THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: July 1, 2010 09:15 AM Thursday; Rod Welch

Millie call from Carol Chief Hospice on dis-enroll to resume treatment

1...Summary/Objective


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SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS B4 0000. ref SDS B3 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 010427 0830 meeting at Kaiser - Doctor Johnson notes Millie looks
040902 - so good nobody can believe she has such severe cancer, ref SDS 56
040903 - OJ6I; the doctor explained again Millie's cancer has mutated through
040904 - 11 relapses to resist chemotherapy.  The doctor advised that Kaiser
040905 - has a new strategy prescribing therapy that is effective for treating
040906 - cancer as a chronic disease by "targeting" the genetic profile of
040907 - cancer that has mutated in patients, like Millie, to resist
040908 - chemotherapy. ref SDS 56 SJ6N
040910 -  ..
040911 - On 100501 1037 Millie letter to medical team confirms understanding of
040912 - new strategy to treat Millie's cancer with targeted therapy.
040913 - ref SDS 57 F25O
040915 -  ..
040916 - On 100501 2017 Doctor Rugo reports plans to collaborate with Doctor
040917 - Johnson at Kaiser on work plan for Millie to recover from 11th relapse
040918 - of cancer caused by UCSF medical mistakes. ref SDS 58 HH4I
040920 -  ..
040921 - On 100502 2143 Kaiser confirms that some patients respond well to new
040922 - "targeted" therapies. ref SDS 60 YX8L  Kaiser contends that all of the
040923 - strategies for "targeted" therapies have been executed for Millie,
040924 - which seems conflicting with the record in this case. ref SDS 60 MZ4N
040926 -  ..
040927 - On 100503 1522 Millie notifies medical team that time of the essence
040928 - to get the next treatment going. ref SDS 61 TD5W
040930 -  ..
040931 - On 100503 1945 Kaiser notifies Millie to get remaining 2 treatments
040932 - with Abraxane chemotherapy that seems to be failing, and then after 3
040933 - more weeks without treatment, following a trip abroad, the doctor will
040934 - discuss "next steps." ref SDS 62 YL5N
040936 -  ..
040937 - On 100503 2338 Millie reports to medical team that she will implement
040938 - Kaiser's guidance to delay changing treatments, and takes Kaiser's
040939 - letter on 010503, as assurance that recovery will be equal to changing
040940 - treatment immediately on 100505. ref SDS 63 6X7S
040942 -  ..
040943 - On 100504 1609 Sara, Practice Manager for the UCSF Oncology Breast
040944 - Care Clinic, called and notified Millie that Doctor Rugo will soon
040945 - communicate with Doctor Johnson, or had already done so, to coordinate
040946 - with Kaiser on planning Millie's next treatment to recover from the
040947 - 11th relapse of cancer. ref SDS 64 NT5N
040949 -  ..
040950 - On 010505 0730 Millie received the 2nd treatment at Kaiser for the 3rd
040951 - cycle of Abraxane chemotherapy, as ordered by Doctor Johnson.
040952 - ref SDS 65 KE4K
040954 -  ..
040955 - On 100511 0900 cancer marker CA 15-3 520 increased another 100 points,
040956 - seemingly on an accelerating rise, which threatens to cascade out of
040957 - control, because Abraxane chemotherapy is not effective. ref SDS 66
040958 - L54I
040960 -  ..
040961 - On 100512 0730 Millie received 3rd treatment for 3rd cycle of
040962 - Abraxane. ref SDS 67 KE4K
040964 -  ..
040965 - On 100515 1415 Millie departed 2-week trip to Europe. ref SDS 68 PK9O
040967 -  ..
040968 - On 100527 0217 Millie files claim with Kaiser Claims Resolution
040969 - Department for standard of care to recover from 11th relapse of cancer
040970 - caused by medical mistakes getting radiation treatments at UCSF on
040971 - referral from Kaiser. ref SDS 69 IZ7N
040973 -  ..
040974 - On 100528 0322 Millie requests support from Medicare to separate
040975 - recovery for medical mistakes getting radiation from UCSF, from health
040976 - care benefits limited by Medicare insurance coverage. ref SDS 70 QQ6N
040978 -  ..
