THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 10, 2009 04:43 PM Wednesday; Rod Welch

Met Arlette ordered port access on Friday for CT test and cancelled Gemzar.

1...Summary/Objective


..............
Click here to comment!

CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 15 0000. ref SDS 14 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie notified the medical team on Sunday night that side effects of
040902 - radiation treatment which ended on 090317 continued to be serious
040903 - problem.  On Monday, Doctor Hsu scheduled a meeting for yesterday
040904 - morning on 090609 0900 at UCSF Radiology Oncology.
040906 -  ..
040907 - Yesterday, on 090609 0900 Millie met with Doctor Hsu, as requested.
040909 -  ..
040910 - The doctor made preliminary findings that IBC in the breastbone area
040911 - was not treated with radiation and hyperthermia, contrary to treatment
040912 - ordered by Doctor Rugo and authorized on referral by Kaiser.
040914 -  ..
040915 - This appears to be a medical mistake.
040917 -  ..
040918 - The doctor is concerned that Millie's recent symptoms of cough and
040919 - heavy chest may be caused by fluid on the lungs resulting from rapid
040920 - progression of IBC that was not treated during the Feb-Mar radiation
040921 - and hyperthermia program.  He feels Millie's best course of treatment
040922 - is the MPA protocol proposed by Doctor Rugo to Kaiser on 090514.
040924 -  ..
040925 - Doctor Hsu requested a CT test to determine if Millie has fluid on
040926 - the lungs and whether if so, it is mild enough to still permit
040927 - treatment with MPA.
040929 -  ..
040930 - In the afternoon, after returning home from UCSF in San Francisco,
040931 - Millie called Arlette at Kaiser in Walnut Creek, and asked Arlette to
040932 - facilitate a telecon with Doctor Johson in order to report Doctor
040933 - Hsu's findings, and request the CT test. ref SDS 7 MW5H
040935 -  ..
040936 - A few hours later on 090609 1430 Doctor Johnson called. ref SDS 8 MW5H
040938 -  ..
040939 - Doctor Johnson ordered the CT test requested by Doctor Hsu.
040940 - ref SDS 8 PPVY
040942 -  ..
040943 - Early this morning 090610 0043, Millie sent a letter to the medical
040944 - team confirming understandings, ref SDS 10 N630, from meeting with
040945 - Doctor Hus at UCSF the day before on 090609 0900. ref SDS 6 TP9L
040947 -  ..
040948 - Millie's letter explained Doctor Hsu requested a CT test to plan the
040949 - next treatment for Millie with MPA, ref SDS 10 W66W, and further
040950 - reported that Kaiser scheduled the test on 09612 1120. ref SDS 10 W67P
040952 -  ..
040953 - This afternoon, Doctor Rugo's assistant, Mike, called and advised that
040954 - Doctor Rugo wants the computer files for the CT test, ref SDS 11 S537,
040955 - to directly review evaluating Millie getting treatment with MPA, and
040956 - Mike also requested a report on the blood test on 090602. ref SDS 3
040957 - OT8J
040959 -  ..
040960 - After Mike's call, Millie received a letter from Doctor Hsu responding
040961 - to Millie's letter earlier this morning on 090610 0043. ref SDS 10
040962 - W66T  Doctor Hsu confirmed request in the meeting yesterday at UCSF on
040963 - 090609 0900, for a CT test, and to treat Millie initially with
040964 - systemic cancer care using the MPA protocol, ref SDS 12 G63H, to
040965 - recover from the medical mistake failing to treat IBC with radiation
040966 - on the vertical line in the breastbone area, ref SDS 6 TP9L, as
040967 - explained in Millie's letter to the medical team on 090510.
040969 -  ..
040970 - Millie sent a letter to the medical team confirming planning and
040971 - progress on starting MPA treatment; she submitted the report for the
040972 - blood test at Kaiser on 090602, ref SDS 13 9F4J, and requested
040973 - assistance on getting the CD for the CT test scheduled on 090612 1120
040974 - at Kaiser for submission to Doctor Rugo at Kaiser. ref SDS 13 TG8U
040976 -  ..
040977 - Millie received a letter from Doctor Davidson, Director of Radiology
040978 - for the Kaiser Diablo Service Region, responding to Millie's letter an
040979 - hour ago on 090610 1503 requesting assistance getting the CD for the
040980 - CT test scheduled on 090612 1120 at Kaiser for submission to Doctor
040981 - Rugo at UCSF to evaluate Millie's treatment with MPA protocol to
040982 - recover from medical mistake UCSF made providing radiation services on
040983 - referral from Kaiser during February and March, and which caused
040984 - severe progression of Millie's cancer, ref SDS 13 TG8U, as reported in
040985 - Doctor Davidson's letter received 30 minutes ago on 090610 1610.
040986 - ref SDS 14 TH5G
040988 -  ..
040989 - Drove to Kaiser in Walnut Creek.
040991 -  ..
040992 - Went to the Oncology Department on the 2nd floor, while Millie went
040993 - into the Radilogy customer check in lobby to order the CD, ref SDS 15
040994 - 2X6J, which Doctor Rugo needs for the CT test on Friday, 090612 1120,
040995 - and which was requested in Mike's call this afternoon, ref SDS 11
040996 - S537, and confirmed in Millie's letter to the medical team a little
040997 - later on 090610 1530. ref SDS 13 TG7R
040999 -  ..
041000 - Asked the attendant at the customer counter about speaking with
041001 - Arlette.
041003 -  ..
041004 - About 3 minutes later Arlette came from the treatment area into the
041005 - customer lobby of the Oncology Department.
041007 -  ..
041008 - Asked about scheduling Millie on Friday 090612 between 1000 - 1100 at
