THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 10, 2009 03:09 PM Wednesday; Rod Welch

Millie submits lab report and coordinates sending CD of CT test to UCSF.

1...Summary/Objective


..............
Click here to comment!

CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 11 0000. ref SDS 10 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040508 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie notified the medical team on Sunday night that side effects of
040902 - radiation treatment which ended on 090317 continued to be serious
040903 - problem.  On Monday, Doctor Hsu scheduled a meeting for yesterday
040904 - morning on 090609 0900 at UCSF Radiology Oncology.
040906 -  ..
040907 - Yesterday, on 090609 0900 Millie met with Doctor Hsu, as requested.
040909 -  ..
040910 - The doctor made preliminary findings that IBC in the breastbone area
040911 - was not treated with radiation and hyperthermia, contrary to treatment
040912 - ordered by Doctor Rugo and authorized on referral by Kaiser.
040914 -  ..
040915 - This appears to be a medical mistake.
040917 -  ..
040918 - The doctor is concerned that Millie's recent symptoms of cough and
040919 - heavy chest may be caused by fluid on the lungs resulting from rapid
040920 - progression of IBC that was not treated during the Feb-Mar radiation
040921 - and hyperthermia program.  He feels Millie's best course of treatment
040922 - is the MPA protocol proposed by Doctor Rugo to Kaiser on 090514.
040924 -  ..
040925 - Doctor Hsu requested a CT test to determine if Millie has fluid on
040926 - the lungs and whether if so, it is mild enough to still permit
040927 - treatment with MPA.
040929 -  ..
040930 - In the afternoon, after returning home from UCSF in San Francisco,
040931 - Millie called Arlette at Kaiser in Walnut Creek, and asked Arlette to
040932 - facilitate a telecon with Doctor Johson in order to report Doctor
040933 - Hsu's findings, and request the CT test. ref SDS 7 MW5H
040935 -  ..
040936 - A few hours later on 090609 1430 Doctor Johnson called. ref SDS 8 MW5H
040938 -  ..
040939 - Doctor Johnson ordered the CT test requested by Doctor Hsu.
040940 - ref SDS 8 PPVY
040942 -  ..
040943 - Early this morning 090610 0043, Millie sent a letter to the medical
040944 - team confirming understandings, ref SDS 10 N630, from meeting with
040945 - Doctor Hsu at UCSF the day before on 090609 0900. ref SDS 6 TP9L
040947 -  ..
040948 - Millie's letter explained Doctor Hsu requested a CT test to plan the
040949 - next treatment for Millie with MPA, ref SDS 10 W66W, and further
040950 - reported that Kaiser scheduled the test on 090612 1120. ref SDS 10
040951 - W67P
040953 -  ..
040954 - This afternoon, Doctor Rugo's assistant, Mike, called and advised that
040955 - Doctor Rugo wants the computer files for the CT test, ref SDS 11 S537,
040956 - to evaluate MPA treatment ordered by Doctor Hsu for Millie to recover
040957 - from UCSF medical mistakes that caused radiation injury and spread
040958 - Millie's cancer.  Mike also requested a report on the blood test on
040959 - 090602. ref SDS 3 OT8J
040961 -  ..
040962 - After Mike's call, Millie received a letter from Doctor Hsu responding
040963 - to Millie's letter earlier this morning on 090610 0043. ref SDS 10
040964 - W66T  Doctor Hsu confirmed request in the meeting yesterday at UCSF on
040965 - 090609 0900, for a CT test, and to treat Millie initially with
040966 - systemic cancer care using the MPA protocol, ref SDS 12 G63H, to
040967 - recover from the medical mistake failing to treat IBC with radiation
040968 - on the vertical line in the breastbone area, ref SDS 6 TP9L, as
040969 - explained in Millie's letter to the medical team on 090510.
040971 -  ..
040972 - Millie sent a letter to the medical team confirming planning and
040973 - progress on starting MPA treatment....
040974 -
040975 -    1.  Subject: CT Test Jun 12 Need CD for Doctor Rugo at UCSF; Submit Blood Test on June 2nd
040976 -        Date: Wed, 10 Jun 2009 15:12:12 -0700
040989 -         ..
040990 -    2.  You just talked to Rod, and requested results of the blood test
040991 -        I had at Kaiser on 090602 [citing telecon on 090610 1438,
