THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: October 27, 2005 02:45 PM Thursday; Rod Welch

Millie recovering from IBC after mastectomy, biopsy shows disease-free status.

1...Summary/Objective
2...Status Disease-free Following Successful Mastectomy Surgery
3...Disease-free Survival Status Based on Testing and Examination
4...Complete Response to Treatment Local Control Disease-free Status
5...Examination Surgical Wound Healing Normally, Drain Tubes Removed
6...Case Study Purpose of Mastectomy for Secondary IBC
7...Relapse Risks from Residual Microscopic Cancer Cells
8...Innovation for Mastectomy Surgery Secondary IBC Patient
9...Purpose of Surgery Palliation Remission Recurrence-free Cure
10...Surgery Drain Tubes and Effluent Discharge Containers Removed
11...Orientation Guidance Managing Emotional Trauma Mastectomy Surgery
12...Side Effects Reaction to Very Wide Mastectomy Orientation Guidance
13...Time Out Due Diligence Risk Analysis Scope Purpose of Surgery
14...Doctor Pre-op Patient History Missing Explanation Purpose of Surgery
15...Disease-free Status Analysis Microscopic Cancer Cells in Axilla
16...Axillary Node Dissection Not Performed to Avoid Lymphedema
17...Lymphedema Risk Avoided Axillary Node Dissection Not Performed
18...Lymphadenopathy Patient History of Relapse Balance Against Lymphedema
19...Surgery Follow Up Not Scheduled Oncology Department to Notify Surgery
20...Relapse Focus of Treatment for Disease-free Patient after Surgery
21...Work Plan Testing Disease-free Status for Relapse CA 15-3 PET CT Scans
22...Status Change Retest Biopsy to Increase Treatment Options
23...Pulmonary Emboli Treatment Coumadin Resumed Requires Work Up
24...Port Catheter Requires Flush Maintenance While Off Chemotherapy
25...Disability Leave Entitlement Authorized by Surgeon
26...Biopsies Determine Complete Response to Treatment Local Disease
............Ductal Carcinoma in Situ (DCIS) diagnosed...
27...DCIS Risk Right Breast Not Evident from Testing Except Biopsy
28...Complex Diagnosis No Evidence DCIS Until Biopsy on Mastectomy Surgery
29...No Evidence of Disease NED Inflammatory Carcinoma
30...Clear Margins Implied by Biopsy Pathology Report Diagnosis
31...Inflammatory Carcinoma No Evidence of Disease in Left Breast

ACTION ITEMS.................. Click here to comment!

1...The pre-op report on patient history may explain the purpose of

CONTACTS 

SUBJECTS
Meeting Surgeon Evaluate Mastectomy Left Breast Follow Up Examinatio

0503 -
0503 -    ..
0504 - Summary/Objective
0505 -
050501 - Follow up ref SDS 44 0000. ref SDS 41 0000.
050502 -
050503 - Examination indicates Millie is recovering normally from mastectomy
050504 - surgery.  Biopsy found no evidence of inflammatory carcinoma in the
050505 - breast. ref SDS 0 RI6I  The doctor said Millie is now disease-free.
050506 - ref SDS 0 M58G  She removed the surgery drain tubes; this hurt, but
050507 - was done quickly without incident. ref SDS 0 RD3M  The surgeon feels
050508 - Millie's stage IV patient profile recovering from secondary IBC
050509 - requires frequent, vigorous testing for the near term to assess
050510 - relapse. ref SDS 0 L05O  The surgeon is counting on team care in the
050511 - Oncology Department to schedule timely examinations for relapse,
050512 - following the practice that diagnosed IBC in 2004. ref SDS 0 OZ70  The
050513 - biopsy showing no evidence of IBC, reports evidence of new cancer:
050514 - ductal carcinoma in situ (DCIS). ref SDS 0 615K  Millie does not seem
050515 - to have any risk factors for DCIS; recent PET and mammogram testing
050516 - found no evidence of disease.  Test failures in Millie's case,
050517 - ref SDS 0 BA3O, present a risk of DCIS in the right breast that has
050518 - likewise passed detection, based on persistent elevated cancer
050519 - diagnostic, CA 15-3.  Further review of disease-free status seems
050520 - required. ref SDS 0 BA5G  Surgeon is checking with Oncology for follow
050521 - up investigation. ref SDS 0 2562
050522 -
050523 -     [On 060217 PET scan test finds no evidence metastatic disease;
050524 -     doctor describes swelling left axilla as post op localized edema.
050525 -     ref SDS 56 T56K
050527 -      ..
050528 -     [On 060623 red rash and rising CA 15-3 indicate IBC cancer relapse
050529 -     8 months after surgery. ref SDS 63 025H
050530 -
050531 -
050532 -
050533 -
050535 -  ..
0506 -
0507 -
0508 - Progress
0509 -
050901 - The following agenda guided discussions...
050902 -
050903 -        Examination............................. ref SDS 0 RI6I
050904 -        Biopsy results and assessment........... ref SDS 0 U05M
050905 -        Relapse testing......................... ref SDS 0 L05O
050906 -        Biopsy retest for treatment options..... ref SDS 0 964L
050907 -        Pulmonary emboli........................ ref SDS 0 6Y7X
050908 -        Port catheter flush schedule............ ref SDS 0 918G
050909 -        Medical leave recovery requirements..... ref SDS 0 5Q3H
050910 -
050911 -
050912 -
050913 -
050914 -
0510 -

SUBJECTS
Successful Mastectomy Surgery Clear Margins Reported Based on Testin
Scope Surgery Very Wide Mastectomy Oval Beyond Test Biopsies at Top
Disease-free Status Complete Response to Treatment Tests Demonstrate

