THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: April 9, 2008 12:22 PM Wednesday; Rod Welch

Kaiser UCSF coordination teamwork treatment referral clinical study.

1...Summary/Objective
2...Commend Referral Coordination Order Medication for UCSF Prescription
3...Neupogen Revise Order for Health Care Cost Containment Goals
4...Energy Exercise High Relieves Worry Stress Emotional Trauma
5...Thrilled Results Clinical Trial Cetuximab Carboplatin High Energy
6...Carboplatin Chemotherapy Well Tolerated Energy High Relieves Anxiety


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CONTACTS 

SUBJECTS
Neupogen Magnesium Medications Kaiser  Pescription from Kaiser Pharm

2603 -
2603 -    ..
2604 - Summary/Objective
2605 -
260501 - Follow up ref SDS 67 0000, ref SDS 66 0000.
260502 -
260504 -  ..
2606 -
2607 -
2608 - Progress
2609 -
260901 - Commend Referral Coordination Order Medication for UCSF Prescription
260902 -
260903 - Millie submitted ref DIT 1 0001 to the primary care physician with
260904 - copies to the medical team at UCSF. ref DIT 1 00W3
260905 -
260906 -    1.  Thanks very much for coordinating medications prescribed by
260907 -        UCSF last week on 080404, ref SDS 66 6H9N, [and the day before
260908 -        on 080403. ref SDS 65 TS5U]  Arlette did a great job expediting
260909 -        everything. ref SDS 66 JW6J
260911 -         ..
260912 -    2.  The pharmacy attendant had me buy over-the-counter tablets that
260913 -        combine Calcium and Magnesium. ref SDS 67 J23S  Hopefully, that
260914 -        was okay.  Note for future reference:  the Park Shadelands
260915 -        pharmacy was closed Saturday, so I had to go to Walnut Creek.
260916 -        It took an extra hour or so because of mixups, but that's okay,
260917 -        because the price was right this time. ref SDS 67 7E5L
260918 -
260919 -           [On 080410 blood test shows Magnesium 1.9 which is within
260920 -           the target range, and indicates effective treatment ordered
260921 -           by UCSF on 080404. ref SDS 69 RW6F
260922 -
260924 -  ..
260925 - Neupogen Revise Order for Health Care Cost Containment Goals
260926 -
260927 -
260928 -    3.  I got Neupogen for 1 treatment, with 4 refills, and a syringe
260929 -        with 2 refills.  The plan to get disposable pre-filled Neupogen
260930 -        syringes did not work out for some reason. ref SDS 67 7F3F  In
260931 -        any case, this is a heads up that if more Neupogen is needed,
260932 -        we may have to revise the order.
260933 -
260934 -           [On 080502 the doctor revised the order in Kaiser's computer
260935 -           for Neupogen treatment in the Infusion Clinic to solve
260936 -           problems today, ref SDS 71 NM3M, there was still confusion
260937 -           and delay getting the correct treatment. ref SDS 71 NM6J
260938 -
260939 -
260940 -
260941 -
260942 -
260943 -
260944 -
260945 -
2610 -

