THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: February 2, 2009 03:50 PM Monday; Rod Welch

Called VCI to get Millie's hyperthermia treatment in time to be effective
recoverying from 6th relapse of IBC.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 11 0000. ref SDS 10 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 -    1.  On 090122 Doctor Rugo diagnosed progression of disease; Millie
040902 -        suffered 6th relapse of IBC.  The doctor ended treatment with
040903 -        sunitinib, and scheduled new treatment to begin on 090129.
040904 -        ref SDS 2 K96F
040906 -         ..
040907 -    2.  On 090129 Doctor Rugo indicated there was a communication mixup
040908 -        that delayed for a week authorization from Kaiser for Millie to
040909 -        get hyperthermia treatment at UCSF, shown in Millie's letter on
040910 -        090130. ref SDS 5 AY8Q
040912 -         ..
040913 -    3.  On 090202 1353 UCSF finally got authorization from Kaiser, and
040914 -        proposed giving Millie hyperthermia treatment on 090219.
040915 -        ref SDS 11 SP6H
040917 -         ..
040918 -    4.  On 090202 1437 Millie sent a letter to the medical team,
040919 -        ref SDS 12 JR4J, advising that IBC has significantly advanced
040920 -        since the meeting at UCSF on 090129, and asking if delaying
040921 -        treatment 3 weeks to 090219 would not place Millie at risk of
040922 -        losing control of cancer, because IBC is an aggressive disease.
040923 -        ref SDS 12 R23S
040925 -         ..
040926 -    5.  On 090202 1932 letter from Doctor Rugo says Millie needs
040927 -        urgent treatment quickly in time to be effective recovering
040928 -        from 6th relapse of IBC. ref SDS 13 Y15J
040929 -
040930 -
040932 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Called Valley Medical Center (VCI) in Los Angeles, following up
041302 - research on 090129, ref SDS 3 QS5H, showing VCI provides hyperthermia
041303 - treatment for IBC. ref SDS 3 BR57
041304 -
041305 -           VCI Oncology
041306 -           Nash at 310-398-0013
041308 -  ..
041309 - Talked to the receptionist.
041311 -  ..
041312 - She said that Nash has another call with a patient.  Nash will back
041313 - to discuss Millie's case shortly.
041314 -
041316 -  ..
0414 -
0415 -
0416 - 1558
0417 -
041701 - Nash called back.
041702 -
041703 -    1.  What are dangers of delaying treatment for several weeks
041704 -        proposed by UCSF in the call earlier today? ref SDS 11 SP6H
041706 -         ..
041707 -    2.  Can VCI provide treatment before 090219?
041709 -         ..
041710 -    3.  How much does it cost?       $40K
041712 -         ..
041713 -    4.  Hyperthermia always given with radiation?
041715 -         ..
041716 -    5.  UCSF proposes using Doxil.  Is this part of VCI practice; are
041717 -        some patients better suited to this method.
041719 -  ..
041720 - Nash seemed to indicate that VCI has a long history doing hyperthermia
041721 - treatment, and was the founder or one of the founders of this modality
041722 - in the United States.  She further indicated that UCSF has referred
041723 - patients to VCI for hyperthermia treatment of IBC at least as recently
041724 - as a year ago.
041726 -  ..
041727 - Nash advised that VCI uses PET/CT test to identify IBC fields for
041728 - treatment with hyperthermia, as set out in the explanation of
041729 - treatment in research on VCI reported on 090129. ref SDS 3 NO4F
041731 -  ..
041732 - Asked if VCI can treatment Millie with hyperthermia this week, so that
041733 - Millie does not risk losing control of cancer waiting for treatment
041734 - until 090219, proposed by UCSF earlier today on 090202 1353?
041735 - ref SDS 11 XO7G
041737 -  ..
041738 - She indicated VCI can do the work this week, and it would cost about
041739 - $40K.
041740 -
041741 -        [On 090203 0939 call VCI and schedule call to discuss alternate
041742 -        source for Millie to get hyperthermia treatment in time to be
041743 -        effective recovering from 6th relapse of IBC. ref SDS 14 9Y5I
041745 -         ..
041746 -        [On 090203 1009 letter to VCI submits patient history for
041747 -        review to support telephone conference, ref SDS 14 IN94, on
041748 -        arranging for VCI to provide hyperthermia treatment in time for
041749 -        Millie to recover from 6th relapse of IBC. ref SDS 14 EP3S
041751 -         ..
041752 -        [On 090203 1024 called UCSF talked to Jennette in Radiation
041753 -        Oncology; she will discuss with Doctor Hsu advancing Millie
041754 -        getting hyperthermia treatment from 090219 to this week.
041755 -        ref SDS 15 XX5I
041757 -  ..
041758 - Nash suggested talking to a hyperthermia doctor later this afternoon.
041759 - She said that Doctor Al-Bussam is very experienced using hyperthermia
041760 - to treat IBC.  She will ask him to call later today before going home
041761 - about 1730.
041763 -  ..
041764 - Doctor Al-Bussam is listed in VCI documenation on the Internet,
041765 - reviewed on 090129. ref SDS 3 HT4N
041766 -
041767 -        [On 090203 talked to Doctor Al-Bussam; he said VCI can start
041768 -        Millie's treatment on 090204, Wednesday, and will take about 2
041769 -        weeks, cost OA $40K. ref SDS 14 8488
041771 -         ..
041772 -        [On 090203 1206 Doctor Al-Bussam called and reported well
041773 -        ordered record for Millie's patient history enabled expedited
041774 -        review of complex medical problems. ref SDS 16 8488  VCI
041775 -        offered to start work the next day on 090204 giving Millie
041776 -        hyperthermia treatment in time to be effective recoverying from
041777 -        6th relapse IBC. ref SDS 16 OE4F
041778 -
041779 -
041780 -
041781 -
041782 -
041783 -
041784 -
041785 -
041787 -  ..
0418 -
0419 -
0420 - 1847
0421 -
042101 - Doctor Al-Bussam did not call back.
042102 -
042103 -
042104 -
042105 -
042106 -
042107 -
042108 -
042109 -
0422 -