THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: January 16, 2009 09:13 AM Friday; Rod Welch

Millie call from Glenna asking about response to treatment sunitinib.

1...Summary/Objective
2...Side Effects Severe Sunitinib Patients Difficulty Tolerating
3...Sunitinib Severe Side Effects Patients Difficulty Tolerating
4...Treatment Plan Recover Cancer Progression Glenna Letter to Doctor Rugo


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 8 0000, ref SDS 6 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 090108 Millie received a letter from Glenna summarizing
040902 - understandings for the work plan presented during the meeting earlier
040903 - at UCSF on 090108. ref SDS 5 LX7O  The next day on 090109, Millie
040904 - submitted a letter to the medical team presenting findings from the
040905 - examination and transmitting Glenna's work plan summary. ref SDS 6
040906 - UC4H
040908 -  ..
040909 - Glenna called this morning and asked about Millie's response to
040910 - treatment?
040912 -  ..
040913 - This is the second call Millie has received from UCSF asking how she
040914 - is doing.  Glenna called previously on 081223, cited in Millie's
040915 - letter commending UCSF for comprehensive care asking about patient
040916 - response to treatment, ref SDS 2 G84R, and reported in the record the
040917 - next day on 081224. ref SDS 3 BJ97
040919 -  ..
040920 - Reviewed the record of sunitinib treatments for yesterday on 090115,
040921 - since the record today is not yet complete.  The record on 090115
040922 - explains response to treatment. ref SDS 8 124N,
040923 -
040924 -        [On 090116 Millie received Glenna's letter, ref SDS 9 YN9H,
040925 -        with a letter attached which Glenna sent to the doctor that
040926 -        describes IBC breastbone area as worse. ref SDS 9 FW3J
040928 -         ..
040929 -        [On 090116 letter to Glenna clarifies breastone area
040930 -        looks stable to worse; everything else looks improved to
040931 -        stable. ref SDS 10 IS6G
040933 -  ..
040934 - Mentioned that Millie talked this morning about reducing the dose of
040935 - sunitinib in order to reduce side effects.  She seems at this point
040936 - still committed to trying the current higher dose in order to optimize
040937 - recovery, planned in the meeting with the medical team on 090108,
040938 - noted in Millie's letter on 090109. ref SDS 6 UF3T
040940 -  ..
040941 - Asked Glenna about remedy to relieve side effects, mainly of sore toes
040942 - that prevent exercise that maintains immune system for recoverying
040943 - from cancer.
040944 -
040946 -  ..
040947 - Side Effects Severe Sunitinib Patients Difficulty Tolerating
040948 - Sunitinib Severe Side Effects Patients Difficulty Tolerating
040949 -
040950 - Glenna said that other patients have difficulty tolerating side
040951 - effects of sunitinib; she feels Millie is very strong to continue
040952 - treatment at the full dose.  Glenna will ask the medical team about
040953 - possibilities for reducing side effects.
040955 -  ..
040956 - Glenna asked about the EKG test prescribed on 090108, as noted in
040957 - Millie's letter on 090109? ref SDS 6 UF4V  This investigates
040958 - persistent pulse below 50 in recent weeks during treatment with
040959 - sunitinib.  Research on 090108 indicates heart issues can result from
040960 - sunitinib. ref SDS 4 SX4H]  This was first reported to the medical
040961 - team in Millie's letter on 081121. ref SDS 1 5T9R
040963 -  ..
040964 - Reported the test was done at Kaiser on 090112. ref SDS 7 DB5I
040966 -  ..
040967 - Glenna requested submission to UCSF on results of the EKG test.
040968 -
040969 -        [On 090116 letter to medical team asks Kaiser to submit report
040970 -        on EKG performed 090112. ref SDS 10 IT8U
040971 -
040972 -        [On 090120 Millie letter to Kaiesr requesting report on EKG
040973 -        test performed at Kaiser on 090112. ref SDS 11 2P3P
040975 -         ..
040976 -        [On 090121 Millie went to Kaiser to get a printed copy of the
040977 -        report and discovered the report for the EKG test on 090112 has
040978 -        not been prepared due to a hectic schedule in the Cardiology
040979 -        Department. ref SDS 12 4R7J
040980 -
040982 -  ..
040983 - Treatment Plan Recover Cancer Progression Glenna Letter to Doctor Rugo
040984 -
040985 - Glenna plans to write a letter to the doctor presenting Millie's
040986 - sudden reversal from strong response with sunitinib, to now evident
040987 - progression of IBC, including severe side effects.  Glenna will
040988 - further ask Doctor Rugo about follow on treatment with further
040989 - progression of cancer.
040991 -  ..
040992 - Glenna will ask Doctor Rugo for ways to treat Millie's sore feet and
040993 - toes that now prevent exercise essential for synergy with treatment to
040994 - recover from cancer.
040996 -  ..
040997 - Glenna will send a copy of the letter to Millie for coordination of
040998 - Doctor Rugo's treatment planning.
040999 -
041000 -     [On 090116 Millie received a letter from Glenna following up the
041001 -     call this morning, ref SDS 9 YN9H, and transmitting a copy of a
041002 -     letter to the doctor reporting Millie's response to treatment, and
041003 -     asking about follow up treatments. ref SDS 9 4P5M
041004 -
041005 -
041006 -
041007 -
041008 -
041009 -
041010 -
041011 -
0411 -