040979 - On 100528 1031 called Medicare they have formed a team to review
040980 - Millie's case, and contacted Kaiser's Claims Resolution Department for
040981 - response to Millie's claim. ref SDS 71 4W5F
040983 -  ..
040984 - 100601 0830 Doctor Johnson reported that Kaiser has not had time to
040985 - collaborate with UCSF on treatment for Millie to recover from UCSF
040986 - medical mistakes.  He discussed treating Millie with MPA, but this was
040987 - not prescribed because Millie was treated with MPA in 2009, and UCSF
040988 - ended the treatment due to fears about blood clot side effects, which
040989 - were believed to cause breathing problems Millie had, though later
040990 - breathing problems were discovered to be caused by defective radiation
040991 - treatment.  Since Doctor Johnson said Kaiser has no more treatments
040992 - for Millie, the only way Millie can get relief from pain caused by
040993 - cancer that is progressing without treatment is get treatment in
040994 - Hospice.  Since Hospice is the only choice of care offered today,
040995 - Millie accepted this.
040997 -  ..
040998 - On 100601 1531 Sharon called to schedule starting Hospice medical
040999 - services beginning tomorrow between 0900 - 1000. ref SDS 57 036C
041001 -  ..
041002 - On 100602 0913 Liz provides orientation on Hospice care; she confirms
041003 - Sharon's report yesterday, that if Kaiser performs on the insurance
041004 - agreement to provide standard of care for Millie's patient profile,
041005 - than Millie can elect to recover from 11th relapse of cancer, rather
041006 - than continue with Hospice support for dying peacefully. ref SDS 58
041007 - 036C
041009 -  ..
041010 - On 100602 1046 Diane received notice from Medicare to file claim for
041011 - Millie to get treatment for recovering from UCSF medical mistakes; she
041012 - is preparing a statement of claim. ref SDS 76 036C  Advised Diane to
041013 - use Millie's statement of claim submitted to Kaiser on 100527.
041014 - ref SDS 76 MZ5H  Eileen called later and reported that Kaiser denied
041015 - Millie's claim on the grounds that Medicare does not authorize payment
041016 - for treatment to recover from cancer, after a patient starts Hospice.
041017 - ref SDS 76 UN4M  Requested that Eileen read he claim and then make a
041018 - good faith determiantion. ref SDS 76 I33H  Eileen called back after
041019 - reading the claim and advised the denial of claim has been withdrawn,
041020 - and the matter is referred to Claims Resolution Department.
041021 - ref SDS 76 UN5P
041023 -  ..
041024 - On 100603 0449 Millie notified medical team that Kaiser called today
041025 - about moving forward to resolve medical mistakes getting radiation
041026 - treatment at UCSF on referral from Kaiser. ref SDS 77 IX9Q
041028 -  ..
041029 - On 100606 1604 Doctor Johnson notifies Millie that her cancer marker
041030 - has remained fairly stable the past 3 weeks since ending treatment
041031 - with Abraxane on 100512; actually went up less without Abraxane, than
041032 - with it, because Millie's cancer resists chemotherapy. ref SDS 78 036C
041034 -  ..
041035 - On 100606 1638 Millie thanks Doctor Johnson for submitting good news
041036 - cancer marker CA 15-3 606 much smaller rise than exptected after
041037 - ending treatment for 3 weeks. ref SDS 79 036C; asks if Doctor Rugo ever
041038 - returned Doctor Johnson's call from Kaiser, as planned in Doctor
041039 - Rugo's letter on 100501?
041041 -  ..
041042 - On 100606 2317 Millie receives letter from Doctor Johnson reporting
041043 - that Doctor Rugo has never returned his call asking UCSF for Millie's
041044 - treatment plan, which demonstrates failure to perform on Doctor Rugo's
041045 - commitment in UCSF letter sent to the medical team on 100501.
041046 - ref SDS 80 036C
041048 -  ..
041049 - On 100607 0932 called Cherry at Medicare about progress on contacting
041050 - Kaiser to process Millie's claim filed on 100527, and planned in the
041051 - call with Medicare (Cherry and Beth) as action item #8, planned the
041052 - next day on 100528 1031, ref SDS 71 PE6P; today, Cherry did not have
041053 - time to return the call. ref SDS 81 036C
041055 -  ..
