CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record
Treatment Ideas for Millie's Will Be Submitted by Jeannie Vickery Je

0504 -
0504 -    ..
0505 - Summary/Objective
0506 -
050601 - Follow up ref SDS 5 T19J.
050602 -
050665 -  ..
0507 -
0508 -
0509 - 1122
0510 -
051001 - Called Jeannie at the number Marsha submitted. ref SDS 0 MG7W
051002 -
051003 - She was very sweet and sharp, as Marsha indicates in her letter.
051005 -  ..
051006 - A key issue that sounds particularly helpful is that Jeannie's cancer
051007 - was estrogen negative, the same as Millie, so there is some basis for
051008 - comparability in circumstances and perhaps expectations.
051010 -     ..
051011 -    We did not have time today to discuss Millie's tumor.  The surgeon
051012 -    found during the operation on 020312 that cancer had spread out of
051013 -    the lymph node capsules under her left arm, i.e., her condition was
051014 -    described as "out of capsule." ref SDS 1 7V61
051016 -     ..
051017 -    Did Jeannie have a comparable situation, where her cancer had also
051018 -    spread "out of capsule," as occurred with Mil?
051020 -  ..
051021 - Jeannie noted that since inflammatory breast cancer (IBC) is very
051022 - rare, oncology departments typically misdiagnose the problem, and then
051023 - are hesitant to treat for IBC.  This sounds like Millie's experience,
051024 - shown by recent research on 040517. ref SDS 4 TO7L  Jeannie advised
051025 - there are several "Cancer Centers" located around the country, which
051026 - are better prepared to treat IBC, because they have a lot more
051027 - experience with this desease.  Cancer Centers are often located in
051028 - medical teaching facilities, like at Stanford and at Cal, here in the
051029 - San Francisco Bay Area.
051031 -  ..
051032 - On 040318 Doctor Johnson advised that Kaiser has worked with Stanford
051033 - and with the UC Med Center, so this may facilitate consideration of
051034 - this option. ref SDS 3 AW6M
051036 -  ..
051037 - While we talked Jeannie helped locate on the Internet the IBC
051038 - website...
051039 -
051040 -        http://www.ibcsupport.org/
051042 -  ..
051043 - This Internet address lists additional symptoms of IBC are swelled
051044 - lymph nodes under the arm and in the neck above the collarbone;
051045 - incorporated this research into the record on 040517, because it is
051046 - now the 3rd symptom Millie had. ref SDS 4 6M9H
051048 -  ..
051049 - During our call, Jeannie mentioned a number of specific drugs and
051050 - strategies that might aid considerations in tailoring treatment to
051051 - increase chances of surviving IBC.  Jeannie's experience and ideas
051052 - would be very helpful to complement preliminary research developed
051053 - following the meeting with Doctor Johnson on 040517. ref SDS 4 S76J
051054 -
051055 -     [On 040610 letter to Jeannie asks about drugs for chemotherapy.
051056 -     ref SDS 6 FJ5W
051058 -  ..
051059 - Jeannie also mentioned that IBC evolves, or "morphs," from original
051060 - cancer conditions.  This may support an inference that diagnosis on
051061 - 030109 that redness in the left breast was cellulitus, rather than
051062 - beginning stages of IBC. ref SDS 2 KW5F
051064 -  ..
051065 - Jeannie will submit a letter listing the drugs and strategies she
051066 - discussed today, and this new information can support a meeting
051067 - with Doctor Johnson next week prior to Millie starting the 3rd cycle
051068 - of chemotherapy treatments.
051069 -
051070 -     [On 040610 sent a letter to Jeannie listing pending issues that
051071 -     seem to arise from the record, and asking Jeannie for additional
051072 -     input based on her experience and research. ref SDS 6 0001
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0511 -