THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: July 5, 2009 10:48 PM Sunday; Rod Welch

Millie asks UCSF schedule examination July 16th to recover 8th relapse IBC
and work plan to recover from radiation injury to lung.

1...Summary/Objective
....Medical Mistakes UCSF Radiation Services Work Plan for Recovery
....Breastbone Wound Bleeding MPA Recovery Slow What Other Measures


..............
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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 10 0000. ref SDS 8 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090609 0900 during a meeting at UCSF, Doctor Hsu diagnosed Millie's
040902 - cancer spreading and new breathing problems was caused by errors and
040903 - omissions performing radiation treatments at UCSF during February and
040904 - March, and on referral from Kaiser. ref SDS 2 W65W
040906 -  ..
040907 - On 090609 0900 Doctor Hsu prescribed treatment with MPA at UCSF for
040908 - Millie to recover from medical mistakes performing radiation earlier
040909 - at UCSF. ref SDS 2 W66W
040911 -  ..
040912 - On 090616 1240 Doctor Rugo provided MPA treatment for Millie to
040913 - recover from cancer spreading and new breathing problems, ref SDS 3
040914 - D647, prescribed by Doctor Hsu on 090609. ref SDS 2 W66W
040916 -  ..
040917 - On 090627 Millie reported another episode of persistant coughing that
040918 - was caused by breathing problems Doctor Hsu diagnosed on 090607 was
040919 - caused by mistakes providing medical services for radiation.
040920 - ref SDS 5 BF4K
040922 -  ..
040923 - On 090701 1200 Millie reported another episode of prolonged and
040924 - persistent cough, and requested treatment from UCSF. ref SDS 6 9T5K
040926 -  ..
040927 - On 090701 1652 Millie received the following letter from Doctor Hsu,
040928 - ref SDS 7 SF8I, saying he looked at Millie's scans, and found decrease
040929 - in lung volume, noting he is not a diagnostic radiologist. ref SDS 7
040930 - 4P4K  The doctor advises that UCSF has a treatment for Millie's
040931 - breathing problems with symptoms of tightness in the left side of her
040932 - chest. ref SDS 7 4P51
040934 -  ..
040935 - On 090701 2156 Millie responds to Doctor Hsu's letter earlier in the
040936 - day, ref SDS 7 SF8I, responding to Millie's request for treatment of
040937 - breathing problems, ref SDS 6 9T5K, and submitting 2 reports Kaiser
040938 - published for the CT test on 090612, ref SDS 8 4Z4F, because Doctor
040939 - Hsu reported he could not find the reports in UCSF's files; and which
040940 - need to be reviewed together for a complete analysis of Millie's
040941 - breathing problems; Millie asks about adding a cardio pulmonary
040942 - specialist to the medical team for prescription of breating problems
040943 - caused by mistakes performing radiation at UCSF during February and
040944 - March.
040946 -  ..
040947 - On 090702 2241 Millie's letter to the medical team, ref SDS 10 OP6I,
040948 - responds to Doctor Hsu's letter yesterday on 080701 1652, ref SDS 7
040949 - SF8I, responding to Millie's request for treatment of breathing
040950 - problems, ref SDS 6 9T5K, and notifies the medical team that UCSF
040951 - Triage Department provided prescription for temporary treatment of
040952 - cough symptoms, ref SDS 10 DZ6U, and Millie suffers pain on her left
040953 - side, which may correlate to Doctor Hsu's report that he can treat the
040954 - problem. ref SDS 10 D13Q
040956 -  ..
040957 - On 090705 2248 Millie notifies medical team coordinating for
040958 - examnation at UCSF on 090716 to start second cycle of MPA treatment
040959 - for Millie to recover from medical mistakes caused by UCSF providing
040960 - radiation medical services on referral from Kaiser. ref SDS 0 FS6G
040961 - Millie asks UCSF for analyst's reports from reviewing CT test scan
040962 - files delivered to UCSF on 090612 at the request of Doctor Rugo for
040963 - evaluating Millie's participation in MPA and severity of lung injury
040964 - from radiation mistakes. ref SDS 0 FT9U
040965 -
040966 -
040968 -  ..
0410 -
0411 -
0412 - 1352
0413 -
041301 - Millie's letter to the medical team today schedules examination to
041302 - start the second cycle of MPA,
041303 -
041304 -    1.  Subject: Examination Recover 8th Relapse IBC and Work plan Recover Radiation Injury
