CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS B9 0000. ref SDS B8 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Background
0409 -
040901 -    1.  On 090218 1205 Millie requests explanation of treatment plan.
040902 -        Doctor Rugo's letter to Kaiser on 090129 discussed hyperthermia
040903 -        with Doxil, reported on 090130. ref SDS 66 TZ6H  Has the plan
040904 -        changed to use "lower dose" radiation rather than Doxil.  Will
040905 -        both be used, or some other agent?  At this time, the record is
040906 -        confusing about scope.  Please explain initial assessment, and
040907 -        prognosis.  If this has already been submitted to Doctor
040908 -        Johnson and Doctor Rugo, send a copy to Millie. ref SDS A7 TH5W
040910 -         ..
040911 -    2.  On 090218 1205 Millie reports to medical team good meeting with
040912 -        Doctor Johnson at Kaiser on 090213.  He seemed optimistic that
040913 -        Millie might have 3 - 6 months of recovery, but will need
040914 -        treatment from Doctor Rugo for cancer as a "chronic disease." A
040915 -        week or so ago on 090210, Lena called to scheduling meeting
040916 -        with Doctor Rugo on 090312 0830, reflecting comprehensive
040917 -        follow up ordered by Kaiser during the meeting on 090203.
040918 -        ref SDS A7 TH6U
040920 -         ..
040921 -    3.  On 090218 1205 Millie asks UCSF about obtaining records from Mt
040922 -        Diablo Medical Center of prior radiation in 2002, which Doctor
040923 -        Hsu discussed doing during the meeting at UCSF on 090205.
040924 -        ref SDS A0 PN8H, and which cites Doctor Benz 2nd opinion at
040925 -        UCSF on 041018 saying Millie likely cannot tolerate more
040926 -        radiation. ref SDS A0 YO9G  Was that so long ago, there is risk
040927 -        from additional radiation now? ref SDS A7 TH6X
040929 -         ..
040930 -    4.  On 090218 1205 Millie asks UCSF about responding, ref SDS A7
040931 -        TH7V, to the letter a week ago on 090209 requesting explanation
040932 -        of side effects from radiation and hyperthermia, ref SDS A3
040933 -        745R, following Doctor Hsu's comments during the meeting on
040934 -        090205. ref SDS A0 GM4N  Does the treatment plan address this
040935 -        prospectively, or as needed?  For example, as noted in the
040936 -        letter on 090209, research found that side effects of radiation
040937 -        are sometimes treated with Vitamin E plus pentoxifylline
040938 -        (Trental), ref SDS A3 745R, which can be problematic with
040939 -        Coumadin, so Gloria in the Coagulation Control Clinic at Kaiser
040940 -        will need input. ref SDS A7 TH7V
040942 -         ..
040943 -    5.  On 090218 1205 Millie looking forward to starting treatment on
040944 -        090219, and despite worry about delays that prevent treatment
040945 -        from being effective. ref SDS A7 TH7Y  Millie Thanks Doctor Hsu
040946 -        for expediting care, reported on 090203, ref SDS 86 XX5I, and
040947 -        to Doctor Rugo for guidance through troubled waters, shown by
040948 -        UCSF letter on 090202 1722. ref SDS 81 Y15J
040950 -         ..
040951 -    6.  On 090220 Millie's letter to Doctor Hsu requests...
040952 -
040953 -           a.  Computer file of picture showing typical configuration
040954 -               of hyperthermia treatment. ref SDS A9 XX5O
040955 -
040956 -           b.  Computer file of picture showing typical configuration
040957 -               of radiation treatment. ref SDS A9 XX5O
040959 -                ..
040960 -           c.  Summary/general explanatoin of radiation and
040961 -               hyperthermia treatments.  Radiation on 090219 took much
040962 -               longer than radiation Millie had in 2002, so there seems
040963 -               to be a qualitative difference in technology and
040964 -               process.  Initially assumed IBC in the skin is not
040965 -               treated with radiation, and is directed instead to treat
040966 -               lymphadenopathy.  After today, seems like maybe UCSF is
040967 -               treating IBC with both radiation and hyperthermia??  Can
040968 -               you please clarify. ref SDS A9 EA4Q
040970 -                ..
040971 -           d.  Hyperthermia is a sonar process of some kind.
040972 -               ref SDS A9 EA4T
040974 -                ..
