THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 1, 2009 08:18 AM Monday; Rod Welch

Kaiser defaults insurance agreement Millie signs up for MPA treatment.

1...Summary/Objective
2...Authorization Representation Filed for Millie Kaiser Claims Resolution
3...Treatment Arranged with UCSF Millie Recover 8th Relapse of Cancer
4...Case Study Chronic Low Blood Counts 6 Months Prior Considering Gemzar
5...Chemotherapy Order Gemzar Conflicts Patient Profile Gives Doctor Headache
6...Headache Doctor Goes Home after Submitting Unsigned Chemotherapy Order
7...Doctor Submits Unsigned Chemotherapy Order Went Home with Headache
8...UCSF Treatment Deferred Pending Kaiser Progress on Promise to Perform


..............
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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 25 0000. ref SDS 22 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040507 -
040509 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Authorization Representation Filed for Millie Kaiser Claims Resolution
040902 -
040903 - Follow up ref SDS 22 4V5I.
040904 -
040905 - Millie went to Kaiser this morning for physical therapy on her
040906 - dislocated shoulder.  At Kaiser in Park Shadelands, one of the staff
040907 - faxed the authorization for Millie's representation to the Kaiser
040908 - Claims Department, which Millie received yesterday from Paula, in
040909 - Member Services Claims Resolution Department, and as planned by Paula
040910 - in a call on 090528 0803. ref SDS 22 4V5I
040912 -  ..
040913 - Millie received a "Send Received" response from Kaiser.
040914 -
040915 -     [...below Kaiser Expedited Claims continue to deny service for
040916 -     Millie on grounds Kaiesr has not received Authorization for
040917 -     Representation. ref SDS 0 HY56
040918 -
040919 -
040920 -
040922 -  ..
0410 -
0411 -
0412 - 0820
0413 -
041301 - Treatment Arranged with UCSF Millie Recover 8th Relapse of Cancer
041302 -
041303 - Follow up ref SDS 29 2E4K.
041304 -
041305 - Since Millie does not have an appointment to get treatment at Kaiesr,
041306 - shown in the letter to Doctor Rugo last night on 090531 2227,
041307 - ref SDS 29 2E4K, called and left message for Mike at UCSF that Millie
041308 - wants to come in and sign consent documents to participate in the
041309 - clinical trial for MPA.
041311 -             ..
041312 -            [...below, Brad called with Kaiser Pharmacy and notified
041313 -            Millie that Doctor Johnson prescribed immediate treatment
041314 -            this week with Gemzar for Millie in the Chemotherapy
041315 -            Infusion Clinic, recommended by Doctor Rugo. ref SDS 0 PQ7V
041317 -             ..
041318 -            [...below, Sheree called with Kaiser Chemotherapy Infusion
041319 -            Clinic and advised that Millie cannot get immediate
041320 -            treatment, because Doctor Johnson did not sign the
041321 -            chemotherapy order for Gemzar, and went home with a
041322 -            headache, and so the order cannot be signed until the
041323 -            doctor recovers and returns to work. ref SDS 0 PQ4F
041325 -  ..
041326 - Advised Mike of letter to Doctor Rugo on 090531. ref SDS 29 2E4K
041327 -
041328 -            [...below Millie received letter from Mike confirming
041329 -            arrangments for treatment at UCSf to recover from Kaiser's
041330 -            failure to perform.6ref SDS 0 SQ5G
041331 -
041332 -
041334 -  ..
0414 -
0415 -
0416 - 0830
0417 -
041701 - Sent a letter responding to Mike's letter on 090514 submitting consent
041702 - to treatment, and confirming telecon message requesting UCSF make
041703 - arrangements for Millie to start treatment, because Kaiser has not
041704 - scheduled care...
041705 -
041706 -    1.  Subject: Re: UCSF MPA Study
041707 -        Date: Mon, 01 Jun 2009 08:30:05 -0700
041714 -         ..
041715 -    2.  Thanks for your letter on 090514 submitting documentation on
041716 -        the MPA study. ref SDS 13 A144  I sent a letter to Doctor Rugo
041717 -        yesterday saying I want to get treatment. ref SDS 29 2E4K  Can
041718 -        you please coordinate arrangements for me to start treatment.
041720 -             ..
041721 -            [...below, Brad called with Kaiser Pharmacy and notified
041722 -            Millie that Doctor Johnson prescribed immediate treatment
041723 -            this week with Gemzar for Millie in the Chemotherapy
041724 -            Infusion Clinic, recommended by Doctor Rugo. ref SDS 0 PQ7V
041726 -             ..
041727 -            [...below, Sheree called with Kaiser Chemotherapy Infusion
041728 -            Clinic and advised that Millie cannot get immediate
041729 -            treatment, because Doctor Johnson did not sign the
041730 -            chemotherapy order for Gemzar, and went home with a
041731 -            headache, and so the order cannot be signed until the
041732 -            doctor recovers and returns to work. ref SDS 0 PQ4F
041734 -             ..
041735 -            [...below Millie received letter from Mike confirming
041736 -            arrangments for treatment at UCSf to recover from Kaiser's
041737 -            failure to perform.6ref SDS 0 SQ5G
041739 -         ..
041740 -    3.  Doctor [Hsu] ordered a CT test on 090413 in order for me to
041741 -        start treatment in the new study.  There have been unfortunate
041742 -        delays in me starting treatment, so I am hoping I don't need
041743 -        another CT test, but please let me know if I do so I can make
041744 -        arrangements at Kaiser for the test.  I think all of the other
041745 -        criteria for participating have been met.
