THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: May 28, 2009 08:03 AM Thursday; Rod Welch

Called Paula McPhail about Kaiser prescribing treatment for Millie.

1...Summary/Objective
2...Millie Over-treated Cannot Estimate Time to Progression
3...May Not Work at All Millie Over-treated Patient Profile Resists Chemo
4...Unfortunately Chemotherapy Drugs Proposed by Kaiser May Not Work at All
5...Targeted Treatment Essential Millie's Patient Profile to Recover 8th Relapse
6...Authorization for Representation Mailed by to Millie by Kaiser


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 22 0000. ref SDS 16 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 090519 1613 Millie responded, ref SDS 8 8V8H, to the Doctor's
040902 - letter earlier yesterday afternoon on 090519 1536, ref SDS 7 5K7H;
040903 - and, Millie asks the doctor to prescribe treatment so she can recover
040904 - from cancer, as done previously in patient history, ref SDS 8 TY3X,
040905 - and further as planned by the doctor during the meeting on 090515
040906 - 1140. ref SDS 6 655R  Millie also asked the doctor to call on
040907 - expediting treatment in time to be effective, see again on 090520
040908 - 1613, ref SDS 8 TY4W; and Millie asks Doctor Rugo for a "drop dead"
040909 - date on how soon treatment must start in order to be effective, also,
040910 - reported on 090519 1613. ref SDS 8 TX4W
040912 -  ..
040913 - Since Kaiser has delayed ordering treatment, reported on 090520 1710.
040914 - ref SDS 13 ZF4Q, then on 090521 0211 Millie's letter to Doctor Rugo at
040915 - UCSF with copy to Doctor Hsu asks about getting treatment with
040916 - hyperthermia and Doxil, while Kaiser resolves delays ordering MPA
040917 - prescribed by Doctor Rugo for Millie to recover from 8th relapse of
040918 - cancer, which Millie reports is getting worse every day, ref SDS 14
040919 - FM7Q, and since Kaiser has previosuly authorized treatment with
040920 - hyperthermia and Doxil, which Doctor Rugo recommended earlier on
040921 - 090129 for Millie to recover from the 7th relapse. ref SDS 14 6M4F
040923 -  ..
040924 - On 090521 2006, Millie received a letter from Doctor Johnson
040925 - responding to Millie's letter to the medical team on 090520 1710, and
040926 - requesting that Kaiser prescribe treatment suitable for Millie's
040927 - patient profile for recovering from 8th relapse of cancer. ref SDS 13
040928 - P65H   Doctor Johnson's letter was sent through Kaiser's Knowledge
040929 - Management System and so was not disclosed to the medical team, and it
040930 - did transmit the Doctor Johnson's medical chart for the meeting on
040931 - 090515, ref SDS 6 YT5N, and said that Millie could "choose" any
040932 - treatment she wants, and no treatment is superior for Millie's patient
040933 - profile, 090521 2006, ref SDS 16 9Q9H; the doctor noted Millie's
040934 - cancer is progressing and so she needs to start treatment by the end
040935 - of the week, which was in just 12 hours, which means today,
040936 - ref SDS 16 HC8O, and the doctor told Millie to call Medicare for
040937 - prescribing treatment to recover from the 8th relapse of cancer.
040938 - ref SDS 16 HC93
040940 -  ..
040941 - On 090522 0813 Millie responded to Doctor Johnson's letter on 090521
040942 - 2006 and submitted copies to the medical team to maintain
040943 - collaboration that has been effective treating Millie the past 8
040944 - years.  Millie also sent a copy to Jullian Kwok to notify Medicare
040945 - that Kaiser is refusing treatment. ref SDS 17 RX6L  Millie asked
040946 - Kaiser to prepare a workup and Tumor Board to evaluate Millie's next
040947 - treatment, including trade-offs comparing all of the treatments
040948 - available for Millie. ref SDS 17 7Z5Y  Millie reports having called
040949 - Kaiser numerous times to speak with the doctor on prescribing
040950 - treatment. ref SDS 17 7Z9Y  Millie notifies medical team she chooses
040951 - hyperthermia and radiation, Doxil, or other agent suitable for
040952 - Millie's patient profile. ref SDS 17 715V
040954 -  ..
040955 - On 090522 1247 Millie received a response from Doctor Johnson to
040956 - Millie's letter on 090522 0813. ref SDS 17 RX6L who sent copies to the
040957 - medical team, and saying Kaiser has performed workups, but does not
040958 - submit any works, and says Millie's patient profile is too complex for
040959 - Tumor Board to evaluate best course of treatment, and that Millie's
040960 - patient profile resists single agent treatments like Gemzar and
040961 - Navelbine, and that Millie can choose Hospice instead of treatment
040962 - with drugs which her patient profile now resists. ref SDS 18 XO5O
040964 -  ..
