CONTACTS 

SUBJECTS
Meeting 080529 UCSF Start 4th Cycle 2nd Arm Clinical Study Treatment

2003 -
2003 -    ..
2004 - Summary/Objective
2005 -
200501 - Follow up ref SDS 5 0000.
200502 -
200503 -
200504 -
200505 -
200507 -  ..
2006 -
2007 -
2008 - Progress
2009 -
200901 - Coumadin Treatment INR 2.0 Notify Kaiser Coagulation Control Clinic
200902 -
200903 - Millie submitted ref DIT 1 0001 to Doctor Rugo at UCSF with copies to
200904 - the medical team, including Gloria at Kaiser, and to Peter, and Sara
200905 - at UCSF, who investigated having the computer unattended in the
200906 - cafeteria.
200907 -
200908 -    1.  Initially, notifying Gloria at the Kaiser Coagulation Control
200909 -        Clinic that INR was 2.0 for the blood test last week on 080531
200910 -        (May 31) [correction - 080529 (May 29)], ref SDS 6 PU7Y, at the
200911 -        low end, but still within range to maintain current Coumadin
200912 -        treatments for PE. ref DIT 1 0001
200913 -
200914 -
2010 -

SUBJECTS
Patient Interviewed UCSF Security Services Verify Patient Assistant

4603 -
460401 -  ..
460402 - UCSF Security Services Reported Computer Unattended
460403 -
460404 - Follow up ref SDS 5 LD7L.
460405 -
460406 -    2.  Last week on 080531 [correction - 080529] I was visited in the
460407 -        Infusion Clinic by Peter Balesteri, Director of UCSF Security
460408 -        Department.  He explained having received a report that Rod's
460409 -        computer was unattended in the cafeteria for 10 minutes while
460410 -        he brought my lunch up to the 5th floor. ref SDS 5 H756  As you
460411 -        can imagine, a visit from the security forces caused excitement
460412 -        in the Clinic.  Peter was courteous and professional making his
460413 -        report. ref SDS 5 H764, ref DIT 1 GW6F
460415 -         ..
460416 -    3.  I was grateful for Peter's work, and thanked him for taking
460417 -        immediate action, and letting me know what happened.  I
460418 -        understand there was no actual harm in this case, but Peter
460419 -        emphasized risks of theft and disclosure of my medical data, if
460420 -        things are left unattended even for a few minutes.  The main
460421 -        problem was that my schedule of meetings was visible in
460422 -        documents Nola printed, ref SDS 5 H66I, so that Rod can enter
460423 -        the schedule to manage the work.  I am always blabbing to
460424 -        friends about my schedule meeting with you and what wonderful
460425 -        work UCSF does, so if someone sees this on a piece of paper, it
460426 -        seems like an easy call of "no harm no foul."  However, this
460427 -        overlooks sensitivity of others in a hospital setting.
460428 -        ref SDS 5 526J  I am therefore sorry to have caused any
460429 -        problems. ref DIT 1 GW6O
460430 -
460431 -
460433 -  ..
460434 - Confidentiality Privacy Patient Medical Records Maintained by UCSF
460435 - HIPAA Causes Overreaction at UCSF Massive Patient Records Disclosure
460436 -
460437 -
460438 -    4.  Peter mentioned that HIPPA has everyone anxious about running
460439 -        afoul of regulations to preserve patient privacy, ref SDS 5
460440 -        LN52, so I am taking this opportunity to make clear in the
460441 -        record that at no time has anyone on the medical team at UCSF
460442 -        breached any duty to protect my patient privacy. ref SDS 5 H66I
460443 -        You and everyone at UCSF have been excellent both protecting my
460444 -        privacy and delivering medical care. ref SDS 5 537O  Going
460445 -        forward we will continue to respect concerns for UCSF security
460446 -        services, as related by Peter last week. ref DIT 1 GW8H
460448 -         ..
460449 -    5.  I also want to commend Sara Schwab's work meeting with Peter on
460450 -        short notice to discuss my case.  She apparently had to excuse
460451 -        herself from an ongoing meeting to meet with Peter. ref SDS 5
460452 -        H649  By copy to Peter and Sara, I am asking for any writings
460453 -        or reports that may have been prepared, so there is
460454 -        transparency on this matter. ref DIT 1 GW8R
460455 -
460456 -
460457 -
4605 -

