THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: December 2, 2008 10:38 AM Tuesday;
Rod Welch
Millie letter Doctor Daamen at Kaiser biopsy pathology findings triple negative.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 12 0000, ref SDS 11 LF4X.
040502 -
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040504 -
040506 - ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Background Millie's letter to UCSF on 071007 cites report at medical
040902 - seminar that criteria for HER2neu positive had changed and were
040903 - reduced from 2 to 1.6. ref SDS 1 S68T UCSF did not respond, so follow
040904 - up inquiry submitted. ref SDS 2 I44U On 071009 Doctor Rugo advises
040905 - that UCSF relies on HER2 negative standard at 2, i.e., there has been
040906 - not change in criteria. ref SDS 2 HH4W
040908 - ..
040909 - On 080207 the doctor asks to investigate status change for assessing
040910 - options treating Millie's 4th relapse. ref SDS 3 6S6G; requests report
040911 - on biopsy 040419. ref SDS 3 655G On 080219 UCSF receives report for
040912 - biopsy on 040419 and determines there is no change in Millie's triple
040913 - negative status, which would increase treatment options. ref SDS 4
040914 - VX6G
040916 - ..
040917 - On 081016 UCSF changes Millie's treatment; Millie's letter to the
040918 - medical team confirms Doctor Rugo's request for Kaiser to biopsy
040919 - swelled lymph node in left supraclavicular, and orders evaluation of
040920 - triple negative to investigate expanding options to treat Millie's 5th
040921 - relapse of IBC. ref SDS 5 J36R
040923 - ..
040924 - FNA biopsy was performed on 081022, ref SDS 6 NZ5N, and the next day
040925 - Doctor Daamen reported no results on status change, because FNA biopsy
040926 - procedure was inadequate. ref SDS 7 4Q9Q On 081107 Kaiser did a core
040927 - biopys to evaluate status change. ref SDS 8 494I On 081119 Kaiser
040928 - submitted summary of final pathology report, ref SDS 9 5O8G, for the
040929 - biopsy on 081107, ref SDS 8 496L, and it shows status is unchanged,
040930 - still triple negative. ref SDS 9 UQ5P On 081119 Millie asks Kaiser
040931 - for full pathology report on biopsy performed 081107 in order to
040932 - review criteria for concluding triple negative status, particularly
040933 - criteria for HER2neu. ref SDS 10 L34X
040935 - ..
040936 - On 081120 Kaiser submitted the full pathology report for the biopsy on
040937 - 081107. ref SDS 11 1E6K This report lists some criteria for triple
040938 - negative status, ref SDS 11 LF4R, but does not list findings from the
040939 - biopsy that correlate with the criteria. ref SDS 11 QQ3K
040941 - ..
040942 - On 081202 Millie notified the medical team that the pathology report
040943 - does not present findings that establish triple negative status in
040944 - relation to criteria. ref SDS 12 AT4Q
040946 - ..
040947 - Today, Millie wrote a letter to Doctor Daamen at Kaiser asking for
040948 - pathology findings that establish triple negartive status...
040949 -
040950 - 1. Subject: Sunitinib Treatment Initial Success
040951 - Date: Tue, 02 Dec 2008 10:44:29 -0800
040958 - ..
040959 - 2. This morning I reported to the medical team initial success
040960 - recovering from IBC with treatment at UCSF. ref SDS 12 AS6U
040962 - ..
040963 - 3. I asked for the pathology report [Millie's letter on 081119] to
040964 - get the findings in relation to the criteria, i.e., to see how
040965 - close I might be with respect to HER2neu positive/negative,
040966 - ref SDS 10 L34X, since there was a report last year [on 071007]
040967 - that some labs are changing the criteria. ref SDS 1 S68T
040969 - ..
040970 - 4. There is still a question about details of findings from the
040971 - biopsy, reported as triple negative in the pathology report,
040972 - received from you on 081120. ref SDS 11 QQ3K
040974 - ..
040975 - 5. As you can see from the record reviewing the lab's report,
040976 - there is a question about details of findings that support the
040977 - conclusion, particularly with respect to HER2neu. ref SDS 11
040978 - QS4J
040980 - ..
040981 - 6. Ordinarily, I would call the lab directly. Sometimes
040982 - technicians are reluctant to support patients, and prefer
040983 - inquiry only from medical professionals. If it is possible to
040984 - get details, this might affect treatment options. Since the
040985 - likelihood of this actually happening are fairly remote, I will
040986 - understand if you do not have time to make this inquiry for me.
040987 -
040988 - [On 081202 1253 Doctor Daamen checking with lab to ensure
040989 - accuracy of triple negative status conclusion. ref SDS 13
040990 - 4P4K
040992 - ..
040993 - [On 081202 1314 Millie sent a letter to Kaiser clarifying
040994 - the scope of requirements on obtaining additional findings
040995 - form the lab on status change. ref SDS 14 3E8M
040997 - ..
040998 - [On 081202 1428 Doctor Daamen reports the pathology lab
040999 - submitted the specimen from the biopsy on 081107 for FISH
041000 - testing to determine HER2 neu status; but have not received
041001 - numerical analysis. ref SDS 15 4P5N
041003 - ..
041004 - [...in another record today on 081202 1456 Kaiser submitted
041005 - results of pathology for biopsy on 081107 showing HER2 neu
041006 - FISH test = 1.1, ref SDS 16 FG5G, well below criteria for
041007 - positive 2.0, and below change in criteria to 1.6 reported
041008 - under consideration on 071007. ref SDS 1 S68T
041010 - ..
041011 - [On 081202 1502 Millie letter to Kaiser commends Doctor
041012 - Daamen for outstanding work investigating details of
041013 - patient test history that affect options treating cancer to
041014 - extend and enhance quality of life. ref SDS 17 FG5G
041016 - ..
041017 - 7. Thanks again for outstanding work at Kaiser.
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