CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 47 0000. ref SDS 46 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 091202 Millie had the 3rd treatment in the 1st cycle of Navelbine.
040902 - ref SDS 26 625I
040904 -  ..
040905 - She is experiencing some possible recovery, but also evident worsening
040906 - of cancer due to lack of treatment targeted to her patient profile.
040908 -  ..
040909 - On 091203, Millie submitted a letter notifying the medical team about
040910 - possible progression of disease, and requesting treatment targeted to
040911 - her patient profile, ref SDS 27 4P7G, following up the letter on
040912 - 091112, ref SDS 22 IL8L, and meeting with Doctor Johnson at Kaiser
040913 - later that day on 091112. ref SDS 23 UT7M  The following letter
040914 - confirms understandings from meeting on 091112, and sets agenda for
040915 - meeting at Kaiser on 091210.
040917 -  ..
040918 - On 091210 0830 Millie met with Doctor Johnson primary care physician;
040919 - examination showed possible progression of cancer after 1st cycle of
040920 - Navelbine, ref SDS 28 0J4L; doctor prescribed another cycle to
040921 - evaluate effectivness. ref SDS 28 BW53
040923 -  ..
040924 - On 091211 0018 Millie letter confirms understandings from meeting at
040925 - Kaiser and thanks thanked medical team for excellent care, ref SDS 29
040926 - BW8I, based on Doctor Johnson's report in the meeting at Kaiser on
040927 - 091210 that Kaiser is collaborating with Doctor Rugo for UCSF to
040928 - prescribe treatment targeted to Millie's patient profile. ref SDS 29
040929 - XM3X
040931 -  ..
040932 - On 091211 1452 Doctor Johnson reports collaborating with Doctor Rugo
040933 - for UCSF as planned during the meeting yesterday. ref SDS 30 BW8I
040935 -  ..
040936 - On 091211 1648 Millie notifies Doctor Johnson to submit correspondence
040937 - of Kaiser collaborating with Doctor Rugo at UCSF on prescribing
040938 - treatment targeted to Millie's patient profile. ref SDS 31 BW8I
040940 -  ..
040941 - On 091214 1649 Doctor Johnson notifies Millie that Doctor Rugo has not
040942 - replied to Kaiser's letter on 091211. ref SDS 32 BW8I
040944 -  ..
040945 - On 091215 0852 Millie asks Doctor Johnson about sending a copy of
040946 - Kaiser's letter to Tara for assisting Doctor Rugo developing UCSF's
040947 - treatment plan targeted to Millie's patient profile. ref SDS 33 BW8I
040949 -  ..
040950 - On 091215 1557 Millie reports blood counts fall, still permit getting
040951 - 1st treatment 2nd cycle Navelbine, ref SDS 34 BW8I, asks about
040952 - progress collaborating on prescribing next treatment to recover from
040953 - 10th relapse of cancer.
040955 -  ..
040956 - On 100103 1147 Millie asks medical team about progress prescribing
040957 - treatment targeted to Millie's patient profile to recover from 10th
040958 - relapse of cancer. ref SDS 35 BW8I  Millie reports new symptom of rash
040959 - on right side of forehead, which is swelling the right eye; requests
040960 - examination tomorrow to prescribe immediate remedy. ref SDS 35 FZ6V
040962 -  ..
040963 - On 100103 1652 Millie receives automated reply that Doctor Johnson is
040964 - out of the office until 100105, and so cannot make examination
040965 - tomorrow on 100104 requested in Millie's letter this afternoon.
040966 - ref SDS 36 BW8I
040968 -  ..
040969 - On 100103 2023 Millie reponds to notice that Doctor Johnson is out of
040970 - the office tomorrow and so cannot make examination requested in
040971 - Millie's letter earlier today. ref SDS 37 BW8I
040973 -  ..
040974 - On 100104 0830 Millie needs examination of facial blisters today.
040975 - ref SDS 38 BW8I
040977 -  ..
