THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: September 5, 2008 11:00 AM Friday; Rod Welch

Millie 1st Neupgogen at Kaiser for 3rd cancer treatment 7th cycle UCSF

1...Summary/Objective
2...Neupogen Treatment at Kaiser Prescribed at UCSF for Clinical Trial
3...Schedule Neupogen Treatments Extended through October
4...Exercise Hiking Maintain Fitness Strengthen Immune System
5...Memeber Services Notify about Radiology Assigning Nurse to CT Dep


..............
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CONTACTS 

SUBJECTS
Neupogen Side Effects Bone Pain Fatigue No Headache Suffered Today A

1503 -
1503 -    ..
1504 - Summary/Objective
1505 -
150501 - Follow up ref SDS 68 0000. ref SDS 66 0000.
150502 -
150503 -
150504 -
150505 -
150506 -
150508 -  ..
1506 -
1507 -
1508 - Progress
1509 -
150901 - Neupogen Treatment at Kaiser Prescribed at UCSF for Clinical Trial
150902 -
150903 - Follow up ref SDS 68 9W9I, ref SDS 66 9W9I.
150904 -
150905 - Background on missing treatment at UCSF due to low blood counts, and
150906 - requirements for Neupogen are reported in the record on 080821.
150907 - ref SDS 60 ON5M   Case study on neutropenia reported in the record for
150908 - 080828 shows continuing need for Neupogen. ref SDS 65 8O7I
150910 -  ..
150911 - On 080829 Cisi scheduled Millie's treatment today for 1100.
150912 - ref SDS 66 453L
150914 -  ..
150915 - Florida was Millie's nurse today.  She gave Millie 2 injections
150916 - required for Neupogen treatment for UCSF prescription, and
150917 - implementing Kaiser protocols discussed on 080801 ref SDS 53 9W9I, and
150918 - originally presented by Laura on 080628. ref SDS 38 Q74G
150919 -
150920 -
150921 -
150922 -
1510 -

SUBJECTS
Default Null Subject Account for Blank Record

1603 -
160401 -  ..
160402 - Schedule Neupogen Treatments Extended through October
160403 -
160404 - Follow up ref SDS 68 WJ4O, ref SDS 66 WJ4O.
160405 -
160406 - Millie needs updated schedule from 080823, ref SDS 63 D28I, to include
160407 - October. which Laura planned to enter after Millie's treatment last
160408 - Saturday on 080830. ref SDS 68 WJ4O
160410 -  ..
160411 - The schedule Millie received from Kaiser today shows...
160412 -
160413 -                                                        UCSF Chemo
160414 -        Date    Time   Provider         Services      Cycle Treatmnt
160415 -        080905  1100   Infusion Nurse   Neupogen        7     3
160416 -        080906  0900   Infusion Nurse   Neupogen        7     3
160417 -         ..
160418 -   *1   080912  0930   Infusion Nurse   Neupogen        7     4
160419 -        080913  0900   Infusion Nurse   Neupogen        7     4
160420 -        080919  0830   Infusion Nurse   Neupogen        8     1
160421 -        080920  0900   Infusion Nurse   Neupogen        8     1
160422 -        080926  0830   Infusion Nurse   Neupogen        8     2
160423 -        080927  0900   Infusion Nurse   Neupogen        8     2
160424 -        081003  1400   Infusion Nurse   Neupogen        8     3
160425 -        081004  0900   Infusion Nurse   Neupogen        8     3
160426 -        081010  0830   Infusion Nurse   Neupogen        8     4
160427 -        081011  0900   Infusion Nurse   Neupogen        8     4
160428 -        081017  0830   Infusion Nurse   Neupogen        9     1
160429 -        081018  0900   Infusion Nurse   Neupogen        9     1
160430 -         ..
160431 -   *2   081024  1230   Infusion Nurse   Neupogen        9     2
160432 -        081025  0900   Infusion Nurse   Neupogen        9     2
160434 -  ..
160435 - * Comments
160436 -
160437 -        1.  Treatments for Neupogen on Friday are scheduled at 0830 and
160438 -            0900. ref SDS 0 6E8N  This may not align with UCSF protocol
160439 -            for Neupogen treatment 24 hours after Carboplatin
160440 -            chemotherapy, presented by the doctor on 080821.
160441 -            ref SDS 60 4B4L, which Millie gets on Thursday about 1100,
160442 -            and completes about 1130, as shown in the schedule at UCSF
160443 -            yesterday. ref SDS 70 HG57
160444 -
160445 -               [On 080913 Kaiser changed the schedule for Neupogen
160446 -               treatments to the afternoons on Fridays. ref SDS 72 WJ4O
160448 -             ..
160449 -        2.  Treatment on 081024 1230, ref SDS 0 6E4G reflects Millie's
160450 -            meeting with the doctor at 1140.
160451 -
160452 -
160453 -
160454 -
1605 -

