CONTACTS 

SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 11 0000. ref SDS 10 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 090423 Millie met with Tara in the Breast Care Clinic at UCSF for
040902 - examination, which showed recovery from side effects of radiation and
040903 - hyperthermia treatments during February and March 2009. ref SDS 8 QR3M
040904 - This was confirmed in Millie's letter to the medical team later that
040905 - day on 090423. ref SDS 9 ZL6T  Tara also found expanding IBC on the
040906 - lower left arm, ref SDS 8 DW6F, also confirmed in the letter to the
040907 - medical team. ref SDS 9 ZL7P
040909 -  ..
040910 - At that time, on 090423 Tara planned to discuss with Doctor Hsu in the
040911 - UCSF Radition Oncology Department concerns about slow healing of
040912 - radiation side effects in Millie's breastbone area. ref SDS 8 R15K
040913 - Collaboration plans were further confirmed in Millie's letter to the
040914 - medical team on 090423. ref SDS 9 ZL7V
040916 -  ..
040917 - In the afternoon on 090423 1315 Millie met with Doctor Hsu to check on
040918 - recovery from radiation side effects. ref SDS 8 4H5G  Doctor Hsu gave
040919 - Millie a "thumbs up" that she was well enough to take time from
040920 - treatment to go on a 2-week vacation, ref SDS 8 FJ6K, and despite
040921 - confirming diagnosis of IBC relapse on the lower left arm, ref SDS 8
040922 - 5G4G, and despite growing doubts about vertical line of sking infected
040923 - either by IBC or radiation side effects. ref SDS 8 EX4I  The doctor
040924 - recommended against taking a biopsy because the skin was thought to be
040925 - radiated, and surrounding tissue was radiated, and so this would delay
040926 - and prevent normal recovery from a biopsy wound. ref SDS 8 456H
040928 -  ..
040929 - On 090423 2337 Millie's letter to medical team reports Doctor Hsu's
040930 - favorable report that IBC cannot recur in treated areas, because
040931 - nothing can grow in treated areas. ref SDS 9 ZL9V  The letter further
040932 - confirms UCSF plans to treat IBC recurrence on the lower left arm as a
040933 - chronic disease with systemic agents prescribed by Doctor Rugo in the
040934 - Breast Care Clinic, ref SDS 9 ZL4X, and notes the meeting scheduled
040935 - with Doctor Rugo on 090514. ref SDS 9 ZL5Q
040937 -  ..
040938 - Yesterday on 090510 1553, Millie submitted an agenda for the meeting
040939 - on 090514 to start treatment of the 8th relapse. ref SDS 10 QH9J  The
040940 - letter was hurried to fit commitments for attending Mother's Day
040941 - family event.  In the afternoon on 090510 1953, after retrurning home,
040942 - Millie sent a second letter to further explain the agenda for meeting
040943 - on Thursday 090514 at UCSF with Doctor Rugo. ref SDS 11 FJ3G
040945 -  ..
040946 - This morning, called and talked to Amanda about coordinating to
040947 - facilitate the agenda for meeting with Doctor Rugo on Thursday,
040948 - 090514, particularly on requirements for blood tests at Kaiser, as
040949 - discussed in Millie's letter on 090510 1953. ref SDS 11 LJ7X
040951 -  ..
040952 - Amanda requested a copy of Millie's letter to the medical team that
040953 - explains details about getting a lab.
040955 -  ..
040956 - Millie sent the following letter to Amanda...
040957 -
040958 -    1.  Subject:  Agenda Meeting Doctor Rugo May 14th Schedule Labs
040959 -        Date: Mon, 11 May 2009 09:36:42 -0700
040966 -         ..
040967 -    2.  Sent this to the medical team [Millie's letter on 090510 1953,
040968 -        ref SDS 11 FJ3G].  Need to find out if Doctor Rugo wants a lab
040969 -        and if so the scope for the meeting on Thursday, 090514.  If
040970 -        you can find out this morning, we can try to get it done today
040971 -        at Kaiser so that CA 15-3 is reported in time for the meeting
040972 -        [as explained in the letter on 090510 1953, ref SDS 11 LJ7X].
040973 -        It takes a few days for processing at Kaiser, and we need a
040974 -        cushion of time to recover from mistakes, so the data is
040975 -        available in time for the meeting.
040976 -
040977 -            [On 090511 1427 Millie learned that Doctor Johnson has
040978 -            entered a standing order for Millie to get a monthly blood
040979 -            draw at Kaiser; she went to Kaiser and got the lab done in
040980 -            the Infusion Clinic; Millie notified the medical team that
040981 -            the lab was done, and report will be submitted to UCSF for
040982 -            the meeting with Doctor Rugo on Thursday, 090514.
040983 -            ref SDS 12 UK8R
040985 -             ..
040986 -            [On 090511 2013 Doctor Rugo notifies medical team that
040987 -            scope of blood tests at Kaiser performed to support
040988 -            examinations by Doctor Rugo at UCSF should be determined by
040989 -            Doctor Johnson at Kaiser, ref SDS 13 RF4J, and appears
040990 -            conflicting with patient history, e.g., on 090325 0830.
040991 -            ref SDS 4 V86J
040993 -         ..
040994 -    3.  I should have sent you a copy yesterday for coordinating.  I
040995 -        have tried calling your office, but have been able to break
040996 -        through the firewall at UCSF.
040998 -         ..
040999 -    4.  Rod also tried to call Doctor Rugo to discuss referral.  This
041000 -        is a complex issue unrelated to medical stuff, so would like to
041001 -        get this done without taking up time in the meeting on
041002 -        Thursday, because I personally don't like to discuss it.
041004 -         ..
041005 -    5.  Thanks.
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0411 -