040965 - On 090522 1351 Millie responded to Kaiser's letter submitted by Doctor
040966 - Johnson on 090522 1247, ref SDS 18 XO5O, confirming Millie needs
040967 - urgent treatment to start quickly, reported on 090522 1351,
040968 - ref SDS 19 7R7J; Millie asks if treatment with Gemzar and Navelbine
040969 - will be weeks of agony then progression of cancer that requires
040970 - another treatment "targeted" to treat Millie's patient profile.
040971 - ref SDS 19 2T4S  Millie requested advice on treatment with a clinical
040972 - trial at Kaiser, based on patient history, ref SDS 19 2T4V, and
040973 - further requested trade-offs getting more hyperthermia and radiation
040974 - and Doxil or other appropriate agent, including vaccines. ref SDS 19
040975 - 2T4Y
040977 -  ..
040978 - Millie Over-treated Cannot Estimate Time to Progression
040979 - May Not Work at All Millie Over-treated Patient Profile Resists Chemo
040980 - Unfortunately Chemotherapy Drugs Proposed by Kaiser May Not Work at All
040981 - Targeted Treatment Essential Millie's Patient Profile to Recover 8th Relapse
040982 -
040983 - Follow up ref SDS 21 NV4L. ref SDS 20 NV4L.
040984 -
040985 - On 090522 1953 Millie received a letter from Doctor Johnson responding
040986 - to Millie's letter to the medical team at Kaiser and UCSF this
040987 - afternoon, reported on 090522 1351. ref SDS 19 7R7J  For some reason,
040988 - the doctor he did not submit copies to the medical team, demonstrating
040989 - uneven case management for coordination and collaboration; the doctor
040990 - confirms that treatment with single-agent chemotherapies presented as
040991 - the only choices for care may not work at all for Millie to recover
040992 - from 8th relapse of cancer. ref SDS 20 NV4L
040994 -  ..
040995 - On 090523 0148 Millie sent a letter to Paula in the Kaiser Claims
040996 - Department with copy to medical team for requesting treatment to
040997 - recover from 8th relapse applying standard of care for Millie's
040998 - patient profile. ref SDS 21 2P6J
040999 -
041000 -
041002 -  ..
0411 -
0412 -
0413 - Progress
0414 -
041401 - Paula nor anyone else has responded to Millie's demand for care in her
041402 - letter to Kaiser on 090523 0148. ref SDS 21 2P6J
041404 -  ..
041405 - Millie's cancer is getting worse.  This morning called for Paula in
041406 - the Pleasanton Kaiser Office of Member Services.
041408 -  ..
041409 - Paula was not in the office.  Left a voice message.
041410 -
041411 -
041413 -  ..
0415 -
0416 -
0417 - 0953
0418 -
041801 - Called Paula back.
041802 -
041803 - Paula said she sent Millie's letter to Kaiser dated 090523 0148,
041804 - ref SDS 21 2P6J, to Kaiser's Expedited Claims Department.  She feels
041805 - that Expedited claims department must process Millie's request first,
041806 - then when a denial is issued, Millie can request further review in her
041807 - office at the Member Services Claims Resolution Department.
041809 -  ..
041810 - Advised that someone from Kaiser called Millie this morning, and
041811 - would not explain what is needed.
041813 -  ..
041814 - Reviewed the record that Paula originally referred Millie's case to
041815 - Expeditied claims, reported on 090520 1153. ref SDS 11 T65H  The next
041816 - day, Pamela in Expedited Claims referred the case back to Paula's
041817 - Department in Member Services Claims Resolution, 090521 0902,
041818 - ref SDS 15 UD5H, and now today Paula feels the case should be referred
041819 - back to Expedited Claims.
041821 -         ..
041822 -        [On 090528 1228 Millie notifies Paula in Member Services Claims
041823 -        Resolution objects to delaying treatment caused by errors
041824 -        referring treatment back and forth between Departments.
041825 -        ref SDS 23 4M6Y
041827 -  ..
041828 - This is a "loop" that denies Millie urgent medical treatment which her
041829 - doctor said should been provided no later than 090522, reported on
041830 - 090521 2006. ref SDS 16 HC8O  Doctor Johnson warned on 090213 that
041831 - Millie's 8th relapse of cancer is very aggressive. ref SDS 5 UP6L
041832 - Kaiser is allowing stage IV cancer to progress for 2 months without
041833 - treatment, while bouncing the patient back and forth delaying care
041834 - with time running out (as the Titanic sinks) on ability of any care to
041835 - be effective.
041836 -
041837 -        [On 090601 0818 at 1412 woman from Expedited Claims called and
041838 -        said Kaiser does not understand Millie's claim for standard of
041839 -        care to treat Millie's 8th relapse of cancer in time to be
041840 -        effective. ref SDS 24 TG5G
041841 -
041843 -  ..
