CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 14 0000, ref SDS 12 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 -
040902 -    1.  On 090122 Doctor Rugo diagnosed progression of disease; Millie
040903 -        suffered 6th relapse of IBC.  The doctor ended treatment with
040904 -        sunitinib, and scheduled new treatment to begin on 090129.
040905 -        ref SDS 7 K96F
040907 -         ..
040908 -    2.  On 090129 Doctor Rugo indicated there was a communication mixup
040909 -        that delayed for a week authorization from Kaiser for Millie to
040910 -        get hyperthermia treatment at UCSF, shown in Millie's letter on
040911 -        090130. ref SDS 9 AY8Q
040913 -         ..
040914 -    3.  On 090129 research found hyperthermia described as holistic
040915 -        alternative treatment for cancer. ref SDS 8 F25H  Another
040916 -        article says hyperthermia is FDA approved for alternative
040917 -        treatment to recover from IBC. ref SDS 8 BR57
040919 -         ..
040920 -    4.  On 090202 1353 UCSF finally got authorization from Kaiser, and
040921 -        proposed giving Millie hyperthermia treatment on 090219.
040922 -        ref SDS 12 SP6H
040924 -         ..
040925 -    5.  On 090202 1437 Millie sent a letter to the medical team,
040926 -        ref SDS 13 JR4J, advising that IBC has significantly advanced
040927 -        since the meeting at UCSF on 090129, and asking if delaying
040928 -        treatment 3 weeks to 090219 would not place Millie at risk of
040929 -        losing control of cancer, because IBC is an aggressive disease.
040930 -        ref SDS 13 R23S
040932 -         ..
040933 -    6.  On 090202 1550 called VCI and talked to Nash about Millie
040934 -        getting hyperthermia treatment this week, ref SDS 14 YU8H, and
040935 -        prior to 090219 proposed by UCSF.  Nash indicated the cost
040936 -        would be about $40K. ref SDS 14 546H
040938 -         ..
040939 -    7.  On 090202 1550 VCI planned to call back about scheduling Millie
040940 -        for treatment.ref SDS 14 ML6F
040942 -         ..
040943 -    8.  On 090202 1932 letter from Doctor Rugo says Millie needs urgent
040944 -        treatment quickly in time to be effective recovering from 6th
040945 -        relapse of IBC. ref SDS 15 Y15J
040946 -
040948 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Called Valley Medical Center (VCI) in Los Angeles.
041302 -
041303 -           VCI Oncology
041304 -           Nash at 310-398-0013
041306 -  ..
041307 - Talked to Nash again.
041309 -  ..
041310 - Explained urgency of getting Millie hyperthermia treatment quickly in
041311 - time to be effective, noted in Doctor Rugo's letter on 090202.
041312 - ref SDS 15 Y15J
041314 -  ..
041315 - Nash apoolgized about the doctor not calling yesterday afternoon,
041316 - which she proposed during a call on 090202. ref SDS 14 ML6F
041318 -  ..
041319 - Nash scheduled a telephone consultation today for between 1130 - 1200,
041320 - after the doctor's get out of Tumor Board.
041321 -
041322 -            [...in another letter later today on 090203 1203 called VCI
041323 -            back about scheduling hyperthermia treatment for Millie in
041324 -            time to recover from 6th relapse of IBC; Nash advised that
041325 -            doctor was delayed responding because Millie's patient
041326 -            history is very complex, and so takes more time to
041327 -            prescribe a solution; expects doctor will call to discuss
041328 -            Millie's case shortely. ref SDS 16 846N
041330 -  ..
041331 - Nash suggested sending the doctor a letter summarizing Millie's
041332 - patient history as related to requirements for hyperthermia treatment
041333 - to recover from 6th relapse of IBC.
041334 -
041335 -            [...in another latter later today on 090203 1206 Doctor
041336 -            Al-Bussam with VCI called and offered to start hyperthermia
041337 -            treatment for Millie tomorrow in time to recover from 6th
041338 -            relapse of IBC. ref SDS 17 8488
041339 -
041340 -
041341 -
041343 -  ..