041056 - On 100607 1021 called Paula at Kaiser - she said someone else is
041057 - handling Millie's claim, because the claim has not been denied, and
041058 - Paula only handles denied claims. ref SDS 82 036C; Paula further
041059 - reported that Kaiser no longer objects to demaning UCSF correct
041060 - medical mistakes, so Millie's claim should be easy to resolve.
041061 - ref SDS 82 QN9F
041063 -  ..
041064 - On 100607 1117 letter to Paula confirming Kaiser's work plan to
041065 - process Millie's claim for care promptly in order to save her life.
041066 - ref SDS 83 036C
041068 -  ..
041069 - On 100608 1521 called and talked to Cherry and Beth about expediting
041070 - Millie's claim at Kaiser. ref SDS 84 036C  Developed work plan to have
041071 - a conference call with Kaiser tomorrow. ref SDS 84 C354  Submitted
041072 - letter to Kasier and CMS Medicare confirming work plan for tomorrow.
041073 - ref SDS 84 G84Q
041075 -  ..
041076 - On 100609 1114 called CMS to expedite conference call on expediting
041077 - Millie's care. ref SDS 85 036C  Cherry called and schedule telecon with
041078 - Kaiesr and CMS today 1300. ref SDS 85 8O4H  Received letter from Cherry
041079 - at CMS confirming work plan for conference call at 1300. ref SDS 85
041080 - PRXY
041082 -  ..
041083 - On 100609 1232 letter to CMS and Kaiser submitts agenda for conference
041084 - call to review progress on Kaiser resolving Millie's claim for
041085 - recovery from UCSF medical mistakes. ref SDS 86 036C
041087 -  ..
041088 - On 100609 1300 CMS and Kaiser conference call to report progress on
041089 - reviewing Millie's claim for treatment to recover from UCSF medical
041090 - mistakes in time to be effective. ref SDS 87 036C
041092 -  ..
041093 - On 100609 1522 Jennifer called for assistance processing Millie's
041094 - claim to recover from medical mistakes getting radiation treatment at
041095 - UCSF on referral from Kaiser. ref SDS 88 036C
041097 -  ..
041098 - On 100611 1451 Jennifer advised Kaiser extended the date for
041099 - responding to Millie's claim from 100610 to 100624, based on Millie
041100 - filing updated statement of authorized representative. ref SDS 92 036C
041101 - Jennifer reported she reviewed 6-issues discussed on 100609, and will
041102 - address these issues responding to Millie's claim. ref SDS 92 FQ4G
041103 - Jennifer asked how Kaiser can treat Millie to recover from UCSF
041104 - medical mistakes, if Millie refuses chemotherapy and has entered
041105 - Hospice. ref SDS 92 FQ4M
041107 -  ..
041108 - On 100611 2326 Millie received Jennifer's letter confirming the date
041109 - for Kaiser to respond to Millie's claim has been extended to 100624,
041110 - ref SDS 93 CV4O, and further advising that issues Kaiser will determine
041111 - responding to Millie's claim for recovering from UCSF medical
041112 - mistakes, ref SDS 93 036C, are as set out in the record for telecon on
041113 - 100609. ref SDS 88 XK50  Jennifer will call on 100615, to report
041114 - progress on respnding to Millie's claim. ref SDS 93 6P53
041116 -  ..
041117 - On 100614 0257 letter to Kaiser Medicar CMS claim team requests
041118 - immediate written proposal evaluating treatment options for Millie to
041119 - consider. ref SDS 94 036C
041121 -  ..
041122 - On 100616 0832 called Jennifer about her plan to call yesterday on
041123 - Tuesday to report progress Kaiser responding to Millie's claim, as set
041124 - out in Jennifer's letter on 100611. ref SDS 95 036C   Jennifer called
041125 - back to ask if Millie wants UCSF or Kaiser to pay for her damages
041126 - caused by UCSF medical mistakes. ref SDS 95 PSSV  Jennifer reported
041127 - delays communicating with Millie's medical team have delayed making
041128 - arrangements for Millie to start treatment recovering from UCSF
041129 - medical mistakes. ref SDS 95 OY4T  She plans to call on Friday, 100618,
041130 - to report progress responding to Millie's claim. ref SDS 95 1K5J
041132 -  ..