SUBJECTS
Surgery Planned Schedule Kaiser Upgrade Port Catheter to Power Port

6603 -
660401 -  ..
660402 - Surgery Planned for Power Port in Time for CT Test Mid-July
660403 -
660404 -
660405 -    6.  Good news.  My primary care physician, Doctor Johnson, has
660406 -        facilitated a meeting scheduled for tomorrow at 1600 with the
660407 -        surgeon at Kaiser [Kaiser letter received on 080523],
660408 -        ref SDS 3 MG6F, to discuss upgrading my port catheter to a
660409 -        Power Port, so that this can be accomplished in time to support
660410 -        the next CT test which should occur about the middle of next
660411 -        month in July, based on the 12-week schedule in relation to the
660412 -        last test on 080425 and the prior test on 080212 [confirms
660413 -        discussion at UCSF on 080529. ref SDS 5 4F5S]  I will emphasize
660414 -        tomorrow importance of getting the work done at Kaiser
660415 -        hopefully by the end of the month, so the new port can be used
660416 -        for the next CT test in July.  That will be a great relief to
660417 -        solve difficulties on the last test [on 080425. ref SDS 2
660418 -        FP6F], ref DIT 1 GW9O
660420 -  ..
660421 - On 080528 Millie reported progress to the medical team planning the
660422 - agenda for meeting the next day on 080529 to discuss Kaiser's project
660423 - to upgrade the port catheter to a Power Port. ref SDS 4 IJ6W  On
660424 - 080529 Lynn did not get the letter sent on 080528 to plan the agenda,
660425 - so this issue was not discussed during the meeting on 080529.
660426 - ref SDS 5 4F47
660428 -            ..
660429 -           [On 080606 meeting at Kaiser to schedule surgery upgrading
660430 -           port catheter to Power Port in time for next CT test OA
660431 -           080718. ref SDS 8 IT8V
660433 -  ..
660434 - The letter today, therefore confirms planning at Kaiser to remove
660435 - Millie's port catheter and replace with a Power Port device.
660436 -
660437 -
660438 -
660439 -
660440 -
6605 -

SUBJECTS
Commend Primary Care Physician Kaiser Oncology Terrific Referral Coo

A203 -
A20401 -  ..
A20402 - Commend Primary Care Physician Kaiser Oncology Referral Coordination
A20403 - Referral Coordination Effective Oncology Communication with Surgery
A20404 -
A20405 -
A20406 - Millie's letter to the medical team continues...
A20407 -
A20408 -    7.  As well, the attendant in the Surgery Department strongly
A20409 -        credited Doctor Johnson for a "terrific" referral citing the
A20410 -        record of patient history that explains background [reported by
A20411 -        the doctor on 080523, ref SDS 3 MG6F, so that the surgeon can
A20412 -        be prepared for a productive meeting.  By copy I am thanking
A20413 -        Doctor Johnson for timely, thorough follow up. ref DIT 1 GW4Q
A20415 -  ..
A20416 - Follows up notice on 080307 that primary care physician scheduled
A20417 - emergency meeting for examination of Cellulitis and lymphedema
A20418 - recurrence, under referral coordination requested by UCSF. ref SDS 1
A20419 - GZ4H
A20420 -
A20421 -           [On 080606 Millie met with the surgeon at Kaiser to plan
A20422 -           Power Port work, doctor well prepared to conduct productive
A20423 -           meeting. ref SDS 8 MG5I
A20425 -            ..
A20426 -           [On 080606 surgeon surprised Millie still alive 7 years
A20427 -           stage IV cancer treatments; research indicates survival rate
A20428 -           10%, ref SDS 8 0T6I; Millie credits team care UCSF Kaiser
A20429 -           UCSF good referral coordination. ref SDS 8 TR6N
A20431 -            ..
A20432 -           [On 080801 report that record on CT test performed 080718
A20433 -           was distributed to support training and technology transfer
A20434 -           on using Power Ports for CT tests. ref SDS 12 SK4K
A20436 -            ..
A20437 -           [On 080811 report that record on CT test performed 080718
A20438 -           distributed to Kaiser management to support analysis on
A20439 -           transformation correcting problems with CT testing that
A20440 -           apply Power Port technology. ref SDS 13 LD3H
A20441 -
A20442 -
A205 -