2305 -
230601 -  ..
230602 - Status Disease-free Following Successful Mastectomy Surgery
230603 - Disease-free Survival Status Based on Testing and Examination
230604 - Complete Response to Treatment Local Control Disease-free Status
230605 - Examination Surgical Wound Healing Normally, Drain Tubes Removed
230606 -
230607 - Follow up ref SDS 44 EG5L.
230608 -
230609 - The doctor was very pleased with Millie's progress recovering from
230610 - surgery, and indicated examination shows the surgical wound is healing
230611 - normally in all respects, despite diagnosis of inflammatory breast
230612 - cancer (IBC), and thus indicating success of systemic treatment this
230613 - past year, as shown by the PET scan test report received on 051007,
230614 - ref SDS 37 L66M, and further by the biopsy on tissue from surgery
230615 - performed on 051021, as shown below. ref SDS 0 U05M
230616 -
230617 -     [On 051121 examination by primary care physician in Oncology
230618 -     Department shows surgery wound healing without complications.
230619 -     ref SDS 51 025H
230621 -      ..
230622 -     [On 051125 Millie reported slight seepage from the surgical wound,
230623 -     only evident in stained clothing. ref SDS 52 025H  Kaiser was
230624 -     notified. ref SDS 52 LC7M
230625 -      ..
230626 -     [On 051129 Millie reported further slight seepage. ref SDS 53
230627 -     025H
230628 -     .
230629 -      ..
230630 -     [On 051129 Diane at Kaiser called back; she contacted the
230631 -     surgeon, and reported later than a meeting is scheduled for
230632 -     051202 to review the problem. ref SDS 53 JG7G
230634 -      ..
230635 -     [On 051202 surgeon examination to determine cause of slight
230636 -     seepage; speculates may arise from drain tube system removed
230637 -     today. ref SDS 54 XO8O
230639 -      ..
230640 -     [On 060217 PET scan test finds no evidence metastatic disease;
230641 -     doctor describes swelling left axilla as post op localized edema.
230642 -     ref SDS 56 T56K
230644 -  ..
230645 - Examination today supports recent patient history listed on 050812
230646 - showing favorable response to treatment for secondary IBC. ref SDS 23
230647 - AV5M
230649 -  ..
230650 - The doctor said the biopsy found clear margins, and so reexcision,
230651 - required following the first surgery on 020327, ref SDS 3 0001, will
230652 - not be needed in this case. ref SDS 0 616P  She said pre-cancerous
230653 - "funny stuff" was found near the nipple, but could have become
230654 - cancerous later. (see below, the biopsy found cells consistent with
230655 - DCIS, ref SDS 0 615K)  The doctor feels that surgery on 051021 reduced
230656 - the risk of relapse, cited previously on 051007 by the primary care
230657 - physician, as grounds for palliation surgery. ref SDS 37 I482
230658 -
230659 -    [On 060623 red rash and rising CA 15-3 indicate IBC cancer relapse
230660 -    8 months after surgery. ref SDS 63 025H
230662 -  ..
230663 - The doctor clarified initial impressions from post-op reporting on
230664 - 051021, ref SDS 44 MM6M, citing plans on 050724 for a wider than
230665 - normal mastectomy. ref SDS 22 TI7O
230667 -  ..
230668 - The doctor's post-operative surgery report is incorporated into the
230669 - record on 051021. ref SDS 44 369L  This report describes an elliptical
230670 - incision to establish the scope of breast removal. ref SDS 44 TH50
230672 -  ..
230673 - Today, the surgeon described having performed a standard mastectomy
230674 - that implemented her report received on 050927, ref SDS 34 EU67, which
230675 - presented understandings from meeting on 050923. ref SDS 33 4G4L  The
230676 - surgical incision formed a very wide oval extending just above and
230677 - just below test biopsies at the top and the bottom of the left breast,
230678 - as recommended by Doctor Grissom on 050920, ref SDS 30 XL7P, and were
230679 - later performed on 051012, ref SDS 41 DG6J, for the purpose of setting
230680 - mastectomy scope planned with the surgeon on 050923 for reducing the
230681 - risk of relapse by removing the entire left breast previously
230682 - irradiated and infected with IBC. ref SDS 33 NT9G  Surgical removal
230683 - beyond the test biopsies helped remove microscopic cancer cells, cited
230684 - as a continuing risk of relapse by the surgeon on 050923, ref SDS 33
230685 - KF6I, and supported by the primary care physician on 051007.
230686 - ref SDS 37 IV4G
230687 -
230688 -    [On 060711 patient diagnosed IBC relapse left breast.
230689 -    ref SDS 64 025H
230691 -  ..
230692 - Since the scope of removal was beyond the test biopsies, the surgery
230693 - may align with Doctor Grissom's ideas for a "very wide mastectomy"
230694 - defined by radiation tattoos, as proposed in a letter received on
230695 - 050920. ref SDS 30 XL8U  Surgical incision seems to have cut through
230696 - skin above the breast which was previously infected with IBC that
230697 - spread toward the neck, cited by the surgeon on 050324. ref SDS 19
230698 - YY7F  Doctor Bailey described in a 2nd opinion received on 050922
230699 - risks that this procedure can prevent healing of the surgical wound.
230700 - ref SDS 31 XD8P  Examination today indicates normal healing has
230701 - occurred so far, so possibly this risk will not become manifest with
230702 - post-op problems.
230703 -
230704 -    [On 060711 diagnosis IBC relapse left breast may indicate surgery
230705 -    was not wide enough. ref SDS 64 025H
230707 -  ..
230708 - The doctor seemed to indicate today that successfully stretching skin
230709 - and tissue to perform a standard closure for a very wide mastectomy
230710 - has maintained adequate blood supply for delivering nutrients and
230711 - treatment, if necessary, to the skin, so that the wound and any
230712 - subsequent IBC relapse will heal for palliation, cited in the letter
230713 - prepared on 051019, ref SDS 43 DZ4W, and mentioned in Doctor Bailey's
230714 - 2nd opinion consultation on 051011, ref SDS 39 G65S, reflecting Doctor
230715 - Smith's risk analysis earlier at Kaiser on 050928. ref SDS 35 248I
230717 -  ..
230718 - Just before starting the operation on 051021, Millie asked the surgeon
230719 - about the purpose of mastectomy.  The surgeon cited palliation,
230720 - ref SDS 44 8L9K, first presented by the primary care physician on
230721 - 051007, ref SDS 37 6A4N, who, as noted, grounded surgery for
230722 - palliation on possibility of relapse caused by microscopic cancer
230723 - cells not detected by tests, ref SDS 37 IV4G, and supported by Doctor
230724 - Smith's notes received on 051007 citing palliation, but not presented
230725 - to the patient during a meeting on 050928.
230727 -  ..
230728 - The doctor said today that Millie's status is "disease-free," which
230729 - demonstrates progress toward "local control."  No evidence of disease
230730 - (NED) in the biopsy report today may demonstrate complete response to
230731 - treatment, and aligns with the PET scan test report received on
230732 - 051007. ref SDS 37 0001
230734 -  ..
230735 - Millie was pleased hearing from the doctor that mastectomy surgery
230736 - ordered on 051007 for palliation, ref SDS 37 MW6O, and performed on
230737 - 051021, ref SDS 44 EG5L, compliments prior findings that she is now
230738 - "disease-free," and further that removing pre-cancerous tissue may
230739 - have prevented future relapse. ref SDS 0 RI6I
230740 -
230741 -        [...see below, disease-free status requires review of DCIS in
230742 -        right breast. ref SDS 0 BA5G
230744 -         ..
230745 -        [On 051121 primary care physician finds patient has no evidence
230746 -        of disease (NED) based on estensive testing with biopsy, PET,
230747 -        CA 1503; prognosis is for future relapse due to diagnosis of
230748 -        metastatic cancer, and therefore mastectomy surgery on 051021
230749 -        was palliation for furture relapse. ref SDS 51 LH7M
230751 -         ..
230752 -        [On 060217 PET scan test finds no evidence metastatic disease;
230753 -        doctor describes swelling left axilla as post op localized
230754 -        edema. ref SDS 56 T56K
230756 -         ..
230757 -        [On 060711 patient diagnosed IBC relapse left breast.
230758 -        ref SDS 64 025H
230760 -  ..
230761 - Determination of disease-free status reflects finding no evidence of
230762 - local, regional, nor distant metastatic disease, as shown by the PET
230763 - scan test reported on 051007, ref SDS 37 L66M, and the biopsy report
230764 - from surgery on 051021, shown below. ref SDS 0 U05M  This aligns with
230765 - the surgeon's report on 050927 saying mastectomy surgery was for local
230766 - control, ref SDS 34 AK4Q, previously discussed on 050923. ref SDS 33
230767 - O15H  The doctor noted that testing in the coming weeks and months
230768 - will show whether cancer is in remission.  Disease-free status is the
230769 - first step demonstrating local control, essential for cure presented
230770 - in the 2nd opinion received on 050907, ref SDS 25 F49H, and later
230771 - discussed with Doctor Grissom on 051010. ref SDS 38 GW5K
230773 -         ..
230774 -        [...see below, on follow up testing to monitor risk of relapse.
230775 -        ref SDS 0 L05O
230777 -         ..
230778 -        [On 060711 patient diagnosed IBC relapse left breast.
230779 -        ref SDS 64 025H
230780 -
230781 -
230782 -
230783 -
2308 -