041747 -         ..
041748 -    4.  Thanks for your assistance.  Looking forward to working with
041749 -        you.
041750 -
041757 -
041758 -
041759 -
041760 -
041761 -
041762 -
042525 -  ..
0426 -
0427 -
0428 - 1051
0429 -
042901 - Called Mike again at UCSF.
042902 -
042903 - Mike received the phone message this morning, and the follow up
042904 - letter, per above. ref SDS 0 1P8M
042906 -  ..
042907 - Explained that Millie submitted the documents on MPA received from
042908 - Mike during the meeting with Doctor Rugo on 090514, to Doctor Johnson
042909 - the next day at Kaiser for review and approval.
042911 -  ..
042912 - Mike said that UCSF never received the documents from Kaiser.
042914 -  ..
042915 - Mike said the CT test on 090413 is outside the 4 week window required
042916 - by the MPA protocol, so Millie needs another CT test.
042918 -  ..
042919 - Mike will prepare another consent form, which Millie can come in and
042920 - sign today.  Millie has to sign and date the consent before the date
042921 - of the CT test.
042923 -  ..
042924 - Mike will respond to Millie's letter this morning confirming these
042925 - instructions.
042926 -
042927 -            [...below Millie received letter from Mike confirming
042928 -            arrangments for treatment at UCSf to recover from Kaiser's
042929 -            failure to perform.6ref SDS 0 SQ5G
042931 -  ..
042932 - He needs to talk to Doctor Rugo.
042934 -  ..
042935 - Requested a meeting on Thursday at 0800 or 0830.
042937 -  ..
042938 - Mike said Millie may not need to see Doctor Rugo, since all Millie
042939 - needs is the pills to start MPA treatment for the 8th relapse of
042940 - cancer.
042941 -
042942 -            [...below, Kaiser called and notified Millie that Doctor
042943 -            Johnson prescribed treatment for Millie with Gemzar,
042944 -            recommended by Doctor Rugo. ref SDS 0 PQ7V
042946 -             ..
042947 -            [...below, called Mike and discussed updated planning.
042948 -            ref SDS 0 H14T
042949 -
042950 -
042952 -  ..
0430 -
0431 -
0432 - 1111
0433 -
043301 - Called Kaiser Oncology in Walnut Creek, talked to Jen at the front
043302 - desk.
043304 -  ..
043305 - Asked for Arlette to see about scheduling a CT test.
043307 -  ..
043308 - Jen said that Arlette is off Mondays.
043310 -  ..
043311 - Asked for Doctor Johnson.
043313 -  ..
043314 - Jen said the doctor is out the office all day today in a training
043315 - class to implement a new computer system at Kaiser.
043316 -
043317 -
043318 -
043319 -
043321 -  ..
0434 -
0435 -
0436 - 1123
0437 -
043701 - Called Kaiser CT Department.
043702 -
043703 - Talked to Ilmira.
043705 -  ..
043706 - She said they have CT test slots available today, tomorrow and
043707 - Wednesday.
043709 -  ..
043710 - She needs a referral from Millie's doctor.
043711 -
043713 -  ..
0438 -
0439 -
0440 - 1132
0441 -
044101 - Brad called with the Kaiser Oncology Pharmacy in Walnut Creek.
044107 -  ..
044108 - Brad advised that Doctor Johnson has issued a chemotherapy order today
044109 - to treat Millie with Gemzar starting this week.
044110 -
044111 -        [On 090601 1847 Millie's letter notifies medical team of work
044112 -        plan for starting treatment with Gemzar to recover from 8th
044113 -        relapse of cancer. ref SDS 31 9M6F
044115 -  ..
044116 - The doctor's order conflicts with Millie's request for Kaiser to
044117 - provide treatment of Millie's patient profile to recover from the 8th
044118 - relapse of cancer, reported on 090531 1544, ref SDS 28 IH6S and
044119 - ref SDS 28 IH8W, responding to Doctor Johnson's letter on 090529
044120 - saying he can start Gemzar next week. ref SDS 27 MV5G
044122 -  ..
044123 - Treatments that can work for Millie's patient profile were reviewed
044124 - with UCSF on 090121 1017, ref SDS 8 EV53, and drugs targeted to
044125 - Millie's patient profile were submitted to Doctor Johnson on 090326
044126 - 0058. ref SDS 11 DW5S
044128 -             ..
044129 -            [...below, Sheree called with Kaiser Chemotherapy Infusion
044130 -            Clinic and advised that Millie cannot get immediate
044131 -            treatment, because Doctor Johnson did not sign the
044132 -            chemotherapy order for Gemzar, and went home with a
044133 -            headache, and so the order cannot be signed until the
044134 -            doctor recovers and returns to work. ref SDS 0 PQ4F
044136 -  ..
044137 - Doctor Johnson's prescription today to treat Millie with Gemzar aligns
044138 - with Doctor Rugo's letter to the medical team. ref SDS 24 4T6K
044140 -  ..
044141 - Earlier on 090515 Doctor Johnson disclosed that he would get in
044142 - trouble for prescribing Gemzar and Navelbine because these
044143 - single-agent drugs are not suitable for Millie's patient profile.  On
044144 - 090522 1323 Doctor Johnson wrote a letter confirming that these drugs
044145 - may not work at all for Millie. ref SDS 20 UW6G
044146 -
044147 -        [On 090603 1524 Queenie called Millie and repeated the same
044148 -        information Brad presented today; Queenie was not aware of
044149 -        Brad's prior call today. ref SDS 35 6W9H
044151 -  ..