041844 - Authorization for Representation Mailed by to Millie by Kaiser
041845 -
041846 - Paula said not to worry.  Kaiser's records show that authorization for
041847 - representation which Millie submitted to Kaiser in October of 2007 has
041848 - expired.  She will send an internal email to request the authorization
041849 - department send Millie another form in the mail, which Millie can fill
041850 - out and mail back to Kaiser updating Kaiser's records authorizing
041851 - patient assistance, which Millie has had for 8 years.  Paula will ask
041852 - the authorization department to include a return envelope with the
041853 - form to expedite Millie's authorization for patient assistance.  She
041854 - feels this should only take 5 - 10 days, assuming the form is mailed
041855 - to Millie before the weekend.  Paula emphasized that Millie send the
041856 - form back to Kaiser as soon as possible.
041858 -         ..
041859 -        [On 090528 1228 Millie asked for location to go sign Kaiser's
041860 -        forms to mitigate damage from further delay; Kaiser failed to
041861 -        respond. ref SDS 23 4N7U
041863 -         ..
041864 -        [On 090601 0818 Millie received authorization form from Kaiser
041865 -        in the mail; she signed and faxed the form to Kaiser, and
041866 -        received notification of successful delivery. ref SDS 24 UD5H
041868 -         ..
041869 -        [On 090601 0818 at 1412 woman from Expedited Claims called and
041870 -        Kaiser did not receive Millie's form authorizing
041871 -        representation. ref SDS 24 PR4S
041873 -  ..
041874 - Paula asked not to get any more emails expditing Millie's care,
041875 - because she is very busy with other patients.
041877 -  ..
041878 - Discussed opportunity to save time and money by assisting the Doctor
041879 - order prescribed care.  The Member Services Claims Resolution office
041880 - has authority and responsibility to resolve mistakes in time for
041881 - Kaiesr to deliver effective care, shown by Paula's call on 071006,
041882 - ref SDS 2 0001, and by Paula's subsequent letter received from Kaiser
041883 - on 071204. ref SDS 3 TH8L  Failure to perform increases delay for
041884 - doctors and patients, and greatly increases costs of care required by
041885 - EOC section 2, reviewed on 070927 1311. ref SDS 1 WS6M
041887 -  ..
041888 - Paula summarized Millie's claim as a request for treatment in a
041889 - clinical trial.
041891 -  ..
041892 - Explained Millie does not request treatment in a clinical trial; she
041893 - requests in her letter on 090523 a prescription for treatment based on
041894 - the best evidence for standard of care, ref SDS 21 DQ5S, to treat her
041895 - patient profile. listed in the meeting with the doctor on 090213 1140.
041896 - ref SDS 5 ES7I  The doctor has prescribed clincial trials many times,
041897 - because best evidence showed treatments provided standard of care in
041898 - Millie's case, cited in Millie's letter on 090523 0148, ref SDS 21
041899 - DQ8P
041901 -         ..
041902 -        [On 090528 1228 letter to Paula in Kaiser Member Services
041903 -        Claims Resolution Department with copy to medical team confirms
041904 -        telecon with Paula this morning that Millie demands treatment
041905 -        for 8th relapse of cancer. ref SDS 23 4N3R
041907 -  ..
041908 - Millie's claim for urgent treatment was presented to the Expedited
041909 - Claims Department on 090520 1203. ref SDS 12 9595, and was cited in
041910 - the letter to Paula on 090523 requesting Kaiser perform requirements
041911 - of EOC section 2 in the insurance agreement that entitles Millie to
041912 - analysis from the doctor explaining trade-offs for treatments, and a
041913 - prescription for standard of care in time to be effective.  During the
041914 - call today, Paula reviewed Millie's letter and noted her claim for
041915 - medical services to recover from her 8th relapse of cancer.
041916 - ref SDS 21 DQ5S
041918 -  ..
041919 - Explained Millie requests that Kaiser provide standard of care for her
041920 - patient profile listed in the meeting with the doctor on 090213 1140,
041921 - ref SDS 5 ES7I, and specified under EOC section 2, reviewed on 070927.
041922 - ref SDS 1 WS6M
041924 -  ..
041925 - Paula noted that Kaiser policy is to prescribe treatment based on best
041926 - evidence of effectiveness, and patient quality of life, which she
041927 - cited previously on 090520 1153. ref SDS 11 HX3O
041929 -  ..
041930 - Paula said that she is meeting in a few minutes with a colleague who
041931 - has responsibility for Millie's case.  Paula will explain that Millie
041932 - needs urgent support from the Claims Resolution Department to assist
041933 - her doctor prescribe treatment quickly in time to be effective.
041934 -
041935 -
041936 -
041937 -
041938 -
041939 -
041940 -
041941 -
041942 -
041943 -
041944 -
0420 -