SUBJECTS
Case Study Purpose Mastectomy for Secondary IBC Relapse Risks from R

4303 -
430401 -  ..
430402 - Case Study Purpose of Mastectomy for Secondary IBC
430403 - Relapse Risks from Residual Microscopic Cancer Cells
430404 - Innovation for Mastectomy Surgery Secondary IBC Patient
430405 - Purpose of Surgery Palliation Remission Recurrence-free Cure
430406 -
430407 - Follow up ref SDS 37 MW5O, ref SDS 16 657F.
430408 -
430409 - Surgeon's initial presentation on 051021 for the scope of surgery
430410 - suggested possible innovation to perform a very wide mastectomy that
430411 - reduces risk of relapse and also avoids risk of complications from
430412 - immediate reconstruction. ref SDS 44 MP8K  Discussion during the
430413 - meeting today, ref SDS 0 RA3H, clarified first impressions on what was
430414 - done and why, ref SDS 0 QY8K, and further complements prior studies on
430415 - 051007 that reviewed history proposing surgery for local control in
430416 - relation to new theory of palliation, ref SDS 37 MW5O, and earlier on
430417 - 041210 showing entire history considering surgery for Millie.
430418 - ref SDS 16 657F  In any case, research on the Internet does not reveal
430419 - treatment of primary or secondary IBC for the purpose of removing
430420 - previously infected skin to reduce the risk of relapse, leading to
430421 - remission and possibly cure.  Additionally, Doctor Grissom noted on
430422 - 050920 that Millie may present a case of first impression. ref SDS 30
430423 - XL9Y  Therefore, the record may be helpful for others who travel this
430424 - road in the future.
430426 -  ..
430427 - Case study on all considerations for surgery is reported on 041210.
430428 - ref SDS 16 657F
430430 -  ..
430431 - Chronology on purpose of surgery...
430432 -
430433 -        1.  Cure opportunity presented
430434 -            by patient profile cited in
430435 -            2nd opinion consultation with
430436 -            Doctor Grissom................... 051010, ref SDS 38 GW4I
430438 -             ..
430439 -        2.  Cure goal of surgery proposed
430440 -            by Kaiser surgeon internal
430441 -            referral......................... 050907, ref SDS 25 F49H
430442 -            setting stage III status......... 050826, ref SDS 24 F49H
430444 -             ..
430445 -        3.  Cure requires avoiding relapse
430446 -            at risk from microscopic cancer
430447 -            cells in previously infected
430448 -            areas, cited by primary care
430449 -            physician........................ 051007, ref SDS 37 I482
430451 -             ..
430452 -        4.  Microscopic cancer cells
430453 -            present risk of relapse, also,
430454 -            cited by surgeon................. 050923, ref SDS 33 KF6I
430456 -             ..
430457 -        5.  Avoiding cancer relapse
430458 -            requires treating locoregional
430459 -            sites for patient profile with
430460 -            history of tests over 4 years
430461 -            finding no distant metastatic
430462 -            disease.......................... 051007, ref SDS 37 AG6G
430464 -             ..
430465 -        6.  Primary local site is left
430466 -            breast where IBC infected
430467 -            the skin from below the nipple
430468 -            and extended beyond the breast
430469 -            toward the neck noted in
430470 -            examination by surgeon, but
430471 -            without accurate report on
430472 -            scope of disease with diagrams
430473 -            and photographs to later guide
430474 -            treatment with surgery........... 050324, ref SDS 19 YY7F
430476 -             ..
430477 -        7.  Scope of left breast removal
430478 -            with mastectomy surgery was
430479 -            initially not determinable
430480 -            because surgeon was not
430481 -            experienced treating
430482 -            IBC.............................. 050324, ref SDS 19 WH5L
430484 -             ..
430485 -        8.  Doctor calls surgeon to schedule
430486 -            mastectomy for the purpose of
430487 -            local control because observes
430488 -            cancer worsening in left breast
430489 -            due to pockets of resistance
430490 -            to chemotherapy
430491 -            treatment........................ 050311, ref SDS 18 XQ41
430493 -             ..
430494 -        9.  Mastectomy to treat primary IBC
430495 -            presented in published guidance
430496 -            calls for surgery when IBC has
430497 -            not spread beyond the breast,
430498 -            and for the purpose of removing
430499 -            a tumor from within the
430500 -            breast........................... 040517, ref SDS 11 YM3M
430502 -             ..
430503 -       10.  Mastectomy can lead to cure for
430504 -            stage I and II patients, and in
430505 -            some cases Stage III patients;
430506 -            stage IV cancer patients get
430507 -            palliation treatment............. 050712, ref SDS 21 B65G
430509 -             ..
430510 -       11.  Doctor Benz classifies Millie
430511 -            diagnosed with secondary IBC
430512 -            as stage III based on standards
430513 -            and practice at UCSF............. 041018, ref SDS 13 EO3Y
430514 -            and maintained there is no
430515 -            role for surgery................. 041117, ref SDS 14 OU5P
430517 -             ..
430518 -       12.  Primary care physician classifies
430519 -            same patient profile diagnosis
430520 -            IBC on relapse as stage IV
430521 -            based on standards and practice
430522 -            at Kaiser........................ 040614, ref SDS 12 SZ3I
430523 -            and proposed surgery for
430524 -            local control.................... 051007, ref SDS 37 5W7F
430525 -            then changed purpose to
430526 -            palliation....................... 051007, ref SDS 37 6A4N
430528 -             ..
430529 -       13.  Surgeon proposed wider than
430530 -            normal scope for laying out
430531 -            mastectomy incision to treat
430532 -            Millie's patient profile with
430533 -            history of secondary IBC
430534 -            infection spreading toward
430535 -            the neck and no evidence
430536 -            of tumor within the
430537 -            breast........................... 050727, ref SDS 22 JV5F
430539 -             ..
430540 -       14.  Doctor Grissom proposed
430541 -            laying out very wide mastectomy
430542 -            to remove previously irradiated
430543 -            skin based on radiology
430544 -            tattoos.......................... 050920, ref SDS 30 XL8U
430545 -            and thin skin biopsies
430546 -            indicating limits of prior
430547 -            IBC infection to obtain
430548 -            negative margins that reduce
430549 -            risk of relapse.................. 050920, ref SDS 30 GT3M
430550 -            Doctor Bailey similarly
430551 -            proposed removing a very large
430552 -            area to remove all previously
430553 -            involved skin, if mastectomy
430554 -            surgery was attempted for
430555 -            Millie's patient profile of
430556 -            secondary IBC.................... 050922, ref SDS 31 XD8P
430558 -             ..
430559 -       15.  Regional sites on left side
430560 -            of neck found cancerous and
430561 -            recommended for surgical
430562 -            removal.......................... 040303, ref SDS 6 Y193
430563 -            but surgery was not actually
430564 -            performed and so may be a
430565 -            site where microscopic cancer
430566 -            cells can cause relapse cited
430567 -            by surgeon....................... 050923, ref SDS 33 VL4O
430569 -             ..
430570 -       16.  Research finds no published
430571 -            guidance for "wide" nor "very
430572 -            wide" mastectomy to remove
430573 -            skin previously irradiated
430574 -            and infected with IBC in
430575 -            order to reduce the risk
430576 -            of relapse....................... 051021, ref SDS 44 QD7G
430578 -             ..
430579 -       17.  Local control in left breast
430580 -            using surgery, see case
430581 -            study............................ 051007, ref SDS 37 MW5O
430582 -            largely fits requirements for
430583 -            wider than normal mastectomy
430584 -            using biopsies to guide layout
430585 -            that achieved clear margins,
430586 -            even though all of the skin
430587 -            previously infected may not
430588 -            have been removed, and thus
430589 -            leaving open the prospect that
430590 -            microscopic cancer cells may
430591 -            yet cause local control to
430592 -            fail............................. 051027, ref SDS 0 JN3L
430594 -             ..
430595 -       18.  Regional sites include left
430596 -            axilla recommended for
430597 -            another node dissection, which
430598 -            was not performed to avoid
430599 -            lymphedema; and right axillary
430600 -            where issues have not been
430601 -            expressly reported to be totally
430602 -            resolved; therefore, microscopic
430603 -            cancer cells may remain that
430604 -            cause relapse, based on patient
430605 -            history of multiple relapse in
430606 -            left axilla...................... 051027, ref SDS 0 LI3K
430608 -             ..
430609 -       19.  Pockets of resistance treatment with
430610 -            mastectomy not a common theory; surgery
430611 -            has 20% chance of long term success
430612 -            for IBC, but IBC very aggressive
430613 -            cancer; correlation to
430614 -            palliation not
430615 -            evident.......................... 070130, ref SDS 66 EH3F
430616 -
430618 -  ..
430619 - This patient history appears to present a continuing risk of relapse
430620 - despite current disease-free status, because the full range of suspect
430621 - sites has not been treated to remove "microscopic cancer cells,
430622 - presented by the surgeon on 050923 for continuing risk of relapse,
430623 - ref SDS 33 KF6I, and presented again by the primary care physician on
430624 - 051007. ref SDS 37 IV4G  On the other hand, the one major site where
430625 - obvious cancer occurred may now be disease-free based on the biopsy
430626 - report. ref SDS 0 U05M
430627 -
430628 -        [On 060711 patient diagnosed IBC relapse left breast.
430629 -        ref SDS 64 025H
430630 -
430631 -
430632 -
430633 -
430634 -
430635 -
4307 -

