CONTACTS 

SUBJECTS
Schedule Treatments Next 2 Months Clinical  Sudy Cetuximab Carboplat

1503 -
1503 -    ..
1504 - Summary/Objective
1505 -
150501 - Follow up ref SDS 5 0000, ref SDS 4 0000.
150502 -
150503 -
150504 -
150506 -  ..
1506 -
1507 -
1508 - Progress
1509 -
150901 - Schedule Meetings at UCSF for Continuing Treatment Clinical Trial
150902 -
150903 - Follow up ref SDS 6 IF3S, ref SDS 4 KO5P.
150904 -
150905 - Millie submitted ref DIT 1 0001 to Jackie on coordinating treatment
150906 - UCSF; she has not yet received the schedule requested a week ago...
150907 -
150908 -    1.  Just a quick reminder to submit a schedule for meeting with the
150909 -        Medical Team over the next few months, following up the letter
150910 -        on 080315. ref SDS 6 IF3S, ref DIT 1 0001
150912 -  ..
150913 - The letter today follows up work on 080314 when Millie requested a
150914 - schedule of treatments through August, so that the meetings can be
150915 - scheduled at 0800 to 0830, which enables Millie to get treatment in
150916 - time for completing the work in the early afternoon before traffic
150917 - transforms a 40 minute trip into a 120 minute effort. ref SDS 4 KO5W
150918 -
150919 -            [...below, UCSF does not have time to schedule the work.
150920 -            ref SDS 0 2R5G
150921 -
150922 -
150923 -
150924 -
150925 -
1510 -

SUBJECTS
Cellulitis Recurrence Rash Inflammation Left Arm Change Diagnosis No

3303 -
330401 -  ..
330402 - Cellulitis Treatment Completed Successfully No Recurrence
330403 -
330404 - Follow up ref SDS 6 IE6W. ref SDS 5 V45J.
330405 -
330406 -    2.  This clarifies the report on 080315 that Cellulitis relapsed,
330407 -        and medication was resumed.   There was, or seemed to be,
330408 -        increased inflammation on the upper left arm [reported on
330409 -        080314, ref SDS 5 V45J], however, this subsided by the next
330410 -        day, ref SDS 6 IE6W; and so I only took 1 Keflex pill, and then
330411 -        waited to see if inflammation was more likely due to cetuximab,
330412 -        as occurred previously during examination at Kaiser on 070330.
330413 -        The next day on 080314 inflammation did subside, and so, like
330414 -        today, treatment was not continued. ref SDS 5 JK6G
330416 -         ..
330417 -    3.  Accordingly, the standard 10-day treatment for Cellulitis was
330418 -        completed successfully.
330419 -
330420 -            [On 080409 Millie suffers Cellulitis recurrence,
330421 -            ref SDS 9 5Q6G; treated in Emergency Department with
330422 -            temperature of 101.9, ref SDS 9 0P96, later released for
330423 -            home care. ref SDS 9 M49N
330424 -
330425 -
330426 -
3305 -