041009 - the latest to access Millie's Power Port for injecting contrast medium
041010 - required to perform Millies CT test scheduled on 090612 1120?
041012 -  ..
041013 - Intially, Arlette proposed that since Millie is scheduled to get
041014 - chemotherapy treatment tomorrow on 090611 1400 with Gemzar, this will
041015 - require accessing Millie's Power Port, and so the Huber needle can be
041016 - left in place over night to support the CT test the next day on
041017 - 090612.
041019 -  ..
041020 - Explained that UCSF has decided to treat Millie initially with MPA to
041021 - recover from the medical mistake discovered on 090609, and so Millie
041022 - will not need Gemzar treatment on 090611, confirmed in Doctor Hsu's
041023 - letter to Millie this afternoon received 090610 1434. ref SDS 12 G63H
041024 - Additionally, Gemzar presents extreme risks for Millie's patient
041025 - profile.  Millie has requested written confirmation from Kaiser that
041026 - these risks have been investigated and Kaiser has determined Gemzare
041027 - is safe and effective for Millie.  Kaiser has not submitted this
041028 - written confirmation of safety.  Therefore, Millie will get treatment
041029 - with Gemzar tomorrow, and so will need to have the Power Port accessed
041030 - on Friday morning in order to get the CT test ordered by the primary
041031 - care physician, Doctor Johnson on 090609, and which is scheduled on
041032 - 090612 1120.
041034 -             ..
041035 -            [On 090611 1032 Kathi advised that the Chemotherapy
041036 -            Infusion Clinic was not notified that Gemzar was canceled
041037 -            for 090611 1400. ref SDS 17 LM6R
041039 -             ..
041040 -            [On 090612 0912 Doctor Rugo schedules meeting with Millie
041041 -            on 090616 1200 to start MPA at UCSF for recovering from 8th
041042 -            relapse by treating cancer as a chronic disease.
041043 -            ref SDS 18 TM5H
041045 -  ..
041046 - Arlette said that Millie should send a letter to Kaiser confirming
041047 - that Millie will not get the Gemzar treatment, so that Doctor Johnson
041048 - can withdraw the order for treatment in the Chemotherapy Infusion
041049 - Clinic on 090611 1400.
041050 -
041051 -            [On 090610 2213 letter to medical team, including Doctor
041052 -            Johnson in the Oncology Department at Kaiser in Walnut
041053 -            Creek confirms Gemzar scheduled treatment by Kaiser on
041054 -            090611 1400 has been deferred pending results of treatment
041055 -            with MPA at UCSF for treating Millie's cancer as a chronic
041056 -            disease, prescribed by Doctor Johnson at Kaiser.
041057 -            ref SDS 16 WX4W
041059 -  ..
041060 - Arlette then went back into the Oncology treatment area.
041062 -  ..
041063 - About 10 minutes later, Arlette returned and said that she entered a
041064 - note in the computer that Gemzar scheduled for tomorrow at 1400 is
041065 - deferred; and she also entered an order in the computer for the
041066 - Chemotherapy Infusoin Clinic to access Millie's Power Port for the CT
041067 - test on 090612.  Arlette said tomorrow a nurse will call Millie to
041068 - advise what time Millie is scheduled to have the port accessed.
041070 -  ..
041071 - Thanked Arlette for assistance.
041072 -
041073 -            [On 090610 2213 letter to medical team, including Doctor
041074 -            Johnson in the Oncology Department at Kaiser in Walnut
041075 -            Creek commends Arlette's outstanding customer support,
041076 -            getting things done correctly in time to be effective
041077 -            scheduling Millie in the Kaiser Infusion Clinic on 090612
041078 -            1030 to access Millie's Power Port with a Huber needle
041079 -            needed Millie's test scheduled by the CT Department on
041080 -            090612 1120 located in the basement. ref SDS 16 WX9Y
041082 -             ..
041083 -            [On 090611 1032 Kathi advised that the Chemotherapy
041084 -            Infusion Clinic was not notified that Gemzar was canceled
041085 -            for 090611 1400. ref SDS 17 LM6R
041087 -             ..
041088 -            [On 090612 0912 Doctor Rugo schedules meeting with Millie
041089 -            on 090616 1200 to start MPA at UCSF for recovering from 8th
041090 -            relapse by treating cancer as a chronic disease.
041091 -            ref SDS 18 TM5H
041093 -             ..
041094 -            [On 090612 1030 turns out Kathi does not work on Fridays,
041095 -            and Florida was assigned to access Millie's Power Port for
041096 -            the CT test at 1120; but, there is no order in the computer
041097 -            for the Infusion Clinic to access Millie's Power Port for
041098 -            the CT test, because this was scheduled for yesterday on
041099 -            090611 1400 for Millie to get Gemzar, which was canceled;
041100 -            however; Florida does not have credenitals to access
041101 -            Millie's Power Port, so Barbi did the work. ref SDS 19 PQRQ
041103 -             ..
041104 -            [On 090617 1715 Millie letter to Kaiser thanks Arlette for
041105 -            facilitating arrangements on 090610, ref SDS 0 2X72, so
041106 -            that Millie can get MPA treatment at UCSF, and notes the
041107 -            treatment may not be effective. ref SDS 20 MC7X
041108 -
041109 -
041110 -
041111 -
041112 -
041113 -
041114 -
041115 -
041116 -
0412 -