CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090609 0900 during a meeting at UCSF, Doctor Hsu diagnosed Millie's
040902 - cancer spreading and new breathing problems was caused by errors and
040903 - omissions performing radiation treatments at UCSF during February and
040904 - March, and on referral from Kaiser. ref SDS 3 W65W
040906 -  ..
040907 - On 090609 0900 Doctor Hsu prescribed treatment with MPA at UCSF for
040908 - Millie to recover from medical mistakes performing radiation earlier
040909 - at UCSF. ref SDS 3 W66W
040911 -  ..
040912 - On 090616 Millie started treatment for 8th relapse of cancer with MPA
040913 - on a clinical trial at UCSF. ref SDS 6 JH4F  During the meeting at
040914 - UCSF on 090616 Doctor said everybody is now on board after weeks of
040915 - conflict with Kaiser refusing treatment, to now collaborating with
040916 - UCSF on treating Millie's cancer as a chronic disease. ref SDS 6 D647
040918 -  ..
040919 - Millie's letter to the medical team says...
040920 -
040921 -    1.  Subject: Agenda Meeting Kaiser Treatment Plan Assessment Progress MPA Begun Jun 16th
040922 -        Date: Fri, 26 Jun 2009 11:11:39 -0700
040934 -         ..
040935 -    2.  Issues for review this morning at 1140, and for Mike at UCSF
040936 -        preparing for blood draw on Monday, 090629 0820...
040937 -
040938 -               [On 090626 1140 Doctor Johnson received Millie's letter
040939 -               and discussed agenda. ref SDS 9 G36G
040940 -
040941 -               [On 090627 0221 Millie's letter to the medical team
040942 -               confirms Doctor Johnson approved the UCSF treatment
040943 -               plan using MPA for Millie to recover from medical
040944 -               mistakes when UCSF provided radiation medical services.
040945 -               ref SDS 10 2X5U
040947 -             ..
040948 -        1.  Review IBC response after 10 days MPA begun on 090616.
040950 -             ..
040951 -            IBC is worse than on 090515 when you made an examination at
040952 -            Kaiser, ref SDS 2 D452, because at that time the primary
040953 -            focus was on recovery from radiation side effects.
040955 -             ..
040956 -            Subsequently, on 090609 Doctor Hsu discovered untreated IBC
040957 -            in the breastbone area and was concerned this may be
040958 -            causing expanded issues. ref SDS 3 TP9L
040960 -             ..
040961 -            Doctor Hsu proposed treatment with MPA [reported on 090609,
040962 -            ref SDS 3 1P42 and on 090616 UCSF began recovery with this
040963 -            new regimen. ref SDS 6 D647  Examination today provides a
040964 -            baseline at Kaiser for evaluating progress of recovery.
040966 -             ..
040967 -            For me, I hate looking at myself in the mirror; so, it
040968 -            takes fortitude to overcome emotional fatigue, as you
040969 -            discussed on 090213.
040971 -             ..
040972 -            Patient history with cetuximab begun on 070201, and later
040973 -            with Sunitinib begun on 081114 both took about 4 weeks to
040974 -            demonstrate actual recovery was underway.  For example, on
040975 -            070301 after 4 weeks of cetuximab, Doctor Rugo and her team
040976 -            worried that progression was occurring.  She set an
040977 -            emergency meeting the following week to consider adding
040978 -            Carboplatin.  On 070308 a week later, the meeting was
040979 -            canceled, because CA 15-3 suddenly dropped dramatically.
040980 -            ref SDS 1 FO6H
040982 -             ..
040983 -            We then experienced nearly 2 years of effective care with
040984 -            cetuximab, which is the hope now for MPA, as another
040985 -            "targeted" agent, discussed with you 090515.
040987 -             ..
040988 -            My sense is that IBC today is stable to improved from
040989 -            meeting with Doctor Rugo on 090616.  Today, you can set a
040990 -            new baseline for follow ups at Kaiser.
040992 -             ..
040993 -        2.  UCSF treatment plan approved by Kaiser
040995 -         ..
040996 -    3.  On 090616 Doctor Rugo reported that everybody is now [on] board
040997 -        for treating my cancer going forward, implementing your plan on
040998 -        090213.  She mentioned briefly follow on treatments possibly
040999 -        with PARP technology.
041001 -         ..
041002 -    4.  On 090609 Doctor Hsu explained that [radiation treatment for]
041003 -        IBC in the breastbone area was missed.  The letter to the
041004 -        medical team on 090618 asked about prospects of additional
041005 -        radiation and hyperthermia to recover from this problem, since
041006 -        that was the treatment prescribed on 090129, and it was
041007 -        effective for areas treated.  It therefore seems that areas
041008 -        missed could benefit from radiation, and would not present
041009 -        conflicts of over-exposure to radiation, since this area was
041010 -        [not] radiated.  Your letter the next day on 090619 did not
041011 -        address this issue (see below).
041013 -         ..
041014 -    5.  Hopefully today there will time for review.  I recognize this
041015 -        is a complex issue, and am open to working constructively
041016 -        toward effective solution.
041018 -             ..
041019 -        3.  Lung cancer breathing problems.
041021 -         ..
041022 -    6.  Very grateful for your letter on 090619 advising I can exercise
041023 -        to tolerance (see below).
041025 -         ..
041026 -    7.  I asked in the letter on 090618 about implications from
041027 -        findings of "ground glass opacities" in the CT test on 090612,
041028 -        particularly in light of continuing notations in the Kaiser
041029 -        medical chart of "lung cancer," and further in light of Doctor
041030 -        Hsu's comments on possible correlations between missed
041031 -        radiation impacting my lungs, and then experiencing shortness
041032 -        of breath and some new coughing.  These seem like a lot of
041033 -        "dots" to connect, and so I asked the team for comment.
