CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 36 0000. ref SDS 34 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 091202 Millie had the 3rd treatment in the 1st cycle of Navelbine.
040902 - ref SDS 21 625I
040904 -  ..
040905 - She is experiencing some possible recovery, but also evident worsening
040906 - of cancer due to lack of treatment targeted to her patient profile.
040908 -  ..
040909 - On 091203, Millie submitted a letter notifying the medical team about
040910 - possible progression of disease, and requesting treatment targeted to
040911 - her patient profile, ref SDS 22 4P7G, following up the letter on
040912 - 091112, ref SDS 17 IL8L, and meeting with Doctor Johnson at Kaiser
040913 - later that day on 091112. ref SDS 18 UT7M  The following letter
040914 - confirms understandings from meeting on 091112, and sets agenda for
040915 - meeting at Kaiser on 091210.
040917 -  ..
040918 - On 091211 0018 Millie letter confirms understandings from meeting at
040919 - Kaiser and thanks thanked medical team for excellent care, ref SDS 24
040920 - BW8I, based on Doctor Johnson's report in the meeting at Kaiser on
040921 - 091210 that Kaiser is collaborating with Doctor Rugo for UCSF to
040922 - prescribe treatment targeted to Millie's patient profile. ref SDS 24
040923 - XM3X
040925 -  ..
040926 - On 091211 1452 Doctor Johnson reports collaborating with Doctor Rugo
040927 - for UCSF as planned during the meeting yesterday. ref SDS 25 BW8I
040929 -  ..
040930 - On 091211 1648 Millie notifies Doctor Johnson to submit correspondence
040931 - of Kaiser collaborating with Doctor Rugo at UCSF on prescribing
040932 - treatment targeted to Millie's patient profile. ref SDS 26 BW8I
040934 -  ..
040935 - On 091214 1649 Doctor Johnson notifies Millie that Doctor Rugo has not
040936 - replied to Kaiser's letter on 091211. ref SDS 27 BW8I
040938 -  ..
040939 - On 091215 0852 Millie asks Doctor Johnson about sending a copy of
040940 - Kaiser's letter to Tara for assisting Doctor Rugo developing UCSF's
040941 - treatment plan targeted to Millie's patient profile. ref SDS 28 BW8I
040943 -  ..
040944 - On 091215 1557 Millie reports blood counts fall, still permit getting
040945 - 1st treatment 2nd cycle Navelbine, ref SDS 29 BW8I, asks about
040946 - progress collaborating on prescribing next treatment to recover from
040947 - 10th relapse of cancer.
040949 -  ..
040950 - On 100103 1147 Millie asks medical team about progress prescribing
040951 - treatment targeted to Millie's patient profile to recover from 10th
040952 - relapse of cancer. ref SDS 30 BW8I  Millie reports new symptom of rash
040953 - on right side of forehead, which is swelling the right eye; requests
040954 - examination tomorrow to prescribe immediate remedy. ref SDS 30 FZ6V
040956 -  ..
040957 - On 100103 1652 Millie receives automated reply that Doctor Johnson is
040958 - out of the office until 100105, and so cannot make examination
040959 - tomorrow on 100104 requested in Millie's letter this afternoon.
040960 - ref SDS 31 BW8I
040962 -  ..
040963 - On 100103 2023 Millie reponds to notice that Doctor Johnson is out of
040964 - the office tomorrow and so cannot make examination requested in
040965 - Millie's letter earlier today. ref SDS 32 BW8I
040967 -  ..
040968 - On 100104 0830 Millie needs examination of facial blisters today.
040969 - ref SDS 33 BW8I
040971 -  ..
040972 - On 100104 2144 Mille notified medical team on results of meetings
040973 - today at Kaiser that diagnosed and prescirbed treatment for Shingles.
040974 - ref SDS 34 BW8I
040976 -  ..
040977 - On 100106 1327 Doctor Johnson called to ask about meeting with Millie,
040978 - on recovering from shingles, ref SDS 36 BW8I, diagnosed by Doctor Zhang
040979 - at Kaiser, as reported in Millie's letter to the medical team on
040980 - 100104 2144. ref SDS 34 BW8I  Millie is too ill for meeting at Kaiser;
040981 - hoping to be able to meet next week as currently scheduled on 100112.
040982 - ref SDS 36 TF4F  Doctor Johnson reported that Kaiser has not received a
040983 - response from UCSF to Doctor's letter requesting support for Millie's
040984 - treatment to recover from 10th relapse of cancer; doctor asks if
040985 - Millie has been contacted by Doctor Rugo. ref SDS 36 216K  Doctor
040986 - Johnson sent a copy to Tara of his letter on 091211 to Doctor Rugo, so
040987 - that Tara can assist Doctor Rugo developing a treatment plan in time
040988 - to be effective. ref SDS 36 CX5F  Doctor Johnson sent a copy of his
040989 - letter on 091211 to Doctor Rugo at UCSF to Millie, so that the medical
040990 - team can be supported by the doctor/patient partnership. ref SDS 36
040991 - KN66
040993 -  ..
