THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: January 28, 2010 10:49 PM Thursday; Rod Welch

Millie notifies medical team Kaiser orders treatment recover 9th relapse
of cancer starting 3rd cycle of Navelbine after recovery from shingles.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 66 0000. ref SDS 65 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040508 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 091202 Millie had the 3rd treatment in the 1st cycle of Navelbine.
040902 - ref SDS 38 625I
040904 -  ..
040905 - She is experiencing some possible recovery, but also evident worsening
040906 - of cancer due to lack of treatment targeted to her patient profile.
040908 -  ..
040909 - On 091203, Millie submitted a letter notifying the medical team about
040910 - possible progression of disease, and requesting treatment targeted to
040911 - her patient profile, ref SDS 39 4P7G, following up the letter on
040912 - 091112, ref SDS 34 IL8L, and meeting with Doctor Johnson at Kaiser
040913 - later that day on 091112. ref SDS 35 UT7M  The following letter
040914 - confirms understandings from meeting on 091112, and sets agenda for
040915 - meeting at Kaiser on 091210.
040917 -  ..
040918 - On 091210 0830 Millie met with Doctor Johnson primary care physician;
040919 - examination showed possible progression of cancer after 1st cycle of
040920 - Navelbine, ref SDS 40 0J4L; doctor prescribed 2nd cycle to evaluate
040921 - effectivness. ref SDS 40 BW53
040923 -  ..
040924 - On 091211 0018 Millie letter confirms understandings from meeting at
040925 - Kaiser and thanks thanked medical team for excellent care, ref SDS 41
040926 - BW8I, based on Doctor Johnson's report in the meeting at Kaiser on
040927 - 091210 that Kaiser is collaborating with Doctor Rugo for UCSF to
040928 - prescribe treatment targeted to Millie's patient profile. ref SDS 41
040929 - XM3X
040931 -  ..
040932 - On 091211 1452 Doctor Johnson reports collaborating with Doctor Rugo
040933 - for UCSF as planned during the meeting yesterday. ref SDS 42 BW8I
040935 -  ..
040936 - On 091211 1648 Millie notifies Doctor Johnson to submit correspondence
040937 - of Kaiser collaborating with Doctor Rugo at UCSF on prescribing
040938 - treatment targeted to Millie's patient profile. ref SDS 43 BW8I
040940 -  ..
040941 - On 091214 1649 Doctor Johnson notifies Millie that Doctor Rugo has not
040942 - replied to Kaiser's letter on 091211. ref SDS 44 BW8I
040944 -  ..
040945 - On 091215 0852 Millie asks Doctor Johnson about sending a copy of
040946 - Kaiser's letter to Tara for assisting Doctor Rugo developing UCSF's
040947 - treatment plan targeted to Millie's patient profile. ref SDS 45 BW8I
040949 -  ..
040950 - On 091215 1557 Millie reports blood counts fall, still permit getting
040951 - 1st treatment 2nd cycle Navelbine, ref SDS 46 BW8I, asks about
040952 - progress collaborating on prescribing next treatment to recover from
040953 - 10th relapse of cancer.
040955 -  ..
040956 - On 100103 1147 Millie asks medical team about progress prescribing
040957 - treatment targeted to Millie's patient profile to recover from 10th
040958 - relapse of cancer. ref SDS 47 BW8I  Millie reports new symptom of rash
040959 - on right side of forehead, which is swelling the right eye; requests
040960 - examination tomorrow to prescribe immediate remedy. ref SDS 47 FZ6V
040961 - Reports IBC seems worse, and so need UCSF work plan to recover from
040962 - medical mistakes. ref SDS 47 FZ7U
040964 -  ..
040965 - On 100103 1652 Millie receives automated reply that Doctor Johnson is
040966 - out of the office until 100105, and so cannot make examination
040967 - tomorrow on 100104 requested in Millie's letter this afternoon.
040968 - ref SDS 48 BW8I
040970 -  ..
040971 - On 100103 2023 Millie reponds to notice that Doctor Johnson is out of
040972 - the office tomorrow and so cannot make examination requested in
040973 - Millie's letter earlier today. ref SDS 49 BW8I
040975 -  ..
040976 - On 100104 0830 Millie needs examination of facial blisters today.