0414 -
0415 -
0416 - 1009
0417 -
041701 - Sent an email with patient history to facilitate telecon...
041702 -
041703 -    1.  Subject: **** IBC Patient History Requires Immediate Hyperthermia
041704 -        Date: Tue, 03 Feb 2009 10:15:21 -0800
041711 -         ..
041712 -    2.  As we discussed, here [in the record on 090121] is a short
041713 -        narrative and chronology of my patient history. ref SDS 4 NU5H
041714 -
041715 -        (be careful not to get lost in links)
041716 -
041717 -            [...in another letter later today on 090203 1203 called VCI
041718 -            back about scheduling hyperthermia treatment for Millie in
041719 -            time to recover from 6th relapse of IBC; Nash advised that
041720 -            doctor was delayed responding because Millie's patient
041721 -            history is very complex, and so takes more time to
041722 -            prescribe a solution; expects doctor will call to discuss
041723 -            Millie's case shortely. ref SDS 16 846N
041725 -         ..
041726 -    3.  Millie has been treated at UCSF in chemotherapy clinical trials
041727 -        for the past 2 years.  Did very well on cetuximab and
041728 -        Carboplatin.  Started sunitinib on Nov 14th, and got initial
041729 -        good response [reported on 081126. ref SDS 1 YJ3G  Treatment
041730 -        was paused on Dec 19th for a week to reduce side effects.
041731 -        ref SDS 2 QW48  IBC began to advance during this week pause [on
041732 -        081224 and 081225, reported on 081230, ref SDS 3 JV5M], and is
041733 -        now very severe [reported to medical team on 090202 1437.
041734 -        ref SDS 13 R23S  On January 29 IBC had progressed significantly
041735 -        with rash spreading and intensifying, especially in the
041736 -        breastbone area [reported in Millie's letter to medical team on
041737 -        090130, ref SDS 9 4S8O, and again on 090201. ref SDS 10 KN9T]
041739 -         ..
041740 -    4.  On Jan 29th during examination at UCSF, Doctor Rugo sent a
041741 -        letter to my oncologist at Kaiser in Walnut Creek, CA, Doctor
041742 -        Johnson, recommending treatment at UCSF with hyperthermia and
041743 -        doxil [reported on 090130, ref SDS 9 TZ6H].
041745 -         ..
041746 -    5.  Yesterday [on 090202], Kaiser made an official referral for
041747 -        Millie to have hyperthermia treatment at UCSF. ref SDS 12 SP6H
041749 -         ..
041750 -    6.  On 099202 1347, UCSF Radiation Oncology Department scheduled
041751 -        the work on February 19th. ref SDS 12 XO7G  This is too late.
041753 -         ..
041754 -    7.  I wrote a letter to Doctor Rugo asking if February 19 would be
041755 -        okay. ref SDS 13 R23S  Doctor Rugo wrote that I need "urgent"
041756 -        treatment and this should be done "quickly." ref SDS 15 Y15J  I
041757 -        can personally see that rash has spread significantly since
041758 -        examination last week on Jan 29th.  CA 15-3 303 on Jan 16, 2009
041759 -        lab at Kaiser is 3 times higher than at any time in my 7 year
041760 -        treatment history.
041762 -         ..
041763 -    8.  I would like to have the work done within the week.  My last CT
041764 -        was on December 30th.  I am due for another in 2 weeks at
041765 -        Kaiser, so that can be moved up as needed.
041766 -
041767 -            [...in another latter later today on 090203 1206 Doctor
041768 -            Al-Bussam with VCI called and offered to start hyperthermia
041769 -            treatment for Millie tomorrow in time to recover from 6th
041770 -            relapse of IBC. ref SDS 17 8488
041772 -         ..
041773 -    9.  Rod is helping with case management, as my patient assistant.
041774 -        You can talk to him today at 1130 to discuss prospects of
041775 -        scheduling the work and cost.
041777 -         ..
041778 -   10.  Thanks very much to Nash for timely, thorough consideration.
041779 -
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041788 -
041789 -
041790 -
041791 -
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041793 -
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0418 -