041305 -        Date: Sun, 05 Jul 2009 23:18:29 -0700
041320 -         ..
041321 -    2.  Confirming I received additional MPA pills to increase the dose
041322 -        from 4 to 6 per day [implementing call from Doctor Rugo's case
041323 -        coordinator, Mike, on 090702 1221, ref SDS 9 QY5H]  Inventory
041324 -        shows there are 64 remaining, which is enough with a few to
041325 -        spare until 090716, which is the date of the next meeting with
041326 -        Doctor Rugo.  Please submit the time generally from 0800 -
041327 -        0900, with blood draw in the Infusion Clinic prior to meeting
041328 -        on the 2nd floor, so that lab data is available to support the
041329 -        meeting, as we have done in the past.
041331 -         ..
041332 -    3.  Please include in the blood draw INR for Gloria's work in
041333 -        Kaiser's Coagulation Control Clinic, as we have done the past 3
041334 -        years.
041336 -         ..
041337 -    4.  Please let me know results contacting the UCSF radiology
041338 -        department for the report on my CT tests on 090413 and 090612.
041339 -        Scan files were hand delivered to UCSF on 090612 for the
041340 -        purpose of expediting review.  On 090701 Doctor Hsu reported he
041341 -        could not find the UCSF radiology report.  Sometimes reports
041342 -        are generated, but are difficult to locate on the computer.
041343 -        Please coordinate to get CT test data for Doctor Hsu's review
041344 -        of radiation injury.
041345 -
041346 -            [On 090706 1643 Mike, Doctor Rugo's Coordinator for
041347 -            Millie's care, disclosed that UCSF has made no review of
041348 -            scan files on Millie's CT tests, which were hand delivered
041349 -            to UCSF for evaluating Millie's breathing problems.
041350 -            ref SDS 12 FS6G
041352 -         ..
041353 -    5.  Alternatively, if additional radiology data cannot be developed
041354 -        within the next week, please submit the work plan for
041355 -        evaluating radiation injuries to the lungs that reconciles
041356 -        rising loss of breath and coughing symptoms.
041358 -         ..
041359 -    6.  Robitussin with codeine has been a big help relieving my cough.
041360 -
041362 -     ..
041363 -    Medical Mistakes UCSF Radiation Services Work Plan for Recovery
041364 -    Breastbone Wound Bleeding MPA Recovery Slow What Other Measures
041365 -
041366 -
041367 -    7.  The sore in my breastbone area continues to bleed and ooze
041368 -        stuff.  As mentioned earlier, I think MPA is gradually reducing
041369 -        IBC rash elsewhere, e.g., the lower left arm [reported on
041370 -        090702 2241. ref SDS 10 D15U], but the vertical line in the
041371 -        chest is worse to possibly stable.
041372 -
041373 -            [On 090706 0301 telecon with Mike, Doctor Rugo's
041374 -            coordinator, discussed UCSF work plan for Millie to recover
041375 -            from medical mistakes providing radiation services on
041376 -            referral from Kaiser, and which caused radiation injury to
041377 -            Millie's breathing, and spread Millie's cancer. ref SDS 11
041378 -            QY5H
041380 -         ..
041381 -    8.  Doctor Hsu mentioned in the meeting on 090423 that nothing can
041382 -        grow in my radiated skin, and that I should avoid scratches and
041383 -        other bleeding injuries to this area, because it will heal
041384 -        slowly  since the normal blood supply is less robust in
041385 -        radiated skin. ref SDS 1 456H
041387 -         ..
041388 -    9.  Could this condition be preventing MPA treatment from getting
041389 -        to the untreated IBC in the breastbone?  What other treatments
041390 -        can be considered?  What about surgery, or targeted radiation,
041391 -        some laser technology that can remove infected tissue before
041392 -        more damage occurs?
041393 -
041394 -            [On 090708 1343 Doctor Johnson ordered further tests to
041395 -            evaluate Millie's breathing problems caused by progressive
041396 -            radiation injury from medical mistakes providing radiation
041397 -            services provided by UCSF. ref SDS 13 FS6G
041398 -
041405 -
041406 -
041407 -
041408 -
041409 -
041410 -
0415 -