SUBJECTS
Default Null Subject Account for Blank Record

1703 -
170401 -  ..
170402 - Exercise Hiking Maintain Fitness Strengthen Immune System
170403 -
170404 - Follow up ref SDS 68 3E4K, ref SDS 66 3E4K.
170405 -
170406 - Millie hiked only 1 lap at the Reservoir today because she had a made
170407 - plans to go shopping with Janna.
170408 -
170409 -
170410 -
1705 -

SUBJECTS
Default Null Subject Account for Blank Record

1803 -
180401 -  ..
180402 - Memeber Services Notify about Radiology Assigning Nurse to CT Dep
180403 -
180404 - Paula was in the Infusion Clinic today, while Millie was getting
180405 - Neupogen treatment.  Paula visited for few minutes to discuss Millie's
180406 - next CT test.
180408 -  ..
180409 - Paula received a copy of Millie's letter to Kaiser submitted on
180410 - 080903, reporting Millie is now scheduled to get a test on 080911 at
180411 - the Kaiser CT Department in Oakland. ref SDS 69 BK5N  Paula was
180412 - pleased that planning on 080811 has been implemented, ref SDS 59 L465,
180413 - and her warning was heeded last week on 080829 that 8 weeks after
180414 - failure on 080718, ref SDS 48 LK3R, the CT Department at Kaiser in
180415 - Walnut Creek is still not ready to perform tests using Power Port and
180416 - Huber needle technology for injecting contrast medium.  Millie's
180417 - doctor approved transferring the test to Oakland, and Arlette placed
180418 - the order again on 080822, ref SDS 62 N66E, but on 080826 Millie was
180419 - notified that Oakland sent it back to Walnut Creek. ref SDS 64 VU64
180420 - After hearing Paula's comments on 080829, Millie's doctor transferred
180421 - the test back to the Oakland CT Department, noted in Millie's letter
180422 - to medical team on 080829. ref SDS 67 RP7S
180424 -  ..
180425 - Paula indicated that Millie's case is well known by Kaiser management;
180426 - she feels the record showing difficulties making arrangements and
180427 - performing Millie's CT test on 080718 provides guidance for upgrading
180428 - the CT Department in Walnut Creek to use Power Ports for injecting
180429 - contrast medium.  This aligns with Lisa's call on 080826 reporting
180430 - that the case was elevated to management above the department level.
180431 - ref SDS 64 HT6X
180433 -  ..
180434 - Paula seemed to relate having discussed Millie's case with the head of
180435 - Radiology during a staff meeting today.  She got the impression that
180436 - Radiology is working on solving problems using the Power Port for
180437 - injecting contrast medium for tests in the CT Department at Walnut
180438 - Creek.  Paula feels the law requires a doctor or other qualified
180439 - medical professional to connect the CT test equipment to the Power
180440 - Port that injects contrast medium into a central artery, which she
180441 - noted previously on 080829. ref SDS 67 OA9M  Paula noted that this
180442 - requirement can be accomplished by assigning a qualified nurse from
180443 - Interventional Radiology to the CT Department.
180445 -  ..
180446 - Paula asked that Millie file a complaint with Member Services asking
180447 - that Interventional Radiology assign a nurse to the CT Department who
180448 - can support using Huber needle with Power Port technology for power
180449 - injection of contrast medium.  She feels this would add energy to
180450 - efforts in the Radiology Department to upgrade services.
180451 -
180452 -            [On 080917 Millie did not file complaint; instead the
180453 -            primary care physician submitted the record of Millie's
180454 -            successful CT test using the Power Port at Oakland, and
180455 -            made a referral to the Walnut Creek Radiology Department
180456 -            for Millie's next CT test on 081113 in Walnut Creek using
180457 -            procedures that were successful in Oakland. ref SDS 73 SG4X
180459 -             ..
180460 -            [On 081017 Paula reports further discussion with Kaiser
180461 -            management making progress on arrangements for Millie's
180462 -            next CT test on 081113 at Kaiser in Walunt Creek using
180463 -            procedures for injecting contrast medium with Power Port
180464 -            technology that was done successfully at Oakland.
180465 -            ref SDS 74 707L
180467 -             ..
180468 -            [On 081017 Kaiser in Walnut Creek investigating how Kaiser
