THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: April 15, 2009 03:19 PM Wednesday; Rod Welch

Doctor Johnson called and says CT test does not show cancer in lungs.

1...Summary/Objective


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SUBJECTS
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0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 9 0000.
040502 -
040503 -
040504 -
040506 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 -    1.  On 090310 Millie had a blood test at Kaiser.
040902 -
040903 -        On 090312 Kaiser did not submit results for CA 15-3.
040905 -         ..
040906 -    2.  On 090317 Arlette advised that Kaiser failed to perform CA
040907 -        15-3, ref SDS 1 YM4K, and so ordered another blood draw.
040908 -        ref SDS 1 Y04R
040910 -         ..
040911 -    3.  On 090323 CA 15-3 251 for the test on 090317, ref SDS 2 Y077,
040912 -        showing first reduction in a year, and down from CA 15-3 303
040913 -        for the test at Kaiser on 090116.
040915 -         ..
040916 -    4.  On 090413 Millie had a blood test at Kaiser, and a CT test to
040917 -        support meeting with UCSF on 090423.
040919 -         ..
040920 -    5.  On 090415 0904 called Arlette at 1454 she reported CT test
040921 -        reports progression of nodules in the lungs. ref SDS 9 RZ4U
040922 -
040923 -
040924 -
040926 -  ..
0410 -
0411 -
0412 - Progress
0413 -
041301 - Doctor Johnson called following up telecon with Arlette about 30
041302 - minutes ago on 090423 1454 reporting the CT test on 09413 shows
041303 - progression of nodules in the lung. ref SDS 9 RZ4U  He also received
041304 - Millie's letter sent a few mintues ago on 090415 1458. ref SDS 12 R18A
041306 -  ..
041307 - The doctor has also read Millie's letter this morning on 090415 0949
041308 - reporting IBC spreading. ref SDS 10 KG8Q  He explained having just
041309 - read through Millie's letter this afternoon on 090415 1424.
041310 - ref SDS 11 JT7H
041311 -
041312 -        [On 090416 0010 Millie's letter to medical team confirms
041313 -        understandings from Doctor Johnson's call today. ref SDS 14
041314 -        834Y
041316 -  ..
041317 - Doctor Johnson was frustrated by continuing difficulty getting test
041318 - data submitted for Millie's care at UCSF, cited in Millie's letter
041319 - today, ref SDS 11 GU7S, extending problems reviewed in the case study
041320 - during the meeting at Kaiser on 090325 0830. ref SDS 3 KZ6N
041322 -  ..
041323 - The doctor feels the amended referral which he filed last week on
041324 - 090409 1537 for UCSF to perform Millie's labs to evaluate care at
041325 - UCSF, will relieve stress on both the Kaiser lab and oncology staff
041326 - handling Millie's blood tests. ref SDS 7 PG7I, He was pleased to see
041327 - Millie's letter on 090401 1520, ref SDS 6 WC8T, explaining
041328 - coordination with Pam in Outside Referrals that indicated he could
041329 - amend the referral for Millie's treatment to include lab work at UCSF,
041330 - reported on 090401 1214. ref SDS 5 RG5K  The doctor thanked Millie for
041331 - coordinating these arrangements, implementing his request on 090325
041332 - for UCSF to treat Millie's cancer as a chronic disease. ref SDS 3 WE3N
041334 -             ..
041335 -            [On 090420 1451 Doctor Mason reported that other
041336 -            patients do not have problems getting lab reports from
041337 -            Kaiser for referral work at UCSF. ref SDS 16 2H8J
041339 -             ..
041340 -            [On 090423 0830 UCSF did not receive lab reports nor for
041341 -            the CT test on 090413. ref SDS 18 TP9L
041343 -             ..
041344 -            [On 090508 1338 Millie received denial of services 3 weeks
041345 -            late, showing growing problem of congestion in Outside
041346 -            Referral Department similar to problems in delivering labs
041347 -            to UCSF that justifies deference to doctor discretion
041348 -            prescribing labs for Millie at UCSF. ref SDS 19 RF4N
041350 -  ..
041351 - The doctor explained that further spread of IBC on Millie's lower left
041352 - arm reported in Millie's letter this morning on 090415 0949,
041353 - ref SDS 10 KG8Q, and citing Millie's letter to the medical team a few
041354 - days ago on 090412 2241 requesting immediate treatment, ref SDS 8
041355 - 9S9Y, shows it is urgent for UCSF to start treatment of Millie's
041356 - cancer as a chronic disease, as he discussed during the meeting at
041357 - Kaiser a few weeks ago on 090325. ref SDS 3 L15M
041359 -  ..
041360 - Doctor Johnson advised that after getting Millie's letter this
041361 - afternoon on 090415 1424 reporting Millie has been suffering heavy
041362 - chest for the past week, ref SDS 11 GU8X, and then after talking to
041363 - Arlette, and further after getting Millie's letter explaining new
041364 - findings in the CT test on 090413, reported on 090415 1458,
041365 - ref SDS 12 R18A, he reviewed Kaiser's radiology report for Millie's CT
041366 - test on 090413 to check for progression of lung nodules, reported in
041367 - Arlette's call a few minutes ago this afternoon on 090415 1424 at
041368 - 1511. ref SDS 9 RZ4U, Additionally, Doctor Johnson related that he has
041369 - looked at the actual CT scans on Kaiser's computer for Millie's test
041370 - on 090413.
041372 -  ..
041373 - Doctor Johnson reported during the call today that Kaiser's radiology
041374 - report may be "overstated" for the CT test on 090413 finding
041375 - progression of nodules in the lungs compared with the prior report on
041376 - 081230, and as related by Arlette in the call earlier today on 090415
041377 - 1458. ref SDS 12 R18A   The doctor in this call indicated that he
041378 - finds progression of nodules in the lungs is actually mild, and may
041379 - reflect merely the angle of the test equipment, rather than represent
041380 - actual progression of cancer.
041382 -  ..
041383 - The doctor further indicated his personal review this afternoon of
041384 - scans for Millie's CT test on 090413, shows that progression of