041133 - On 100618 0843 called Jennifer at Memeber Case Resolution Department
041134 - about progress responding to Millie's claim. ref SDS 96 036C
041136 -  ..
041137 - On 100620 1112 letter to Kaiser claim team with copy to Medicare, and
041138 - the medical team requests call on Monday 100621, planned for previous
041139 - Friday, 100628, to report progress getting Millie treatment.
041140 - ref SDS 97 036C  Recommends that delay communicating with medical team
041141 - that has delayed Millie starting treatment in time to be effective,
041142 - ref SDS 97 L59P, can be solved by hiring MD Anderson. ref SDS 97 L59X
041144 -  ..
041145 - On 100621 0853 called for Jennifer and left several messages,
041146 - including for her team lead. ref SDS 99 036C  Nobody had time today
041147 - for calling back. ref SDS 99 OP3N
041149 -  ..
041150 - On 100622 1027 Jennifer called and advised that Doctor Johnson
041151 - responded to request for comment on Millie's claim saying he cannot
041152 - provide care for Millie because she entered Hospice on 100601,
041153 - ref SDS A1 036C; recommended Jennifer check Kaiser's medical chart for
041154 - Millie meeting with Doctor Johnson to see Millie was given no choices
041155 - except to enter Hospice in order to avoid further pain and suffering.
041156 - ref SDS A1 NX68
041158 -  ..
041159 - On 100622 1511 letter to claim team and Medicare, and to Millie's
041160 - medical team confirming understanding in Jennifer's call that Millie's
041161 - medical team at Kaiser seems to refuse Millie standard of care to
041162 - recover from UCSF medical mistakes, because she was forced to enter
041163 - Hospice to get relief from pain caused by UCSF medical mistakes.
041164 - ref SDS A2 036C  UCSF delays compounded Millie's injuries, pain, and
041165 - suffering; caution must be exercised to enable recovery, based on
041166 - Millie's right to life. ref SDS A2 575U   Millie's patient history
041167 - shows the doctor's only issue, ref SDS A2 576V, is having time to
041168 - providing standard of care for Millie to recover from medical
041169 - mistakes, and if not, then Kaiser should assign someone who does.
041170 - ref SDS A2 583Y  Kaiser has violated Millie's human rights; a woman's
041171 - right to choose life for herself, should be no less than the right to
041172 - choose for her unborn child, since the right to life and due process
041173 - are protected by the US Constitution. ref SDS A2 584W  Kaiser can
041174 - easily solve the time problem by hiring other people to do the work,
041175 - and charging UCSF. ref SDS A2 585P
041177 -  ..
041178 - 100624 1616 Jennifer called and asked to extend Kaiser's response to
041179 - Millie's claim another day or so, for review with her boss, and with
041180 - the customer. ref SDS A3 036C  Jennifer the original date for Kaiser to
041181 - respond on 100610, required by statute, and then amended to today on
041182 - 100624, can be further amended, and cited unclear authority about 30
041183 - days instead of 14. ref SDS A3 EG5P  Agreed that extending Kaiser's
041184 - response another few days until tomorrow, or Monday, is an acceptable
041185 - risk, even though Millie's cancer markier has increased significantly
041186 - to over 1000, and so that an equitable solution can be implented that
041187 - allows treatment in time to be effective for Millie. ref SDS A3 EG73
041188 - Jennifer will submit her draft response, and call tomorrow for
041189 - discussing Kaiser's solution. ref SDS A3 H98M
041191 -  ..
041192 - On 100625 0852 letter to Kaiser and Medicare claim teams confirming
041193 - Kaiser's request to extend date for responding to Millie's claim
041194 - another few days until Monday in order to get comprehensive solution.
041195 - ref SDS A4 036C
041197 -  ..