SUBJECTS
Commend UCSF Kaiser Referral Coordination Collaboration Health Care

AS03 -
AS0401 -  ..
AS0402 - Cost Containment Neupogen UCSF Determines Optimal Requirment
AS0403 - Neupogen Experiment Determine Optimal Treatment for Cost Containment
AS0404 -
AS0405 -
AS0406 -    8.  I also am pleased to thank you and UCSF for health care cost
AS0407 -        containment managing treatments with Neupogen, which are very
AS0408 -        expensive, but have become necessary for me to get Carboplatin
AS0409 -        to treat my cancer.  Brigid has been a big help on this score,
AS0410 -        allowing time to experiment finding the minimum amount of
AS0411 -        Neupogen that enables chemotherapy to be effective reducing my
AS0412 -        cancer these past few months. ref DIT 1 GW5N
AS0414 -         ..
AS0415 -    9.  I took Neupogen on Saturday as prescribed by Lynn last
AS0416 -        Thursday. ref DIT 1 AP6G
AS0417 -
AS0418 -            [...during treatment today, Millie learned the doctor
AS0419 -            prescribed 2 Neupogent treatments per week, ref SDS 7 JN38,
AS0420 -            below, she sent a follow up letter to UCSF after treatment
AS0421 -            to clarify requirements. ref SDS 0 4K4K
AS0423 -         ..
AS0424 -   10.  Today, I get NEUTS, which I hope are high, and CA 15-3 from
AS0425 -        last week which hopefully will be low. ref DIT 1 GW6O
AS0427 -         ..
AS0428 -   11.  Thanks again to all for good work, including UCSF security.
AS0429 -        ref DIT 1 LP6N
AS0430 -
AS0431 -
AS0432 -
AS0433 -
AS0434 -
AS05 -