044152 - Requested treatment this week, because Millie has been without
044153 - treatment since 090122.  Doctor Johnson has been ademant that Millie
044154 - needs timely treatment in order to have a chance of recovering from
044155 - the 8th relapse of cancer, shown by case study of patient history on
044156 - 090325. ref SDS 10 L15M
044158 -  ..
044159 - Brad feels that lack of treatment for 5 months is a long time for a
044160 - patient suffering an 8th relapse of cancer.  He will coordinate to
044161 - ensure Millie gets treatment this week.
044162 -
044163 -        [On 090601 1847 Millie's letter notifies medical team of work
044164 -        plan for starting treatment with Gemzar to recover from 8th
044165 -        relapse of cancer. ref SDS 31 9M6F
044167 -         ..
044168 -        [On 090610 0122 notified Paula in Claims Resolution
044169 -        Department that UCSF medical mistakes require UCSF to
044170 -        provide treatment for Millie to recover. ref SDS 39 855G
044172 -         ..
044173 -        [On 090610 0930 Paula advised that UCSF is liable to Kaiser
044174 -        for fixing medical mistakes performing radiation services
044175 -        for Millie on referral from Kaiser. ref SDS 40 855G
044177 -  ..
044178 - Brad advised that Doctor Johnson prescribed a reduced dose of Gemzar
044179 - because Millie's blood counts are already too low in the most recent
044180 - test on 090512 ANC 1320, ref SDS 12 B35J,
044182 -  ..
044183 - This aligns with the doctor's comments on 090515 during the meeting at
044184 - Kaiser.  He was concerned that Millie would have difficulty holding
044185 - blood counts, based on experience with sunitinib during November and
044186 - December.  On 081219 Millie's lab showed nearly everything had dropped
044187 - to below safe levels. ref SDS 7 JK7H  Doctor diagnosed this condition
044188 - in the medical chart as cytopenia. ref SDS 7 465J  As well the medical
044189 - chart under Assessment lists "Pancytopenia due to chemotherapy,"
044190 - ref SDS 7 NE6M, which is another form of low blood counts.
044192 -  ..
044193 - Brad said he is calling to notify Millie that side effects of Gemzar,
044194 - even with a reduced dose, are very severe for a patient with Millie's
044195 - patient profile, having relapsed 8 times.  He related that Gemzar side
044196 - effects will be similar to Adriamycin Cytoxan (AC), and capecitabine
044197 - with Taxol.  Brad's report of severe side effects aligns with research
044198 - reported to the medical team on 090529 1109. ref SDS 26 0M5X  During
044199 - the call today, we reviewed the record on 050516 when Millie felt she
044200 - would rather die than get more capecitabine with Taxol. ref SDS 1 AQ6G
044201 - The doctor then reduced the dose.
044203 -  ..
044204 - Brad's report today of severe side effects for Millie's patient
044205 - profile aligns with Doctor Johnson's report on 090515 that he would
044206 - get in trouble for prescribing Gemzar and Navelbine because these
044207 - single-agent drugs are not suitable for Millie's patient profile.
044208 - ref SDS 14 658J  On 090522 1323 Doctor Johnson wrote a letter
044209 - confirming that these drugs may not work at all for Millie.
044210 - ref SDS 20 UW6G  On 090531 Millie notified the medical team of fearing
044211 - Gemzar would bring weeks and months of agony with devestating side
044212 - effects, then progression cancer. ref SDS 28 IH9S
044213 -
044214 -        [On 090601 1847 Millie reported Brad's warnings to the medical
044215 -        team, and notified the team that she agreed accept the risk of
044216 -        severe side effects from Gemzar based on trust in her doctor to
044217 -        have made a thorough review and determined safety of treatment
044218 -        for Millie's patient profile. ref SDS 31 0C6W
044220 -         ..
044221 -        [On 090603 1524 Queenie called with Kaiser Pharmacy and
044222 -        indicated most patients toleate side effects of Gemzar; she was
044223 -        not aware of Brad's concerns; Queenie will send a letter to
044224 -        Millie confirming Kaiser's guidance on taking Gemzar.
044225 -        ref SDS 35 6W9H
044227 -         ..
044228 -        [On 090605 Millie received documentation from Queenie at Kaiser
044229 -        that discloses Gemzar has high risks for Millie's patient
044230 -        profile; requires extreme caution given after getting treatment
044231 -        with radiation, which Millie received for 4 weeks in February
044232 -        and March, and contiues to suffer side effects; Kaiser further
044233 -        says treatment with Gemzar requires avoiding blood thinners,
044234 -        and Millie is required to take blood thinners every day to
044235 -        prevent death from pulmonary embolism; Gemzar can cause low
044236 -        blood counts that leads to infection and death, Millie has a
044237 -        history of low blood counts. ref SDS 37 V34K
044239 -         ..
044240 -        [On 090609 1427 Kaiser plans blood transfusions to enable
044241 -        Millie to cope with severe effects reducing blood counts that
044242 -        expose risks of infection, and cause pain and suffering getting
044243 -        Gemzar treatments. ref SDS 38 WU3N
044245 -         ..
044246 -        [On 100301 0005 Zan called to verify Millie agreed to treatment
044247 -        for 10th relapse of cancer with Abraxane that has severe side
044248 -        effects. ref SDS 43 OO5X
044250 -  ..