SUBJECTS
IBC Photographs Request Patient History from UCSF Measureable Diseas

4003 -
400401 -  ..
400402 - Response to Treatment IBC Subsides Loss of Energy with Carboplatin
400403 - Photographs IBC Response to Treatment Requested fro UCSF
400404 -
400405 - Follow up ref SDS 2 I34M.
400407 -         ..
400408 -    4.  There seems to be initial response to treatment.
400410 -         ..
400411 -    5.  We have not received the photographs of the base line
400412 -        condition, however, my sense is that IBC sites on the chest
400413 -        have reduced intensity compared to the past few months,
400414 -        especially the area on the right breast and at the breast bone.
400415 -        ref DIT 1 4Q7I
400417 -         ..
400418 -    6.  There is, however, definitely a loss of energy with the new
400419 -        treatment.  Yesterday and today I feel stronger - hoping blood
400420 -        counts are hanging in there.  On balance, I am very pleased
400421 -        with progress. ref DIT 1 0O8H
400423 -  ..
400424 - Millie's letter on 080314 reported being energetic the day after
400425 - treatment with chemotherapy Carboplatin on 080313, and so went hiking.
400426 - ref SDS 4 KO6Y
400427 -
400428 -               [On 080402 Millie reported burst of energy increasing
400429 -               exercise more than any time in the past 4 years.
400430 -               ref SDS 7 Q25V
400432 -                ..
400433 -               [On 080409 Millie reports to Kaiser being thrilled by
400434 -               improvement recovering from IBC disease, and that energy
400435 -               and exercise have increased despite adding Carboplatin
400436 -               chemotherapy to cetuximab for the clinical trial
400437 -               regimen; causing reduced emotional trauma from stress,
400438 -               anxeity, doubt, and worry about the future. ref SDS 8
400439 -               W14P
400441 -  ..
400442 - Millie's letter to Kaiser continues...
400443 -
400444 -    7.  Per Doctor Rugo's planning on 080219, if time permits, Jackie
400445 -        can visit with Rod in the cafeteria today and transfer the
400446 -        photographs showing the record of IBC changes the past year.
400447 -        ref SDS 2 I34M
400449 -         ..
400450 -    8.  This does not entail transferring the record to me, but rather
400451 -        providing a copy by uploading from the camera memory chip to
400452 -        our computer.  Takes a few minutes.
400454 -         ..
400455 -    9.  Thanks again for your support.
400456 -
400457 -
400458 -
400459 -
4005 -

SUBJECTS
Schedule Treatments Next 2 Months Clinical  Sudy Cetuximab Carboplat

6203 -
620401 -  ..
620402 - Schedule Coordination Pending
620403 -
620404 - Millie received ref DRT 1 0001 from Jacking with a copy to Brigid, and
620405 - responding to Millie's letter this morning asking UCSF to schedule
620406 - meeting into August so that the meetings occur in the morning, per
620407 - above, ref SDS 0 XW7G, Jackie says...
620409 -         ..
620410 -    1.  [Responding to your letter earlier today asking for UCSF to
620411 -        schedule meetings for your care through August, ref DIT 1 0001,
620412 -        implementing an earlier request on March 15, and citing work
620413 -        the day before on March 14th, noting that timely scheduling
620414 -        today enables setting the time for you to meet with the medical
620415 -        team at 0800 - 0830, so that UCSF has enough time to complete
620416 -        the work in time to avoid afternoon comute traffic that expands
620417 -        travel time by 300%... ref SDS 4 KO5W], ref DRT 1 0001
620419 -         ..
620420 -    2.  Hope you are doing well.  You have an appt with Brigid on
620421 -        04/03/08 at 9am and 05/01/2008 at 8:30am.  To change or
620422 -        schedule appts, please call 415-353-7070.  Please let me know
620423 -        if you have any questions. ref DRT 1 HS6M
620425 -  ..
620426 - UCSF expression of hope that Millie is doing well seems to ignore
620427 - prior notice that...
620428 -
620429 -        a.  Millie feels good emotionally, reported on 080312.
620430 -            ref SDS 3 RT4W
620431 -
620432 -        b.  Good news resumed work outs in the gym, feeling well
620433 -            physically, reported on 080312. ref SDS 3 RT5X
620435 -             ..
620436 -        c.  Xray of right arm shows no fracture, reported on 080312,
620437 -            ref SDS 3 RT6S, discomfort in right arm from fall on 080125
620438 -            continues to improve. ref SDS 3 RU3S
620440 -             ..
620441 -        d.  Cellulitis improved no evidence of disease, reported on
620442 -            080312. ref SDS 3 RU4Q
620444 -             ..
620445 -        e.  IBC rash seems to have begun to improve even before
620446 -            starting treatment with Carboplatin added to cetuximab,
620447 -            also, reported on 080312. ref SDS 3 RU4U
620449 -             ..
620450 -        f.  Millie feels energetic the day after treatment adding
620451 -            Carboplatin chemotherapy to cetuximab, reported on 080314.
620452 -            ref SDS 4 KO6Y
620454 -             ..
620455 -        g.  Millie reports today evident response to treatment, per
620456 -            above. ref SDS 0 IK3Q
620458 -  ..
620459 - Not clear why, but Jackie's letter does no more than repeat
620460 - information in the letter sent this morning, and so does not provide
620461 - coordination to schedule the work.  Coordination challenges are
620462 - reviewed in a case study on 070130. ref SDS 1 2X6L
620463 -
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620465 -
620466 -
620467 -
620468 -
6205 -