THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: June 19, 2009 12:24 PM Friday; Rod Welch

Millie reports breathing improves with another test hike at Lafayette.

1...Summary/Objective


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CONTACTS 

SUBJECTS
White Blood Cell Condition Blood Test Shows Too Low Doctor Johnson A

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 83 0000. ref SDS 82 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - Millie sent the following letter to the medical team reporting results
040902 - of the meeting with Doctor Rugo yesterday on 090616 1245. ref SDS 78
040903 - TP9L
040905 -  ..
040906 - Millie met with Doctor Rugo yesterday and discussed results of CT test
040907 - on 090612, 090616 1245, ref SDS 78 JH48, and in order to start
040908 - treatment with MPA protocol to recover from 8th relapse of cancer,
040909 - 090616. ref SDS 78 YO4J
040911 -  ..
040912 - On 090617 1954 Millie sent a letter notifying the medical team about
040913 - findings from CT test that indicate no internal cancer, ref SDS 82
040914 - 7J9X, but show ground glass opacities that may be causing breathing
040915 - problems, ref SDS 82 7J4Q, and she asked the team if she is still
040916 - cleared for heavy exercise. ref SDS 82 7J4T
040918 -  ..
040919 - On 090618 1743 the medical team did not notify Millie she was at risk,
040920 - so went to Lafayette Reservoir today and did a test hike to evaluate
040921 - progression of breathing problems; Millie notified the team she could
040922 - not complete 1 lap, ref SDS 83 LE7M, and so was discouraged.
040923 - ref SDS 83 TG4Q  She requested planning for further tests and
040924 - treatment to recover from breathing problems. ref SDS 83 TG3X
040926 -  ..
040927 - On 090619 1208 Millie reported in the record receiving a letter from
040928 - Doctor Johnson issued at 0929, and saying Millie is approved for
040929 - exercising to tolerance. ref SDS 84 LE7M
040931 -  ..
040932 - Today, Millie did another test hike, and submitted results to the
040933 - Medical team. ref SDS 0 2T8L
040934 -
040935 -    1.  Subject: Hiking Today Improves Less Duress Thanks for Guidance
040936 -        Date: Fri, 19 Jun 2009 12:37:15 -0700
040947 -         ..
040948 -    2.  I tried again today [implementing guidance from Doctor Johnson
040949 -        received this morning at 0929, and reported on 090619 1208.
040950 -        ref SDS 84 LE7M] and was pleased to complete a lap at Lafayette
040951 -        Reservoir (2.75 miles) without duress breathing.  I went the
040952 -        easy route, so the toughest hills were downhill today, which
040953 -        reduced the load on the lungs.  But I actually did a lap and a
040954 -        half, and even the easy route has some long hills; so, very
040955 -        pleased with progress today [improving exercise limited by
040956 -        breathing difficulties, reported yesterday on 090618 1743.
040957 -        ref SDS 83 TF4U]
040958 -
040959 -            [On 090626 1140 Kaiser medical chart reports Millie hiking
040960 -            Lafayette Reservoir; does not report rising breathing
040961 -            problems that prevent exercise and normal activity.
040962 -            ref SDS 85 576H
040964 -         ..
040965 -    3.  Might my lungs adjust similar to lymphatics?
040967 -         ..
040968 -    4.  On 080606 Doctor Riley-Paul advised, during a meeting at Kaiser
040969 -        preparing for surgery to configure the Power Port, that
040970 -        problems for several years with the left arm swelling up after
040971 -        exercise, and then landing me in the ER, because my lymphatic
040972 -        system on the left side was reduced with left breast mastectomy
040973 -        on 051021, ref SDS 3 0001, would subside, because the
040974 -        remaining lymphatic system would become more robust over time.
040975 -        ref SDS 7 4P7L
040977 -         ..
040978 -    5.  This seems to have occurred.  Until IBC migrated to the lower
040979 -        left arm following the snafu of untreated IBC in my chest, I
040980 -        had no further lymphedema in the left arm for a year.
040982 -         ..
040983 -    6.  Can the same occur with diminished capacity in my lungs?  Will
040984 -        the "ground glass" nodules dissipate naturally?  Might the
040985 -        lungs simply expand a bit to offset loss of capacity?  What
040986 -        recovery scenario is planned?
040988 -         ..
040989 -    7.  On Thursday, a week ago on 060911, Mary in the Kaiser Physical
040990 -        Therapy Clinic at Park Shadelands ordered a new compression
040991 -        sleeve to treat new lymphedema on my left arm, per above.  She
040992 -        feels the sleeves I have are inadequate for the scope of the
040993 -        new problem [of rising lymphedema due to IBC migrating to the
040994 -        lower left arm, as a result of medical mistake that failed to
040995 -        treat cancer in the breastbone area, reported by Doctor Hsu on
040996 -        090609 0900. ref SDS 69 W65W]  Mary submitted an order last
040997 -        Thursday, and said it requires your approval.  Has this come
040998 -        across your desk?  Please let me know, so I can follow up with
040999 -        Mary.
041001 -         ..
041002 -    8.  Thanks again for timely response today on the lung issue
041003 -        [noting Doctor Johnson responded earlier today to Millie's
041004 -        letter asking about risks of further lung damage from exercise,
041005 -        and the doctor approving Millie for exercising to tolerance,
041006 -        reported on 090619 1208. ref SDS 84 LE7M]  Glad there is better
041007 -        news today indicating possible recovery underway [per above,
041008 -        ref SDS 0 2T8L].
041009 -
041016 -
041017 -
041018 -
041019 -
041020 -
041021 -
041022 -
041023 -
041024 -
0411 -