040978 - On 100104 2144 Mille notified medical team on results of meetings
040979 - today at Kaiser that diagnosed and prescirbed treatment for Shingles.
040980 - ref SDS 39 BW8I
040982 -  ..
040983 - On 100106 1327 Doctor Johnson called to ask about meeting with Millie,
040984 - on recovering from shingles, ref SDS 42 BW8I, diagnosed by Doctor Zhang
040985 - at Kaiser, as reported in Millie's letter to the medical team on
040986 - 100104 2144. ref SDS 39 BW8I  Millie is too ill for meeting at Kaiser;
040987 - hoping to be able to meet next week as currently scheduled on 100112.
040988 - ref SDS 42 TF4F  Doctor Johnson reported that Kaiser has not received a
040989 - response from UCSF to Doctor's letter requesting support for Millie's
040990 - treatment to recover from 10th relapse of cancer; doctor asks if
040991 - Millie has been contacted by Doctor Rugo. ref SDS 42 216K  Doctor
040992 - Johnson sent a copy to Tara of his letter on 091211 to Doctor Rugo, so
040993 - that Tara can assist Doctor Rugo developing a treatment plan in time
040994 - to be effective. ref SDS 42 CX5F  Doctor Johnson sent a copy of his
040995 - letter on 091211 to Doctor Rugo at UCSF to Millie, so that the medical
040996 - team can be supported by the doctor/patient partnership. ref SDS 42
040997 - KN66
040999 -  ..
041000 - On 100108 0852 Millie thanks the medical team for collaborating to
041001 - prescribe treatment in time to be effective recovering from the 10th
041002 - relapse of cancer. ref SDS 43 BW8I  Millie reports Doctor Johnson's
041003 - submission to Millie using "secure-email" of a letter Kaiser sent to
041004 - Doctor Rugo at UCSF on 091211 could not be accessed, and so requests
041005 - alternate submission. ref SDS 43 MW4P
041007 -  ..
041008 - On 100108 1053 Mona called and advised that Doctor Dossetor advanced
041009 - the date for follow up meeting to examine recovery from shingles to
041010 - 100111 1100, which was originally scheduled on 100118. ref SDS 44 Z35H
041012 -  ..
041013 - On 100108 1330 Millie notifies medical team that Kaiser Opthalmology
041014 - changed the date for follow up examination to evaluate recovery from
041015 - shingles was changed from 100118 to 100111. ref SDS 45 BW8I
041017 -  ..
041018 - On 100108 1618 drove to Kaiser in Walnut Creek and received from the
041019 - customer couner for Oncology an evelope that contained a printed copy
041020 - of Doctor Johnson's letter to Doctor Rugo dated 091211, ref SDS 46
041021 - BW8I; a second printed document on a single sheet of paper showed
041022 - Doctor Johnson's transmittal forwarding the letter on 091211 to Tara,
041023 - ref SDS 46 HT7L, and Tara's report back to Doctor Johnson saying Doctor
041024 - Rugo prescribes PARP at UC Davis, rather than at UCSF. ref SDS 46 FM5I
041026 -  ..
041027 - On 100111 1120 Millie examined by Doctor Dossetor found shingles
041028 - blisers worse than when examined on 100104, but much improved than
041029 - several days ago. ref SDS 47 BW8I  Examination found no evidence of
041030 - disease in the right eye.
041032 -  ..
041033 - On 100112 0047 Millie notified medical team of agenda meeting with
041034 - primary care physician at Kaiser today for prescribing treatment to
041035 - recover from 9th relapse, or changing treatment to begin recovering
041036 - from 10th relapse. ref SDS 0 BW8I
041037 -
041038 -
041039 -
041041 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Millie's letter to the medical team says...
041402 -
041403 -    1.  Subject: Meeting at Kaiser Plan Treatment 10th Relapse UCSF Prescribes PARP at UC Davis
041404 -        Date: Tue, 12 Jan 2010 02:43:13 -0800
041418 -         ..
