THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: May 11, 2009 02:27 PM Monday; Rod Welch

Millie notifies medical team Kaiser has issued standing orders for labs
to facilitate coordination for treatment on referral at UCSF.

1...Summary/Objective


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CONTACTS 

SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 12 0000. ref SDS 11 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 090423 Millie met with Tara in the Breast Care Clinic at UCSF for
040902 - examination, which showed recovery from side effects of radiation and
040903 - hyperthermia treatments during February and March 2009. ref SDS 8 QR3M
040904 - This was confirmed in Millie's letter to the medical team later that
040905 - day on 090423. ref SDS 9 ZL6T  Tara also found expanding IBC on the
040906 - lower left arm, ref SDS 8 DW6F, also confirmed in the letter to the
040907 - medical team. ref SDS 9 ZL7P
040909 -  ..
040910 - At that time, on 090423 Tara planned to discuss with Doctor Hsu in the
040911 - UCSF Radition Oncology Department concerns about slow healing of
040912 - radiation side effects in Millie's breastbone area. ref SDS 8 R15K
040913 - Collaboration plans were further confirmed in Millie's letter to the
040914 - medical team on 090423. ref SDS 9 ZL7V
040916 -  ..
040917 - In the afternoon on 090423 1315 Millie met with Doctor Hsu to check on
040918 - recovery from radiation side effects. ref SDS 8 4H5G  Doctor Hsu gave
040919 - Millie a "thumbs up" that she was well enough to take time from
040920 - treatment to go on a 2-week vacation, ref SDS 8 FJ6K, and despite
040921 - confirming diagnosis of IBC relapse on the lower left arm, ref SDS 8
040922 - 5G4G, and despite growing doubts about vertical line of sking infected
040923 - either by IBC or radiation side effects. ref SDS 8 EX4I  The doctor
040924 - recommended against taking a biopsy because the skin was thought to be
040925 - radiated, and surrounding tissue was radiated, and so this would delay
040926 - and prevent normal recovery from a biopsy wound. ref SDS 8 456H
040928 -  ..
040929 - On 090423 2337 Millie's letter to medical team reports Doctor Hsu's
040930 - favorable report that IBC cannot recur in treated areas, because
040931 - nothing can grow in treated areas. ref SDS 9 ZL9V  The letter further
040932 - confirms UCSF plans to treat IBC recurrence on the lower left arm as a
040933 - chronic disease with systemic agents prescribed by Doctor Rugo in the
040934 - Breast Care Clinic, ref SDS 9 ZL4X, and notes the meeting scheduled
040935 - with Doctor Rugo on 090514. ref SDS 9 ZL5Q
040937 -  ..
040938 - Yesterday on 090510 1553, Millie submitted an agenda for the meeting
040939 - on 090514 to start treatment of the 8th relapse. ref SDS 10 QH9J
040940 - There was a question about getting a lab? ref SDS 10 CN6X  The letter
040941 - was hurried to fit commitments for attending Mother's Day family
040942 - event.  In the afternoon on 090510 1953, after retrurning home, Millie
040943 - sent a second letter to further explain the agenda for meeting on
040944 - Thursday 090514 at UCSF with Doctor Rugo. ref SDS 11 FJ3G  The second
040945 - latter asked again about getting a lab at Kaiser. ref SDS 11 LJ7X
040947 -  ..
040948 - This morning, called and talked to Amanda about coordinating to
040949 - facilitate the agenda for meeting with Doctor Rugo on Thursday,
040950 - 090514, particularly on requirements for blood tests at Kaiser, as
040951 - discussed in Millie's letter on 090510 1953. ref SDS 11 LJ7X
040953 -  ..
040954 - Amanda requested a copy of Millie's letter to the medical team that
040955 - explains details about getting a lab.  Millie did this, and asks for
040956 - feedback from UCSF on whether Kaiser should do a blood draw for the
040957 - meeting on 090514. ref SDS 12 YM6O
040959 -  ..
040960 - After sending the letter to Amanda, Kaiser called and advised that
040961 - Doctor Johnson has entered a standing order for Millie to get a blood
040962 - draw at Kaiser once a month to test for INR, CA 15-3 and standard CBC.
040964 -  ..
040965 - Millie sent a follow up letter to the medical team saying she will get
040966 - the blood draw at Kaiser to support the meeting with Doctor Rugo at
040967 - UCSF on Thursday, 090514...
040968 -
040969 -    1.  Subject: Labs Standing Order Monthly
040970 -        Date: Mon, 11 May 2009 14:29:38 -0700
040982 -         ..
040983 -    2.  I found out this afternoon that Doctor Johnson has a standing
040984 -        order for me to get monthly labs [following up the letter to
040985 -        Amanda at UCSF earlier this morning asking if Doctor Rugo needs
040986 -        a lab report from Kaiser for the examination at UCSF on
040987 -        Thursday, 090514, ref SDS 12 YM6O].  I think this means I can
040988 -        go to the Chemotherapy Infusion Clinic anytime today, and they
040989 -        will fit me into the schedule.
040991 -         ..
040992 -    3.  The scope for this test will be the same as for last month on
040993 -        090413. ref SDS 5 S65I
040995 -         ..
040996 -    4.  Notice there are some elements missing from the usual tests at
040997 -        UCSF.  Just let me know, and I can coordinate with the nurse to
040998 -        include anything additional you need.
041000 -             ..
041001 -            [On 090511 2013 Doctor Rugo notifies medical team that
041002 -            scope of blood tests at Kaiser performed to support
041003 -            examinations by Doctor Rugo at UCSF should be determined by
041004 -            Doctor Johnson at Kaiser, ref SDS 13 RF4J, and appears
041005 -            conflicting with patient history, e.g., on 090325 0830.
041006 -            ref SDS 4 V86J
041008 -             ..
041009 -            [On 090511 2313 Millie notifies Doctor Rugo that patient
041010 -            history shows UCSF specifies scope of lab work at Kaiser to
041011 -            support Millie's treatment at UCSF, and this is performed
041012 -            as a component of referral coordination. ref SDS 14 4Q6H
041014 -         ..
041015 -    5.  Thanks to Doctor Johnson for setting this up to make things go
041016 -        smoothly.
041017 -
041018 -            [On 090513 1654 Millie submits lab results at Kaiser to
041019 -            UCSF for the meeting on 090514. ref SDS 15 ZH6R
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0411 -