CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 44 0000. ref SDS 42 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 091202 Millie had the 3rd treatment in the 1st cycle of Navelbine.
040902 - ref SDS 26 625I
040904 -  ..
040905 - She is experiencing some possible recovery, but also evident worsening
040906 - of cancer due to lack of treatment targeted to her patient profile.
040908 -  ..
040909 - On 091203, Millie submitted a letter notifying the medical team about
040910 - possible progression of disease, and requesting treatment targeted to
040911 - her patient profile, ref SDS 27 4P7G, following up the letter on
040912 - 091112, ref SDS 22 IL8L, and meeting with Doctor Johnson at Kaiser
040913 - later that day on 091112. ref SDS 23 UT7M  The following letter
040914 - confirms understandings from meeting on 091112, and sets agenda for
040915 - meeting at Kaiser on 091210.
040917 -  ..
040918 - On 091211 0018 Millie letter confirms understandings from meeting at
040919 - Kaiser and thanks thanked medical team for excellent care, ref SDS 29
040920 - BW8I, based on Doctor Johnson's report in the meeting at Kaiser on
040921 - 091210 that Kaiser is collaborating with Doctor Rugo for UCSF to
040922 - prescribe treatment targeted to Millie's patient profile. ref SDS 29
040923 - XM3X
040925 -  ..
040926 - On 091211 1452 Doctor Johnson reports collaborating with Doctor Rugo
040927 - for UCSF as planned during the meeting yesterday. ref SDS 30 BW8I
040929 -  ..
040930 - On 091211 1648 Millie notifies Doctor Johnson to submit correspondence
040931 - of Kaiser collaborating with Doctor Rugo at UCSF on prescribing
040932 - treatment targeted to Millie's patient profile. ref SDS 31 BW8I
040934 -  ..
040935 - On 091214 1649 Doctor Johnson notifies Millie that Doctor Rugo has not
040936 - replied to Kaiser's letter on 091211. ref SDS 32 BW8I
040938 -  ..
040939 - On 091215 0852 Millie asks Doctor Johnson about sending a copy of
040940 - Kaiser's letter to Tara for assisting Doctor Rugo developing UCSF's
040941 - treatment plan targeted to Millie's patient profile. ref SDS 33 BW8I
040943 -  ..
040944 - On 091215 1557 Millie reports blood counts fall, still permit getting
040945 - 1st treatment 2nd cycle Navelbine, ref SDS 34 BW8I, asks about
040946 - progress collaborating on prescribing next treatment to recover from
040947 - 10th relapse of cancer.
040949 -  ..
040950 - On 100103 1147 Millie asks medical team about progress prescribing
040951 - treatment targeted to Millie's patient profile to recover from 10th
040952 - relapse of cancer. ref SDS 35 BW8I  Millie reports new symptom of rash
040953 - on right side of forehead, which is swelling the right eye; requests
040954 - examination tomorrow to prescribe immediate remedy. ref SDS 35 FZ6V
040956 -  ..
040957 - On 100103 1652 Millie receives automated reply that Doctor Johnson is
040958 - out of the office until 100105, and so cannot make examination
040959 - tomorrow on 100104 requested in Millie's letter this afternoon.
040960 - ref SDS 36 BW8I
040962 -  ..
040963 - On 100103 2023 Millie reponds to notice that Doctor Johnson is out of
040964 - the office tomorrow and so cannot make examination requested in
040965 - Millie's letter earlier today. ref SDS 37 BW8I
040967 -  ..
040968 - On 100104 0830 Millie needs examination of facial blisters today.
040969 - ref SDS 38 BW8I
040971 -  ..
040972 - On 100104 2144 Mille notified medical team on results of meetings
040973 - today at Kaiser that diagnosed and prescirbed treatment for Shingles.
040974 - ref SDS 39 BW8I
040976 -  ..
040977 - On 100106 1327 Doctor Johnson called to ask about meeting with Millie,
040978 - on recovering from shingles, ref SDS 43 BW8I, diagnosed by Doctor Zhang
040979 - at Kaiser, as reported in Millie's letter to the medical team on
040980 - 100104 2144. ref SDS 40 BW8I  Millie is too ill for meeting at Kaiser;
040981 - hoping to be able to meet next week as currently scheduled on 100112.
040982 - ref SDS 43 TF4F  Doctor Johnson reported that Kaiser has not received a
040983 - response from UCSF to Doctor's letter requesting support for Millie's
040984 - treatment to recover from 10th relapse of cancer; doctor asks if
040985 - Millie has been contacted by Doctor Rugo. ref SDS 43 216K  Doctor
040986 - Johnson sent a copy to Tara of his letter on 091211 to Doctor Rugo, so
040987 - that Tara can assist Doctor Rugo developing a treatment plan in time
040988 - to be effective. ref SDS 43 CX5F  Doctor Johnson sent a copy of his
040989 - letter on 091211 to Doctor Rugo at UCSF to Millie, so that the medical
040990 - team can be supported by the doctor/patient partnership. ref SDS 43
040991 - KN66
040993 -  ..