SUBJECTS
Surgery Drain Tubes and Effluent Discharge Containers Removed Meetin

4503 -
450401 -  ..
450402 - Surgery Drain Tubes and Effluent Discharge Containers Removed
450403 -
450404 - Prior to entering the examination room, the nurse asked Millie how
450405 - much drainage occurred from the surgery last week on 051021?  Millie
450406 - related some figures, reflecting calibrations on the side of the small
450407 - effluent plastic containers connected to the drain tubes.
450408 -
450409 -     [On 051202 surgeon examination to determine cause of slight
450410 -     seepage; speculates may arise from drain tube system removed
450411 -     today. ref SDS 54 XO8O
450413 -  ..
450414 - The doctor said that, based on Millie's report of minimal discharge,
450415 - the surgery drain tubes can be removed today.  This was painful, but
450416 - was quickly and smoothly pulled from penetrations, taking only about a
450417 - second for each of the two (2) tubes.  The drains seem to extend well
450418 - into the body, so extraction was very uncomfortable, but Millie
450419 - recovered quickly.
450420 -
450421 -
450422 -
450423 -
4505 -

SUBJECTS
Orientation Side Effects High Risk IBC Patient Mastectomy Surgery Gu

4803 -
480401 -  ..
480402 - Orientation Guidance Managing Emotional Trauma Mastectomy Surgery
480403 - Side Effects Reaction to Very Wide Mastectomy Orientation Guidance
480404 -
480405 - Due to limited time, the doctor did not discuss side effects of
480406 - physical and emotional trauma that are occurring from wider than
480407 - normal mastectomy surgery reported on 051026, ref SDS 47 KG5I, and
480408 - which may accompany having performed innovative surgery to reduce the
480409 - chance of relapse.
480411 -  ..
480412 - The doctor asked Millie to raise her left arm, and on observing a
480413 - normal range of motion, commented on Millie's strong recovery.
480414 -
480415 -
480416 -
480417 -
480418 -
480419 -
480420 -
4805 -

SUBJECTS
Doctor's Pre-op Patient History Missing May Explain Purpose of Surge

6103 -
610401 -  ..
610402 - Time Out Due Diligence Risk Analysis Scope Purpose of Surgery
610403 - Doctor Pre-op Patient History Missing Explanation Purpose of Surgery
610404 -
610405 - Follow up ref SDS 44 6D4F, ref SDS 41 6D4F.
610406 -
610407 - Pre-op patient history reported missing from Kaiser's records and
610408 - required by the nurse for admitting Millie into the Surgery Department
610409 - on 051021, ref SDS 44 QV4H, may show performance of "Time Out"
610410 - requirements for due diligence in this case, as shown in the letter on
610411 - 051019. ref SDS 43 V55K
610413 -  ..
610414 - The doctor explained today that the pre-op patient history required
610415 - for surgery on 051021 was eventually prepared for Kaiser's records,
610416 - but it is not important nor necessary for the patient to review.  This
610417 - document was not submitted during the meeting.
610419 -  ..
610420 - The pre-op report on patient history may explain the purpose of
610421 - surgery, as required by Kaiser's Time Out due diligence check list,
610422 - reported in the record on 050923, ref SDS 33 HF7M, and cited in the
610423 - letter prepared for implementing these requirements on 051019.
610424 - ref SDS 43 DY5P (see first draft on 051012. ref SDS 41 IA5V)
610426 -  ..
610427 - The was not enough time during the meeting to review the scope for a
610428 - post-op report, per below. ref SDS 0 OZ70
610430 -  ..
610431 - The surgeon's post-op report should explain the work performed, and
610432 - include an as-built diagram showing the actual outline of surgical
610433 - incision.  A narrative should explain how the surgery is different
610434 - from a standard mastectomy, shown in pictures presented by Doctor
610435 - Smith in the Plastic Surgery Department on 050928, ref SDS 35 246J,
610436 - and further explain how a standard closure was accomplished for a
610437 - wider than normal mastectomy.
610439 -       ..
610440 -      [On 051121 surgeon's post-op report was received, and showed no
610441 -      as-built diagram. ref SDS 51 355L
610442 -
610443 -
610444 -
610445 -
6105 -

