THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net
S U M M A R Y
DIARY: February 2, 2009 03:50 PM Monday;
Rod Welch
Called VCI to get Millie's hyperthermia treatment in time to be effective
recoverying from 6th relapse of IBC.
1...Summary/Objective
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CONTACTS
SUBJECTS
Default Null Subject Account for Blank Record
0403 -
0403 - ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 11 0000. ref SDS 10 0000.
040502 -
040503 -
040504 -
040506 - ..
0406 -
0407 -
0408 - Background
0409 -
040901 - 1. On 090122 Doctor Rugo diagnosed progression of disease; Millie
040902 - suffered 6th relapse of IBC. The doctor ended treatment with
040903 - sunitinib, and scheduled new treatment to begin on 090129.
040904 - ref SDS 2 K96F
040906 - ..
040907 - 2. On 090129 Doctor Rugo indicated there was a communication mixup
040908 - that delayed for a week authorization from Kaiser for Millie to
040909 - get hyperthermia treatment at UCSF, shown in Millie's letter on
040910 - 090130. ref SDS 5 AY8Q
040912 - ..
040913 - 3. On 090202 1353 UCSF finally got authorization from Kaiser, and
040914 - proposed giving Millie hyperthermia treatment on 090219.
040915 - ref SDS 11 SP6H
040917 - ..
040918 - 4. On 090202 1437 Millie sent a letter to the medical team,
040919 - ref SDS 12 JR4J, advising that IBC has significantly advanced
040920 - since the meeting at UCSF on 090129, and asking if delaying
040921 - treatment 3 weeks to 090219 would not place Millie at risk of
040922 - losing control of cancer, because IBC is an aggressive disease.
040923 - ref SDS 12 R23S
040925 - ..
040926 - 5. On 090202 1932 letter from Doctor Rugo says Millie needs
040927 - urgent treatment quickly in time to be effective recovering
040928 - from 6th relapse of IBC. ref SDS 13 Y15J
040929 -
040930 -
040932 - ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Called Valley Medical Center (VCI) in Los Angeles, following up
041302 - research on 090129, ref SDS 3 QS5H, showing VCI provides hyperthermia
041303 - treatment for IBC. ref SDS 3 BR57
041304 -
041305 - VCI Oncology
041306 - Nash at 310-398-0013
041308 - ..
041309 - Talked to the receptionist.
041311 - ..
041312 - She said that Nash has another call with a patient. Nash will back
041313 - to discuss Millie's case shortly.
041314 -
041316 - ..
0414 -
0415 -
0416 - 1558
0417 -
041701 - Nash called back.
041702 -
041703 - 1. What are dangers of delaying treatment for several weeks
041704 - proposed by UCSF in the call earlier today? ref SDS 11 SP6H
041706 - ..
041707 - 2. Can VCI provide treatment before 090219?
041709 - ..
041710 - 3. How much does it cost? $40K
041712 - ..
041713 - 4. Hyperthermia always given with radiation?
041715 - ..
041716 - 5. UCSF proposes using Doxil. Is this part of VCI practice; are
041717 - some patients better suited to this method.
041719 - ..
041720 - Nash seemed to indicate that VCI has a long history doing hyperthermia
041721 - treatment, and was the founder or one of the founders of this modality
041722 - in the United States. She further indicated that UCSF has referred
041723 - patients to VCI for hyperthermia treatment of IBC at least as recently
041724 - as a year ago.
041726 - ..
041727 - Nash advised that VCI uses PET/CT test to identify IBC fields for
041728 - treatment with hyperthermia, as set out in the explanation of
041729 - treatment in research on VCI reported on 090129. ref SDS 3 NO4F
041731 - ..
041732 - Asked if VCI can treatment Millie with hyperthermia this week, so that
041733 - Millie does not risk losing control of cancer waiting for treatment
041734 - until 090219, proposed by UCSF earlier today on 090202 1353?
041735 - ref SDS 11 XO7G
041737 - ..
041738 - She indicated VCI can do the work this week, and it would cost about
041739 - $40K.
041740 -
041741 - [On 090203 0939 call VCI and schedule call to discuss alternate
041742 - source for Millie to get hyperthermia treatment in time to be
041743 - effective recovering from 6th relapse of IBC. ref SDS 14 9Y5I
041745 - ..
041746 - [On 090203 1009 letter to VCI submits patient history for
041747 - review to support telephone conference, ref SDS 14 IN94, on
041748 - arranging for VCI to provide hyperthermia treatment in time for
041749 - Millie to recover from 6th relapse of IBC. ref SDS 14 EP3S
041751 - ..
041752 - [On 090203 1024 called UCSF talked to Jennette in Radiation
041753 - Oncology; she will discuss with Doctor Hsu advancing Millie
041754 - getting hyperthermia treatment from 090219 to this week.
041755 - ref SDS 15 XX5I
041757 - ..
041758 - Nash suggested talking to a hyperthermia doctor later this afternoon.
041759 - She said that Doctor Al-Bussam is very experienced using hyperthermia
041760 - to treat IBC. She will ask him to call later today before going home
041761 - about 1730.
041763 - ..
041764 - Doctor Al-Bussam is listed in VCI documenation on the Internet,
041765 - reviewed on 090129. ref SDS 3 HT4N
041766 -
041767 - [On 090203 talked to Doctor Al-Bussam; he said VCI can start
041768 - Millie's treatment on 090204, Wednesday, and will take about 2
041769 - weeks, cost OA $40K. ref SDS 14 8488
041771 - ..
041772 - [On 090203 1206 Doctor Al-Bussam called and reported well
041773 - ordered record for Millie's patient history enabled expedited
041774 - review of complex medical problems. ref SDS 16 8488 VCI
041775 - offered to start work the next day on 090204 giving Millie
041776 - hyperthermia treatment in time to be effective recoverying from
041777 - 6th relapse IBC. ref SDS 16 OE4F
041778 -
041779 -
041780 -
041781 -
041782 -
041783 -
041784 -
041785 -
041787 - ..
0418 -
0419 -
0420 - 1847
0421 -
042101 - Doctor Al-Bussam did not call back.
042102 -
042103 -
042104 -
042105 -
042106 -
042107 -
042108 -
042109 -
0422 -