040994 - On 100108 0852 Millie thanks the medical team for collaborating to
040995 - prescribe treatment in time to be effective recovering from the 10th
040996 - relapse of cancer. ref SDS 44 BW8I  Millie reports Doctor Johnson's
040997 - submission to Millie using "secure-email" of a letter Kaiser sent to
040998 - Doctor Rugo at UCSF on 091211 could not be accessed, and so requests
040999 - submission using public domain email addresses, continuing practice
041000 - the past 9 years. ref SDS 44 MW4P
041002 -  ..
041003 - On 100108 1053 Mona called and advised that Doctor Dossetor advanced
041004 - the date for follow up meeting to examine recovery from shingles to
041005 - 100111 1100, which was originally scheduled on 100118. ref SDS 45 Z35H
041007 -  ..
041008 - On 100108 1330 Millie notifies medical team that Kaiser Opthalmology
041009 - changed the date for follow up examination to evaluate recovery from
041010 - shingles was changed from 100118 to 100111. ref SDS 46 BW8I
041012 -  ..
041013 - On 100108 1618 drove to Kaiser in Walnut Creek and received from the
041014 - customer couner for Oncology an evelope that contained a printed copy
041015 - of Doctor Johnson's letter to Doctor Rugo dated 091211, ref SDS 0
041016 - BW8I; a second printed document on a single sheet of paper showed
041017 - Doctor Johnson's transmittal forwarding the letter on 091211 to Tara,
041018 - ref SDS 0 HT7L, and Tara's report back to Doctor Johnson saying Doctor
041019 - Rugo prescribes PARP at UC Davis, rather than at UCSF. ref SDS 0 FM5I
041020 -
041021 -
041022 -
041024 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Millie received in a sealed envelope a printed document that purports
041402 - to be the doctor's letter to Doctor Rugo dated 091211.  It consists of
041403 - three short sentences in a single paragraph.  This content was entered
041404 - on 091211 for clarity in the record. ref SDS 30 M33K
041406 -  ..
041407 - Also in the same envelope was another sheet of paper that says the
041408 - following, and seems to be Doctor Johnson forwarding the same letter
041409 - dated 091211 to Tara at UCSF, as discussed with Doctor Johnson in the
041410 - call on 100106 1317. ref SDS 43 CX3I
041411 -
041412 -    1.  Subject:  RE:  Fw:  Mutual Patient (phi)
041413 -        Date:  January 7, 2010 0930
041417 -         ..
041418 -    2.  Thanks for your reply.
041420 -         ..
041431 -
041432 -
041433 - **************************************
041435 -  ..
041436 - Tara responds for Doctor Rugo at UCSF, to Doctor Johnson's letter
041437 - today submitting a copy of his letter to Doctor Rugo on 091211, and
041438 - saying...
041439 -
041440 -    1.  Subject:  RE:  Fw:  Mutual Patient (phi)
041441 -        Date:  January 6, 2010 1729
041448 -         ..
041449 -    2.  Millie sadly does not qualify for our PARP trial because of her
041450 -        previous platinum therapy.  Doctor Rugo suggests that you look
041451 -        in to the phase one trials that UC Davis are having with PARP
041452 -        inhibitors.  Currently at UCSF there are no appropriate trials.
041453 -        Thank you.
041454 -
041455 -               [On 100112 0830 Doctor Johnson reports he tried to
041456 -               contact Doctor Rugo about treating Millie with PARP,
041457 -               planned by UCSF on 090616, and so that Millie would not
041458 -               have to pause chemotherapy treatment for cancer, while
041459 -               recovering from shingles; Doctor Rugo has not had time
041460 -               to call back, ref SDS 47 5M6R, so Doctor Johnson was
041461 -               forced to pause Millie's treatment with chemotherapy
041462 -               until she recovers from shingles. ref SDS 47 G68H
041463 -               Doctor Johnson reviewed PARP that is targeted to
041464 -               Millie's patient profile. ref SDS 47 N586
041466 -                ..
041467 -               [On 100120 0217 Millie's letter to medical team
041468 -               confirmed that Doctor Johnson has called UCSF on
041469 -               starting Millie's treatment with PARP to recover from
041470 -               cancer spreading due to UCSF medical mistakes.
041471 -               ref SDS 48 HL9U
041473 -                ..
041474 -               [On 100302 0830 Doctor Johnson advised again that only
041475 -               way Millie can be treated for cancer concurrent with
041476 -               shingles is with therapy targted to cancer, like PARP,
041477 -               because targeted therapy does not harm blood counts, so
041478 -               immunity is not compromised, which otherwise enables
041479 -               shingles infection to progress. ref SDS 49 IC85
041481 -                ..
041482 -               [On 100427 0830 Doctor Johnson reported again Millie's
041483 -               cancer has mutated to resist chemotherapy, and so she
041484 -               needs a new strategy to treat her cancer as a chronic
041485 -               disease with therapy targeted to her patient profile.