041385 - nodules in the lungs is likely a reaction to radiation, rather than
041386 - progression of systemic cancer in the lungs.
041387 -
041388 -            [On 090415 1642 Millie received Doctor's letter
041389 -            transmitting a report for the CT test on 090413, and
041390 -            confirms explanation in phone call today on 090415 1519
041391 -            that there are no findings of lung cancer in the test
041392 -            report, and that direct review by the primary care
041393 -            physician shows only minimal if any progression of nodules
041394 -            in the lungs, and nothing in the lungs is causing
041395 -            resperatory compromise for symptoms of heavy chest.
041396 -            ref SDS 13 YO7M
041398 -             ..
041399 -            [On 090415 1642 report for CT test on 090413 received from
041400 -            Kaiser says in part "Reticular nodular densities are seen
041401 -            involving the lingula which demonstrate progression since
041402 -            the previous examination.  There are patchy reticular
041403 -            nodular densities as well as ground glass opacities
041404 -            involving bilateral lung zones which appear more
041405 -            conspicuous since the previous examination.  This is partly
041406 -            related to difference in technique between the two studies.
041407 -            ref SDS 13 RV78
041409 -             ..
041410 -            [On 090416 0010 Millie's letter to medical team confirms
041411 -            understandings from Doctor Johnson's call today.
041412 -            ref SDS 14 835R
041414 -             ..
041415 -            [On 090420 2352 Millie submits agenda to the medical team
041416 -            for the meeting at UCSF on 090423, and notifies the team
041417 -            that Doctor Johnson made an independent review of CT scans
041418 -            and determined CT test report findings of lung nodules do
041419 -            not present health care threats of cancer nor other
041420 -            resperatory problems. ref SDS 17 MS4U
041422 -             ..
041423 -            [On 090420 2352 Millie reports to the medical team new IBC
041424 -            on lower left arm; and, also, reports a vertical line in
041425 -            the breastbone area of possible IBC or continuing reaction
041426 -            to radiation. ref SDS 17 MS5Q
041428 -             ..
041429 -            [On 090423 0830 Doctor Hsu does not mention during
041430 -            examination at 1200 discussions with Tara, ref SDS 18
041431 -            CP4J; feels few light nodules in vertical line through
041432 -            breastbone area may or may not be IBC and will heal from
041433 -            continuing effects of radiation that ended on 090317.
041434 -            ref SDS 18 EX4I
041436 -             ..
041437 -            [On 090514 0830 Doctor Rugo was concerned that ground
041438 -            glass opacities were caused by Millie's radiation in
041439 -            February and March. ref SDS 20 DE8M
041441 -             ..
041442 -            [On 090514 0830 Doctor Rugo seemed to concur that slight
041443 -            increase in ground glass opacities listed in Millie's CT
041444 -            test on 090413, and reviewed on 090415, were likely
041445 -            reaction to radiation, rather than spread of cancer.
041446 -            ref SDS 20 U85I
041448 -             ..
041449 -            [On 090609 Doctor Hsu advises there was a mistake
041450 -            performing radiation in February and March at UCSF that
041451 -            missed treating IBC in the breastbone area to the left
041452 -            of the right breast, and this untreated IBC tumor may be
041453 -            causing problems in Millie's lungs. ref SDS 21 TP9L
041455 -             ..
041456 -            [On 090626 0301 Doctor Johnson's medical chart for
041457 -            examination at Kaiser finds some DOE for resperatory
041458 -            system. ref SDS 22 EF7R
041460 -             ..
041461 -            [On 090705 0301 Millie reports untreated IBC in breastbone
041462 -            area worse to stable, still bleeding; other areas may be
041463 -            improved to stable, ref SDS 23 FT4T'  Millie asks about
041464 -            other ways to recover from UCSF medical mistake failing to
041465 -            treat breastbone area? ref SDS 23 FT5R
041467 -             ..
041468 -            [On 090708 1343 Doctor Johnson ordered further tests to
041469 -            evaluate Millie's breathing problems caused by progressive
041470 -            radiation injury from medical mistakes providing radiation
041471 -            services provided by UCSF. ref SDS 24 FS6G
041473 -  ..
041474 - Doctor Johnson further advised that Millie's recurrence of IBC on the
041475 - left arm at the periphery of rediation treatments in February and
041476 - March is similar to another patient, also, treated for IBC with
041477 - radiation and hyperthermia.  In that case, a 23 year old woman has
041478 - suffered IBC recurrence along the perimeter and outside of treated
041479 - areas, as Millie reported in her letter on 090412 2241, ref SDS 8
041480 - 9S8Y, and originally observed on 090331 0423. ref SDS 4 Q64R
041482 -  ..
041483 - The doctor will submit a letter transmitting the CT test report, and
041484 - will present results of his personal examination of the scans, as
041485 - related in the call this afternoon, per above. ref SDS 0 E09J
041486 -
041487 -            [On 090415 1642 Millie received Doctor's letter
041488 -            transmitting a report for the CT test on 090413, and
041489 -            confirms explanation in phone call on 090415 1519 that
041490 -            there are no findings of lung cancer in the test report,
041491 -            and that direct review by the primary care physician shows
041492 -            only minimal if any progression of nodules in the lungs,
041493 -            and nothing in the lungs is causing resperatory compromise
041494 -            for symptoms of heavy chest. ref SDS 13 YO7M
041495 -
041496 -
041497 -
041498 -
041499 -
041500 -
041501 -
041502 -
0416 -