CONTACTS 

SUBJECTS
CT Test Expedite Surgery Power Port Huber  Nedle Injections Contrast

2403 -
2403 -    ..
2404 - Summary/Objective
2405 -
240501 - Follow up ref SDS 8 0000, ref SDS 6 GN8P.
240502 -
240503 -
240504 -
240505 -
240507 -  ..
2406 -
2407 -
2408 - Progress
2409 -
240901 - Millie wrote to Kaiser on 080508 asking the surgery department to
240902 - expedite work on the Power Port in time for her next CT test.
240903 - ref SDS 8 W84T
240905 -  ..
240906 - Urgency to expedite Power Port surgery for the next CT test was
240907 - reviewed in the record on 080508. ref SDS 8 H14O
240909 -  ..
240910 - Kaiser has not responded.
240911 -
240913 -  ..
240914 - Expedite Power Port Surgery in Time for Next CT Test
240915 -
240916 - Millie submitted ref DIT 1 0001 a letter with copies to the medical
240917 - team to follow up the request for Kaiser to expedite work on her Power
240918 - Port in time to get the next CT test, and in order to solve problems
240919 - caused by needle punctures to inject contrast medium, reported on
240920 - 080425. ref SDS 3 FP6F
240921 -
240922 -    1.  On 080508 I sent a note through Kaiser's email system asking
240923 -        about follow up from your contacting Doctor Riley-Paul,
240924 -        ref SDS 8 W84T, the surgeon who implanted my port on 040419.
240925 -        ref SDS 1 PPSW  Recall we discussed at Kaiser on 080502
240926 -        upgrading to a "Power Port" in order to support CT testing.
240927 -        ref SDS 5 WX6I  At that meeting, you sent a letter to Doctor
240928 -        Riley-Paul on this matter. ref SDS 5 VG5J, ref DIT 1 0001
240929 -
240930 -           [On 080523 Millie received a letter from Kaiser advising
240931 -           that the surgeon reports Kaiser can upgrade Millie's port
240932 -           catheter to a Power Port, and he made a referral for this
240933 -           work to be performed, ref SDS 11 MG6F; this will solve the
240934 -           problems reported on 080425 injecting contrast medium for CT
240935 -           tests. ref SDS 3 FP6F
240937 -            ..
240938 -           [On 080528 Millie reported progress to the medical team on
240939 -           Kaiser's project to upgrade the port catheter to a Power
240940 -           Port. ref SDS 12 IJ6W
240942 -            ..
240943 -           [On 080606 planning to upgrade port catheter to Power Port
240944 -           implements direction from UCSF to do the work on the right
240945 -           side opposite from the primary location of Millie's cancer
240946 -           on the left side. ref SDS 13 IT77
240948 -         ..
240949 -    2.  The letter to you on 080508 also considered meeting with the
240950 -        Image Test Department, ref SDS 8 W86P, about possibly slowing
240951 -        the rate of injecting contrast medium to reduce risks from
240952 -        using the current port, an idea discussed at UCSF on 080501.
240953 -        UCSF seems to discourage using the type of port I have for CT
240954 -        tests, but in some cases approves this as an acceptable risk,
240955 -        ref SDS 4 JJ9N, to avoid the problems I experienced on the last
240956 -        CT test on 080425. ref SDS 3 FP6F, ref DIT 1 IQ64
240957 -
240959 -  ..
240960 - CT Test Schedule 4 Weeks Need Power Port Surgery
240961 - Power Port Surgery Needed in 4 Weeks for Next CT Test
240962 -
240963 -
240964 -    3.  Can you please coordinate a meeting or conference call with the
240965 -        surgeon and the Image test folks so we can work toward a
240966 -        solution in time for the next test in about 4 weeks or so.  The
240967 -        prior test was on the 12 week schedule Doctor Rugo approved in
240968 -        September, so we have a bit more time. ref DIT 1 IQ73
240970 -         ..
240971 -    4.  By copy I am alerting the team at UCSF of work on this issue.
240972 -        ref DIT 1 IQ78
240973 -
240974 -           [On 080523 Millie received a letter from Kaiser advising
240975 -           that the surgeon reports Kaiser can upgrade Millie's port
240976 -           catheter to a Power Port, and he made a referral for this
240977 -           work to be performed, ref SDS 11 MG6F; this will solve the
240978 -           problems reported on 080425 injecting contrast medium for CT
240979 -           tests. ref SDS 3 FP6F
240981 -            ..
240982 -           [On 080528 Millie's letter to the medical team coordinated
240983 -           planning required for surgery to implant a Power Port,
240984 -           ref SDS 12 IJ6W, and for CT test department to use the Power
240985 -           Port for Millie's next test. ref SDS 12 IK4Q
240987 -            ..
240988 -           [On 080606 Millie met with the surgeon on planning to
240989 -           upgrade port catheter to Power Port implements direction
240990 -           from UCSF to do the work on the right side opposite from the
240991 -           primary location of Millie's cancer on the left side.
240992 -           ref SDS 13 IT77
240994 -            ..
240995 -           [On 080608 Millie sent a letter to the surgeon using
240996 -           Kaiser's internal email system, because the doctor is not
240997 -           included in distribution for referral coordination with the
240998 -           medical team at Kaiser and UCSF; and notifying the surgeon
240999 -           of requirements to coordinate surgery to implant the Power
241000 -           Port and to access the new port with a Huber needle to
241001 -           enable CT testing within the next few days after surgery.
241002 -           ref SDS 14 XS4S
241003 -
241005 -  ..
241006 - Energy Rising Despite Persistent Low Blood Counts
241007 -
241008 -
241009 -    5.  Apart from low blood counts, as previously reported my energy
241010 -        has been rising, shown by hiking longer distances in less time.
241011 -        I seem to feel very strong, and am certainly grateful to Kaiser
241012 -        and UCSF that things seem to be going so well. ref DIT 1 00W2
241014 -  ..
241015 - Millie reported in a letter on 080409 that exercise increased from
241016 - higher energy tolerating chemotherapy treatments. ref SDS 2 W14X
241017 - Energy and exercise increased again reported to the medical team on
241018 - 080501, ref SDS 4 FW5J, and also reported to the primary care
241019 - physician the next day on 080502. ref SDS 5 ZD9O
241020 -
241021 -            [...in another record today, Millie suffered recurrence
241022 -            Cellulitis and lymphedema treatment with Keflex,
241023 -            ref SDS 10 OU5J; reported Cellulitis recurrence to medical
241024 -            team, ref SDS 10 VN4O; primary care physician at Kaiser
241025 -            prescribed 10 day treatment. ref SDS 10 1K7H
241027 -             ..
241028 -            [On 080528 Millie sent another letter to the medical team
241029 -            reporting further rising energy and exercise. ref SDS 12
241030 -            IK5V
241031 -
241033 -  ..
241034 - Pulse Elevated Extremely High Impact on Cardio-Pulmonary Problems
241035 -
241036 -
241037 -    6.  There have been a few instances of significantly elevated
241038 -        pulse, which may be normal for everybody, and I only notice it
241039 -        because of tracking the pulse now in light of CT testing that
241040 -        reports cardio pulmonary issues.  Please see the report of
241041 -        recent elevated pulse in relation to test history. ref SDS 7
241042 -        PQ5L
241043 -
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2411 -