044251 - Brad said that, since Millie is a stage IV cancer patient who has had
044252 - 8 different chemotherapy regimens over the past 8 years, her cancer
044253 - has mutated to resist chemotherapy.  Brad asked if Millie is aware
044254 - that Gemzar chemotherapy may not be effective?  Reviewed patient
044255 - history showing that Doctor Johnson has emphasized many times that
044256 - Millie's cancer resists chemotherapy, shown in case study during the
044257 - meeting at Kaiser on 090213 1130. ref SDS 9 R75G
044258 -
044259 -            [On 100219 1453 Doctor Johnson prescribed Abraxane
044260 -            chemotherapy, ref SDS 42 ER95; Zan the pharmacist called
044261 -            and reported more chemotherapy will not be effective for
044262 -            Millie to recover from cancer, ref SDS 42 LY5F; and has
044263 -            severe risks of fatal infection, ref SDS 42 LY5O; Zan sent
044264 -            a letter confirming severe side effects. ref SDS 42 LP3U
044266 -  ..
044267 - Most recently, Doctor Johnson's letter on 090522 warned the medical
044268 - team that treating Millie with Gemzar may not work at all, because her
044269 - patient profile cannot respond to single-agent treatments like Gemzar
044270 - and Navelbine. ref SDS 20 UW6G
044271 -
044272 -        [On 090603 1128 Millie asks medical team again for work
044273 -        plan with criteria to evaluate progression of her cancer
044274 -        getting Gemzar chemotherapy, and with a list of additional
044275 -        treatments targeted to Millie's patient profile after
044276 -        Gemzar fails, which is expected not to work at all.
044277 -        ref SDS 34 028X
044279 -         ..
044280 -        [On 090605 1447 Kaiser published guidance says Gemzar can cause
044281 -        low blood counts. ref SDS 37 0G49
044283 -         ..
044284 -        [On 090610 0122 notified Paula in Claims Resolution
044285 -        Department that UCSF medical mistakes require UCSF to
044286 -        provide treatment for Millie to recover. ref SDS 39 855G
044288 -         ..
044289 -        [On 090610 0930 Paula advised that UCSF is liable to Kaiser
044290 -        for fixing medical mistakes performing radiation services
044291 -        for Millie on referral from Kaiser. ref SDS 40 855G
044293 -  ..
044294 - Brad is concerned that Millie's patient history of chronic low blood
044295 - counts (see case study of labs past 6 months below, ref SDS 0 FR4F),
044296 - presents severe risks of fatal infection caused by Millie getting more
044297 - chemotherapy, in this case with Gemzar.  He feels more chemotherapy
044298 - will cause infection, even death.
044299 -
044300 -            [On 100104 1115 Millie suffering severe pain, emergency
044301 -            care at Kaiser diagnosed with very severe shingles,
044302 -            ref SDS 41 0P9S, Doctor Zhang prescribes immediate
044303 -            treatment citing risk of complications. ref SDS 41 PS4J
044305 -             ..
044306 -            [On 100219 1453 Doctor Johnson prescribed Abraxane
044307 -            chemotherapy, ref SDS 42 ER95; Zan the pharmacist called
044308 -            and reported more chemotherapy will not be effective for
044309 -            Millie to recover from cancer, ref SDS 42 LY5F; and has
044310 -            severe risks of fatal infection, ref SDS 42 LY5O; Zan sent
044311 -            a letter confirming severe side effects. ref SDS 42 LP3U
044313 -             ..
044314 -            [On 100601 0830 Doctor Johnson diagnosed Phlebitis, which
044315 -            can be fatal causing blood clots; he ordered treatment with
044316 -            Relafen for 2 weeks, ref SDS 44 OP4G; this is the 2nd major
044317 -            infection from treating Millie with chemotherapy that
044318 -            conflicts with patient profile, reported on 090601 0818.
044319 -            ref SDS 30 FR8L
044321 -  ..
044322 - Millie cited this problem yesterday in a letter to the medical team,
044323 - reported on 090531 1544, ref SDS 28 IH7X, and which reviewed Doctor
044324 - Johnson's analysis that treatment "targeted" to Millie's cancer is
044325 - more effective and does not present risks of low blood counts.
044326 - ref SDS 28 IH8Q
044328 -  ..
044329 - Brad feels that Millie might get 1 or 2 cycles of Gemzar, then her
044330 - cancer will certainly progress and a new treatment will be needed.
044332 -  ..
044333 - Brad is also concerned about Millie missing Gemzar treatments due to
044334 - low blood counts.  An example of Kaiser withholding treatment for
044335 - blood counts to recover is on 060810. ref SDS 2 0001  Brad feels that
044336 - Millie's patient history missing treatments, getting Neupogen to
044337 - increase blood counts, and reducing the dose of treatment, which is
044338 - shown in a case study on 060810. ref SDS 2 HV45, will be a bigger
044339 - problem with Gemzar because she has now had a lot more chemotherapy
044340 - treatments.  This past December, Doctor Rugo had to pause daily
044341 - treatments for a week and reduce chemotherapy in order for Millie to
044342 - get sunitinib, discussed with Doctor Johnson at Kaiser on 081219.
044343 - ref SDS 7 SU9Q
044345 -         ..
044346 -        [On 090605 Millie received documentation from Queenis at Kaiser
044347 -        that disclosing that Gemzar has high risks for Millie's patient
044348 -        profile; requires extreme caution given after getting treatment
044349 -        with radiation, which Millie received for 4 weeks in February
044350 -        and March, and contiues to suffer side effects; Kaiser further
044351 -        says treatment with Gemzar requires avoiding blood thinners,
044352 -        and Millie is required to take blood thinners every day to
044353 -        prevent death from pulmonary embolism; Gemzar can cause low
044354 -        blood counts that leads to infection and death, Millie has a
044355 -        history of low blood counts. ref SDS 37 V34K
044356 -
044358 -  ..