041198 - On 100626 0917 received letter from Cherry at Medicare, ref SDS A5
041199 - 036C, submitting CMS regulations, that control due date for Kaiser to
041200 - respond to Millie's claim. ref SDS A5 N64I
041202 -  ..
041203 - On 100628 0228 letter to claim teams at Medicare and Kaiser asking how
041204 - CMS regulations received on 100625, apply to extend Kaiser's response
041205 - date for expediting Millie's recovery. ref SDS A6 036C
041207 -  ..
041208 - On 100628 1033 called CMS Medicare for Beth Simone on regulations for
041209 - Kaiser to respond to Millie's claim.
041211 -  ..
041212 - On 100628 2318 submitted record of telecon with CMS, ref SDS A8 036C,
041213 - and that CMS learned today that Kaiser changed Millie's claim to a
041214 - Grievance, and notified CMS that Kaiser intends to delay response
041215 - until 100710, to Millie's claim filed on 100527.
041217 -  ..
041218 - On 100629 00003 received letter from Cherry transmitting Grievance
041219 - procedures, cited in the telecon yesterday as a change Kaiser made to
041220 - delay responding until 100710, to Millie's claim filed on 100527.
041221 - ref SDS A9 036C  Review of Grievance regulations show Kaiser required
041222 - to make timely response based on patient health. ref SDS A9 PN5S
041224 -  ..
041225 - On 100629 0013 letter thanks CMS for submitting regulations on
041226 - Grievance procedures, and notes requirements for Kaiser to respond
041227 - prior to maximum allowed of 30 days, based on patient health.
041228 - ref SDS B0 036C
041230 -  ..
041231 - On 100629 1631 called Medicare (CMS) on results of their
041232 - teleconference with Kaiser on expediting response to Millie's claim.
041233 - ref SDS B1 036C
041235 -  ..
041236 - On 100630 0027 Millie thanks Doctor Johnson for reporting on 100606,
041237 - that UCSF did not call Kaiser to provide care for Millie to recover
041238 - from UCSF medical mistakes. ref SDS B2 036C; she reports blood counts
041239 - are good, but cancer progressing because treatment was stopped on
041240 - 100601, for pain relief from chemotherapy. ref SDS B2 V83U  Kaiser has
041241 - deferred responding to Millie's claim, ref SDS B2 V87S, and needs to
041242 - know how soon her health status requires Kaiser to make a response.
041243 - ref SDS B2 V88T  Millie asks about deferring the meeting with Doctor
041244 - Johnson tomorrow, until Kaiser responds to Millie's claim, or, Millie
041245 - would love to meet, if Doctor Johnson has communicated with Doctor
041246 - Rugo on a work plan for Millie to recover from UCSF medical mistakes.
041247 - ref SDS B2 V89X
041249 -  ..
041250 - On 100630 1148 Doctor Johnson notfies Millie, and the Kaiser claim
041251 - team that he is confused about Millie's case, because Kaiser has
041252 - deferred determination on urgent requirement for care. ref SDS B3 036C
041253 - Doctor Johnson notes Millie is in Hospice and states that Millie's
041254 - disease is resistant to all forms of therapy, and that entering
041255 - Hospice is based on patient desire to forego therapy. ref SDS B3 PY4J
041256 - He asks if Millie wants to dis-enroll from Hospice. ref SDS B3 OY5G
041257 - Doctor Johnson further notes that public domain email conflicts with
041258 - HIPAA regulations. ref SDS B3 0W5U
041260 -  ..
041261 - On 100630 1537 Millie notified medical team and claim team, thanking
041262 - Doctor Johnson for his letter commenting on Millie feeling better
041263 - after ending chemotherap.  Confirms Doctor Johnson's intent to defer
041264 - meeting scheduled for tomorrow until after Kaiser responds to Millie's
041265 - claim, and further confirms Doctor Johnson has still not communicated
041266 - with Doctor Rugo on UCSF providing care for Millie to recover from
041267 - UCSF medical mistakes. ref SDS B4 M86X  Advises that Doctor Johnson's
041268 - assertion that Millie's cancer now resists all forms of therapy
041269 - conflicts with the record; Doctor Johnson advised that finding
041270 - effective treatment requires experimentation; Millie's first treatment
041271 - failed, and had to be switched. ref SDS B4 M87Q  When UCSF discovered
041272 - medical mistakes, UCSF failed to provide necessary and reasonable care
041273 - for Millie to recover, and instead prescribed chemotherapy, which was
041274 - not effective and caused unbearable pain and suffering, causing Millie
041275 - to enter Hospice. ref SDS B4 M84P  The only evident purpose for
041276 - Millie's death is to avoid accountability from medical mistakes and
041277 - avoid cost of recovery, by making Millie suffer, and making Medicare
041278 - pay, while Millie is actually innocent, and Medicare is innocent.
