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SUBJECTS
Meeting Schedule Agenda Prepare Submit  Panning Medical Team UCSF 08

0803 -
0803 -    ..
0804 - Summary/Objective
0805 -
080501 - Follow up ref SDS 8 0000, ref SDS 2 0000.
080502 -
080503 -
080504 -
080506 -  ..
0806 -
0807 -
0808 - Progress
0809 -
080901 - Millie submitted, ref DIT 1 0001, a letter with an agenda guiding the
080902 - meeting tomorrow at UCSF sent to Jackie with copies to the medical
080903 - team. ref DIT 1 00W3   The letter says...
080904 -
080905 -    1.  Please forward this notice to Megan on ordering blood tests
080906 -        tomorrow 080529 starting the next cycle in the clinical trial,
080907 -        including Magnesium, CA 15-3, and INR. ref DIT 1 0001
080908 -
080909 -            [On 080529 the order for the blood draw was not submitted
080910 -            to the Infusion Clinic. ref SDS 11 OK6N
080912 -         ..
080913 -    2.  UCSF called yesterday and advised that Doctor Rugo and Brigid
080914 -        are not available for the meeting tomorrow.  This [letter]
080915 -        provides issues for review with either Lynn or Mary Lou, who
080916 -        have done excellent work filling in on prior examinations.
080917 -        ref DIT 1 9E6F
080918 -
080919 -            [On 080529 Lynn and Megan attended the meeting with Millie
080920 -            for the UCSF medical team. ref SDS 10 4E65
080922 -             ..
080923 -            [On 080529 Lynn did not receive this letter, and so paused
080924 -            the meeting to go get it; turned out that Jackie did not
080925 -            have time to forward the agenda for the meeting to Lynn.
080926 -            ref SDS 10 4E69
080928 -         ..
080929 -    3.  I took a Neupogen on Sunday, as instructed by Catherine last
080930 -        week on [May 22nd], when NEUTS .96 was again very low.
080931 -        ref SDS 8 PU6K  This past week my energy has been very good.
080932 -        Today I hiked Lafayette twice (about 6 miles) in a good time.
080933 -        Hopefully the labs will show enough improvement for Carboplatin
080934 -        treatment tomorrow. ref DIT 1 9E6L
080936 -         ..
080937 -    4.  I am on the 8th day of the 10 day treatment with Keflex for
080938 -        Cellulitis recurrence reported to the medical team, and
080939 -        prescribed by [the primary care physician] at Kaiser on 080520.
080940 -        ref SDS 7 1K7H  By copy to Kaiser I am reporting that
080941 -        Cellulitis subsided within a few days, and has not recurred,
080942 -        which can be shown by examination tomorrow. ref DIT 1 9E7I
080943 -
080944 -            [On 080529 examination at UCSF finds Millie has recovered
080945 -            from Cellulitis after 10-day treatment with Keflex.
080946 -            ref SDS 10 KH6F
080948 -         ..
080949 -    5.  IBC rash seems to continue to subside from adding Carboplatin,
080950 -        and with fewer than prescribed frequency of treatments.
080951 -        ref DIT 1 9E7Q
080953 -         ..
080954 -    6.  The [primary care physician] reported good news in his letter
080955 -        on May 23rd. ref SDS 9 MG6F  He is collaborating with the
080956 -        surgeon at Kaiser on upgrading my port catheter to a "power
080957 -        port" that can accommodate high pressures from CT test
080958 -        injections of contrast medium, required to solve problems of
080959 -        needle puncture injuries discussed at Kaiser on 080502.
080960 -        ref SDS 4 WX6I, ref DIT 1 9E8L
080961 -
080962 -            [On 080529 Lynn did not get the letter today from the
080963 -            medical team at UCSF, so this issue was not discussed
080964 -            during the meeting. ref SDS 10 4F47
080966 -             ..
080967 -            [On 080605 Millie's letter to the medical team on
080968 -            understandings during the meeting at UCSF on 080529, cites
080969 -            Kaiser progress the primary care physician reports the
080970 -            surgeon can upgrade the port catheter to a Power Port that
080971 -            enables injections of contrast medium for CT tests, which
080972 -            eliminates the problem of injections through an IV using a
080973 -            needle puncture. ref SDS 12 634V
080975 -         ..
080976 -    7.  By copy I am notifying the doctor that the surgeon at Kaiser
080977 -        has still not contacted me about meeting to evaluate having
080978 -        this operation.  Please contact Doctor Riley-Paul to schedule a
080979 -        meeting on this matter. ref DIT 1 9E9L
080981 -         ..
080982 -    8.  I think we are still on a 12 week schedule for CT tests; so we
080983 -        should have about 8 weeks to perform the work in time for the
080984 -        next test (the last test was on 080425).  This issue was
080985 -        discussed with Brigid during the meeting on 080501. ref SDS 3
080986 -        SQ5J  She seemed to indicate that UCSF has been implanting only
080987 -        Power Ports since June of last year. ref SDS 3 TQ6F  Tomorrow I
080988 -        would like to discuss meeting with a doctor at UCSF who has
080989 -        done this work so I can get guidance on upgrading an existing
080990 -        port catheter.  This will help me prepare to meet with the
080991 -        surgeon at Kaiser. ref DIT 1 9E9R
080992 -
080993 -            [On 080606 Millie met with the surgeon at Kaiser on
080994 -            planning to upgrade port catheter to Power Port implements
080995 -            direction from UCSF to do the work on the right side
080996 -            opposite from the primary location of Millie's cancer on
080997 -            the left side. ref SDS 13 IT77
080999 -             ..
081000 -            [On 080608 Millie sent a letter to the surgeon using
081001 -            Kaiser's internal email system, because the doctor is not
081002 -            included in distribution for referral coordination with the
081003 -            medical team at Kaiser and UCSF; and notifying the surgeon
081004 -            of requirements to coordinate surgery to implant the Power
081005 -            Port and to access the new port with a Huber needle to
081006 -            enable CT testing within the next few days. ref SDS 14 XS4S
081007 -
081009 -         ..
081010 -    9.  On May 20th I reported to the medical team some isolated
081011 -        incidents of elevated pulse citing patient history on 080507.
081012 -        ref SDS 5 PQ5L, ref DIT 1 9E4R
081014 -         ..
081015 -   10.  Updating the record; since 080507 I have increased daily
081016 -        training with respect to distance and faster times.  There have
081017 -        been no further episodes of elevated pulse.  I am recovering
081018 -        well after climbing hills (e.g. pulse climbs to 140+ or -, then
081019 -        quickly drops back to below 120), which seems like a good sign.
081020 -        ref DIT 1 9E5O
081022 -  ..
081023 - This notice updated Millie's letter to the medical team on 080520
081024 - reporting increased exercise. ref SDS 6 TV6U
081026 -  ..
081027 - Millie previously reported in a letter on 080409 that exercise
081028 - increased from higher energy tolerating chemotherapy treatments.
081029 - ref SDS 1 W14X  Energy and exercise increased again reported to the
081030 - medical team on 080501, ref SDS 3 FW5J, and also reported to the
081031 - primary care physician the next day on 080502. ref SDS 4 ZD9O
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0811 -