041486 -               ref SDS 50 SJ6N  Aligns with Doctor Johnson's review
041487 -               today of PARP targeted to Millie's triple negative
041488 -               status, reported on 100112 0830, ref SDS 47 N586
041490 -  ..
041491 - UCSF's analysis in Tara's letter today, conflicts with the record...
041493 -             ..
041494 -        1.  UCSF has a duty to provide care correcting medical mistaks
041495 -            that threaten Millie's life from advancing cancer, reported
041496 -            by Doctor Hsu on 090609, ref SDS 12 W65W, and further
041497 -            injured Millie's lungs impairing breathing, also reported
041498 -            by Doctor Hsu on 090609. ref SDS 12 R24G  Millie's complex
041499 -            patient profile requires balancing priorities.
041501 -             ..
041502 -            UCSF exercised doctor discretion for medical necessity to
041503 -            waive strict requirements for treating Millie with MPA by
041504 -            not including cyclophosphamide which was integral to the
041505 -            MPA protocol, reported on 090514, ref SDS 11 265I, because
041506 -            Millie needed treatment to recover from life threatening
041507 -            medical mistakes, reported on 090616. ref SDS 15 EQ5H
041509 -             ..
041510 -            On 090616 Doctor Rugo reported that UCSF and Kaiser agreed
041511 -            that Millie would be treated with PARP after MPA.
041512 -            ref SDS 16 KD6L  UCSF knew on 090616 that Millie had
041513 -            already been treated with Carboplain, and so clearly
041514 -            planned to exercise discretion for medical necessity, as
041515 -            done previously, and to provide the best care possible
041516 -            under the circumstances to satisify liability for medical
041517 -            mistakes.  This agreement that "everybody was on board" was
041518 -            confirmed in a letter to the medical team on 090617 0112.
041519 -            ref SDS 17 VS9P
041520 -
041521 -               [On 100427 0830 Doctor Johnson reported Millie's cancer
041522 -               has mutated to resist chemotherapy, and so she needs a
041523 -               new strategy to treat her cancer as a chronic disease
041524 -               with therapy targeted to her patient profile.
041525 -               ref SDS 50 SJ6N  Aligns with Doctor Johnson's review
041526 -               today of PARP targeted to Millie's triple negative
041527 -               status, reported on 100112 0830, ref SDS 47 N586
041529 -             ..
041530 -            UCSF can exercise the same discretion to treat Millie with
041531 -            PARP or any other protocol shown by evidence to optimize
041532 -            Millie's chances for recovering from UCSF medical mistakes
041533 -            based on the same grounds that discretion was exercised to
041534 -            treat Millie with MPA.
041536 -             ..
041537 -            Alternatively, if UCSF made a mistake on 090616, and
041538 -            falsely, or otherwise misled Millie and Kaiser, then UCSF
041539 -            retains responsibility to provide an alternative treatment
041540 -            plan for Millie to recover from UCSF medical mistakes.
041542 -             ..
041543 -        2.  UCSF exercised discretion for medical necessity to waive
041544 -            strict requirements for treating Millie in the Sunitinib
041545 -            trial that included cyclophosphmaide (Cytoxan), even though
041546 -            Millie had extensive prior treatments with Cytoxan,
041547 -            reported on 081016. ref SDS 5 B38I
041549 -             ..
041550 -        3.  Kaiser exercised discretion to waive strict requirements
041551 -            for treating Millie with Abraxane, even though Abraxane is
041552 -            a more robust form of Taxol, reported by Doctor Johnson on
041553 -            091112, ref SDS 23 NA3O, which UCSF and Kaiser treated
041554 -            Millie with beginning on 080313, ref SDS 4 TZ8I, which UCSF
041555 -            maintains today is grounds for preventing Millie from
041556 -            getting life-saving care. ref SDS 0 FM5I
041558 -             ..
041559 -        4.  UCSF and Kaiser routinely exercised discretion for medical
041560 -            necessity over 9 years to waive strict requirements for
041561 -            Millie to qualify for chemotherapy with low blood counts
041562 -            below published guidance for safe levels.
041572 -
041573 - **********************************
041575 -  ..
041576 - Doctor Johnson forwarded a copy of his letter dated 091211 to Doctor
041577 - Rugo, to Tara for assisting Doctor Rugo in supporting the medical team
041578 - prescribing Millie's next treatment.  Content is shown on 091211.
041579 - ref SDS 30 M33K  Doctor Johnson's transmittal to Tara today says...
041580 -
041581 -    1.  Subject:  Fw:  Mutual Patient (phi)
041582 -        Date:  January 6, 2010 1328:50
041587 -         ..
041588 -    2.  FYI
041589 -
041598 -         ..
041599 -        Forwarded by Robert A Johnson/CA/KAIPERM@KAIPERM on
041600 -        01/06/2010 01:26 PM
041602 -  ..
041603 - This appears to be Doctor Johnson forwarding his letter dated 091211
041604 - to Doctor Rugo, ref SDS 30 BW8I, as planned in the call from Doctor
041605 - Johnson on 100106 1317. ref SDS 42 TU4G
041606 -
041607 -
041608 -
041609 -
041610 -
0417 -