -        month on 071213. ref SDS 42 4F9G
040948 -         ..
040949 -        [On 080313 prescription for cetuximab and Carboplatin specifies
040950 -        blood test for Magnesium every 4 weeks to start a new cycle of
040951 -        treatment. ref SDS 43 2N6N
040953 -  ..
040954 - Millie complained of mild stiff neck.  This has previously been
040955 - associated with lymphadenopathy, reported by biopsy on 040309.
040956 - ref SDS 1 0001
040958 -  ..
040959 - Brigid palpated the neck and noted no evident swelling that might
040960 - suggest lymphadenopathy.  At this time, stiff neck symptoms seem
040961 - likely attributable to sleeping awkwardly.
040963 -  ..
040964 - Brigid examined IBC rash.  She feels there may be some very slight
040965 - spreading of disease.  Intensity of inflammation seems to rise and
040966 - fall.  Today, inflammation of the rash seems quiet.  Nothing jumps out
040967 - at this time that is obviously significant spread of IBC, as has
040968 - occurred in years past, e.g., on 060806. ref SDS 10 0001  The feeling
040969 - is that continued treatment with cetuximab alone is justified by
040970 - examination and test diagnostics.
040972 -  ..
040973 - Jackie took pictures with Brigid holding a tape measure to assess
040974 - progression of disease.  Jackie indicated there may not be enough time
040975 - for UCSF to compare pictures today with conditions 3 and 6 months ago
040976 - for broader assessment of disease for annual review, as discussed in
040977 - the letter to UCSF yesterday on 080109. ref SDS 40 4P8N
040979 -  ..
040980 - Brigid advised that UCSF has never performed an annual review of
040981 - patient status.  She feels there is not enough time for UCSF to
040982 - prepare an annual review, and that the quality of medical care in this
040983 - case cannot be strengthened by investing time to write up patient
040984 - history and develop treatment planning and options, as further set out
040985 - in the letter to UCSF on 080109. ref SDS 40 4P9K
040987 -  ..
040988 - UCSF practice aligns with resistance at Kaiser to submitting a written
040989 - work up with treatment plans based on drugs available for treating
040990 - Millie, on grounds that written work plans are unnecessary, reported
040991 - on 041130. ref SDS 4 YR8F
040992 -
040993 -
040995 -  ..
040996 - Case Study Written 2nd Opinions Significant Factor Millie's Recovery
040997 -
040998 - We reviewed briefly that Millie's care has been greatly aided through
040999 - a process of periodic review, illustrated by 2nd opinions from...
041000 -
041001 -         UCSF Doctor Benz..................... 041018, ref SDS 2 0001
041002 -         Stanford Doctor Guardino............. 041019, ref SDS 3 0001
041003 -         Kaiser Doctor Shim................... 050826, ref SDS 5 0001
041004 -         Medical Offices Doctor Bailey........ 050909, ref SDS 6 0001
041005 -         Medical Offices Doctor Grissom....... 050912, ref SDS 7 0001
041006 -         UCSF Doctor Benz..................... 060821, ref SDS 11 0001
041008 -  ..
041009 - As seen in the record, in each case careful review of patient history
041010 - yielded critical insights that were applied effectively in Kaiser's
041011 - treatment plan.  Additionally, Doctor Rugo's review on 070130 has
041012 - proven helpful guiding work this past year. ref SDS 17 795I
041014 -  ..
041015 - This record suggests that while annual review may not be standard
041016 - practice for all patients nor even for any other patient, it has been
041017 - a strategic asset in management of this case.
041019 -  ..
041020 - Millie asked about scheduling additional work for the next 3 months.
041022 -  ..
041023 - Brigid looked at the schedule.  She gave Millie a document with
041024 - written instructions for the schedule managers at the front desk to
041025 - schedule Millie for more meetings with the medical team.
041026 -
041027 -
041028 -
041029 -
041030 -
041031 -
041032 -
041033 -
0411 -