CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 26 0000. ref SDS 25 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 090423 Millie met with Tara in the Breast Care Clinic at UCSF for
040902 - examination, which showed recovery from side effects of radiation and
040903 - hyperthermia treatments during February and March 2009. ref SDS 16 QR3M
040904 - This was confirmed in Millie's letter to the medical team later that
040905 - day on 090423. ref SDS 17 ZL6T  Tara also found expanding IBC on the
040906 - lower left arm, ref SDS 16 DW6F, also confirmed in the letter to the
040907 - medical team. ref SDS 17 ZL7P
040909 -  ..
040910 - At that time, on 090423 Tara planned to discuss with Doctor Hsu in the
040911 - UCSF Radition Oncology Department concerns about slow healing of
040912 - radiation side effects in Millie's breastbone area. ref SDS 16 R15K
040913 - Collaboration plans were further confirmed in Millie's letter to the
040914 - medical team on 090423. ref SDS 17 ZL7V
040916 -  ..
040917 - In the afternoon on 090423 1315 Millie met with Doctor Hsu to check on
040918 - recovery from radiation side effects. ref SDS 16 4H5G  Doctor Hsu gave
040919 - Millie a "thumbs up" that she was well enough to take time from
040920 - treatment to go on a 2-week vacation, ref SDS 16 FJ6K, and despite
040921 - confirming diagnosis of IBC relapse on the lower left arm, ref SDS 16
040922 - 5G4G, and despite growing doubts about vertical line of sking infected
040923 - either by IBC or radiation side effects. ref SDS 16 EX4I  The doctor
040924 - recommended against taking a biopsy because the skin was thought to be
040925 - radiated, and surrounding tissue was radiated, and so this would delay
040926 - and prevent normal recovery from a biopsy wound. ref SDS 16 456H
040928 -  ..
040929 - On 090423 2337 Millie's letter to medical team reports Doctor Hsu's
040930 - favorable report that IBC cannot recur in treated areas, because
040931 - nothing can grow in treated areas. ref SDS 17 ZL9V  The letter further
040932 - confirms UCSF plans to treat IBC recurrence on the lower left arm as a
040933 - chronic disease with systemic agents prescribed by Doctor Rugo in the
040934 - Breast Care Clinic, ref SDS 17 ZL4X, and notes the meeting scheduled
040935 - with Doctor Rugo on 090514. ref SDS 17 ZL5Q
040937 -  ..
040938 - Yesterday on 090510 1553, Millie submitted an agenda for the meeting
040939 - on 090514 to start treatment of the 8th relapse. ref SDS 18 QH9J  The
040940 - letter was hurried to fit commitments for attending Mother's Day
040941 - family event.  In the afternoon on 090510 1953, after retrurning home,
040942 - Millie sent a second letter to further explain the agenda for meeting
040943 - on Thursday 090514 at UCSF with Doctor Rugo. ref SDS 19 FJ3G
040945 -  ..
040946 - This morning, called and talked to Amanda about coordinating to
040947 - facilitate the agenda for meeting with Doctor Rugo on Thursday,
040948 - 090514, particularly on requirements for blood tests at Kaiser, as
040949 - discussed in Millie's letter on 090510 1953. ref SDS 19 LJ7X
040951 -  ..
040952 - Amanda requested a copy of Millie's letter to the medical team that
040953 - explains details about getting a lab.  Millie sent the letter to
040954 - Amanda and requested clarification on requirements for a lab.
040955 - ref SDS 20 YN33  After sending the letter to Amanda this afternoon,
040956 - Kaiser notified Millie on 090511 1427 that Doctor Johnson has a
040957 - standing order at Kaiser for Millie to get a monthly blood test,
040958 - ref SDS 21 FJ5L; so, Millie then sent a letter notifying the medical
040959 - team that the blood draw will be done on 090512, so that people can be
040960 - prepared for a productive meeting at UCSF on 090514. ref SDS 21 FJ6G
040962 -  ..