040992 -        ref SDS 11 0E4I].  Test results are reported in the record on
040993 -        090602 1300. ref SDS 3 S65I
040995 -         ..
040996 -    3.  If you need a fax, please call 925 295 4030 and ask for the
040997 -        Oncology Infusion Clinic.  You have to press buttons.  If you
040998 -        get through, Bella, Cisi, Sheree, any of the excellent nurses
040999 -        can send you a fax.  Arlette is also an outstanding coordinator
041000 -        for Doctor Johnson, but she has done so much for me for so long
041001 -        that I hate to draw more on her valuable time.
041003 -         ..
041004 -    4.  By copy to Doctor Johnson and to Arlette, and to Doctor
041005 -        Davidson I am presenting your request today for a CD with the
041006 -        scans of my CT test scheduled on 090612 1120, [for analysis by
041007 -        UCSF radiologist team] that will complement the [Kaiser]
041008 -        analyst's report on results of the test [reporting telecon with
041009 -        Mike in another record today on, 090610 1438, ref SDS 11 4R5F].
041010 -
041011 -            [On 090706 0301 Millie received a letter from Mike, Doctor
041012 -            Rugo's coordinator, saying his investigation discovered
041013 -            that nobody at UCSF ordered review of Millie's CT test scan
041014 -            files, ref SDS 17 1L6N, which were same-day hand- delivered
041015 -            to UCSF on 090612, ref SDS 16 UD5H, per Mike's request on
041016 -            090610 for timely review by UCSF. ref SDS 11 S537
041018 -         ..
041019 -    5.  I will also call the front desk at the CT Department at Kaiser
041020 -        in Walnut Creek and ask about mechanics of obtaining the CD, so
041021 -        we can bring it to UCSF.  Since at this time, we don't have a
041022 -        meeting scheduled to see Doctor Rugo, possibly Kaiser can mail
041023 -        the CD to Doctor [Rugo], or, better, we should be able to
041024 -        transmit the file electronically, so that Doctor Rugo can make
041025 -        timely assessment.
041027 -         ..
041028 -    6.  By copy to Doctor Davidson, asking him to facilitate sending an
041029 -        email to you or to Doctor Rugo at the above address and attach
041030 -        the file of CT scan on Friday, 090612, and because time is of
041031 -        the essence to treat my 8th relapse of cancer in time to be
041032 -        effective.
041033 -
041034 -            [On 090610 1610 Doctor Davidson responds explaining Kaiser
041035 -            procedures to get the CD for the CT test on 090612,
041036 -            requested by Doctor Rugo at UCSF. ref SDS 13 TH5G
041038 -             ..
041039 -            [On 090610 1713 visited Ricardo at CT Department customer
041040 -            counter Kaiser Walunt Creek and coordinated getting CD with
041041 -            computer file for CT test and hour after Kaiser performs
041042 -            the test for patient to deliver from Kaiser to UCSF in the
041043 -            afternoon on 090612. ref SDS 14 UQ87
041045 -             ..
041046 -            [On 090610 2213 letter to medical team, including Doctor
041047 -            Davidson, commends the doctor's timely response required
041048 -            for exigent treatment of advancing cancer. ref SDS 15 WX6R
041050 -         ..
041051 -    7.  I was very pleased to hear in your call with Rod today that you
041052 -        indicated I can get MPA treatment even with some fluid on my
041053 -        lungs.  It's a matter of degree.  I was worried sick yesterday
041054 -        when Doctor Hsu said I may have fluid in my lungs, because you
041055 -        had seemed to indicate earlier that this would prevent me
041056 -        getting treatment.
041058 -         ..
041059 -    8.  The CT test seems very critical on this issue, so I'm hoping
041060 -        things go smoothly with the logistics, and that the test is
041061 -        favorable enough for me to get treatment.
041063 -         ..
041064 -    9.  Thanks for coordinating.
041065 -
041072 -
041073 -
041074 -
041075 -
041076 -
041077 -
041078 -
041079 -
041080 -
041081 -
041082 -
041083 -
041084 -
041085 -
041086 -
041087 -
0411 -