SUBJECTS
Energy Exercise High Worry Relieved Stress Anxiety Emotional Trauma

4403 -
440401 -  ..
440402 - Energy Exercise High Relieves Worry Stress Emotional Trauma
440403 - Thrilled Results Clinical Trial Cetuximab Carboplatin High Energy
440404 - Carboplatin Chemotherapy Well Tolerated Energy High Relieves Anxiety
440405 -
440406 - Follow up ref SDS 65 TS5W, ref SDS 63 VU7P.
440407 -
440408 - Millie's letter to Kaiser continues...
440409 -
440410 -    4.  I had been worried about adding Carboplatin to the treatment,
440411 -        because of past experience with chemotherapy causing
440412 -        debilitating loss of energy.  Jackie noted on 080306 that
440413 -        patients tolerate the drug well, but I was still concerned
440414 -        based on patient history. ref SDS 57 7V6M
440416 -  ..
440417 - Millie suffering severe loss of energy and vitality from side effects
440418 - of chemotherapy are reported in a case study on 050422. ref SDS 9 NT3I
440419 - A second case study on 060724 diary side effects for 2nd phase taking
440420 - Taxotere and capecitabine (Xeloda) chemotherapy shows steady rise of
440421 - debilitating side effects. ref SDS 10 QX8K
440423 -  ..
440424 - The same study shows that treatment with cetuximab alone beginning on
440425 - 070201 relieved side effects that cause fatigue, loss of energy that
440426 - prevents exercise and normal living. ref SDS 10 YP4I
440428 -  ..
440429 - During the meeting at Kaiser on 080305 Millie reported worry and doubt
440430 - about tolerating debilitating side effects that increase fatigue,
440431 - reduce energy, exercise, and fitness which in turn reduces blood
440432 - counts preventing treatments to recover from cancer from adding
440433 - chemotherapy Carboplatin to cetuximab weekly treatments. ref SDS 56
440434 - PC6M
440436 -  ..
440437 - Millie's letter to Kaiser continues...
440438 -
440439 -    5.  Things have turned out as Jackie predicted.  So far, there has
440440 -        been only a tiring effect on Saturday, 2 days after treatment.
440441 -        I have been able to increase working out in the gym, including
440442 -        Saturday, and hiking has also increased.  As I recall, side
440443 -        effects accumulate from chemotherapy, so things may slow down.
440444 -        But, at this time I am thrilled with results tolerating the
440445 -        addition of Carboplatin.  It also seems to be treating IBC,
440446 -        with noticeable subsidence of the rash.  Keeping my fingers
440447 -        crossed on CA 15-3??
440449 -             ..
440450 -            [...in another record today, Millie suffered Cellulitis
440451 -            recurrence and lymphedema, ref SDS 68 V45J; treatment in
440452 -            the Emergency Room department, ref SDS 68 0R4H, only
440453 -            evident cause is exercise that overextended left arm where
440454 -            lymph nodes were removed during surgery in 2002 and again
440455 -            in 2005; Millie hiked Lafatette Reservoir 2.75 miles in 45
440456 -            minutes, increasing speed considerably from prior best time
440457 -            of 47 minutes. ref SDS 68 0P44
440459 -             ..
440460 -            [On 080501 Millie reported to the medical team at UCSF
440461 -            continuing tolerance of Carboplatin chemotherapy adding
440462 -            distance and increasing pace of hiking workouts at
440463 -            Lafayette Reservoir and in the gym. ref SDS 70 FW5J
440465 -             ..
440466 -            [On 080502 examination by primary care physician at Kaiser
440467 -            finds favorable response to treatment, ref SDS 71 NH4N,
440468 -            despite getting only 50% of prescribed Carboplatin
440469 -            chemotherapy, ref SDS 71 NH4N, which Millie has tolerated
440470 -            well shown by significantly increased exercise. ref SDS 71
440471 -            ZD9O
440473 -             ..
440474 -            [On 080520 Millie reported in a letter to the Medical team
440475 -            again further increased energy and exercise showing
440476 -            continued tolerance of chemotherapy Carboplatin treatments
440477 -            at UCSF. ref SDS 72 TV6U
440479 -             ..
440480 -            [On 080520 Millie suffered recurrence Cellulitis and
440481 -            lymphedema treatment with Keflex, ref SDS 73 OU5J; reported
440482 -            Cellulitis recurrence to medical team, ref SDS 73 VN4O;
440483 -            primary care physician at Kaiser prescribed 10 day
440484 -            treatment. ref SDS 73 1K7H
440486 -             ..
440487 -            [On 080528 Millie sent another letter to the medical team
440488 -            reporting rising energy and exercise. ref SDS 74 IK5V
440489 -
440490 -
440491 -
440492 -
440493 -
440494 -
440495 -
4405 -