044359 - Case Study Chronic Low Blood Counts 6 Months Prior Considering Gemzar
044360 -
044361 - The labs on 081218 showed nearly all of the CBC elements below the
044362 - level for safe chemotherapy treatments, discussed with Doctor Johnson
044363 - at Kaiser on 081219. ref SDS 7 JK7H  Brad was concerned that Doctor
044364 - Johnson's medical chart since that time has consistently reported
044365 - Millie's low blood counts, even when not getting chemotherapy...
044367 -             ..
044368 -            Cytopenia so MXT chemotherapy
044369 -            discontinued.................... 081219, ref SDS 7 465J
044371 -             ..
044372 -            Pancytopenia due to
044373 -            chemotherapy.................... 081219, ref SDS 7 NE6M
044375 -             ..
044376 -            Cytopenia cited in the
044377 -            History section................. 081219, ref SDS 7 465J
044379 -             ..
044380 -            Anemia due to
044381 -            chemotherapy.................... 090213, ref SDS 9 IH88
044383 -             ..
044384 -            Anemia due to
044385 -            chemotherapy.................... 090325, ref SDS 10 IH88
044387 -             ..
044388 -            Cytopenia cited in the
044389 -            History section................. 090515, ref SDS 14 TJ8L
044391 -  ..
044392 - Brad wants Millie to get a blood test today.  If blood counts are
044393 - below 1000, then he will will not approve Doctor Johnson's
044394 - prescription for Gemzar.  Sounded like Millie's doctor can override
044395 - this and allow Millie to be treated.  There is no record of Millie
044396 - being treated with chemotherapy when ANC below is 1000.
044397 -
044398 -        [On 090601 1847 Millie's letter notifies medical team of work
044399 -        plan for starting treatment with Gemzar to recover from 8th
044400 -        relapse of cancer. ref SDS 31 9M6F
044402 -         ..
044403 -        [On 090602 1518 Millie notifies medical team lab shows blood
044404 -        counts good to go for starting Gemzar chemotherapy at Kaiser.
044405 -        ref SDS 33 J47U
044407 -  ..
044408 - Brad is concerned that Millie's blood counts are already very low, and
044409 - since she has not been treatment for 5 months; the liklihood is very
044410 - low that she can hold blood counts for this treatment.
044411 -
044412 -        [On 090602 1300 Millie had a blood test at Kaiser in Martinez,
044413 -        CA, ref SDS 32 VF6G; results show blood counts increase
044414 -        sufficient to start treatment with Gemzar. ref SDS 32 B35J
044416 -         ..
044417 -        [On 090605 Millie received documentation from Queenis at Kaiser
044418 -        that disclosing that Gemzar has high risks for Millie's patient
044419 -        profile; requires extreme caution given after getting treatment
044420 -        with radiation, which Millie received for 4 weeks in February
044421 -        and March, and contiues to suffer side effects; Kaiser further
044422 -        says treatment with Gemzar requires avoiding blood thinners,
044423 -        and Millie is required to take blood thinners every day to
044424 -        prevent death from pulmonary embolism; Gemzar can cause low
044425 -        blood counts that leads to infection and death, Millie has a
044426 -        history of low blood counts. ref SDS 37 V34K
044428 -  ..
044429 - Thanked Brad for support.
044430 -
044431 -
044433 -  ..
0445 -
0446 -
0447 - 1153
0448 -
044801 - Sheree called implementing Brad's work plan, per above. ref SDS 0 HX86
044803 -  ..
044804 - Sheree said Kaiser's schedule in the Oncology Chemotherapy Infusion
044805 - Clinic is for Millie to get a blood draw and test for suitability to
044806 - get treatment the same day she gets the treatment.  This follows the
044807 - practice at UCSF the past 2 years.
044808 -
044809 -
044811 -  ..
044812 - Chemotherapy Order Gemzar Conflicts Patient Profile Gives Doctor Headache
044813 - Headache Doctor Goes Home after Submitting Unsigned Chemotherapy Order
044814 - Doctor Submits Unsigned Chemotherapy Order Went Home with Headache
044815 -
044816 - Asked what time Millie can come in today for the blood draw and get
044817 - treatment, which has been needed for weeks?
044819 -  ..
044820 - Sheree said Millie cannot come today for treatment, because the
044821 - doctor has not signed the chemothearpy order.
044823 -  ..
044824 - She explained that Doctor Johnson brought the Chemotherapy order into
044825 - the Infusion Clinic this morning, but did not sign it.  She does not
044826 - know why.  Normally Chemo Orders are signed when they are received in
044827 - the Clinic.  Sherree said they will not give Millie treatment without
044828 - a Chemotherapy Order signed by the doctor.
044830 -  ..
044831 - Mentioned that Jen said this morning that the doctor was in a training
044832 - class, per above. ref SDS 0 HX93  Can he be paged and reminded to sign
044833 - the Chemotherapy Order to expedite the work for Millie.
044835 -  ..
044836 - Sheree advised that Doctor Johnson went home sick with a migrane
044837 - headache after he delivered the Chemoterhapy Order for Millie to be
044838 - treated with Gemzar.
044839 -
044840 -        [On 090601 1847 Millie's letter notifies medical team of work
044841 -        plan for starting treatment with Gemzar to recover from 8th
044842 -        relapse of cancer was delayed because Chemotherapy Order was
044843 -        not signed by the doctor, and the doctor went home with a
044844 -        headache. ref SDS 31 0C7S
044846 -  ..