SUBJECTS
Axillary Node Dissection Not Performed to Remove More Lymph Nodes Do

6403 -
640401 -  ..
640402 - Disease-free Status Analysis Microscopic Cancer Cells in Axilla
640403 - Axillary Node Dissection Not Performed to Avoid Lymphedema
640404 - Lymphedema Risk Avoided Axillary Node Dissection Not Performed
640405 - Lymphadenopathy Patient History of Relapse Balance Against Lymphedema
640406 -
640407 - The doctor confirmed she did not perform axillary node dissection
640408 - because of concern to avoid the risk of lymphedmea.  This confirms
640409 - Millie's report on 051021. ref SDS 44 QU5I  Another axillary node
640410 - dissection was originally proposed for consideration on referral by
640411 - the surgeon in Kaiser's Oakland office on 050907. ref SDS 25 JS4H
640412 - Research shows secondary lymphedema can occur from surgical removal of
640413 - lymph nodes for treating breast cancer....
640415 -          ..
640416 -         http://www.emedicine.com/med/topic2722.htm
640418 -      ..
640419 -     [On 060106 patient reports new swelling, large bulge under left
640420 -     axillary; initial diagnosis is lymphadema. ref SDS 55 S164
640422 -      ..
640423 -     [On 060217 PET scan test finds no evidence metastatic disease;
640424 -     doctor describes swelling left axilla as post op localized edema.
640425 -     ref SDS 56 T56K
640427 -      ..
640428 -     [On 060306 examination at lyphedema clinic showed worsening
640429 -     condition; follow up meeting for personalized treatment scheduled.
640430 -     ref SDS 57 Q05H
640432 -      ..
640433 -     [On 060308 lymphedema symptoms increase, report at work.
640434 -     ref SDS 58 0001
640436 -      ..
640437 -     [On 060314 physical therapy treatment and new guidance for
640438 -     lymphedema; begin regimin of personal massage treatments to reduce
640439 -     swelling left arm. ref SDS 59 Q05H
640441 -      ..
640442 -     [On 060320 letter to primary care physician reports research
640443 -     showing bandage should be worn during exercise; lymphedema may
640444 -     have accelerated because exercise was performed without bandage
640445 -     during exercise for several months prior to notce. ref SDS 60 EU40
640447 -      ..
640448 -     [On 060331 further improvement swelling decreases to 11", best
640449 -     reading in a month indicates lymphedema symptoms decline.
640450 -     ref SDS 61 0001
640452 -      ..
640453 -     [On 060417 therapyst finds decreased swelling, marked improvement
640454 -     compared to examination on 060314; explains that removal of lymph
640455 -     nodes during surgery on 051021 may have triggered increased
640456 -     symptoms of lymphedema. ref SDS 62 2Z9M
640458 -  ..
640459 - Patient history shows continual relapse of cancer in left axilla,
640460 - reported on 040517. ref SDS 11 OW3I  Though there is no corresponding
640461 - history of relapse in the right axilla, recent findings present the
640462 - prospect of distant metastasis, discussed on 051007, ref SDS 37 B58M,
640463 - despite express findings from image tests that state no distant
640464 - metastasis has been identified. ref SDS 37 XU7N
640466 -  ..
640467 - Since the PET scan test on 051005 and received on 051007 showed no
640468 - evidence of cancer in either the left or right axilla, ref SDS 37
640469 - L66M, then axillary node dissection on both the left and right sides
640470 - for the purpose of removing microscopic cancer cells that might
640471 - someday cause relapse may present an unnecessary risk for lymphedema
640472 - relative to risks presented by patient history of relapse, even though
640473 - there is no express finding in the PET scan test resolving prior
640474 - findings of swelled lymph nodes in the right axillary. ref SDS 37 1E8L
640476 -  ..
640477 - Similarly, PET scan and mammogram testing reported no findings of
640478 - ductal carcinoma in situ (DCIS), however, this was found by the biopsy
640479 - report, per below. ref SDS 0 615K  Research shows mammograms are the
640480 - most common test for identifying DCIS, and further that DCIS can
640481 - spread cancer to the axilla lymphatic systems.  This record presents a
640482 - risk of spreading cancer due to microscopic cancer cells that requires
640483 - balance against risk of lymphedema.  How was the balance struck in
640484 - this case?
640485 -
640486 -
640487 -
640488 -
640489 -
640490 -
640491 -
6405 -

SUBJECTS
Surgery Follow Up Examinations Not Scheduled Oncology Department to

7603 -
760401 -  ..
760402 - Surgery Follow Up Not Scheduled Oncology Department to Notify Surgery
760403 -
760404 - Follow up ref SDS 9 PPSW.
760405 -
760406 - After examining progress healing the incision, ref SDS 0 RI6I, and
760407 - removing the drain tubes, ref SDS 0 RD3M, the doctor said the
760408 - examination was completed.  This took about 10 minutes.
760410 -  ..
760411 - The doctor was asked to review the patient's agenda, per above.
760412 - ref SDS 0 DG6J
760414 -  ..
760415 - The surgeon advised that her work plan does not call for more frequent
760416 - monitoring, and special methods and treatment to aid recovery from
760417 - high risk surgery, previously presented in 2nd opinions, and reviewed
760418 - by the surgeon on 050923, ref SDS 33 KF6I, and again by Doctor Smith
760419 - during another examination on 050928. ref SDS 35 9W4I
760420 -
760421 -     [On 060217 PET scan test finds no evidence metastatic disease;
760422 -     doctor describes swelling left axilla as post op localized edema.
760423 -     ref SDS 56 T56K
760425 -  ..
760426 - The doctor said she does not plan to see Millie again, and so no
760427 - follow up examination was scheduled.  This seems conflicting with
760428 - procedure following lumptectomy surgery performed on 020312, and with
760429 - reexcision for clear margins on 020327.  When the surgeon examined the
760430 - patient on 020408, follow up examinations were scheduled for every
760431 - three (3) months. ref SDS 4 WX4K  Later, on 040419 the surgeon
760432 - performed a punch biopsy, which diagnosed IBC.  At that time, the
760433 - surgeon recalled not having enough time to perform examinations during
760434 - 2002 and 2003, ref SDS 9 XU75, when IBC was growing, e.g., CT test
760435 - report on 030710 recommending the doctor "correlate clinically" new
760436 - findings that were diagnosed a year later as IBC ref SDS 5 GJ69
760437 - Previously in 2002 and 2003, as proposed today, the doctor relied on
760438 - team care to notify of complications that require surgery. ref SDS 9
760439 - XU75  Later, on 041202 the attending physician in the Emergency Room
760440 - ordered examination by the surgeon, because the punch biopsy taken on
760441 - 040419 had not healed. ref SDS 15 AH9H  On 050107 the surgeon examined
760442 - the punch biopsy taken eight months earlier, and diagnosed relapse of
760443 - IBC which prevented surgery. ref SDS 17 IS5N  This suggests applying
760444 - team care for dual examination that cross-checks diagnoses to verify
760445 - accuracy rather than an excuse to avoid patient care because the other
760446 - doctor did not ask for an examination.  Team care should bring better
760447 - care not finger pointing.
760448 -
760449 -     [On 051103 study shows 34% of patients report experiencing medical
760450 -     mistakes due to communication gap, lack of coordination in team
760451 -     care where several doctors collaborate in providing care to a
760452 -     patient. ref SDS 50 ET68
760454 -  ..
760455 - The doctor said that follow up examination and monitoring of Millie's
760456 - treatment will be performed again in the oncology department, like
760457 - last year.  On 051007 the primary care physician in Oncology advised
760458 - that he did not need to schedule another examination with Millie.
760459 - ref SDS 37 JN4J  Today, the surgeon said she would contact the
760460 - oncologist and request follow up patient care.
760461 -
760462 -        [...see below, required follow up on DCIS in right breast to
760463 -        evaluate disease-free status. ref SDS 0 BA5G
760464 -
760465 -
760466 -
760467 -
7605 -