040975 -           e.  Orders for Millie's radiation and hyperthermia
040976 -               treatments, similar to "Chemotherapy Orders" received
040977 -               for treatments in the Infusion Clinic the past 2 years.
040978 -               If possible, UCSF should submit a computer file to
040979 -               reduce the time and cost for adding the treatment plan
040980 -               to patient history. ref SDS A9 EA4W
040982 -                ..
040983 -           f.  Metrics for evaluating when treatment concludes.
040984 -               ref SDS A9 EA5P
040986 -                ..
040987 -               When Millie was treated at Kaiser with capecitabine and
040988 -               Taxotere from Apr - Sep 2005, IBC rash seemed totally
040989 -               resolved by visual examination.  There was then a
040990 -               mastectomy in October 2005.  Biopsy of removed tissue
040991 -               affirmatively reported no findings of IBC.  Yet, years
040992 -               later Millie is being treated again for IBC. ref SDS A9
040993 -               EA5T This raises two questions...
040995 -                    ..
040996 -               1.  How comprehensively can the current treatment
040997 -                   resolve IBC, and how is this assessed, beyond simple
040998 -                   visual inspection, and drop in the cancer marker?
040999 -                   Is there an xray, PET scan, or other diagnostic that
041000 -                   shows where we are for planning follow on steps?
041001 -                   ref SDS A9 EA5T
041003 -                    ..
041004 -               2.  Can hyperthermia treatment be done again, if IBC
041005 -                   pops up later, as obviously happened to me?  Will
041006 -                   there be follow up at least for a month or so in
041007 -                   radiation oncology, in case IBC does recur in the
041008 -                   near term? ref SDS A9 WF5I
041010 -         ..
041011 -    7.  On 090220 0915 Millie radiation and hyperthermia treatment at
041012 -        UCSF. ref SDS B0 0G5I  Millie receivd a copy of notes Chris
041013 -        prepared of a meeting on 090209 with the UCSF medical team on
041014 -        planning Millie's treatment. ref SDS B0 4254
041016 -         ..
041017 -    8.  On 090220 1548 reviewed UCSF memo dated 090209 explaining
041018 -        treatment plan using radiation and hyperthermia for Millie to
041019 -        recover from IBC. ref SDS B1 PR4Y
041021 -         ..
041022 -    9.  On 090220 1548 reviewed BSD paper explaining hyperthermia
041023 -        treatment for recovering from cancer, ref SDS B1 GK6F,
041024 -        including hyperthermia alone...
041025 -
041026 -               hyperthermia................. ref SDS B1 004P
041028 -         ..
041029 -        In combination with....
041030 -
041031 -               radiation.................... ref SDS B1 TT6L
041032 -               chemotherapy................. ref SDS B1 0129
041033 -               biological vaccines.......... ref SDS B1 0164
041035 -         ..
041036 -   10.  On 090223 0237 Millie's letter to medical team....
041037 -
041038 -            a.  Thanks UCSF for submitting memo dated 090209 on
041039 -                planning hyperthermia treatments. ref SDS B2 T47U
041041 -                 ..
041042 -            b.  Requests work plan for radiation treatments.
041043 -                ref SDS B2 3N9J and ref SDS B2 T49U, similar to work
041044 -                plan for hyperthermia.
041046 -                 ..
041047 -            c.  Notes clinical findings that swelled lymph node in left
041048 -                supraclavicular occurred again, ref SDS B2 T48S, and
041049 -                asks if this will be radiated, and what other areas
041050 -                will be radiated. ref SDS B2 T49R
041052 -                 ..
041053 -            d.  Reports upper left arm looks worse than before
041054 -                treatment started, asks if this is expected side
041055 -                effects of radiation and hyperthermia treatment.
041056 -                ref SDS B2 T49Y
041058 -                 ..
041059 -            e.  Reports Cellulitis and lymphadema have been continuing
041060 -                problems on left arm, ref SDS B2 T44R, asks if Keflex
041061 -                should be started to prevent recurrence caused by
041062 -                treatment for IBC? ref SDS B2 T44W
041064 -                 ..
041065 -            f.  Requests picture of Millie getting hyperthermia
041066 -                treatment showing configuration of work process.
041067 -                ref SDS B2 T45S
041069 -         ..