041034 -
041035 -            [On 090627 2122 Millie requested treatment from UCSF for
041036 -            another episode of prolonged and persistent cough.
041037 -            ref SDS 11 MH3U
041039 -             ..
041040 -            [On 090701 1218 Millie suffered breathing problems again
041041 -            from persistent cough, and asked UCSF for treatment again.
041042 -            ref SDS 12 NU3X
041044 -             ..
041045 -            [On 090706 0301 telecon with Mike, Doctor Rugo's
041046 -            coordinator, discussed UCSF work plan for Millie to recover
041047 -            from medical mistakes providing radiation services on
041048 -            referral from Kaiser, and which caused radiation injury to
041049 -            Millie's breathing, and spread Millie's cancer. ref SDS 13
041050 -            QY5H
041052 -             ..
041053 -            [On 090706 0301 Millie received a letter from Mike, Doctor
041054 -            Rugo's coordinator, saying his investigation discovered
041055 -            that nobody at UCSF ordered review of Millie's CT test scan
041056 -            files, ref SDS 14 1L6N, which were same-day hand- delivered
041057 -            to UCSF on 090612, ref SDS 5 UD5H, per Mike's request on
041058 -            090610 for timely review by UCSF. ref SDS 4 S537
041060 -             ..
041061 -            [On 090708 1343 Doctor Johnson ordered further tests to
041062 -            evaluate Millie's breathing problems caused by
041063 -            progressive radiation injury from medical mistakes
041064 -            providing radiation services provided by UCSF.
041065 -            ref SDS 15 FS6G
041067 -         ..
041068 -    8.  Subsequently, my lungs seem better on hikes, but not fully
041069 -        recovered, and cough has lessened, reported to the team the
041070 -        next day on 090619, ref SDS 8 2T8L, responding to your letter
041071 -        the same day. ref SDS 7 LE7M
041073 -         ..
041074 -    9.  Yesterday, Doctor Mates called and provided additional comment.
041076 -         ..
041077 -   10.  Rod took the occasion to ask about Gastrogafin oral contrast
041078 -        for CT tests.
041080 -         ..
041081 -   11.  The doctor feels you can order Gastrogafin for me rather than
041082 -        Barium sulfate suspension, which causes me severe duress.
041084 -         ..
041085 -   12.  The doctor also discussed at length ...consolidating findings
041086 -        for CT tests.  Rod commended recent improvements, and indicated
041087 -        more work is needed on this issue.
041089 -         ..
041090 -   13.  There was also discussion of reviewing patient history to
041091 -        develop targets for improving reporting on CT tests that
041092 -        strengthen patient care.  Doctor Mates seemed to agree during
041093 -        the call that the purpose of radiology is to improve patient
041094 -        care.  This is a complex matter, and so will be addressed
041095 -        separately.
041097 -         ..
041098 -   14.  I was grateful, however, to hear that Doctor Mates seemed to
041099 -        indicate in the call yesterday that my CT test on 090612 shows
041100 -        I am in "good shape," and shows "nothing much," or words to
041101 -        that effect.  He indicated that ground glass opacities can
041102 -        eventually lead to lung cancer, but Kaiser practice is for the
041103 -        radiologist to report "lung cancer," if evidence from radiology
041104 -        tests justifies this finding.  He further seemed to say that
041105 -        nodules in my lungs could be causing difficulty breathing, and
041106 -        since I recently had a lot of radiation, there was likely a
041107 -        correlation.  This aligned with Doctor Rugo's comments during
041108 -        the meeting at UCSF on 090514.
041110 -         ..
041111 -   15.  Doctor Mates further indicated that my current lung problem of
041112 -        nodules and/or "ground glass opacities" can "heal" and so I can
041113 -        recover former lung capacity through continued exercise, and
041114 -        without direct treatment.
041116 -         ..
041117 -   16.  I would like to clarify this analysis during the meeting today.
041118 -        Specifically, the CT test on 090612 describes "ground glass
041119 -        nodules" and "streaky atelectasis and bronchiectasis" what does
041120 -        this mean?
041122 -         ..
041123 -   17.  After all of this, Doctor Mates asked Rod about the "problem"
041124 -        of getting a CT test that was performed in Arizona reviewed by
041125 -        his department here in Walnut Creek?
041127 -         ..
041128 -   18.  Upon discussion, it turned Doctor Mates called yesterday by
041129 -        mistake.
041131 -         ..
041132 -   19.  He had a discussion with Al Hutchins in which my name, Rod, and
041133 -        other names came up.  He didn't know anything about
041134 -        Gastrogafin, nor consolidating findings in CT test reports, and
041135 -        at first objected to the discussion, since all he wanted was to
041136 -        get the CD for a test in Arizona [for another patient].
041137 -        However, when he called, the doctor simply asked "What's the
041138 -        problem?"  So Rod presented a few "problems."
041140 -         ..
041141 -   20.  In any case, as a result of a mistake, I am grateful that
041142 -        Doctor Mates took the time to look at my CT test on 090612 and
041143 -        provide professional comment on my prognosis from a radiology
041144 -        perspective.
041146 -         ..
041147 -        4.  Blood test at UCSF on 090629 0820
041149 -         ..
041150 -   21.  Reminding Mike to prepare the order for the blood test on
041151 -        090629, so when I show up early in the morning Catherine is
041152 -        ready to go.
041153 -
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041161 -
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041165 -
0412 -