040963 - On 090511 2013, Doctor Rugo sent a letter saying that scope for labs
040964 - at Kaiser performed to support examinations at UCSF should be
040965 - determined by Kaiser rather than by UCSF. ref SDS 22 RF4J
040967 -  ..
040968 - On 090511 2313, Millie notified Doctor Rugo that case study on 090325,
040969 - ref SDS 10 KZ6N, shows UCSF has been setting the scope on labs at
040970 - Kaiser for the past 3 years that are used to guide the work for
040971 - Millie's care at UCSF on referral from Kaiser, ref SDS 23 YN4L
040973 -  ..
040974 - On 090512 Millie went to Kaiser for the lab.  ref SDS 24 6Z4F
040976 -  ..
040977 - On 090513 1654 Millie submitted results of Kaiser's lab to UCSF,
040978 - ref SDS 25 N54I, and notifies Doctor Mason at Kaiser's Outside
040979 - Referrals Department about more mistakes at Kaiser that causes poor
040980 - coordination of Millie's care at UCSF on referral from Kaiser.
040981 - ref SDS 25 ZH6W, and follows up Doctor Mason's plan on 090420 for
040982 - Kaiser to work harder with greater diligence to avoid mistakes in
040983 - order to continue doing labs at Kaiser rather than include labs for
040984 - referral at UCSF for Millie's treatments at UCSF. ref SDS 15 8G3N
040986 -  ..
040987 - Millie received a letter from Pam who works for Doctor Mason in
040988 - Kaiser's Outside Referrals Department, and asking why the Outside
040989 - Referrals Department was notified about mistakes at Kaiser performing
040990 - labs required for Millie's care at UCSF on referral from Kaiser.
040991 - ref SDS 26 2T5L
040993 -  ..
040994 - Millie replied to Pam's letter, and saying...
040995 -
040996 -    1.  Subject: Labs for test at Kaiser on 090512 Prepare for Meeting at UCSF on 090514
040997 -        Date: Thu, 14 May 2009 08:25:18 -0700
041004 -         ..
041005 -    2.  Thanks for timely response in your letter first-thing this
041006 -        morning [reported in the record on 090514 0811, ref SDS 26
041007 -        2T5L, to the record working with UCSF and Kaiser on getting
041008 -        labs set up for effective care.
041010 -         ..
041011 -    3.  Doctor Mason asked for background on why my doctor at Kaiser
041012 -        ordered labs at UCSF.  In discussions on 090420 he explained
041013 -        that he changed Doctor Johnson's prescription on 090325,
041014 -        because the Kaiser "Plan" benefit me by having everything on
041015 -        the computer for my care at Kaiser. ref SDS 15 2H41
041017 -         ..
041018 -    4.  The problem is that 90% of my care is now at UCSF for oncology,
041019 -        which is 90% of my health care issues.
041021 -         ..
041022 -    5.  There is a link in the letter to the medical team yesterday
041023 -        that provides a case study on patient history [in the record
041024 -        meeting at Kaiser on 090325 0830, ref SDS 10 KZ6N] showing that
041025 -        doing the labs at Kaiser for my care at UCSF conflicts with the
041026 -        Coverage Plan requirement to meet standard of care, which
041027 -        unfortunately in my case now in the 7th relapse of IBC
041028 -        approaches emergency status.  That is why Doctor Johnson has
041029 -        ordered referral to UCSF to treat my cancer as a chronic
041030 -        disease [and to facilitate that strategy, on 090409 1537 the
041031 -        doctor amended the referral to UCSF to include performing labs
041032 -        at UCSF, ref SDS 11 6O6N].  Here is history [from case study on
041033 -        090325 0830] showing why labs at Kaiser cannot support my care
041034 -        at UCSF, even though the doctors, nurses, and technicians at
041035 -        Kaiser are excellent health care providers. ref SDS 10 KZ6N
041037 -         ..
041038 -    6.  Thanks very much for your consideration.
041040 -         ..
041041 -    7.  I now have to run upstairs to the Breast Care Clinic to see
041042 -        what Doctor Rugo has planned for recovery from the 7th relapse.
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0411 -