044847 - Getting a headache submitting an unsigned order for Millie to get
044848 - Gemzar chemotherapy may reflect deep emotional stress Doctor Johnson
044849 - expressed saying during the meeting at Kaiser on 090515 that he will
044850 - get in trouble for prescribing Navelbine and Gemzar because these
044851 - treatments are not standard of care for Millie's patient profile.
044852 - ref SDS 14 658J
044854 -  ..
044855 - Sheree said that Kaiser's work plan is for Millie to come in on
044856 - Thursday or Friday.  She feels by that time the problem getting the
044857 - doctor's signature can be resolved.  Millie can get a blood draw at
044858 - that time to see if her counts are high enough, and if so she will get
044859 - treatment.
044860 -
044861 -        [On 090603 1511 Queenie called and schedule Millie's treatment
044862 -        on 090611. ref SDS 35 6W9H
044864 -         ..
044865 -        [On 090604 1114 Bella advised that Sheree made a mistake
044866 -        scheduling Millie's Gemzar treatment this week, and planning
044867 -        for same day lab work; Bella said to follow Queenie's schedule
044868 -        for treatment on 090611. ref SDS 36 ZF5S
044870 -  ..
044871 - Asked if Millie can come in today for a blood test to see if she able
044872 - to get treatment with Gemzar, and then if not, then Kaiser will have
044873 - to prescribe another treatment, and if none is prescribed, then Millie
044874 - can get treatment at UCSF, per planning earlier this morning, per
044875 - above. ref SDS 0 VT8M
044877 -  ..
044878 - Sheree said Millie cannot come in today.  Kaiser's work plan is for
044879 - Millie to come in later in the week, on Thursday or Friday.  Millie
044880 - will get a blood draw at that time to see if her counts are high
044881 - enough to get treatment.
044882 -
044883 -        [On 090602 1300 Millie had a blood test at Kaiser in Martinez,
044884 -        CA, ref SDS 32 VF6G; results show blood counts increase
044885 -        sufficient to start treatment with Gemzar. ref SDS 32 B35J
044887 -  ..
044888 - Asked about getting the blood draw today, so that if the counts are
044889 - not high enough then other plans can be made to give Millie treatment
044890 - at UCSF in time to be effective.
044892 -  ..
044893 - Sheree said that since Doctor Johnson has not signed the chemothearepy
044894 - order she also cannot schedule Millie for a blood draw today.
044896 -  ..
044897 - Hopefully, this is not a ploy by Kaiser to force Millie into violation
044898 - of the insurance agreement, but without placing the doctor in jeparody
044899 - for violating standard of care by prescribing Gemzar for Millie's
044900 - patient profile, again as presented by the doctor at Kaiser on 090515.
044901 - ref SDS 14 658J
044903 -  ..
044904 - We reviewed patient history showing Doctor Johnson has standing order
044905 - for Millie to get a blood draw once a month, and the scope is adequate
044906 - to evaluate Millie's blood counts for safely getting chemotherapy with
044907 - Gemzar.
044909 -  ..
044910 - Sheree checked the computer.  She found the doctor's standing order.
044912 -  ..
044913 - Sheree said the Chemotherapy Infusion Department is very busy today
044914 - and tomorrow, and they are short-handed, because people called in sick
044915 - for 2 days.  She suggested calling Kaiser in Martinez.  She provided a
044916 - telephone number for Millie to coordinate with the Martinez Kaiser
044917 - Infusion clininc, so that Millie can be blood drawn from her port.
044919 -  ..
044920 - Sheree entered an order in Kaiser's computer for Millie to get a blood
044921 - draw at Kaiser Infusion Clinic in Martinez, and she specified the
044922 - scope for the Gemzar treatment.
044924 -  ..
044925 - Thanked Sheree for excellent assistance.
044926 -
044927 -        [On 090602 1300 Millie had a blood test at Kaiser in Martinez,
044928 -        CA, ref SDS 32 VF6G; results show blood counts increase
044929 -        sufficient to start treatment with Gemzar. ref SDS 32 B35J
044930 -
044931 -
044932 -
044933 -
044935 -  ..
0450 -
0451 -
0452 - 1215
0453 -
045301 - Called Kaiser Martinez Infusion Clinic.  Talked to Mary Beth.
045302 -
045303 - They will do the blood draw on 090602 1130.
045304 -
045305 -              925 372 1824
045307 -         ..
045308 -        [On 090602 1300 Millie had a blood test at Kaiser in Martinez,
045309 -        CA, ref SDS 32 VF6G; results show blood counts increase
045310 -        sufficient to start treatment with Gemzar. ref SDS 32 B35J
045311 -
045313 -  ..
0454 -
0455 -
0456 - 1227
0457 -
045701 - Millie received a letter from Mike at UCSF confirming telecon this
045702 - morning ordering treatment for cancer to recover from Kaiser's failure
045703 - to perform, per above. ref SDS 0 PP6U
045705 -  ..
045706 - Mike's letter says...
045707 -
045708 -    1.  Subject: RE: UCSF MPA Study
045709 -        Date: Mon, 1 Jun 2009 11:27:48 -0700
045713 -         ..
045714 -    2.  Hi Millie,
045716 -         ..
045717 -    3.  Thank you for informing me of your decision. For the purposes
045718 -        of this study, tumor imaging must be done within 4 weeks of
045719 -        starting treatment, so the CT of the neck, chest, abdomen, and
045720 -        pelvis done on April 14, 2009 is now considered out of window.