SUBJECTS
Chemotherapy Orders 080529 Request Clarification Prescribes 2 Neupog

BB03 -
BB04 - 1057
BB0501 -  ..
BB0502 - Neupogen Prescription 2 Treatments Chemotherapy Orders 080529
BB0503 -
BB0504 - Follow up ref SDS 7 JN38.
BB0505 -
BB0506 - Millie submitted ref DIT 2 0001 to Diane in the Infusion Clinic to
BB0507 - confirm understandings today during treatment that the Chemotherapy
BB0508 - Orders on 080529 prescribe 2 Neupogen treatments, ref SDS 7 JN38, and
BB0509 - requests clarification on the dates for treatment.
BB0510 -
BB0511 -    1.  Just forwarding my letter to [Doctor Rugo at] UCSF, ref DIT 1
BB0512 -        0001, on events last week with Peter's visit to the Infusion
BB0513 -        Clinic on Rod's computer issues. ref SDS 0 625Q, ref DIT 2 0001
BB0515 -         ..
BB0516 -    2.  Could you please make a copy of the document [Chemo Orders
BB0517 -        Diane presented this morning during treatment at UCSF,
BB0518 -        ref SDS 7 JN38] showing the prescription last week for Neupogen
BB0519 -        calling for 2 treatments.  Somehow, I didn't get the word, and
BB0520 -        only took 1 Neupogen, based on understandings with Lynn and
BB0521 -        Megan at 0830 in the Breast Care Clinic before treatment.
BB0522 -        ref DIT 2 QJ6H
BB0523 -
BB0524 -            [...in another record today, Millie received the Chemo
BB0525 -            Order from Diane at the end of treatment. ref SDS 7 YD51
BB0527 -         ..
BB0528 -    3.  Does this mean I should take 2 Neupogen shots this week, one on
BB0529 -        Saturday and another on Sunday?  Is there a separate work
BB0530 -        order, or does the prior order control?  Rod spoke to Megan
BB0531 -        when she was in the Infusion Clinic a few minutes ago, and
BB0532 -        explained the mixup last week. ref SDS 7 UE7L  Megan asked if
BB0533 -        Millie's NEUTS were good today, and Rod said just barely at
BB0534 -        1.55, ref SDS 7 QY6H, so I am getting chemo treatment today.
BB0535 -        Megan was glad that, if there was a problem last week, things
BB0536 -        worked out okay today. ref DIT 2 QJ6O
BB0537 -
BB0538 -            [On 080607 confusion about Neupogen caused failure of
BB0539 -            treatment. ref SDS 9 Q67I
BB0541 -         ..
BB0542 -    4.  Megan said she would check with the doctor today on whether I
BB0543 -        should take 1 or 2 Neupogen treatments, ref SDS 7 6I8L;
BB0544 -        however, she seemed very busy, and so this could fall through
BB0545 -        the cracks. ref DIT 2 QJ7O
BB0547 -             ..
BB0548 -            [On 080711 things fell through the cracks again when the CT
BB0549 -            Department at Kaiser did not have enough time to prepare
BB0550 -            for using Millie's Power Port to inject contrast medium,
BB0551 -            and proposed delaying the test. ref SDS 11 PP7O
BB0553 -  ..
BB0554 - Seems like "things fell through the cracks" 5 weeks ago, when Millie
BB0555 - did not get the Chemotherapy Orders for work on 080501 until 2 weeks
BB0556 - later, and only discovered today that UCSF reduced the dose for
BB0557 - Carboplatin on 080501, when Millie received the Chemotherapy Order for
BB0558 - last week on 080529, and compared with the prior Order for 080501, as
BB0559 - reported on 080529. ref SDS 6 MM9I
BB0561 -             ..
BB0562 -            [On 080626 Thomas substitutes for Megan, forgets to submit
BB0563 -            order for blood test, ref SDS 10 YY3N, and blood vials for
BB0564 -            clinical trial tests. ref SDS 10 YY63
BB0566 -  ..
BB0567 - At the end of treatment today, Diane submitted the Chemotherapy Orders
BB0568 - dated 080529, ref SDS 6 4Z8H, and marked received in the Infusion
BB0569 - Clinic on 080602, ref SDS 6 MV6O, and showing 2 Neupogen treatments
BB0570 - are prescribed for the 4th cycle. ref SDS 7 YD51
BB0571 -
BB0572 -
BB0573 -
BB06 -

SUBJECTS
Commend Excellent Medical Care UCSF Oncology Infusion Clinic Gratefu

BT03 -
BT0401 -  ..
BT0402 - Commend Diane Excellent Medical Care UCSF Infusion Clinic
BT0403 -
BT0404 -
BT0405 - Millie's letter to Diane concludes...
BT0407 -         ..
BT0408 -    5.  Taking this occasion to say how grateful I am for your care and
BT0409 -        concern. ref DIT 2 QJ5N
BT0411 -         ..
BT0412 -    6.  Anyway, thanks again for being so good at your job, and so
BT0413 -        caring for your patients, especially me!! (ha ha). ref DIT 2
BT0414 -        QJ8K
BT0415 -
BT0416 -
BT0417 -
BT0418 -
BT0419 -
BT0420 -
BT0421 -
BT0422 -
BT0423 -
BT0424 -
BT05 -