041070 -   11.  On 090223 1428 Millie receives letter from Chris saying UCSF
041071 -        looking for radiation treatment plan. ref SDS B3 PR4Y
041073 -         ..
041074 -   12.  On 090223 1428 Millie receives file of picture showing scope of
041075 -        hyperthermia treatments at UCSF for recovering from IBC.
041076 -        ref SDS B3 GZ4H
041078 -         ..
041079 -   13.  On 090309 Millie had blood draw at Kaiser for test to support
041080 -        examination at UCSF on 090312 to evaluate response to
041081 -        treatment. ref SDS B5 S65I  Included INR test required once a
041082 -        month to verify dose of Coumadin treatments of pulmonary
041083 -        embolism. ref SDS B5 PU7Y  Blood draw flushes port catheter,
041084 -        also, required at least within 5 weeks, when patient not
041085 -        getting chemotherapy treatments, as planned during meeting at
041086 -        Kaiser on 090213. ref SDS A6 6P3F
041088 -         ..
041089 -   14.  On 090310 0351 Millie letter to medical team submits agenda for
041090 -        meeting at UCSF on 090312 0800, ref SDS B6 PR4Y, scheduled by
041091 -        Doctor Rugo on 090210 to evaluate response to treatment with
041092 -        hyperthermia and Doxil to establish local control of IBC,
041093 -        ref SDS A5 XU5N, and begin planning follow on care to treat
041094 -        cancer as chronic disease, ordered by Doctor Johnson at Kaiser
041095 -        on 090213. ref SDS A6 GD3I
041096 -
041097 -        a.  Treatment plan - Millie's invites Doctor Hsu to attend
041098 -            meeting with Breats Care Clinic on 090312 to collaborate on
041099 -            clarifying work plan for Millie to recover from IBC based
041100 -            on evaluation of response to treatment in relatino to
041101 -            original plan for 4 - 6 weeks of radiation treatment.
041102 -            ref SDS B6 O55W
041104 -             ..
041105 -        b.  Slow recovery disappointing becasue breastbone area looks
041106 -            much worse. ref SDS B6 O56X
041108 -             ..
041109 -        c.  Blood test report of labs at Kaiser on 090309 requested for
041110 -            submision to UCSF to support meeting on 090312 that
041111 -            evaluates response to treatment. ref SDS B6 O63Q
041113 -             ..
041114 -        d.  CA 15-3 blood test cancer marker diagnostic only objective
041115 -            metric on response to treatment. ref SDS B6 O63T
041116 -            Significant rise of cancer marker at Kaiser in recent
041117 -            months, and extreme differences with cancer marker at UCSF
041118 -            present challenges evaluating response to treatment.
041119 -            ref SDS B6 O63Y
041121 -             ..
041122 -        e.  Complicated diagnostic status increases requirements for
041123 -            interim assessment of response to teratment. ref SDS B6
041124 -            O64Y
041126 -             ..
041127 -        f.  Anemia seems to be recovering evidenced by labs at Kaiser
041128 -            on 090309 indicating effects of ending treatment on 090122
041129 -            with sunitinib protocol. ref SDS B6 O65R
041131 -             ..
041132 -        g.  Energy still low, but recovering shown by increased hiking
041133 -            at Lafayette reservoir.  May be able to tolerate adding
041134 -            chemotherapy with hyperthermia if needed to recover from
041135 -            IBC. ref SDS B6 O65V
041137 -             ..
041138 -        h.  Shoulder injury recovering with increased range of motion
041139 -            will be demonstrated during examination at Kaiser on 090312
041140 -            1300 in Orthopedics Department. ref SDS B6 O65Y
041142 -             ..
041143 -        i.  INR 2.2 within target range shows eliminating sunitinib
041144 -            chemotherapy treatment on 090122 has caused blood counts to
041145 -            fall back to normal continuing Coumadin treatment for
041146 -            pulminary embolism. ref SDS B6 O66R
041148 -         ..
041149 -   15.  On 090310 1142 called Kaiser to get the report for the blood
041150 -        test on 090309 in time for distribution to the medical team for
041151 -        being prepared to meet at UCSF on 090312. ref SDS B7 JH4H
041152 -        Florida checked the computer and found that CA 15-3 has not yet
041153 -        been posted to the report; she said to call back the next day
041154 -        on 090311 just before noon to arrange for getting the full
041155 -        report. ref SDS B7 QP6H
041157 -         ..