040994 - On 100108 0852 Millie thanks the medical team for collaborating to
040995 - prescribe treatment in time to be effective recovering from the 10th
040996 - relapse of cancer. ref SDS 0 BW8I  Millie reports Doctor Johnson's
040997 - submission to Millie using "secure-email" of a letter Kaiser sent to
040998 - Doctor Rugo at UCSF on 091211 could not be accessed, and so requests
040999 - alternate submission. ref SDS 0 MW4P
041000 -
041001 -
041003 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Millie responded to Doctor Johnson's "secure email" received on 100106
041402 - 1352, ref SDS 36 CX9G, and reports to the medical team...
041403 -
041404 -    1.  Subject: Re: Fw: Mutual Patient (phi)
041405 -        Date: Fri, 08 Jan 2010 09:09:18 -0800
041418 -         ..
041419 -    2.  Thanks for calling [on Wednesday] about my progress recovering
041420 -        from shingles. ref SDS 37 BW8I
041422 -         ..
041423 -    3.  I feel better this morning.  Hopefully, will be recovered
041424 -        enough to attend our meeting scheduled next week at Kaiser on
041425 -        Jan 12th to evaluate my next treatment.
041427 -         ..
041428 -    4.  IBC rash seems to have subsided further with Navelbine [this
041429 -        reverses report of possible progression set out in Millie's
041430 -        letter on 100103 1147. ref SDS 30 FZ7U].  Will get a cross
041431 -        check with the lab next Tuesday.  As you know, the cancer
041432 -        marker jumped 30 points or so to CA 15-3 248 in the test on
041433 -        091222, after declining 200 points the past 5 months.  Hoping
041434 -        we see a decline with the test next week to correlate with
041435 -        evident reduced IBC rash this week.
041436 -
041437 -            [On 100112 0047 Millie submits agenda to medical team for
041438 -            meeting with Doctor Johnson to verify evident improvement
041439 -            recovering from IBC. ref SDS 39 IS4W
041441 -             ..
041442 -            [On 100112 0830 Doctor Johnson examination finds
041443 -            substantial recovery from IBC with lesions significantly
041444 -            subsiding on left arm and across Millie's chest.
041445 -            ref SDS 40 3U7H
041447 -         ..
041448 -    5.  Thanks very much for submitting a follow up letter to Doctor
041449 -        Rugo collaborating on UCSF progress with my treatment plan for
041450 -        the 10th relapse of cancer [reported on 100106], ref SDS 36
041451 -        TU4G, as discussed in the letter to the medical team on 100103,
041452 -        ref SDS 30 FZ7Q [and reviewed with the doctor in a call on
041453 -        100106, asking again for copies of Millie's medical record on
041454 -        Kaiser collaborating with UCSF. ref SDS 36 KN66]
041456 -         ..
041457 -    6.  Unfortunately, I was unable to open the copy I received from
041458 -        you  on corresponding with Doctor Rugo and Tara Lacey, because
041459 -        you used a "secure email" modality [reported on 100106],
041460 -        ref SDS 36 4S48, which has presented problems for all of us.
041461 -        Recall on 080305 you reported difficulties opening "secure
041462 -        email" from UCSF. ref SDS 3 US6I  [On 090205, Doctor Johnson
041463 -        asked about switching from public domain email addresses for
041464 -        doctors at Kaiser to use instead Kaiser's internal Knowledge
041465 -        Management email system for emergency communications, because
041466 -        the Doctor checks Kaiser's internal email more often than the
041467 -        public domain system. ref SDS 6 278T
041468 -
041469 -            [On 100309 1238 Millie notifies medical team that Kaiser's
041470 -            Knowledge Management system has been off-line for a week
041471 -            preventing access to patient medical records on lab work.
041472 -            ref SDS 42 HL4V
041474 -             ..
041475 -            [On 100502 0140 Millie letter to medical team explains
041476 -            advantages of public domain email, and waives liability for
041477 -            UCSF and Kaiser from inadvertant breach of patient
041478 -            confidentility in her case. ref SDS 44 CO3W
041480 -             ..
041481 -            [On 100502 2143 Millie received another letter from the
041482 -            medical team at Kaiser which could not be opened again.
041483 -            ref SDS 45 HH4I
041485 -             ..
041486 -            [On 100503 1522 Millie notifies medical team of difficulty
041487 -            handling secure email. ref SDS 46 TD5T
041489 -             ..
041490 -            [On 100503 1945 Kaiser resubmitted letter sent initially
041491 -            with "secure email" for protecting patient confidentiality,
041492 -            and using public domain email with level of confidentiality
041493 -            acceptable to the patient for efficient communication.
041494 -            ref SDS 47 YL5N
041496 -             ..