040977 - ref SDS 50 BW8I
040979 -  ..
040980 - On 100104 1115 Millie examination Doctor Zhang at Kaiser Adult Care
040981 - diagnoses facial blisters are shingles, 100104 1115, ref SDS 51 0P9S,
040982 - and prescribed 2 week treatment. ref SDS 51 QB5K
040984 -  ..
040985 - On 100104 2144 Mille notified medical team on results of meetings
040986 - today at Kaiser that diagnosed and prescirbed treatment for Shingles.
040987 - ref SDS 52 BW8I
040989 -  ..
040990 - On 100106 1327 Doctor Johnson called to ask about meeting with Millie
040991 - to review progress recovering from shingles, ref SDS 55 BW8I,
040992 - diagnosed by Doctor Zhang at Kaiser, as reported in Millie's letter to
040993 - the medical team on 100104 2144. ref SDS 52 BW8I  Millie is too ill
040994 - for meeting at Kaiser; hoping to be able to meet next week as
040995 - currently scheduled on 100112. ref SDS 55 TF4F  Doctor Johnson
040996 - reported that Kaiser has not received a response from UCSF to Doctor's
040997 - letter requesting support for Millie's treatment to recover from 10th
040998 - relapse of cancer; doctor asks if Millie has been contacted by Doctor
040999 - Rugo. ref SDS 55 216K  Doctor Johnson sent a copy to Tara of his
041000 - letter on 091211 to Doctor Rugo, so that Tara can assist Doctor Rugo
041001 - developing a treatment plan in time to be effective. ref SDS 55 CX5F
041002 - Doctor Johnson sent a copy of his letter on 091211 to Doctor Rugo at
041003 - UCSF to Millie, so that the medical team can be supported by the
041004 - doctor/patient partnership. ref SDS 55 KN66
041006 -  ..
041007 - On 100108 0852 Millie thanks the medical team for collaborating to
041008 - prescribe treatment in time to be effective recovering from the 10th
041009 - relapse of cancer. ref SDS 56 BW8I  Millie reports Doctor Johnson's
041010 - submission to Millie using "secure-email" of a letter Kaiser sent to
041011 - Doctor Rugo at UCSF on 091211 could not be accessed, and so requests
041012 - alternate submission. ref SDS 56 MW4P
041014 -  ..
041015 - On 100108 1053 Mona called and advised that Doctor Dossetor advanced
041016 - the date for follow up meeting to examine recovery from shingles to
041017 - 100111 1100, which was originally scheduled on 100118. ref SDS 57 Z35H
041019 -  ..
041020 - On 100108 1330 Millie notifies medical team that Kaiser Opthalmology
041021 - changed the date for follow up examination to evaluate recovery from
041022 - shingles was changed from 100118 to 100111. ref SDS 58 BW8I
041024 -  ..
041025 - On 100108 1618 drove to Kaiser in Walnut Creek and received from the
041026 - customer couner for Oncology an evelope that contained a printed copy
041027 - of Doctor Johnson's letter to Doctor Rugo dated 091211, ref SDS 59
041028 - BW8I; a second printed document on a single sheet of paper showed
041029 - Doctor Johnson's transmittal forwarding the letter on 091211 to Tara,
041030 - ref SDS 59 HT7L, and Tara's report back to Doctor Johnson saying Doctor
041031 - Rugo prescribes PARP at UC Davis, rather than at UCSF. ref SDS 59 FM5I
041033 -  ..
041034 - On 100111 1120 Millie examined by Doctor Dossetor found shingles
041035 - blisers worse than when examined on 100104, but much improved than
041036 - several days ago. ref SDS 60 BW8I  Examination found no evidence of
041037 - disease in the right eye.
041039 -  ..
041040 - On 100112 0047 Millie notified medical team of agenda meeting with
041041 - primary care physician at Kaiser today for prescribing treatment to
041042 - recover from 9th relapse, or changing treatment to begin recovering
041043 - from 10th relapse. ref SDS 61 BW8I
041045 -  ..
041046 - On 100112 0830 Millie met with Doctor Johnson, primary care physician,
041047 - at Kaiser and discussed issues in the agenda submitted to the medical
041048 - team earlier this morning, per above. ref SDS 62 6J4K, specifically
041049 - recovery from shingles and from 9th relapse of cancer, and progresss
041050 - prescribing treatment for the 10th relapse. ref SDS 62 BW8I
041052 -  ..
