THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: February 3, 2009 12:06 PM Tuesday;
Rod Welch
VCI called and offered hyperthermia tomorrow for Millie to recover from IBC.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 20 0000. ref SDS 18 0000.
040502 -
040503 -
040504 -
040505 -
040507 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 -
040902 - 1. On 090122 Doctor Rugo diagnosed progression of disease; Millie
040903 - suffered 6th relapse of IBC. The doctor ended treatment with
040904 - sunitinib, and scheduled new treatment to begin on 090129.
040905 - ref SDS 9 K96F
040907 - ..
040908 - 2. On 090129 Doctor Rugo indicated there was a communication mixup
040909 - that delayed for a week authorization from Kaiser for Millie to
040910 - get hyperthermia treatment at UCSF, shown in Millie's letter on
040911 - 090130. ref SDS 11 AY8Q
040913 - ..
040914 - 3. On 090202 1353 UCSF finally got authorization from Kaiser, and
040915 - proposed giving Millie hyperthermia treatment on 090219.
040916 - ref SDS 14 SP6H
040918 - ..
040919 - 4. On 090202 1437 Millie sent a letter to the medical team,
040920 - ref SDS 15 JR4J, advising that IBC has significantly advanced
040921 - since the meeting at UCSF on 090129, and asking if delaying
040922 - treatment 3 weeks to 090219 would not place Millie at risk of
040923 - losing control of cancer, because IBC is an aggressive disease.
040924 - ref SDS 15 R23S
040926 - ..
040927 - 5. On 090202 1550 called VCI and talked to Nash about Millie
040928 - getting hyperthermia treatment this week, ref SDS 16 YU8H, and
040929 - prior to 090219 proposed by UCSF. Nash indicated the cost
040930 - would be about $40K. ref SDS 16 546H
040932 - ..
040933 - 6. On 090202 1550 VCI planned to call back about scheduling Millie
040934 - for treatment.ref SDS 16 ML6F
040936 - ..
040937 - 7. On 090202 1932 letter from Doctor Rugo says Millie needs urgent
040938 - treatment quickly in time to be effective recovering from 6th
040939 - relapse of IBC. ref SDS 17 Y15J
040941 - ..
040942 - 8. On 090203 0939 called VCI and explained urgency of getting
040943 - Millie hyperthermia treatment quickly in time to be effective,
040944 - ref SDS 18 9Y5I, noted in Doctor Rugo's letter on 090202.
040945 - ref SDS 17 Y15J
040947 - ..
040948 - 9. On 090203 1009 Millie submitted letter to VCI with background
040949 - on patient history listed on 090121, ref SDS 6 NU5H, to
040950 - facilitate medical review to evaluate providing hyperthermia
040951 - treatment in time to be effective recovering from 6th relapse
040952 - of IBC. ref SDS 18 IN94
040954 - ..
040955 - 10. On 090203 1024 called UCSF asked about changing date for
040956 - Millie's hyperthermia treatment from 090219 to this week.
040957 - ref SDS 19 NM6O, based on Doctor Rugo's letter on 090202
040958 - advising medical team that Millie's urgent treatment done
040959 - quickly. ref SDS 17 Y15J Jennette plans to ask doctor
040960 - advancing the date for Millie's treatment at UCSF in time to be
040961 - effective. ref SDS 19 IX8S
040963 - ..
040964 - 11. On 090203 1203 called VCI about propspects for getting Millie
040965 - hyperthermia treatment this week in time to recover from 6th
040966 - relapse IBC; Nash apologized for delay, recognizing urgency of
040967 - providing hyperthermia treatment for Millie, and said the
040968 - doctor will call soon. ref SDS 20 846N
040969 -
040970 -
040972 - ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - VCI called back, responding to discussion with Nash at 1203.
041302 - ref SDS 20 846N
041304 - ..
041305 - Talked to Doctor Al-Bussam.
041307 - ..
041308 - Doctor Al-Bussam is listed as a principal figure in VCI, and
041309 - professional liturature reviewed on 090129. ref SDS 10 HT4N
041311 - ..
041312 - The doctor has reviewed the record of patient history listed on
041313 - 090121, ref SDS 6 NU5H, which was submitted with the letter this
041314 - morning. ref SDS 18 IN94 He apologized for not calling at 1130,
041315 - proposed in the call with Nash earlier today, per above. ref SDS 18
041316 - LF6L
041318 - ..
041319 - Doctor Al-Bussam said Millie's paitient history is very complicated,
041320 - and so took more time than for most patients. The doctor said the
041321 - record on 090121, ref SDS 6 NU5H, submitted with Millie's letter this
041322 - morning, per above. ref SDS 18 IN94 was well organized and that this
041323 - helped his review.
041325 - ..
041326 - Previously, on 080403 Doctor Rugo requested assistance for UCSF on
041327 - coordinating Millie's care with Kaiser. ref SDS 1 4U9O A few months
041328 - later on 081017, the doctor thanked Millie for coordinating the UCSF
041329 - work plan at Kaiser on getting Millie ready to start the next clinical
041330 - trial at UCSF. ref SDS 2 RI6I
041331 -
041332 - [On 090206 Doctor Stritter cited patient longevity
041333 - surprising for IBC, and credits good case management.
041334 - ref SDS 24 7Q7J
041336 - ..
041337 - Doctor Al-Bussam said that without seeing Millie he cannot say for
041338 - certain that delaying treatment will risk losing control. He feels
041339 - Doctor's Rugo's letter yesterday on 090202 saying Millie needs urgent
041340 - treatment that should be done quickly means right away, rather than
041341 - waiting to Feb 19th, proposed by UCSF yesterday on 090202 1353.
041342 - ref SDS 14 XO7G Doctor Al-Bussam noted the trend in the cancer
041343 - marker in Doctor Johnson's letter on 090122 showing CA 15-3 303 on
041344 - 090116 supports immediate treatment. ref SDS 8 FJ8W
041346 - ..
041347 - The doctor said that VCI can do the work tomorrow, and will take 1 - 2
041348 - weeks for the full treatment. Cost would run about $40K.
041350 - ..
041351 - They will do hyperthermia with radiation, and can add Doxil per Doctor
041352 - Rugo prescription in the letter on 090129.
041354 - ..
041355 - We need a PET/CT to identify IBC fields for treatment. We can get
041356 - this at Kaiser or they can do it at VCI, Kaiser cannot fit the work
041357 - in.
041358 -
041359 - [On 090203 1417 Millie letter to medical team requests
041360 - opinion on accepting VCI offer to provide hyperthermia
041361 - treatment tomorrow on 090204 in time to be effective for
041362 - Millie to recover from IBC compared to UCSF offer to delay
041363 - treatment 3 weeks; and notes preference to work with UCSF
041364 - if schedule can be advanced to current week in order to
041365 - benefit from practice synergy. ref SDS 21 IS4R
041367 - ..
041368 - [On 090202 1438 Jennette with UCSF Radiation Oncology
041369 - Department called back and advised that Doctor Hsu will
041370 - begin hypertermia treatment on 090205 so that Millie can
041371 - recover from 6th relapse of IBC, rather than risk waiting
041372 - until 090219, as proposed yesterday. ref SDS 22 XX5I
041374 - ..
041375 - [On 090203 1444 Millie notifies medical team problem
041376 - solved; UCSF changed schedule for Millie's hyperthermia
041377 - treatment to 090205 from prior proposal to start on 090219.
041378 - ref SDS 23 YQ5T
041379 -
041380 -
041381 -
041382 -
041383 -
041384 -
041385 -
041386 -
0414 -