045721 -        Another CT must be ordered before starting on study, and a
045722 -        signed consent must be obtained before this procedure can be
045723 -        performed.  Please let me know when you can come in to sign the
045724 -        consent.
045725 -
045726 -            [On 090602 1518 sent copy to Mike of letter notifying
045727 -            medical team that lab shows blood counts have improved
045728 -            enough for starting Gemzar treatment at Kaiser, ordered by
045729 -            Doctor Johnson, and so treatment at UCSF is deferred
045730 -            pending Kaiser attempts to remedy default on insurance
045731 -            contract. ref SDS 33 J48Q
045733 -         ..
045734 -    4.  I will coordinate with Dr. Rugo's schedule to get you in clinic
045735 -        ASAP to start you on treatment.  I will also let you know if
045736 -        there are any other pre-treatment evaluations that need to be
045737 -        performed.
045738 -
045744 -
045745 -
045747 -  ..
0458 -
0459 -
0460 - 1412
0461 -
046101 - Received a call from someone in Kaiser's Expedited Claims department..
046102 -
046103 - The name sounded like "Lacosta" or maybe "Latricia"?
046105 -  ..
046106 - She said that Kaiser has not received Millie's authorization for
046107 - representation.
046109 -  ..
046110 - Advised that Kaiser's letter dated 090527 transmitting Statement of
046111 - Authorized Representative was received on 090529.  Millie signed the
046112 - statement on 090530, and this morning, Millie transmitted the signed
046113 - authorization for represenation, and then faxed the document to Kaiser
046114 - this morning on 090601 0831.  Millie received a "send succesful
046115 - notice" at 0834, per above. ref SDS 0 UD5H
046117 -  ..
046118 - The Kaiser claims woman explained that she received all of the
046119 - correspondence on Millie's claim from Paula in Kaiser's Member
046120 - Services Cliams Resolution Department.  This seems to reflect Paula's
046121 - call on 090528 saying she sent Millie's claim to Expedited Cliams,
046122 - after Expedited Claims sent the claim received from Paula back to
046123 - Paula's office, making a loop. ref SDS 22 PP6Q
046125 -  ..
046126 - Kaiser's claims woman said today during the call that she does not
046127 - understand Millie's claim, and does not have time to read the record.
046128 - She asked what Millie wants?
046130 -  ..
046131 - Referred her to the "subject" of the correspondence that requests a
046132 - plan for urgent treatment of Millie's 8th relapse of cancer applying
046133 - oncology standard of care, as presented to Pamela Powel in Kaiser
046134 - Expedited Claims Department on 090520 1203. ref SDS 17 9595  Reviewed
046135 - telecon with Paula on 090528, who seemed to understand the claim is
046136 - for treatment using standard of care for Millie's patient profile.
046137 - ref SDS 22 PX4H  This was confirmed in Millie's letter to the medical
046138 - team on 090528 1228. ref SDS 23 4N3R
046140 -  ..
046141 - The Kaiser claims woman said that Paula is not handling this claim.
046142 -
046143 -        [On 090610 0122 notified Paula in Claims Resolution
046144 -        Department that UCSF medical mistakes require UCSF to
046145 -        provide treatment for Millie to recover. ref SDS 39 855G
046147 -         ..
046148 -        [On 090610 0930 Paula advised that UCSF is liable to Kaiser
046149 -        for fixing medical mistakes performing radiation services
046150 -        for Millie on referral from Kaiser. ref SDS 40 855G
046152 -  ..
046153 - The Kaiser claims woman then claimed, without having read the record,
046154 - that Millie's claim is for treatment in a clinical trial, and that
046155 - Kaiser's policy is for Medicare patients to call Medicare about
046156 - clinical trials.  She said Kaiser has no further obligations to review
046157 - Millie's claim.
046159 -  ..
046160 - This aligns with Pamela's call on 090521 relating that most claims
046161 - filed wtih Expedited Claims Department are for Medicare patients
046162 - requesting referral to a clinical trial. ref SDS 18 IZ8M  Classifyng
046163 - Millie's claim as requesting referral for a clinical trial seems like
046164 - a fast and easy to avoid the work of investigation and analysis.
046166 -  ..
046167 - Advised again that Millie's claim was presented on 090520 for Kaiser
046168 - to submit a treatment plan that applies oncology standard of care for
046169 - her patient profile, ref SDS 17 9595, and that time is of the essence,
046170 - since Millie has been without systemic treatment since January.
046172 -  ..
046173 - Asked the caller, if she knows Pamela Powell, who also works in the
046174 - Expedited Claims Department?  The woman caller said she knows Pamela.
046176 -  ..
046177 - Reviewed the record on 090521 when Pamela called and said that since
046178 - Millie's claim is for a plan applying standard of care to recover from
046179 - the 8th relapse by treating Millie's cancer as a chronic disease, as
046180 - ordered by her doctor, this case "falls through the cracks" at
046181 - Expedited Claims.  Pamela said Kaiser cannot deny Millie's claim
046182 - because Kaiesr cannot deny the patient treatment. ref SDS 18 UD5H
046183 - Pamela planned to call and assist the doctor in submitting a treatment
046184 - plan for Millie, and send the case back to Paula in Member Services
046185 - Claim Resolution for further processing. ref SDS 18 X68I
046187 -  ..
046188 - The woman said that Pamela Powell is no longer handling Millie's case;
046189 - she asked again for another statement of Millie's claim.
046191 -  ..