041053 - On 100121 1120 Millie met with Doctor Johnson at Kaiser to review
041054 - recovery, and ordered another 10 day treatment due to severity of
041055 - shingles.  Resuming treatment was therefore deferred for recovery from
041056 - 9th relapse of cancer with 3rd cycle of Navelbine. ref SDS 65 BW8I
041058 -  ..
041059 - On 100128 1010 the doctor's examination found sufficient recovery from
041060 - shingles to end treatment after the current 10 day prescription, which
041061 - will expire at the end of next week, and order treatment to resume for
041062 - Millie to recover from the 9th relapse of cancer by starting the 3rd
041063 - cycle of Navelbine. ref SDS 66 BW8I
041065 -  ..
041066 - On 100128 2249 Millie sent a letter notifying the medical team and
041067 - confirming understandings from meeting with Doctor Johnson at Kaiser
041068 - today, ref SDS 0 BW8I; examination finds sufficient recovery to end
041069 - treatment for shingles, ref SDS 0 FM4T, and ordering treatment to
041070 - resume next week on 100203 by starting the 3rd cycle of Navelbine
041071 - after a 3 week pause, and in order for Millie to recover from the 9th
041072 - relapse of cancer.
041073 -
041075 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Millie's letter to the medical team says...
041402 -
041403 -    1.  Subject: Meeting at Kaiser Shingles Recovery Resume Navelbine Plan 10th Relapse Pending
041404 -        Date: Thu, 28 Jan 2010 23:37:32 -0800
041418 -         ..
041419 -    2.  This confirms understandings from the meeting today in your
041420 -        office at Kaiser.
041422 -         ..
041423 -    3.  You found shingles has recovered sufficiently to end treatments
041424 -        next week.  I continue to have slight rash on the right
041425 -        forehead and onto the right eye [following treatment initially
041426 -        prescribed on 100104, ref SDS 51 QB5K, and on 100112 Doctor
041427 -        Johnson prescribed a 2nd 10-day treatment for shingles,
041428 -        ref SDS 62 G65N, and during the meeting at Kaiser on 100121,
041429 -        the doctor prescribed a 3rd 10-day treatment].  You expect this
041430 -        will fully recover after completing the current and 3rd 10-day
041431 -        treatment.
041433 -         ..
041434 -    4.  You prescribed Nortriptyline to aid sleep by supplementing
041435 -        oxychodone to relieve pain that has increased the past few
041436 -        days, and which you diagnosed in the medical chart today as
041437 -        "post herpetic neuralgia."  This follows good news in the brain
041438 -        MRI that found no cancer nor other malady causing my headaches.
041440 -         ..
041441 -    5.  By copy advise Gloria, Case Manager for Coumadin in the
041442 -        Coagulation Control Clinic, that treatment for shingles with
041443 -        Acyclovir and Prednisone will complete by the end of next week,
041444 -        and Nortriptyline has been added to medications.
041445 -
041446 -            [On 100202 0830 Millie's lab at Kaiser reported INR 5.8
041447 -            nearly 100% above Kaiser's target range for Millie's safety
041448 -            taking Coumadin to treat pulmonary emolism. ref SDS 67 848J
041450 -             ..
041451 -            [On 100202 1927 Lauri called and asked Millie about changes
041452 -            in medication that may conflict with Coumadin, and so cause
041453 -            excessively elevated INR 5.8; Millie reported that on
041454 -            100128 Kaiser added Nortriptyline to aid sleep. ref SDS 68
041455 -            6K93
041457 -             ..
041458 -            [On 100203 1023 Gloria, Case Manager, Kaiser Coagulation
041459 -            Control Clinic in Martinez reported receiving Millie's
041460 -            letter today on 100128 notifying medical team the the
041461 -            doctor added Nortriptyline to Millie's medications, and did
041462 -            not alert Millie this may affect Coumadin dose and INR
041463 -            blood counts, because Kaiser has gained enough experience
041464 -            using Nortriptyline to establish adjustments to Coumadin,
041465 -            and this can only be determined through trial and error.
041466 -            ref SDS 69 7X4M
041468 -             ..