041279 - ref SDS B4 M84S  Millie sent 44 letters to medical team requesting
041280 - targeted treatment to recover from UCSF medical mistakes, and
041281 - reporting pain and suffering from chemotherapy; so, on 100601, Millie
041282 - entered Hospice for pain relief for chemotherapy. ref SDS B4 M84Y
041283 - Millie cannot dis-enroll from Hospice providing pain medication until
041284 - Kaiser provides standard of care to recover from UCSF medical
041285 - mistakes. ref SDS B4 M93V  Millie explains benefits to saving lives,
041286 - time, and money using public domain email. ref SDS B4 M94W  Millie
041287 - notes Doctor Johnson's report today shows Kaiser has violated Medicare
041288 - regulations by delaying response to her claim longer than justified by
041289 - Millie's health status. ref SDS B4 M96P
041291 -  ..
041292 - On 100701 0915 Carol called this morning saying she is the Chief of
041293 - Hospice and advised that she was told that Millie wants to dis-enroll
041294 - from Hospice.  Millie sent a letter to the medical team, and claim
041295 - teams confirming understandings from the call with Carol. ref SDS 0
041296 - 036C  Millie advised Carol that Millie entered Hospice for pain relief
041297 - for chemotherapy, and so she cannot dis-enroll from Hospice providing
041298 - pain medication until Kaiser provides standard of care to recover from
041299 - UCSF medical mistakes. ref SDS 0 Q85S  Millie explains she wants a
041300 - written medical opinion on treatments lined up for her to recover from
041301 - UCSF medical mistakes that provides a "roadmap to a future worth
041302 - living." ref SDS 0 Q85Y
041303 -
041304 -
041305 -
041307 -  ..
0414 -
0415 -
0416 - Progress
0417 -
041701 - Carol called this morning, saying she is the chief of Kaiser's
041702 - Hospice Department.
041704 -  ..
041705 - After the call, Millie notified the medical and claim teams about
041706 - understandings from Carol's call...
041707 -
041708 -    1.  Subject: Hospice Dis-enroll Based on Care Recover UCSF Medical Mistakes
041709 -        Date: Thu, 01 Jul 2010 10:01:39 -0700
041725 -         ..
041726 -    2.  I just received a call from Carol, who represented being the
041727 -        Chief of Hospice.  She talked first to Rod, and then to me [...
041728 -        saying that HIPAA regulations required speaking directly to
041729 -        Millie despite Millie's signed Statement of Authorized
041730 -        Represenation, filed with Kaiser on 100610. ref SDS 90 6I7M;
041731 -        and Carol indicated she had not read Millie's claim filed on
041732 -        100527, nor reviewed Millie's patient history; Carol's
041733 -        insistance on talking to Millie directly aligns with Kaiser's
041734 -        conduct resisting Millie's prior claim; Kitty Cook called and
041735 -        insisted on talking to Millie, and then proceeded to brow beat
041736 -        Millie for money on behalf of UCSF; money which was owed by
041737 -        Kaiser to UCSF, but seemed easier to UCSF to get from an
041738 -        enfeebled cancer patient than from Kaiser, but which Kaiser
041739 -        later paid to UCSF, reported on 071009 1644. ref SDS 10
041740 -        JW7M...]
041742 -         ..
041743 -    3.  Carol advised that she was notified that I want to dis-enroll
041744 -        from Hospice, and was calling to get the ball rolling.
041746 -  ..
041747 - This follows up the call from Sharon on 100601, ref SDS 74 036C, who
041748 - at that time said the Chief of Hospice is Dana Smith. ref SDS 74 5N4N
041750 -  ..
