THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: March 14, 2008 11:28 AM Friday; Rod Welch

Millie requests scheduling at UCSF and reports progress treating IBC.

1...Summary/Objective
2...UCSF Commend Coordination Kaiser Working Hard Functioning as a Team
3...Schedule Meetings at UCSF for Continuing Treatment Clinical Trial
4...Energetic After Chemotherapy Treatment Carboplatin Side Effects Minimal
5...Cancer Marker CA 15-3 59 Unexpected Drop Before Starting Chemotherapy

ACTION ITEMS.................. Click here to comment!

1...Please submit a schedule for meetings through July or August,

CONTACTS 

SUBJECTS
Commend UCSF Order Labs Blood Tests Starting New Treatment Regimen C

4303 -
4303 -    ..
4304 - Summary/Objective
4305 -
430501 - Follow up ref SDS 24 0000. ref SDS 23 0000.
430502 -
430503 -
430504 -
430505 -
430506 -
430508 -  ..
4306 -
4307 -
4308 - Progress
4309 -
430901 - UCSF Commend Coordination Kaiser Working Hard Functioning as a Team
430902 -
430903 - Follow up ref SDS 24 EX5H, ref SDS 24 HT3U.
430904 -
430905 - Millie submitted ref DIT 1 0001 to Jackie at UCSF and saying...
430906 -
430907 -    1.  Thanks for excellent coordination ordering blood tests
430908 -        yesterday, ref SDS 25 FW5N, as planned in the letter on 080312.
430909 -        ref SDS 24 RT8P  I got a letter from [the primary care
430910 -        physician] at Kaiser using their special email system that does
430911 -        not yet support uniform distribution, but saying he is glad
430912 -        everyone is working as a team [reported on 080312, ref SDS 24
430913 -        HT3U].  As lead coordinator you deserve the credit, along with
430914 -        Brigid.
430915 -
430916 -           [On 090213 1140 Doctor Johnson explains Millie's good
430917 -           results surviving stage IV cancer 3 times longer than other
430918 -           patients show benefits of synergy between Kaiser's knowledge
430919 -           of patient history, and UCSF research have been optimized
430920 -           through communication that integrates Kaiser's team care
430921 -           model of case management with the UCSF practice of
430922 -           comprehensive care. ref SDS 30 685I
430923 -
430924 -
430925 -
430926 -
430927 -
430928 -
4310 -

SUBJECTS
Schedule Treatments Next 2 Months Clinical  Sudy Cetuximab Carboplat

5303 -
530401 -  ..
530402 - Schedule Meetings at UCSF for Continuing Treatment Clinical Trial
530403 -
530404 -
530405 -    2.  I got a call this morning from a woman notifying me that you
530406 -        have scheduled a meeting with the medical team on 080501 0830.
530408 -         ..
530409 -    3.  This extends the current schedule showing the next meeting on
530410 -        080403 0900.
530412 -         ..
530413 -    4.  As you know, typically we try to visit with the medical team at
530414 -        0800 or 0830, so there is time to accomplish treatment, and
530415 -        then travel back to Concord before the afternoon traffic
530416 -        expands commute time from 30 minutes to 90 minutes or more.
530417 -        Now that carboplatin has been added to the protocol, treatment
530418 -        takes another hour or so with blood tests, and pre-meds putting
530419 -        added pressure on timeliness.
530421 -         ..
530422 -    5.  Please submit a schedule for meetings through July or August,
530423 -        so we can continue to meet within the 0800 to 0830 time frame.
530424 -
530425 -            [On 080315 Millie confirms request for scheduling
530426 -            meetings. ref SDS 26 IF3S
530427 -
530428 -            [On 080320 Millie requested the schedule for meetings again
530429 -            to cover meetings for the next few months. ref SDS 27 QL8O
530430 -
530431 -
5305 -

SUBJECTS
Energetic After Chemotherapy Treatment Carboplatin Side Effects Mini

6503 -
650401 -  ..
650402 - Energetic After Chemotherapy Treatment Carboplatin Side Effects Minimal
650403 -
650404 - Follow up ref SDS 25 TZ8I, ref SDS 24 RT5X.
650405 -
650406 -    6.  Treatment went smoothly yesterday.  Today, I feel energetic,
650407 -        even a bit hyper, and so am going hiking.  Based on past
650408 -        experience, this is likely the extra drugs, and so expect that
650409 -        when this wears off, I will be less energetic for a day or so
650410 -        beginning tomorrow.  Anyway, so far, so good.
650412 -  ..
650413 - Minimal side effects aligns with Jackie's report on 080306 that
650414 - patients tolerate Carboplatin chemotherapy well. ref SDS 21 7V6M
650415 - Experience reported today helps overcome worry reported on 080219 that
650416 - adding chemotherapy Carboplating to cetuximab in the clinical trial
650417 - would cause loss of energy and vitality, ref SDS 17 1K9W, which
650418 - reflects debilitating side effects shown by case study on 050422.
650419 - ref SDS 1 NT3I
650420 -
650421 -            [On 080320 Millie reports definite loss of energy from
650422 -            treatment adding chemotherapy Carboplatin to cetuximab in
650423 -            the clinical trial. ref SDS 27 1S9L
650425 -             ..
650426 -            [On 080402 Millie reported a burst of energy increasing
650427 -            exercise more than any time in the past 4 years.
650428 -            ref SDS 28 Q25V
650430 -             ..
650431 -            [On 080409 Millie reports to Kaiser being thrilled by
650432 -            improvement recovering from IBC disease, and that energy
650433 -            and exercise have increased despite adding Carboplatin
650434 -            chemotherapy to cetuximab for the clinical trial regimen;
650435 -            causing reduced emotional trauma from stress, anxeity,
650436 -            doubt, and worry about the future. ref SDS 29 W14P
650437 -
650438 -
650439 -
650440 -
6505 -

SUBJECTS
Cancer Marker CA 15-3 59 Unexpected Drop Before Starting New Treatme

8203 -
820401 -  ..
820402 - Cancer Marker CA 15-3 59 Unexpected Drop Before Starting Chemotherapy
820403 -
820404 - Follow up ref SDS 24 RU4U.
820405 -
820406 -    7.  Glad to see the cancer marker dropped from 63 down to 59, even
820407 -        before starting Carboplatin, reported last week on 080306.
820408 -        ref SDS 22 A16M
820410 -  ..
820411 - This aligns with report on 080312 that IBC rash seemed to subisde
820412 - prior to gettting first treatment with Carboplatin. ref SDS 24 RU4U
820414 -  ..
820415 - Letter to UCSF continues...
820416 -
820417 -    8.  Possibly, we could have gotten another few cycles on cetuximab
820418 -        alone, but we are off to a new adventure and no looking back.
820419 -
820420 -    9.  ...and I am off to Lafayette reservoir.
820421 -
820422 -
820423 -
820424 -
820425 -
820426 -
820427 -
820428 -
8205 -