046192 - Asked the claims woman to review Kaiser's file on 090521 showing her
046193 - colleague Pamela Powell has processed Millie's claim, and sent the
046194 - matter to the Claims Resolution Department. ref SDS 18 UD5H
046196 -  ..
046197 - The woman said the department is not required to read the case record.
046199 -  ..
046200 - Asked for an email address to submit Millie's claim again, along with
046201 - the record confirming understandings from this call.
046203 -  ..
046204 - The woman said her department does not work with email from patients.
046205 - She can only take a verbal explanation by telephone, along with the
046206 - patient's story proving entitlement.
046208 -  ..
046209 - Advised there has been some new movement in the past hour or so.
046211 -  ..
046212 - Explained call from Brad saying that Doctor Johnson has prescribed
046213 - treatment with Gemzar for Millie, per above, saying Doctor Johnson has
046214 - prescribed Gemzar, ref SDS 0 PQ7V, and warning that Gemzar is not
046215 - appropriate for Millie's patient profile. ref SDS 0 8J8L
046217 -  ..
046218 - The claims woman then said that obviously Millie's claim is now
046219 - resolved by Brad's call.  She feels Millie does not have a claim, and
046220 - so the Expedited Claims Department does not have to issue a
046221 - determination.
046223 -  ..
046224 - Explained the matter is more complex.  It turns out the doctor has not
046225 - signed the Chemotherapy Order. ref SDS 0 PQ4F  Even if the order is
046226 - signed, and Millie gets treatment, this is not a "plan" that meets
046227 - requirements for Millie's patient profile, which is Millie's claim at
046228 - this time against Kaiser.
046229 -
046230 -        [On 090605 Millie received documentation from Kaiser that
046231 -        says Gemzar has high risks for Millie's patient profile;
046232 -        requires extreme caution given after getting treatment with
046233 -        radiation, which Millie received for 4 weeks in February and
046234 -        March, and contiues to suffer side effects; Kaiser further
046235 -        says treatment with Gemzar requires avoiding blood thinners,
046236 -        and Millie is required to take blood thinners every day to
046237 -        prevent death from pulmonary embolism; Gemzar can cause low
046238 -        blood counts that leads to infection and death, Millie has a
046239 -        history of low blood counts. ref SDS 37 V34K
046241 -  ..
046242 - The claims woman disagreed.
046244 -  ..
046245 - Asked the claims woman to issue a denial letter, so this issue can
046246 - proceed to timely resolution for Millie.
046248 -  ..
046249 - The claims woman seemed to say that it is unncessary, because the
046250 - doctor has prescribed treatment.
046252 -  ..
046253 - Asked the woman for the spelling of her name, and an email address to
046254 - confirm these understandings, and include her in distribution to the
046255 - team.
046257 -  ..
046258 - She hung up.
046259 -
046260 -        [On 090610 0122 notified Paula in Claims Resolution
046261 -        Department that UCSF medical mistakes require UCSF to
046262 -        provide treatment for Millie to recover. ref SDS 39 855G
046264 -         ..
046265 -        [On 090610 0930 Paula advised that UCSF is liable to Kaiser
046266 -        for fixing medical mistakes performing radiation services
046267 -        for Millie on referral from Kaiser. ref SDS 40 855G
046268 -
046269 -
046270 -
046272 -  ..
0463 -
0464 -
0465 - 1506
0466 -
046601 - Millie arrived howe from errands.
046602 -
046603 - She found the copy of the fax sent this morning to Kaiser authorizing
046604 - her represenation.
046606 -  ..
046607 - Millie called the number on the document, and left a message on the
046608 - answering machine advising that the authorization was faxed this
046609 - morning.
046610 -
046611 -
047021 -
047023 -  ..
0471 -
0472 -
0473 - 1603
0474 -
047401 - UCSF Treatment Deferred Pending Kaiser Progress on Promise to Perform
047402 -
047403 - Called Mike at UCSF to follow up telecon this morning, per above.
047404 - ref SDS 0 PP6U
047406 -  ..
047407 - Mike advised that Doctor Rugo is off-site today.  He has sent her an
047408 - email to explain plans for starting treatment this week on Thursday.
047410 -  ..
047411 - Explained call from Kaiser this morning advising the primary care
047412 - physician has ordered Gemzar, ref SDS 0 PQ7V, but it turns out that
047413 - Doctor Johnson has not actually signed the work order, and that he
047414 - went home with a headache, ref SDS 0 PQ4F, so it is still not clear
047415 - that Kaiser will provide treatment for Millie, and if not then Millie
047416 - will need immediate treatment from UCSF.
047418 -  ..
047419 - We will get a blood draw tomorrow at Kaiser 1130; and if the counts
047420 - are adequate, and if Doctor Johnson signs the Chemotherapy Order,
047421 - then Millie will get treatment with Gemzar, and treatment with MPA
047422 - will be deferred, pending progression on Gemzar.
047423 -
047424 -            [On 090602 1518 sent copy to Mike of letter notifying
047425 -            medical team that lab shows blood counts have improved
047426 -            enough for starting Gemzar treatment at Kaiser, ordered by
047427 -            Doctor Johnson, and so treatment at UCSF is deferred
047428 -            pending Kaiser attempts to remedy default on insurance
047429 -            contract. ref SDS 33 J48Q
047431 -  ..
047432 - Further decided that treatment this week will be deferred at least
047433 - until next week, because Kaiser needs time to implement its work plan
047434 - with Gemzar.
047435 -
047436 -
047437 -
047438 -
047439 -
047440 -
047441 -
047442 -
0475 -