SUBJECTS
Relapse Testing CA 15-3 PET CT Imaging Testing for Disease-free Pati

7803 -
780401 -  ..
780402 - Relapse Focus of Treatment for Disease-free Patient after Surgery
780403 - Work Plan Testing Disease-free Status for Relapse CA 15-3 PET CT Scans
780404 -
780405 - Evaluation for relapse requires vigorous, and routine testing based on
780406 - Millie's history of relapse while off chemotherapy shown in the study
780407 - on 050812, ref SDS 23 UF4J, and in this case to recuperate from
780408 - surgery on 051021, ref SDS 44 0001, per Doctor Bailey's 2nd opinion
780409 - received on 050922. ref SDS 31 XD6U
780410 -
780411 -     [On 051121 primary care physician ordered bi-monthly CA 15-3
780412 -     testing, and scheduled PET scan testing beginning on 060115.
780413 -     ref SDS 51 FV6L
780415 -      ..
780416 -     [On 060217 PET scan test finds no evidence metastatic disease;
780417 -     doctor describes swelling left axilla as post op localized edema.
780418 -     ref SDS 56 T56K
780420 -  ..
780421 - The doctor said that Millie will have to be off systemic chemotherapy
780422 - treatment for 3 - 4 weeks in order for the surgical wound to heal.  If
780423 - IBC relapses within this period, exigent treatment will be required.
780424 -
780425 -     [On 051121, 5 weeks after surgery on 051021, primary care
780426 -     physician examined patient and found Millie is healing normally
780427 -     without complications. ref SDS 51 025H
780429 -  ..
780430 - No published guidance was cited nor submitted on treating secondary
780431 - IBC patients with mastectomy surgery.
780432 -
780433 -
780434 -
780435 -
7805 -

SUBJECTS
Status Change Retest Biopsy to Increase Treatment Options Meeting Do

8003 -
800401 -  ..
800402 - Status Change Retest Biopsy to Increase Treatment Options
800403 -
800404 - Millie asked the doctor about progress with restest the biopsy 040419
800405 - for status change to increase treatment options for the patient, as
800406 - discussed on 051022, ref SDS 45 NE9J
800408 -  ..
800409 - The biopsy received today on tissue from mastectomy surgery on 051021
800410 - reports finding DCIS which can be treated with hormonal therapy under
800411 - some circumstances, per below, ref SDS 0 BA6K, and this may add
800412 - urgency to testing for status change.
800414 -  ..
800415 - The doctor has still not received the report on retesting, discussed
800416 - originally on 050923. ref SDS 33 RX4I  She will notify the pathology
800417 - lab to check for filing error as a result of the biopsy slide returned
800418 - to Kaiser after use for a 2nd opinion, reported on 050913, ref SDS 28
800419 - NP7M, and completed on 050916. ref SDS 29 254S
800420 -
800421 -     [On 051121 primary care physician found that the Pathology
800422 -     Department has not reported results of retesting for status
800423 -     change; the doctor called the department to request expedited
800424 -     retesting. ref SDS 51 TI4J
800425 -
800426 -
800427 -
800428 -
8005 -

SUBJECTS
Pulmonary Emboli Treatment Coumadin Resumed Requires Work Up Hyperco

8403 -
840401 -  ..
840402 - Pulmonary Emboli Treatment Coumadin Resumed Requires Work Up
840403 -
840404 - Follow up ref SDS 48 PO7J.
840405 -
840406 - Pulmonary emboli treatment with Coumadin was resumed by the doctor
840407 - yesterday, based on a call from Gloria in the Anticoagulant Clinic in
840408 - the Kaiser hospital located in Martinez. ref SDS 48 PO85
840409 -
840410 -     [On 051121 primary care physician ended Coumadin treatment for
840411 -     pulmonary emboli, and called the Anticoagulant Clinic in Martinez
840412 -     to confirm this change. ref SDS 51 RZ4I
840414 -  ..
840415 - Hypercoagulable state work up recommended on 050922 by Doctor Bailey
840416 - in a 2nd opinion citing patient history, and related family medical
840417 - history, ref SDS 31 XD9X, surgeon wants Millie to ask the oncologist
840418 - to address this action item.
840419 -
840420 -     [On 051121 primary care physician determined work up on
840421 -     hypercoagulable state not required. ref SDS 51 GW7G
840422 -
840423 -
840424 -
840425 -
840426 -
840427 -
8405 -

SUBJECTS
Port Catheter Requires Flush Maintenance While Off Chemotherapy

8503 -
850401 -  ..
850402 - Port Catheter Requires Flush Maintenance While Off Chemotherapy
850403 -
850404 - The doctor suggested that Millie coordinate with the primary care
850405 - physician for scheduling port catheter flush, based on period of next
850406 - chemotherapy treatment. ref SDS 44 QW3M
850407 -
850408 -     [On 051121 primary care physician submitted a schedule to Millie
850409 -     for getting the port flushed on 051202. ref SDS 51 SH5N
850410 -
850411 -
850412 -
850413 -
850414 -
8505 -

SUBJECTS
Disability Leave Entitlement Recover from Mastectomy Surgery Authori

8903 -
890401 -  ..
890402 - Disability Leave Entitlement Authorized by Surgeon
890403 -
890404 - Follow up ref SDS 37 J29L, ref SDS 32 0001.
890405 -
890406 - Medical leave disability eligibility filing; N&P wants notice
890407 - from the attending physician on the length and justification of
890408 - entitlement.
890410 -  ..
890411 - The doctor prepared documents authorizing 6 weeks medical
890412 - leave.
890413 -
890414 -
890416 -  ..
8905 -
8906 -
8907 - 1533
8908 -
890801 - After meeting with the surgeon, Millie went to the Business Office on
890802 - the first floor and filed the documents for disability leave.
890803 -
890804 -
890805 -
890806 -
890807 -
890808 -
890809 -
890810 -
8909 -

