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SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 7 0000, ref SDS 3 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090609 0900 during a meeting at UCSF, Doctor Hsu diagnosed Millie's
040902 - cancer spreading and new breathing problems was caused by errors and
040903 - omissions performing radiation treatments at UCSF during February and
040904 - March, and on referral from Kaiser. ref SDS 1 W65W
040906 -  ..
040907 - On 090609 0900 Doctor Hsu prescribed treatment with MPA at UCSF for
040908 - Millie to recover from medical mistakes performing radiation earlier
040909 - at UCSF. ref SDS 1 W66W
040911 -  ..
040912 - On 090616 1240 Doctor Rugo provided MPA treatment for Millie to
040913 - recover from cancer spreading and new breathing problems, ref SDS 2
040914 - D647, prescribed by Doctor Hsu on 090609. ref SDS 1 W66W
040916 -  ..
040917 - On 090627 Millie reported another episode of persistant coughing that
040918 - was caused by breathing problems Doctor Hsu diagnosed on 090607 was
040919 - caused by mistakes providing medical services for radiation.
040920 - ref SDS 5 BF4K
040922 -  ..
040923 - On 090701 1200 Millie reported another episode of prolonged and
040924 - persistent cough, and requested treatment from UCSF. ref SDS 6 9T5K
040926 -  ..
040927 - On 090701 1652 Millie received the following letter from Doctor Hsu,
040928 - ref SDS 7 SF8I, saying he looked at Millie's scans, and found decrease
040929 - in lung volume, noting he is not a diagnostic radiologist. ref SDS 7
040930 - 4P4K  The doctor advises that UCSF has a treatment for Millie's
040931 - breathing problems with symptoms of tightness in the left side of her
040932 - chest. ref SDS 7 4P51
040934 -  ..
040935 - On 090701 2156 Millie responds to Doctor Hsu's letter earlier in the
040936 - day, ref SDS 7 SF8I, responding to Millie's request for treatment of
040937 - breathing problems, ref SDS 6 9T5K, and submitting 2 reports Kaiser
040938 - published for the CT test on 090612, because Doctor Hsu reported he
040939 - could not find the reports in UCSF's files; and which need to be
040940 - reviewed together for a complete analysis of Millie's breathing
040941 - problems; Millie asks about adding a cardio pulmonary specialist to
040942 - the medical team for prescription of breating problems caused by
040943 - mistakes performing radiation at UCSF during February and March....
040944 -
040945 -    1.  Subject: Submit Reports CT Test Jun 12, 2009 Evaluate Cough Shortness of Breath
040946 -        Date: Wed, 01 Jul 2009 21:41:43 -0700
040953 -         ..
040954 -    2.  Thanks very much for checking the CT scans today, reported in
040955 -        your letter shown below.
040957 -         ..
040958 -    3.  Kaiser produced two (2) reports for the CT test on 090612 (June
040959 -        12, 2009).  These were transmitted to me electronically on
040960 -        090617 by Doctor Johnson, my primary care physician in the
040961 -        Oncology Department.  The first report is in a file called:
040962 -        "ct1jun12" covering neck and above.  The second report:
040963 -        "ct2jun12" covers below the neck.
040965 -         ..
040966 -    4.  Responding to the question in your letter today, I cannot
040967 -        detect any discernible "tightness" nor anything different on
040968 -        the left side from the right side of my chest (lungs) during
040969 -        normal breathing, during exercise, nor from coughing.
040970 -
040971 -            [On 090702 2241 Millie reports to the medical team rising
040972 -            pain for 2 weeks on the left side. ref SDS 8 D13Q
040974 -             ..
040975 -            [On 090702 2241 Millie reports fear about breathing
040976 -            problems that have increased since completing radiation
040977 -            treatments at UCSF in March, and she woke up again late at
040978 -            night from persistent cough. ref SDS 8 D14S
040980 -         ..
040981 -    5.  My concern is shortness of breath, possibly suggesting loss of
040982 -        volume [on 090626 Kaiser medical chart reports DOE, ref SDS 4
040983 -        EF7R].  I am going hiking at Lafayette Reservoir tomorrow, and
040984 -        hope I can do at least 1 lap on the easy route [on 090626
040985 -        Kaiser medical chart reports Millie hiking at Lafayette
040986 -        Reservoir, which Millie has not done for 6 months, ref SDS 4
040987 -        DY3M].  Normally I do at least 2 laps and sometimes 3, and take
040988 -        the difficult route with steeper and longer hills.  Might there
040989 -        be some kind of test I could do to develop more data for your
040990 -        review?
040992 -         ..
040993 -    6.  Coughing is more distressing, because I cannot control it.  The
040994 -        past few hours this has calmed down, so I am hopeful I can
040995 -        sleep.
040997 -         ..
040998 -    7.  Again, if you can suggest an over-the-counter, or a
040999 -        prescription for an interim remedy I would be eternally
041000 -        grateful.
041002 -         ..
041003 -    8.  Kaiser's radiologist reports greater ground glass opacities on
041004 -        the right than on the left.  On the other hand, the lingula has
041005 -        increased densities, and that seems to be on the left.  The
041006 -        radiologist recommends correlate clinically to exclude symptoms
041007 -        of early pneumonic infiltrate developing.
041009 -         ..
041010 -    9.  Could this explain my symptoms?
041012 -         ..
041013 -   10.  Are we getting into a discipline issue, where maybe a
041014 -        specialist should be consulted?
041016 -         ..
041017 -   11.  There is a history of challenges in my case using PET and CT
041018 -        test data reporting symptoms of IBC in December 2002, which was
041019 -        not diagnosed for over a year later in May 2004, and also
041020 -        discovering my PE.  I had symptoms similar to today in July,
041021 -        August, and October 2004.  I was told the CT tests didn't show
041022 -        anything, so nothing was done.  Then, as now, I was worried and
041023 -        went to UCSF for a 2nd opinion.  On 041018 Doctor Benz, Doctor
041024 -        Rugo's colleague, suggested another CT test that was performed
041025 -        with increased granularity.  Kaiser followed the Benz
041026 -        recommendations and did an emergency CT, and my life was
041027 -        changed forever, because sure enough I had PE all along.
041029 -         ..
041030 -   12.  Thanks again for timely review.
041031 -
041038 -
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0411 -