041469 -            [On 100203 1148 Millie notified medical team that Gloria
041470 -            ordered a 2-day pause in Millie's Coumadin treatments to
041471 -            reduce risks of pulmonary embolism ref SDS 70 J53U
041473 -             ..
041474 -            [On 100203 1148 Millie notifies medical team that Gloria
041475 -            ordered an interim blood draw to test INR on Friday, and
041476 -            wanst the work performed at Kaiser in Walnut Creek, because
041477 -            that lab can issue same-day results, needed to adjust
041478 -            Coumadin on Friday, 100205, and the lab in Kaiser,
041479 -            Martinez, where Millie usually gets blood draws on
041480 -            Tuesdays, does not provide same-day results. ref SDS 70
041481 -            J53X
041483 -             ..
041484 -            [On 100204 1325 Millie's letter to the medical team asks
041485 -            the primary care physician to enter in Millie's medical
041486 -            chart and notify the Chemotherapy Infusion Clinic that
041487 -            Millie's patient profile requires drawing blood from
041488 -            Millie's Power Port rather than use IV needle penetration
041489 -            balancing very low risks of Heprin contamination in the
041490 -            Power Port which has never occurred in Millie's case over 8
041491 -            years, against lymphedema recently diagnosed in the right
041492 -            arm which, has prevented IV needle penetrations in the left
041493 -            arm for 8 years. ref SDS 71 SB6S
041495 -             ..
041496 -            [On 100205 0938 Doctor Johnson did not have time to align
041497 -            Kaiser practices for Millie's blood draws, with Millie's
041498 -            patient profile, so Millie was forced to get the blood draw
041499 -            with an IV in her right arm despite rising IBC and
041500 -            lymphedema; fortunately, the lab was successful on the
041501 -            first needle penetration, and the lab reported the test
041502 -            shows INR 3.2, significant improvement after pausing
041503 -            Coumadin for 2 days. ref SDS 72 IS6R
041505 -             ..
041506 -            [On 100205 1143 Gloria called Millie and sent a letter
041507 -            confirming instructions to resume Coumadin medication to
041508 -            prevent pulmonary embolism, ref SDS 73 QJ85, and adjusting
041509 -            the dose so that INR blood counts decline to a safe level.
041510 -            ref SDS 73 F28V
041512 -         ..
041513 -    6.  Navelbine treatment for 9th relapse of cancer is scheduled to
041514 -        start 3rd cycle next Wednesday on 100203 0730 [...ending 4 week
041515 -        pause treating cancer with chemotherapy ordered by Doctor
041516 -        Johnson on 100112, because Millie was diagnosed with shingles
041517 -        on 100104, and chemotherapy can cause shingles infection to
041518 -        become fatal, due to lower blood counts, and UCSF has not yet
041519 -        scheduled Millie to get "targeted" treatment for her cancer,
041520 -        which does not lower blood counts, and so can be given
041521 -        concurrent with treatment for shingles. ref SDS 62 067F...].
041523 -         ..
041524 -    7.  Examination today shows no significant increase in IBC and
041525 -        lymphedema despite missing 3 weeks of treatment, while
041526 -        recovering from shingles.  CA 15-3 in the lab on 100202 will
041527 -        provide cross-check on IBC status.
041529 -         ..
041530 -    8.  UCSF work plan is pending for recovering from 10th relapse, as
041531 -        related in the letter to the medical team on 100120.
041532 -        ref SDS 64 HL7Y
041534 -         ..
041535 -    9.  This afternoon, Bella called and confirmed the schedule.  She
041536 -        advised that Neupogen needs to be ordered to maintain blood
041537 -        counts, which is required on Thursday or Friday after
041538 -        chemotherapy on Wednesday.  I will get a blood draw at Kaiser
041539 -        in Martinez on Tuesday, 100202 0900.  Expect counts should be
041540 -        okay for chemo, since I have not had Navelbine treatments for 3
041541 -        weeks.
041543 -         ..
041544 -   10.  INR will be checked with the lab on 100202.
041546 -         ..
041547 -   11.  Please confirm the order for Neupogen has been entered.  Bella
041548 -        emphasized in her call today that the doctor must re-order
041549 -        Neupogen to maintain blood counts.
041550 -
041556 -
041557 -
041558 -
041559 -
0416 -