SUBJECTS
Biopsy Received Pathology Findings for Biopsies Taken on 051012 to D
Biopsy IBC No Evidence Metastatic Disease Local Control Disease-free

9604 -
960501 -  ..
960502 - Biopsies Determine Complete Response to Treatment Local Disease
960503 -
960504 - Follow up ref SDS 44 L13H, ref SDS 41 DG6J.
960505 -
960506 - Millie asked the doctor about the pathology report on the biopsy of
960507 - tissue from the operation on 051021, ref SDS 44 EG5L, to supplement
960508 - the report on the test biopsies taken on 051012, and received on
960509 - 051021 showing no evidence of cancer. ref SDS 44 LH6O
960511 -  ..
960512 - The doctor said the report is favorable.  She gave Millie five (5)
960513 - sheets of paper that were a bit mixed up.  Millie read the first
960514 - document in the stack labeled page 3 of 8, which was actually the end
960515 - of the report showing diagnosis that says no inflammatory carcinoma
960516 - was found. ref SDS 0 616P
960518 -  ..
960519 - Millie was very pleased with the report submitted today.
960521 -  ..
960522 - Subsequent review following the meeting shows the sheets of paper
960523 - received from the doctor are in reverse order, and for some reason
960524 - there is a page from the biopsy on 051012.
960526 -  ..
960527 - We need the actual report for the biopsy on 051021 in order to
960528 - complete the record.
960529 -
960530 -     [On 051121 received corrected copy of biopsy from the primary care
960531 -     physician. ref SDS 51 UF4L
960533 -  ..
960534 - Piecing together representations in the papers shows the following...
960536 -     ..
960539 -     ..
960540 -    Patient
960544 -     ..
960545 -    Personal Physician:
960548 -     ..
960549 -    68/F Radiology Report               Exam  1 of 1
960551 -     ..
960552 -    Clin History
960553 -
960556 -     ..
960557 -    History
960558 -
960559 -        None given.
960561 -  ..
960562 - Why no patient history presented, since this is included with other
960563 - pathology reports (see listing on 051007, ref SDS 37 XU7N), and
960564 - provides critical context, e.g., biopsy on 040419 and received on
960565 - 040517 identified inflammatory carcinoma of the left breast,
960566 - ref SDS 11 7D6F; and test biopsies performed on 051012 and then
960567 - reported on 051021 showed no evidence of IBC at the breast perimeter.
960568 - ref SDS 44 LH6O
960570 -  ..
960571 - Biopsy report diagnosis continues...
960572 -
960573 -    Gross Desc
960574 -
960575 -        Received is a simple mastectomy specimen in its entirety 15.5 x
960576 -        13.3 cm.  It has a greatest depth of 6 cm.  There is an everted
960577 -        pink nipple that measures 1.3 cm.  A short suture for superior
960578 -        and a long suture for lateral.  The deep margin of the specimen
960579 -        reveals unremarkable fibrofatty tissue.  Serial 0.3 cm sections
960580 -        through the breast do not show evidence of tumor.  On the
960581 -        medial aspect of the breast there is a previous incisional scar
960582 -        that measures 2.5 cm.  Cut surface through the breast below
960583 -        this does not show tumor or blood clot.  Small areas of
960584 -        punctate hemorrage is identified which is submitted as 5.
960585 -        Nipple submitted as 1;skin of the breast as 2 through 4;
960586 -        previous biopsy site 5; lateral breast 6; outer upper quadrant
960587 -        7; outer lower quadrant 8; upper inner quadrant as 9; upper
960588 -        lower quadrant as 10.
960590 -     ..
960591 -    SP Final Report
960593 -     ..
960594 -    Specimen
960595 -
960596 -        Left breast tissue
960597 -        Breast NOS
960599 -     ..
960600 -    Diagnosis
960601 -
960602 -        1.  Granulation tissue with inflammation and necrosis of
960603 -            previous biopsy site.
960604 -
960605 -
960606 -
9607 -