180469 -            in Oakland handled laws about accessing a central venous
180470 -            artery with CT test equipment using a Power Port,
180471 -            ref SDS 74 8Y4N, and seemed to indicate that if legal
180472 -            issues are resolved, and the Power Port is accessed by
180473 -            qualified nurses in the Infusion Clinic, then support from
180474 -            the Power Port manufacturer is not needed. ref SDS 74 035K
180476 -  ..
180477 - Seems like there should be at least 3 or 4 such personnel, since
180478 - people go on vacation, get sick, have emergencies, quit, etc.  On
180479 - 080711 Ike said the CT Department has 3 doctors who are certified to
180480 - support Power Port and Huber needle devices for injecting contrast
180481 - medium required to perform CT tests; but, at that time Ike indicated
180482 - that not even one could be scheduled for Millie's CT test a week later
180483 - on 080718. ref SDS 43 RG9M
180485 -  ..
180486 - Paula noted today that the CT Department at Kaiser in Walnut Creek
180487 - arranged for nursing support of Millie's test on 080718 from
180488 - Interventionary Radiology. ref SDS 48 2U8V  This assignement was made
180489 - again in a call Millie received from the CT Department on 080826 to
180490 - schedule Millie's next CT test. ref SDS 64 HT6X
180492 -  ..
180493 - Paula said that Interventional Radiology was assigned to assist the CT
180494 - Department with Millie's tests because the patient was proactive
180495 - coordinating the work to use Power Port and Huber needle devices for
180496 - injecting contrast medium.  She feels other patients do not coordinate
180497 - work plans, and so suffer continuing problems like Millie experienced
180498 - on 080425. ref SDS 22 FP6F
180500 -  ..
180501 - We reviewed problems using Interventional Radiology for Millie's CT
180502 - test on 080718. ref SDS 48 LK3R  Even though the work was performed by
180503 - a highly qualified nurse with a master's degree, ref SDS 48 2U8V, the
180504 - lack of regular, daily experience accessing the Power Port with a
180505 - Huber needle, and converting units of measure to set the flow rate for
180506 - injection, resulted in failure. ref SDS 48 7M6F
180507 -
180508 -            [On 080911 Millie had the CT test at Kaiser in Oakland;
180509 -            using the Power Port was successful for injecting contrast
180510 -            medium, ref SDS 71 LK3R, because the manufacturer, Bard,
180511 -            sent a representative to the CT Department for guidance on
180512 -            using Power Port technology correctly, ref SDS 71 JG43;
180513 -            this helped the CT technologist avoid 5 possible problems,
180514 -            ref SDS 71 SF5J, which caused failure of the previous test
180515 -            at Kaiser in Walnut Creek on 080718. ref SDS 48 LK3R  Nora
180517 -  ..
180518 - Paula feels these problems can be solved at Kaiser in Walnut Creek
180519 - using the procedure at Kaiser in Oakland, where Millie was initially
180520 - directed to visit the Infusion Clinic for accessing the Power Port
180521 - with a Huber needle, then go to the CT Department for the test, as
180522 - related in Millie's letter to Kaiser on 080903. ref SDS 69 IO4X  She
180523 - seemed to indicate that the nurse from Interventionary Radiology
180524 - provides qualified supervision and backup for accessing a central
180525 - artery, noted by Ike in discussions with the CT Department in Walnut
180526 - Creek on 080711. ref SDS 43 RG9O
180528 -             ..
180529 -            [On 080917 Millie's primary care physician submitted a
180530 -            referral to the Walnut Creek Radiology Department for
180531 -            Millie's next CT test on 081113 in Walnut Creek, rather
180532 -            than Oakland. ref SDS 73 SG4X
180534 -             ..
180535 -            [On 081017 Kaiser in Walnut Creek investigating how Kaiser
180536 -            in Oakland handled laws about accessing a central venous
180537 -            artery with CT test equipment using a Power Port,
180538 -            ref SDS 74 8Y4N, and seemed to indicate that if legal
180539 -            issues are resolved, and the Power Port is accessed by
180540 -            qualified nurses in the Infusion Clinic, then support from
180541 -            the Power Port manufacturer is not needed. ref SDS 74 035K
180542 -
180543 -
180544 -
180545 -
180546 -
180547 -
180548 -
180549 -
180550 -
1806 -