041419 -    2.  Good news - blood counts from lab yesterday show continuing
041420 -        strong immune system with ANC (NEUTS at UCSF) 4.4.
041422 -         ..
041423 -    3.  Better news -- I met [yesterday] with Doctor Dossetor in
041424 -        Opthalmology at Kaiser Park Shadelands.  She found shingles
041425 -        worse than on initial examination January 4th.  Since this,
041426 -        however, is much improved from several days ago, the doctor
041427 -        feels I am on track to fully recover by the end of the week or
041428 -        so [reported on 100111 1120]. ref SDS 47 BW8I
041430 -         ..
041431 -    4.  As noted, disease trajectory getting worse, then better aligns
041432 -        with experience at UCSF getting MPA treatment for cancer
041433 -        reported to the team on 090715, ref SDS 17 0I4Y, and
041434 -        previously, with sunitinib, when IBC initially worsened, then
041435 -        achieved significant recovery, reported on 081125. ref SDS 6
041436 -        XX3W
041438 -         ..
041439 -    5.  I hope recovery from shingles continues, because medication
041440 -        prescribed on 100104 has only a few more days supply.  During
041441 -        the meeting today, we can consider whether I need a refill.
041442 -        ref SDS 39 0P4P
041443 -
041444 -            [On 100112 0830 during meeting at Kaiser, Millie's primary
041445 -            care physician, Doctor Johnson, extended Millie's treatment
041446 -            another 10-days, and he ordered delaying the 3rd cycle of
041447 -            Navelbine chemotherapy for Millie to recover from the 10th
041448 -            relapse of cancer, until after completing the 2nd 10-day
041449 -            treatment to recover from shingles. ref SDS 48 G65N
041451 -             ..
041452 -            [On 100128 2249 letter to medical team reports that 3rd
041453 -            10-day treatment for shingles prescribed during meeting at
041454 -            Kaiser on 100121, and this delayed again starting treatment
041455 -            with Navelbine chemotherapy to recover from cancer.
041456 -            ref SDS 49 FM4T
041458 -         ..
041459 -    6.  More good news -- breathing has improved.  The past few weeks I
041460 -        have not needed the inhaler, prescribed on 090919, when I was
041461 -        treated in the Emergency Department for painful breathing
041462 -        following radiation treatments. ref SDS 20 A366
041464 -         ..
041465 -    7.  Recovery from painful breathing aligns with explanation from
041466 -        Doctor Mates, Chief, Kaiser CT Department Walnut Creek, that
041467 -        ground glass opacities caused by radiation treatments, reported
041468 -        by Doctor Rugo on 090515, can dissipate over time.  Possibly
041469 -        this is occurring in my case.
041471 -         ..
041472 -    8.  As reported previously [on 100108 0852. ref SDS 43 MW3R], IBC
041473 -        on my arm and chest seem to have subsided the past week or so,
041474 -        indicating possible response to Navelbine [...and hopefully
041475 -        reversing evident progression of cancer with recent rise of
041476 -        cancer marker CA 15-3 248, reported on, 100103 1147,
041477 -        ref SDS 35 FZ7U].
041478 -
041479 -           [On 100112 0830 Doctor Johnson examination finds substantial
041480 -           recovery from IBC with lesions significantly subsiding on
041481 -           left arm and across Millie's chest. ref SDS 48 3U7H
041483 -         ..
041484 -    9.  On the down side, IBC in the breastbone area, which was missed,
041485 -        when UCSF performed radiation treatments on referral from
041486 -        Kaiser on 090219 - 090317 [and reported by Doctor Hsu during a
041487 -        meeting at UCSF on 090609 to be a medical mistake performing
041488 -        radiation, ref SDS 12 W65W] has worsened, and is now a bloody
041489 -        mess again [...reflected by cancer marker CA 15-3 212, 3 times
041490 -        higher than CA 15-3 80, which Doctor Johnson advised signals
041491 -        need to change treatments, reported on 030710. ref SDS 1
041492 -        WS42...] You can evaluate this during examination in the
041493 -        morning.