SUBJECTS
Ductal Carcinoma In Situ (DCIS) Diagnosed Nipple Left Shown by Patho

9803 -
980401 -             ..
980402 -            Ductal Carcinoma in Situ (DCIS) diagnosed...
980403 -
980404 -        2.  Nipple with underlying dilated lactiferous ducts with
980405 -            markedly atypical cells within the lumen consistent with
980406 -            ductal carcinoma in situ.
980408 -  ..
980409 - Finding DCIS in mastectomy tissue aligns with pathology for original
980410 - surgery on 020312, which was submitted to the patient on 020321.
980411 - ref SDS 2 9N4J
980413 -  ..
980414 - DCIS may explain why CA 15-3 has remained elevated even though there
980415 - is no evidence of disease in image tests.
980417 -  ..
980418 - The doctor summarized as pre-cancerous "funny stuff" this part of the
980419 - biopsy report showing "markedly atypical cells...consistent with
980420 - ductal carcinoma in situ (DCIS). see context above. ref SDS 0 JN3L
980421 - The doctor's presentation today omitting the finding of DCIS fits the
980422 - model of work on 040429 when cancer was found in a biopsy on 040419,
980423 - and inflammatory carcinoma (IBC) was not explained nor that IBC is an
980424 - aggressive form of breast cancer. ref SDS 10 C155  Similarly, on
980425 - 040517 the primary care physician handed Millie the pathology report
980426 - and did not explain findings of IBC. ref SDS 11 6T5G
980427 -
980428 -        [On 051127 CA 15-3 drops from 45 down to 34, a dramatic change
980429 -        attributed to mastectomy removal of DCIS and possibly
980430 -        microscopic IBC, metastatic disease in the left breast not
980431 -        detected by PET and CT tests. ref SDS 51 GJ5M
980432 -
980433 -
980435 -  ..
980436 - DCIS was researched independently, ref SDS 11 YN3L, after meeting with
980437 - the surgeon today...
980439 -  ..
980440 - Research at...
980441 -
980442 -              http://www.cancerbacup.org.uk/Cancertype/Breast/DCISLCIS/DCIS
980443 -
980444 -        Cancerbackup
980445 -
980446 - ...on the Internet describes...
980447 -
980448 -            ...DCIS...cells lining the milk ducts...are cancerous, but
980449 -            stay contained within the ducts without growing through
980450 -            into the surrounding breast tissue.  DCIS may affect just
980451 -            one area of the breast but can be more widespread and
980452 -            affect different areas at the same time.  Sometimes DCIS
980453 -            may be described as pre-cancerous, pre-invasive,
980454 -            non-invasive or intraductal cancer.
980456 -             ..
980457 -            There are three grades of DCIS - low, intermediate and
980458 -            high.  The grade refers to how abnormal the cells look
980459 -            under the microscope and gives an idea of how quickly the
980460 -            cells may develop into an invasive cancer (or how likely it
980461 -            is that the DCIS will come back after surgery)  Low-grade
980462 -            DCIS has the lowest risk of developing into an invasive
980463 -            cancer and high-grade the greatest risk.
980465 -  ..
980466 - The biopsy report does not present the grade of DCIS, ref SDS 0 615K,
980467 - which influences treatment protocols with radiation for high grade
980468 - DCIS.  Why no explanation of how the cells look under the microscope
980469 - for assessing risk?
980470 -
980471 -     [On 051121 primary care physician submitted biopsy and considered
980472 -     findings of DCSI; no further testing was ordered, and the patient
980473 -     was found NED. ref SDS 51 KV9G
980475 -  ..
980476 - The doctor seemed to describe the biopsy diagnosis as "pre-cancerous,"
980477 - but this is not set out in the actual report.
980479 -  ..
980480 - Cancerbackup research on Internet continues...
980481 -
980482 -            ...women...at a higher risk [for contracting DCIS]...have
980483 -            never had any children, or...had them late in life, women
980484 -            who started their periods at a young age or who had a late
980485 -            menopause, and women who have a strong family history of
980486 -            breast cancer.
980488 -  ..
980489 - Millie has none of these risk factors.
980490 -
980492 -  ..
980493 - DCIS Risk Right Breast Not Evident from Testing Except Biopsy
980494 - Complex Diagnosis No Evidence DCIS Until Biopsy on Mastectomy Surgery
980495 -
980496 - The surgeon feels Millie's patient profile is very complex, involving
980497 - several relapses following lumpectomy, secondary IBC difficult to
980498 - diagnose, surgery delayed by speading IBC relapse, wide mastectomy
980499 - surgery, prolonged symptoms pulmonary emboli, lymphadenapathy in left
980500 - and right axillia, and left supraclavicular, and now DCIS in the left
980501 - breast.
980502 -
980503 -        [On 061020 primary care physician feels patient profile has
980504 -        too many issues for a 5-year medical case of secondary
980505 -        inflammatory breast cancer (IBC), cellulitis, lymphedema,
980506 -        pulmonary embolism, broken finger. ref SDS 65 MO4K
980508 -  ..
980509 - DCIS was not reported on the PET scan test received on 051007, nor on
980510 - any prior test. ref SDS 37 AG6G  Research says that DCIS can be seen
980511 - on mammograms, as tiny specs of calcium.  Millie's mammogram test on
980512 - 050922 reported findings on 051019 that show no evidence of DCIS, nor
980513 - cancer of any kind. ref SDS 43 DY8R  This is the second consecutive
980514 - mammogram test that reported no findings of cancer, and subsequent
980515 - investigation showed this was a mistake. see report on 020312.
980516 - ref SDS 1 YV3O  This record does not seem to support recommendations
980517 - on 050907 for Millie to get another mammogram test. ref SDS 25 AE6W
980518 - Doctor Bailey also suggested another mammogram test, called out in a
980519 - 2nd opinion received on 050922. ref SDS 31 XD7U
980521 -  ..
980522 - Another source on the Internet says DCIS can be detected with biopsy
980523 - tests using Fine Needle Aspiration Biopsy (FNAB), and also by Core
980524 - Needle Biopsy (CNB), used previously to detect cancer in the neck on
980525 - 040303, ref SDS 6 Y171, and then later to detect IBC in the left
980526 - breast on 040419. ref SDS 9 XU52  Why then doesn't DCIS jump out from
980527 - the general biopsy, rather than solely from the nipple tissue?  Does
980528 - this mean that, but for the total surgical removal of the left breast,
980529 - the type of punch biopsy that discovered IBC on 040419, would not have
980530 - identified DCIS that resides in this case evidently only in nipple
980531 - tissue?
980533 -  ..
980534 - Actually, the original biopsy of tissue from lumpectomy surgery on
980535 - 020312 yielded pathology report on 020321 that reported finding ductal
980536 - carcinoma in situ. ref SDS 2 9N4J
980538 -  ..
980539 - The biopsy finding of "atypical cells" consistent with DCIS may align
980540 - with the primary care physician's worry on 051007 about microscopic
980541 - cancer calls causing relapse. ref SDS 37 I482  Fortunately in this
980542 - case, the biopsy test occasioned by mastectomy surgery discovered
980543 - these cells in tissue now removed.
980545 -  ..
980546 - What about the right breast?  Does the biopsy report that found cancer
980547 - was missed by PET and mammogram testing on the left breast require
980548 - investigating for cancer missed in the right breast?  Could DCIS
980549 - missed in the right breast by testing be causing elevated CA 15-3 and
980550 - lymphadenopathy in the right axillary, cited on 051007, ref SDS 37
980551 - OG5J, since research indicates DCIS typically does not spread to lymph
980552 - nodes, but sometimes does?  How does the biopsy finding of DCIS affect
980553 - the conclusion of disease free status, per above? ref SDS 0 M58G
980554 -
980555 -     [On 051121 primary care physician submitted biopsy and considered
980556 -     findings of DCSI; no further testing was ordered, and the patient
980557 -     was found NED. ref SDS 51 KV9G
980559 -  ..
980560 - DCIS is commonly treated with surgery; research shows no discussion of
980561 - systemic treatment with chemotherapy, which may account for finding no
980562 - IBC with the presence of DCIS cells.
980564 -  ..
980565 - Tamoxifen is a common hormonal therapy for osteogen-receptor positive
980566 - DCIS.  This may relate to pending retest of biopsy on 040419 for
980567 - status change, discussed below.
980568 -
980569 -
980570 -
980571 -
9806 -

SUBJECTS
Biopsy IBC No Evidence Metastatic Disease Local Control Disease-free

A003 -
A00401 -  ..
A00402 - No Evidence of Disease NED Inflammatory Carcinoma
A00403 - Clear Margins Implied by Biopsy Pathology Report Diagnosis
A00404 - Inflammatory Carcinoma No Evidence of Disease in Left Breast
A00405 -
A00406 - Biopsy report diagnosis concludes...
A00407 -
A00408 -        3.  Dermal lymphatics in nipple and skin sections - no
A00409 -            evidence of inflammatory carcinoma.
A00410 -
A00411 -                [...see also gross description. ref SDS 0 QX69
A00413 -             ..
A00414 -        4.  Random sections of breast - unremarkable. (Left breast
A00415 -            simple mastectomy)
A00417 -     ..
A00418 -    051026/jkb
A00419 -    LL Brewer, MD
A00421 -  ..
A00422 - The surgeon presented this report as showing clear margins, which does
A00423 - not require reexcision, per above. ref SDS 0 JN3L
A00425 -  ..
A00426 - There is no mention of "clear margins" but this may be implied by the
A00427 - findings.
A00428 -
A00429 -     [On 051121 received biopsy report from primary care physician;
A00430 -     shows no mention of clear margins. ref SDS 51 UF4L
A00431 -
A00432 -
A00433 -
A00434 -
A00435 -
A00436 -
A00437 -
A00438 -
A00439 -
A00440 -
A00441 -
A005 -