041497 -            [On 100504 1609 Sara, Practice Manager for UCSF Oncology
041498 -            Breast Care Clinic, called and notified Millie that lawyers
041499 -            in the UCSF Risk Management Department want Millie to use
041500 -            secure email to comply with Federal regulations; Sara does
041501 -            not know what Federal regulations apply in this case, nor
041502 -            what the regulations say that justify denying the patient
041503 -            the right to choose the level of confidentiality suited to
041504 -            the patients need for communicating effectively with her
041505 -            medical team, and with transparency that encourages
041506 -            accuracy and timeliness. ref SDS 48 ZV6M
041508 -         ..
041509 -    7.  If you cannot send content by regular email, as we have been
041510 -        doing the past 9 years, please print the document, and Rod will
041511 -        drive to Kaiser and get a copy from the Oncology front desk.  I
041512 -        need a complete record to support Doctor Rugo and the team
041513 -        going forward.
041514 -
041515 -            [On 100108 1616 drove to Kaiser and received a printed copy
041516 -            of Doctor Johnson's letter to Doctor Rugo dated 091211,
041517 -            ref SDS 38 HT7L, which is entered in the record on 091211,
041518 -            ref SDS 25 M33K; and Tara advises medical team that Doctor
041519 -            Rugo prescribes PARP treatment at UC Davis, rather than at
041520 -            UCSF. ref SDS 38 FM5I
041522 -             ..
041523 -            [On 100301 0005 Millie notified medical team that regular
041524 -            email using public domain addresses for doctors at Kaiser
041525 -            enables efficiently directing the work providing health
041526 -            care in time to be effective extending quality of life, and
041527 -            that Kaiser's confidential "secure" system is a patient
041528 -            benefit, which risks survival due to inefficient
041529 -            communication, as presented in the record on 090205,
041530 -            ref SDS 6 3Z4O, and which the patient therefore waives in
041531 -            order to get the larger benefit of extended survival and
041532 -            quality of life. ref SDS 41 OP4V
041534 -             ..
041535 -            [On 100309 1238 notifies medical team that public domain
041536 -            email addresses for doctors at Kaiser are required to
041537 -            efficiently direct the work performing Millie's health
041538 -            care, and Millie asks if Kaiser needs a signed document
041539 -            authorizing public domain email for confidential "secure"
041540 -            communications. ref SDS 42 HL6R
041542 -             ..
041543 -            [On 100310 0730 Doctor Johnson met with Millie in the
041544 -            Oncology Chemotherapy Infusion Clinic and explained that he
041545 -            checks Kaiser's internal proprietary email system more
041546 -            often than he sees mail in his public domain address at
041547 -            Kaiser; he recommends sending emergency communications to
041548 -            the Kaiser internal proprietary email address. ref SDS 43
041549 -            OR71
041551 -         ..
041552 -    8.  By copy will ask Arlette to facilitate submitting your letter
041553 -        by email or printing the document for hand delivery later
041554 -        today.
041555 -
041556 -            [...below, Arlette called and advised that Doctor Johnson
041557 -            printed the letter, and it can be picked up at the Oncology
041558 -            counter at Kaiser in Walnut Creek. ref SDS 0 4R9F
041560 -         ..
041561 -    9.  By copy also asking Glenna to further assist Doctor Rugo in
041562 -        focusing some time on my treatment plan.  Glenna does not have
041563 -        responsibility in my case.  She was very effective on 090121
041564 -        assisting Doctor Rugo when I suffered the 7th relapse of
041565 -        cancer, and so may be able to work with Tara to get this done
041566 -        now, as well. ref SDS 5 Y67L
041568 -         ..
041569 -   10.  Again, to assist the team a summary of patient treatment
041570 -        history is listed on 090213. ref SDS 7 AC6G
041572 -         ..
041573 -   11.  Please call to let me know about picking up a copy of your
041574 -        letter to Doctor Rugo and Tara on Wednesday. ref SDS 36 TU4G
041575 -
041582 -
041583 -
041585 -  ..
0416 -
0417 -
0418 - 1515
0419 -
041901 - Arlette called.  She advised that Doctor Johnson, who works off-site
041902 - on Friday afternoons, came into the office and printed his letter to
041903 - Doctor Rugo dated 091211, as requested in Millie's letter to the
041904 - medical team this morning. ref SDS 0 MW4U
041905 -
041906 -        [On 100108 1616 drove to Kaiser and received a printed copy of
041907 -        Doctor Johnson's letter to Doctor Rugo dated 091211,
041908 -        ref SDS 38 HT7L, which is entered in the record on 091211,
041909 -        ref SDS 25 M33K; and Tara advises medical team that Doctor Rugo
041910 -        prescribes PART treatment at UC Davis, rather than at UCSF.
041911 -        ref SDS 38 FM5I
041912 -
041913 -
041914 -
041915 -
041916 -
041917 -
041918 -
041919 -
041920 -
0420 -