041751 - Millie's letter to medical and claim teams continues...
041752 -
041753 -    4.  I hope this reflects progress on my claim filed on 100527.
041754 -        ref SDS 69 IZ7N
041756 -         ..
041757 -    5.  Rod talked to Carol first, and explained that ending Hospice is
041758 -        premature, i.e., "putting cart before the horse." [...reflects
041759 -        Millie's letter to Kaiser and Medicare yesterday on 100630
041760 -        1537. ref SDS B4 M93Y...]
041762 -         ..
041763 -    6.  As set out in the letter to the claim team last night, I told
041764 -        Carol that I entered Hospice for pain relief from chemotherapy,
041765 -        because Kaiser did not give me a choice of necessary and
041766 -        reasonable care targeted to cancer that does not cause pain and
041767 -        suffering. ref SDS B4 M93Y  Therefore I cannot dis-enroll from
041768 -        Hospice until Kaiser has a viable plan for treating me with
041769 -        targeted therapy to recover from UCSF medical mistakes, and
041770 -        without pain and suffering caused by chemotherapy. [...reported
041771 -        in Millie's letter on 100630 1537. ref SDS B4 M93Y...].
041773 -         ..
041774 -    7.  I referred Carol to my claim filed on 100527. ref SDS 69 IZ7N
041775 -        She asked for your phone number, and for Jennifer's number.
041776 -        Hope it was okay to give this out.
041777 -
041778 -            [On 100702 1612 Lois, Kaiser Ombudsman, called and asked to
041779 -            talk with Millie for the purpose of verifying what Millie
041780 -            wants in her claim filed on 100527, and, like Carol, Lois,
041781 -            had not read the claim. ref SDS B5 778O  Lois was referred
041782 -            to Millie's claim, and to the letter Millie submitted to
041783 -            Kaiser confirming understandings from talking to Carol.
041784 -            ref SDS B5 HG5H
041786 -         ..
041787 -    8.  Take this opportunity to clarify why I want a written medical
041788 -        opinion to launch recovery from UCSF medical mistakes. [...
041789 -        requested in Millie's claim described as "due process" for
041790 -        standard of care, on 100527 0217, ref SDS 69 X560, and further
041791 -        noted in telecon with Kaiser claims case manager on 100609
041792 -        1522. ref SDS 88 XW5Q...]
041794 -         ..
041795 -    9.  I got a written opinion from Doctor Benz at UCSF [...received
041796 -        on 041117 1015. ref SDS 4 ZO6L...], and again [...received on
041797 -        060929 1643. ref SDS 6 ZO6L...].  These written opinions
041798 -        guided my recovery through 5 or so relapses, with high quality
041799 -        of life, because the medical team had a written plan to follow.
041800 -        Every recommendation in the Benz written opinions was
041801 -        implemented successfully by Kaiser.  Where we deviated, we had
041802 -        problems, e.g., Abraxane, mastectomy.
041804 -         ..
041805 -   10.  On 090616, Doctor Rugo again said UCSF had a new written plan
041806 -        in agreement with Kaiser for me to recover from UCSF medical
041807 -        mistakes. ref SDS 26 KD6L  I asked for that letter to guide
041808 -        case management going forward.  Doctor Rugo refused submission
041809 -        on HIPAA grounds that the letter between Kaiser and UCSF
041810 -        related to other patients besides my case. ref SDS 26 U46K
041811 -        Without a written plan, my care has been problematic the past
041812 -        year.  This record could suggest there never was a plan, it was
041813 -        just conversation, because as the saying goes, "Talk is cheap."
041815 -         ..
041816 -   11.  Therefore, my claim on 100527, requests a written work plan
041817 -        showing the parties involved are in agreement on implementing
041818 -        the list of treatments in the claim (or as amended by competent
041819 -        evidence), ref SDS 69 X560, and which was submitted to the
041820 -        medical team at your request on 090326. ref SDS 15 DW5S
041822 -         ..
041823 -   12.  Thanks very much for moving forward on my care.
041824 -
041831 -
041832 -
041833 -
041834 -
041835 -
0419 -