041158 -   16.  On 090310 1735 Millie received a letter from Tara suggesting
041159 -        the meeting tomorrow on 090312 0800 at UCSF be deferred because
041160 -        Doctor Rugo cannot attend, ref SDS B8 PR4Y, which was known on
041161 -        090210 when UCSF called and scheduled the meeting. ref SDS A5
041162 -        XU5N
041164 -         ..
041165 -   17.  On 090311 1047 Millie letter to primary care physician at
041166 -        Kaiser coordinates getting report for blood test on 090309 for
041167 -        meeting at Kaiser on 090312. ref SDS B9 S84F
041169 -             ..
041170 -        a.  Requests advice from primary care physician at Kaiser on
041171 -            meeting with Tara at UCSF for evaluating response to
041172 -            treatment, ref SDS B9 TE3Y, for interim assessment after 3
041173 -            weeks of treatment to assess adjusting the course of
041174 -            action. ref SDS B9 TE4R
041176 -             ..
041177 -        b.  Begin planning treatment for next relapse. ref SDS B9 TE4U
041179 -             ..
041180 -        c.  Requests analysis of UCSF letter on 090310 asking about
041181 -            deferring meeting, ref SDS B9 TE4X, and notes advantages of
041182 -            examination based on Tara's experience treating Millie,
041183 -            expertise performing examinations, and experience caring
041184 -            for patients being treated for IBC with hyperthremia.
041185 -            ref SDS B9 TE5Q
041187 -             ..
041188 -        d.  Expresses preference to have the meeting in order to
041189 -            prevent new issues from delaying treatment. ref SDS B9 TE5T
041191 -         ..
041192 -   18.  On 090311 1517 called Kaiser to get the report with CA 15-3 for
041193 -        the blood test at Kaiser on 090309, and as planned in telecon
041194 -        with Florida the day before on 090310.  Problems contacting
041195 -        someone at Kaiser to implement Kaiser's instructions required
041196 -        being on hold for an hour. ref SDS C0 6Z4F  In the afternoon,
041197 -        Millie received blood test report from Kaiser without CA 15-3
041198 -        diagnostic for evaluating response to treatment at UCSF on
041199 -        090312. ref SDS C0 1U7J
041200 -
041201 -
041202 -
041203 -
041204 -
0413 -

SUBJECTS
Agenda Meeting Scheduled 090312 UCSF Breast Care Clinic and Radiatio

2503 -
250401 -  ..
250402 - Request Guidance from Kaiser on Review at UCSF to Recover from IBC
250403 -
250404 - Follow up ref SDS B9 PR4Y, ref SDS B8 PR4Y.
250405 -
250406 - On 090204 Doctor Rugo planned to meet after hyperthermia treatment and
250407 - evaluate next steps, following up the doctor's letter the day before
250408 - on 090203 saying she hopes to continue treating Millie after
250409 - hyperthermia. ref SDS 90 L36S
250411 -  ..
250412 - On 090210 Doctor Rugo's assistant called and scheduled a meeting on
250413 - 090312 0800 with Tara, because the doctor will be traveling at that
250414 - time. ref SDS A5 XU5N
250416 -  ..
250417 - On 090309 blood test at Kaiser was performed, ref SDS B5 S65I,
250418 - previously scheduled on 090213, ref SDS A6 WY5M, to support meeting at
250419 - UCSF on 090312.
250421 -  ..
250422 - On 090310 0351 Millie submitted a letter with an agenda for meeting at
250423 - UCSF on 090912 0800 to evaluate response to treatment and consider
250424 - adjustments in order for Millie recover from IBC. ref SDS B6 O64Y
250426 -  ..
250427 - On 090310 1142 coordinated with Kaiser and resolved issues to get the
250428 - report on the blood test in time to support the meeting at UCSF on
250429 - 090312. ref SDS B7 PR4Y
250431 -  ..
250432 - Yesterday, on 090310 1735 Millie received a letter from Tara
250433 - responding to the agenda on a meeting scheduled by UCSF for tomorrow
250434 - on 090312 evaluating response to treaement, and which was submitted to
250435 - the medical team in a letter earlier on 090312 0351. ref SDS B6 PR4Y
250436 - Tara asks whether the meeting should scheduled for a month to occur on
250437 - 090312 should be be deferred until Doctor Rugo can attend. ref SDS B8
250438 - PR4Y
250440 -  ..
