THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: May 5, 2010 04:11 AM Wednesday; Rod Welch

Millie notified medical team UCSF investigating medical mistakes.

1...Summary/Objective


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CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 15 0000, ref SDS 14 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 - On 100501 1037 Millie sent a letter to the medical team asking for a
040902 - work plan to recover from the 11th relapse, caused by UCSF medical
040903 - mistakes providing radiation services on referral from Kaiser, which
040904 - have caused her cancer to spread. ref SDS 8 F25O
040906 -  ..
040907 - On 100501 2017 Millie received letter from Doctor Rugo saying she will
040908 - communicate with Doctor Johnson at Kaiser on the work plan for Millie
040909 - to recover from the 11th relapse of cancer. ref SDS 9 HH4I
040911 -  ..
040912 - On 100502 0140 Millie responds to Doctor Rugo's letter reporting
040913 - commitment to communicate with Doctor Johnson at Kaiser on the work
040914 - plan for Millie to recover from 11th relapse of cancer. ref SDS 10
040915 - HH4I
040917 -  ..
040918 - On 100503 1522 Millie notifies medical team of difficulty using Kaiser
040919 - secure email; asks about getting treatment with Abraxane chemotherapy
040920 - scheduled for Wednesday, 100505, or switching to a "targeted" agent.
040921 - ref SDS 12 HH4I
040923 -  ..
040924 - On 100503 1945 Millie receives letter from Kaiser saying to continue
040925 - with Abraxane chemotherapy for 2 more treatments, and then after 2
040926 - weeks without treatment the doctor will discuss next steps in a
040927 - meeting at Kaiser. ref SDS 13 HH4I
040929 -  ..
040930 - On 100503 2338 Millie notifies medical team that Kaiser guidance will
040931 - be implemented to get 2 treatments that complete 3rd cycle of
040932 - Abraxane. ref SDS 14 HH4I
040934 -  ..
040935 - On 100504 1609 Sara, Practice Manager for Breast Care Clinic, called
040936 - to confirm Doctor Rugo plans to call Kaiser about developing a work
040937 - plan for Millie to recover from 11th relapse of cancer caused by UCSF
040938 - medical mistakes. ref SDS 15 NT5N  Sara asked Millie if she has other
040939 - concerns; Millie concerned about getting response from medical team on
040940 - comparing treatment trade-offs pending for a year. ref SDS 15 FK9I
040941 - Reviewed UCSF medical mistakes, and pending issues. ref SDS 15 NT99
040942 - Sara investigating patients right to use public domain email for
040943 - expediting communications with medical team. ref SDS 15 ZV6M
040945 -  ..
040946 - On 100505 0411 Millie letter to medical team on UCSF investigating
040947 - medical mistakes to expedite recovery from 11th relapse of cancer.
040948 - ref SDS 0 NT5N
040949 -
040950 -
040951 -
040953 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Millie's letter says....
041302 -
041303 -    1.  Subject: Cancer 11th Relapse Work Plan
041304 -        Date: Wed, 05 May 2010 05:08:51 -0700
041316 -         ..
041317 -    2.  Sara, the Practice Manager in Doctor Rugo's office, called
041318 -        yesterday afternoon and said that the doctor has called you, or
041319 -        intends to call on the work plan for me to recover from medical
041320 -        mistakes UCSF made providing radiation services that caused my
041321 -        cancer to spread. ref SDS 15 NT5N
041323 -         ..
041324 -    3.  Sara further related plans to visit with Doctor Hsu today, in
041325 -        Radiation Oncology at UCSF, for his side of the story, related
041326 -        in the meeting at UCSF on 090609. ref SDS 5 W65W
041328 -         ..
041329 -    4.  Sara mentioned discussions with UCSF Risk Management about
041330 -        secure email.  She seems to appreciate complicated systems
041331 -        present problems for some patients, reported in my letter to
041332 -        the team yesterday on difficulty opening your "secure email"
041333 -        [reported on, ref SDS 11 HH4I
041335 -         ..
041336 -    5.  Thanks for resubmitting your letter using public domain email.
041337 -        As we have discussed, I know how to use it, and am not
041338 -        concerned about inadvertent confidentiality breaches.
041340 -         ..
041341 -    6.  Sara plans to follow up with ideas for accommodation on this
041342 -        issue at UCSF, and I assured Sara that I will do everything
041343 -        possible to support reasonable communication practices.
041345 -         ..
041346 -    7.  When Rod got home yesterday, he was able to retrieve from a
041347 -        backup your "secure" letter from the day before [received on
041348 -        100502 2143, ref SDS 11 HH4I] that I deleted [and reported to
041349 -        the team on 100503 1522, ref SDS 12 HH4I].  We finally got it
041350 -        opened [yesterday, and reported content in the record on 100502
041351 -        2143. ref SDS 11 MZ8O].  Thanks for clarifying the need for a
041352 -        "targeted" therapy strategy [reported on 100502 2143.
041353 -        ref SDS 11 YX8L, since we have run out of chemotherapy agents
041354 -        appropriate for my patient profile, as discussed on 090515 [in
041355 -        a meeting at Kaiser Doctor Johnson related he would get in
041356 -        trouble from a quality audit prescribing chemotherapy for
041357 -        Millie's patient profile that now resists chemotherapy after 8
041358 -        relapses. ref SDS 4 658J].
041360 -         ..
041361 -    8.  Good news, blood counts have increased this week, well above
041362 -        minimum levels for safe chemotherapy; so, I am good-to-go for
041363 -        Abraxane this morning.  Fingers are  crossed chemo will be
041364 -        effective on the right side, as it has on the left [reported in
041365 -        Millie's letter to the medical team on 100501 1037. ref SDS 8
041366 -        U45P and ref SDS 8 U46S
041368 -         ..
041369 -    9.  My goal is to leave on the trip with cancer under control, and
041370 -        work in progress for the next treatment, so I don't spend the
041371 -        whole time worrying.
041373 -         ..
041374 -   10.  In any case, I am grateful to the team for seeing me through a
041375 -        tough, yet very rewarding period.
041376 -
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041383 -
041384 -
041385 -
041386 -
041387 -
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041390 -
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0414 -