041495 -         ..
041496 -   10.  Additionally, I have begun to have headaches.  Vicodin and
041497 -        oxychodone (Percocet) relieve this pain, along with discomfort
041498 -        from IBC and shingles.  My sense is that these new headaches
041499 -        seem somehow different from past headaches.  I am concerned
041500 -        about brain cancer, or other affliction that may be driving a
041501 -        new symptom.
041503 -         ..
041504 -   11.  Thanks for providing Tara's letter dated 100106 presenting UCSF
041505 -        work plan requested in your letter to Doctor Rugo on 091211,
041506 -        and for the purpose of prescribing my next treatment to recover
041507 -        from medical mistakes performing radiation that has caused IBC
041508 -        to spread in recent months.  Tara does not say that Doctor Rugo
041509 -        has consulted with UC Davis on trade-offs getting PARP
041510 -        treatments at UC Davis compared to other treatments for my 10th
041511 -        relapse, presented previously to the team on 090326.  For
041512 -        example, on 090129, Doctor Rugo proposed hyperthermia and doxil
041513 -        cited in my letter to the medical team the next day on 090130.
041514 -        ref SDS 8 A366
041516 -         ..
041517 -   12.  Doctor Hsu in the UCSF Radiation Oncology Department said he
041518 -        has a treatment for me [reported on 090701 1652. ref SDS 16
041519 -        4P51
041521 -         ..
041522 -   13.  The next step is to present analysis of all possible protocols
041523 -        that support a prescription to recover from the 10th relapse of
041524 -        cancer.
041526 -         ..
041527 -   14.  For Gloria in the Coagulation Control Clinic at Kaiser in
041528 -        Martinez -- Beth called after I got back from Kaiser for the
041529 -        lab this morning.   She reported a goof up occurred today
041530 -        identifying blood vials from the lab.  Someone forgot to order
041531 -        INR.  We decided to forgo doing another lab [today], and will
041532 -        check INR next week on 100119.  I expect to have recovered from
041533 -        the drop to INR 1.6, because shingles will have substantially
041534 -        recovered, and so medications will end in a few days.
041536 -         ..
041537 -   15.  Please note the medical chart for the prior meeting on 091210
041538 -        says in part under "Review of systems" that I am "...still able
041539 -        to walk Lafayette Reservoir."
041541 -         ..
041542 -   16.  I have not been able to hike Lafayette Reservoir since about
041543 -        December of last year.  I may have tried a few times in Feb or
041544 -        March of 2009, but certainly by April and May, when breathing
041545 -        problems began after radiation, much of the time I could barely
041546 -        walk from the parking lot to the store.  I was hospitalized
041547 -        twice for painful breathing.  As noted today, I am thrilled
041548 -        that breathing now seems on the mend, but I don't yet feel
041549 -        confident about hiking the route at Lafayette Reservoir.
041550 -        Achieving this result, requires a "targeted" treatment that
041551 -        does not present difficult side effects.  Hoping we can make
041552 -        progress on this treatment objective this morning.
041554 -         ..
041555 -   17.  I was pleased to hear from my daughter Sunday afternoon that
041556 -        she saw you briefly at Lafayette Reservoir [Doctor Johnson
041557 -        previously reported visiting Lafayette Reservoir].  Sounded
041558 -        like she was leaving, and you were arriving.  Rod did a lap in
041559 -        the morning, for cardiothoracic therapy.  At that time, it was
041560 -        cold and overcast.  Pam said the sun was out by 2pm, when she
041561 -        was there and saw you.  Glad you are getting your exercise
041562 -        too!!
041564 -         ..
041565 -   18.  Looking forward to the meeting in the morning at 0830.
041566 -
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041577 -
041578 -
041579 -
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0416 -