250441 - Earlier today on 090211 1047 Millie sent a letter to the primary care
250442 - physician at Kaiser, ref SDS B9 S84F, who made the referral to UCSF
250443 - for treatment, about whether to defer meeting, and explains purpose of
250444 - meeting to get interim analysis of resonse to treatment. ref SDS B9
250445 - TE5T
250447 -  ..
250448 - Kaiser did not have time to respond today, to Millie's request for
250449 - support working with UCSF. ref SDS B9 TE5W
250451 -  ..
250452 - As a result, Millie submitted a letter to UCSF on canceling the
250453 - meeting tomorrow and getting a new date for examination by Doctor
250454 - Rugo...
250455 -
250456 -
250457 -    1.  Subject: Deferred Meeting with Tara UCSF Scheduled March 13th 0800
250458 -        Date: Wed, 11 Mar 2009 15:35:07 -0700
250470 -         ..
250471 -    2.  First, thanks to Doctor Johnson and Arlette at Kaiser for
250472 -        expediting the blood test report to support the meeting with
250473 -        you tomorrow [on 090312, reported in the record yesterday on
250474 -        090310 1142, ref SDS B7 JH4H].  I got a copy on the way home
250475 -        from the Wellness Community meeting this morning [reported in
250476 -        the record today on 090311 1517, ref SDS C0 1U7J], implementing
250477 -        planning in the letter to Kaiser earlier this morning [on
250478 -        090311 1047, ref SDS B9 TE3P, and citing the record on 090210,
250479 -        when UCSF called to schedule the meeting on 090312, ref SDS A5
250480 -        XU5N].
250482 -         ..
250483 -    3.  Tara, per your letter yesterday on 090310 1935, ref SDS B8
250484 -        PR4Y, if you feel examination tomorrow on my progress would not
250485 -        be beneficial without Doctor Rugo, can you please reschedule to
250486 -        a time convenient for everybody.  Doctor Johnson at Kaiser
250487 -        indicated during the meeting at Kaiser on 090213 that we need
250488 -        to get the next treatment at UCSF lined up to maintain my care
250489 -        of cancer as a "chronic disease," because after 6 relapses, I
250490 -        have less time for delays, ref SDS A6 GD3I [and reported to the
250491 -        medical team in Millie's letter on 090218, ref SDS A7 TH6U].
250492 -
250493 -            [On 090312 0800 Doctor Hsu advised that 3 weeks of
250494 -            radiation and hyperthermia is a good time to review
250495 -            response to treatment. ref SDS C1 MT7J
250497 -         ..
250498 -    4.  Doctor Hsu and Chris have been terrific in Radiation Oncology.
250499 -        I wanted to get your assessment of my recovery, based on the
250500 -        meeting in January when you discussed experience caring for IBC
250501 -        patients treated with hyperthermia [reported in a letter to the
250502 -        medical team on 090130. ref SDS 66 4S8O].
250503 -
250504 -            [On 090312 0800 Tara met with Millie at UCSF, ref SDS C1
250505 -            TP9L; she clarified having very limited experience caring
250506 -            for patients with IBC who have been treated with radiation
250507 -            and hyperthermia in the UCSF Radication Oncology
250508 -            Department, ref SDS C1 SP8J; Doctor Hsu cited extensive
250509 -            experience treating IBC patients with radiation and
250510 -            hyperthermia, and advised that examination shows rising IBC
250511 -            symptoms are actually evidence of side effects from
250512 -            treatment with radiation and hyperthremia, and this
250513 -            worsening condition will get worse, but eventually recover,
250514 -            and further signals expected recovery from IBC. ref SDS C1
250515 -            F84U
250517 -         ..
250518 -    5.  Unless I hear from you, I assume the meeting is off, but will
250519 -        stop by in the morning at 0800, just in case, since I will be
250520 -        on site.  Just leave word at the front desk if you have
250521 -        canceled. In any case, I'm looking forward to our next meeting.
250522 -
250523 -            [On 090312 0800 Tara met with Millie at UCSF as previously
250524 -            scheduled on 090210. ref SDS C1 TP9L
250525 -
250526 -
250532 -
250533 -
250534 -
250535 -
250536 -
250537 -
250538 -
250539 -
2506 -