THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 10, 2009 02:38 PM Wednesday; Rod Welch

UCSF requests reports from Kaiser on lab and CT tests for Millie.

1...Summary/Objective


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SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 10 0000. ref SDS 8 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040507 -
040508 -
040510 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie notified the medical team on Sunday night that side effects of
040902 - radiation treatment which ended on 090317 continued to be serious
040903 - problem.  On Monday, Doctor Hsu scheduled a meeting for yesterday
040904 - morning on 090609 0900 at UCSF Radiology Oncology.
040906 -  ..
040907 - Yesterday, on 090609 0900 Millie met with Doctor Hsu, as requested.
040909 -  ..
040910 - The doctor made preliminary findings that IBC in the breastbone area
040911 - was not treated with radiation and hyperthermia, contrary to treatment
040912 - ordered by Doctor Rugo and authorized on referral by Kaiser.
040914 -  ..
040915 - This appears to be a medical mistake.
040917 -  ..
040918 - The doctor is concerned that Millie's recent symptoms of cough, heavy
040919 - chest, and difficult breathing may be caused by fluid on the lungs
040920 - resulting from rapid progression of IBC that was not treated during
040921 - the Feb-Mar radiation and hyperthermia program.  He feels Millie's
040922 - best course of treatment is the MPA protocol proposed by Doctor Rugo
040923 - to Kaiser on 090514.  Millie's symptoms of breathing difficulties
040924 - could also manifest radiation injury to her lungs, discussed during
040925 - the meeting with Doctor Hsu at UCSF yesterday on 090609. ref SDS 6
040926 - BO4W
040928 -  ..
040929 - Doctor Hsu requested a CT test to determine if Millie has fluid on
040930 - the lungs and whether if so, it is mild enough to still permit
040931 - treatment with MPA.
040933 -  ..
040934 - In the afternoon, after returning home from UCSF in San Francisco,
040935 - Millie called Arlette at Kaiser in Walnut Creek, and asked Arlette to
040936 - facilitate a telecon with Doctor Johson in order to report Doctor
040937 - Hsu's findings, and request the CT test. ref SDS 7 MW5H
040939 -  ..
040940 - A few hours later on 090609 1430 Doctor Johnson called. ref SDS 8 MW5H
040942 -  ..
040943 - Doctor Johnson ordered the CT test requested by Doctor Hsu.
040944 - ref SDS 8 PPVY
040946 -  ..
040947 - Early this morning 090610 0043, Millie sent a letter to the medical
040948 - team confirming understandings, ref SDS 10 N630, from meeting with
040949 - Doctor Hsu at UCSF the day before on 090609 0900. ref SDS 6 TP9L
040951 -  ..
040952 - Millie's letter explained Doctor Hsu requested a CT test to plan the
040953 - next treatment for Millie with MPA, ref SDS 10 W66W, and further
040954 - reported that Kaiser scheduled the test on 09612 1120. ref SDS 10 W67P
040956 -  ..
040957 - This afternoon, Doctor Rugo's assistant, Mike, called.
040959 -  ..
040960 - Mike said that Doctor Rugo wants the computer files for the CT test so
040961 - that UCSF specialists can make a thorough, independent radiology
040962 - assessment of Millie's condition to plan treatment at UCSF prescribed
040963 - by Doctor Hsu during the meeting yesterday at UCSF on 090609 0900.
040964 - ref SDS 6 W66T  Mike explained that Doctor Rugo and Doctor Hsu are
040965 - concerned that Millie may be suffering compound problems caused by
040966 - UCSF medical mistakes providing radiation treatments during February
040967 - and March, as reported by Doctor Hsu on 090609 0900. ref SDS 6 W65W
040968 - There is concern that radiation injury to her lungs could affect
040969 - Millie getting MPA, due to possible side effects, so UCSF might have
040970 - to switch treatments.  He explained that things surrounding Millie's
040971 - case are hectic and confused right now.  Therefore, UCSF needs the CT
040972 - test scan files delivered on a CD to UCSF as soon as possible in order
040973 - to expedite Millie starting treatment to recover from...
040975 -                ..
040976 -               [On 090706 0301 Millie received a letter from Mike
040977 -               saying nobody at UCSF ordered review of Millie's CT test
040978 -               scan files, ref SDS 14 1L6N, which were same-day hand-
040979 -               delivered to UCSF per Mike's request today, for timely
040980 -               review by UCSF. ref SDS 0 S537
040981 -
040982 -        1.  IBC in the breastbone area that was missed during radiation
040983 -            treatments in February and March, and now very severe shown
040984 -            by blood and puss oozing from the vertical wound, noticed
040985 -            by Doctor Hsu during examination at UCSF yesterday on
040986 -            090609. ref SDS 6 W65W
040988 -             ..
040989 -        2.  Breathing and persistant cough problems, possibly caused by
040990 -            untreated IBC in the breastbone area, noted by Doctor Hsu
040991 -            during the meeting at UCSF yesterday on 090609, and further
040992 -            compounding radiation injury to the lungs from treatments
040993 -            in February and March. ref SDS 6 BO4W
040995 -             ..
040996 -        3.  IBC expanding outside zones treated with radiation and
040997 -            hyperthermia during February and March. ref SDS 6 W66P
040999 -  ..
041000 - Based on Doctor Hsu's findings during the meeting yesterday, will
041001 - deliver the CT scan files to UCSF tomorrow in San Francisco
041002 - immediately after the test at Kaiser in Walnut Creek, and in order to
041003 - expedite review that enables developing a treatment plan in time to be
041004 - effective.
041005 -
041006 -               [On 090610 1509 letter notifies medical team that UCSF
041007 -               requests computer files for CT test scheduled on 090612
041008 -               for review by UCSF radiologists to supplement Kaiser
041009 -               radiology report in order to discover the cause of
041010 -               Millie's breathing problems. ref SDS 12 TG7R
041012 -                ..
041013 -               [On 090706 0301 Millie received a letter from Mike
041014 -               saying nobody at UCSF ordered review of Millie's CT test
041015 -               scan files, ref SDS 14 1L6N, which were same-day hand-
041016 -               delivered to UCSF per Mike's request today, for timely
041017 -               review by UCSF. ref SDS 0 S537
041019 -  ..
041020 - Mike asked when Millie had a blood test, which is needed to assess
041021 - starting treatment with the MPA protocol?
041023 -  ..
041024 - Explained Millie's blood test last week on 090602. ref SDS 3 OT8J
041026 -  ..
041027 - Mike said the date of the test is adequate for the MPA protocol; he
041028 - requested a copy of the report for the lab on 090602.
041029 -
041030 -               [On 090610 1509 letter notifies medical team results of
041031 -               lab at Kaiser on 090602 submitted to UCSF complying with
041032 -               MPA protocol, so that Millie can start treatment to
041033 -               recover from 8th relapse of cancer. ref SDS 12 TG5Y
041034 -
041035 -
041036 -
041037 -
041038 -
041039 -
041040 -
041041 -
0411 -