THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: January 9, 2007 09:43 AM Tuesday; Rod Welch

Letter requests Kaiser notify UCSF examination shows IBC spreading.

1...Summary/Objective
2...Kaiser Notify UCSF Measurable Disease IBC Spreading
3...UCSF Clinical Drug Trial Meeting Schedule Start Treatment
4...Kaiser Asked UCSF About Scheduling Meeting with Millie
5...Patient Requests Text of Kaiser's Letter to UCSF and CA 15-3 Results


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CONTACTS 

SUBJECTS
Kaiser Notify UCSF Measurable Disease Observed Examination 070105 IB

2203 -
2203 -    ..
2204 - Summary/Objective
2205 -
220501 - Follow up ref SDS 60 0000. ref SDS 58 0000.
220502 -
220503 -
220504 -
220505 -
220506 -
220508 -  ..
2206 -
2207 -
2208 - Progress
2209 -
220901 - Kaiser Notify UCSF Measurable Disease IBC Spreading
220902 - UCSF Clinical Drug Trial Meeting Schedule Start Treatment
220903 -
220904 - Follow up ref SDS 58 086H, ref SDS 57 086H.
220905 -
220906 - Background on Kaiser collaborating with UCSF on drug trials for Millie
220907 - is reported on 061228. ref SDS 56 086H  On 070101 Millie received
220908 - ref DRP 10 0001 from the primary care physician transmitting language
220909 - from a letter Kaiser received from UCSF that follows up Kaiser's
220910 - letter dated 061229, ref DRP 9 0001, answering questions UCSF
220911 - submitted on qualifying Millie for treatment under clinical studies at
220912 - UCSF, and reviewed in the record on 061230. ref SDS 57 PN5X
220914 -  ..
220915 - UCSF correspondence received on 070101 notified Kaiser that
220916 - "measurable disease" is required for Millie to qualify for clinical
220917 - study of drug trial. ref SDS 58 E23S  On 070105 the doctor recommended
220918 - that Millie approve treatment with the proposed UCSF drug trial
220919 - because it is targeted to treat breast cancer, and IBC, rather than a
220920 - generic cancer treatment, like Navelbine, and Gemzar, which Kaiser
220921 - otherwise has available for Millie's next treatment.  Additionally, at
220922 - that time on 070105, the doctor observed during clinical examination
220923 - that IBC disease has spread from the left to the right breast,
220924 - demonstrating measurable disease.  As a result, Millie asked the
220925 - doctor to notify UCSF the measurable disease was observed.
220927 -  ..
220928 - Millie submitted ref DIT 1 0001 to the primary care physician at
220929 - Kaiser confirming request for Kaiser to notify UCSF of measurable
220930 - disease, and following up the doctor's letter, ref DRP 10 0001, dated
220931 - 061231 and received on 070101. ref SDS 58 519M
220933 -  ..
220934 - Millie's letter says to Kaiser...
220935 -
220936 -    1.  Thanks for submitting the record of our meeting on January 5th.
220937 -        ref DIT 1 0001
220939 -         ..
220940 -    2.  Have you heard from UCSF on Doctor Rugo meeting with me?  I
220941 -        have not been contacted. ref DIT 1 J257
220943 -         ..
220944 -    3.  If we don't hear from Doctor Rugo today, then tomorrow I want
220945 -        Kaiser to send a letter notifying UCSF that examination on
220946 -        January 5, 2007, showed IBC disease is spreading from the left
220947 -        to the right breast; that Kaiser is deferring treatment in
220948 -        order for me to qualify for UCSF drug trials, which offer a
220949 -        better chance of arresting growth of disease "targeted" to
220950 -        breast cancer, and IBC, rather than generic chemotherapy with
220951 -        Navelbine and Gemzar, all as you explained on Friday.
220952 -        ref DIT 1 J25O
220954 -  ..
220955 - Measurable disease case study reported on 070101 shows Millie meets
220956 - this requirement based on best evidence available. ref SDS 58 E23W
220957 -
220958 -            [On 070110 Kasier's letter to UCSF on 070108 and received
220959 -            in the record on 070110 fails to perform scope planned to
220960 -            assist UCSF evaluate measurable disease. ref SDS 61 NN6I
220962 -             ..
220963 -            [On 070116 Millie received consent forms on the Cetuximab
220964 -            and Carboplatin clinical study; UCSF proposes she start
220965 -            treatment on 070124; agreement to this protocol rests on
220966 -            understandings from the meeting at Kaiser on 070105.
220967 -            ref SDS 62 I65I
220969 -  ..
220970 - Millie's letter says to Kaiser continues...
220971 -
220972 -    4.  Please mention I am anxious to start treatment, and would like
220973 -        to know when this will occur. ref DIT 1 J26N
220975 -         ..
220976 -    5.  Please submit a copy to me of your letter to UCSF, and also
220977 -        submit the CA 15-3 test results from 070104. ref DIT 1 J27I
220978 -
220979 -           [On 070110 CA 15-3 56 cancer marker drops dramatically
220980 -           significant improvement aligns with IBC rash intensity
220981 -           subsiding; continuing erratic changes. ref SDS 61 087J
220983 -            ..
220984 -           [On 070116 Jackie called to begin scheduling meeting with
220985 -           Doctor Rugo at UCSF. ref SDS 62 NK8F
220987 -            ..
220988 -           [On 070117 Millie notifies Kaiser that UCSF schedule
220989 -           treatment to start in a week; thanks primary care physician
220990 -           for pushing the case forward. ref SDS 63 638H
220992 -            ..
220993 -           [On 070119 treatment delayed because Kaiser authorization
220994 -           not submitted to UCSF; rescheduled to 070123 or 070124.
220995 -           ref SDS 64 AS5H
220997 -            ..
220998 -           [On 070123 treatment delayed because Kaiser authorization
220999 -           not submitted to UCSF. ref SDS 65 J94O
221001 -            ..
221002 -           [On 071023 CA 15-3 68 rises again to near recent high.
221003 -           ref SDS 65 GK5B
221005 -            ..
221006 -           [On 070123 Millie requests that Kaiser expedite authoriztion
221007 -           for treatment prescribed by doctor, ref SDS 66 YF8U, cites
221008 -           rising CA 15-3 increases urgency to treat advancing disease.
221009 -           ref SDS 65 SX5W
221010 -
221011 -
221012 -
221013 -
221014 -
221015 -
221016 -
221017 -
2211 -

SUBJECTS
Kaiser Reports Progress Schedule Meeting Patient with Doctor UCSF Sc

4503 -
4504 - 1128
450501 -  ..
450502 - Kaiser Asked UCSF About Scheduling Meeting with Millie
450503 -
450504 - Millie received  ref DRT 1 0001 from the primary care physician
450505 - responding to her letter this morning, ref DIT 1 0001, submitted as
450506 - shown above. ref SDS 0 WZ4L
450508 -  ..
450509 - Doctor says to Millie...
450510 -
450511 -        I emailed her yesterday and am awaiting a reply.  She may just
450512 -        contact you directly. ref DRT 1 0001
450513 -
450514 -            [On 070110 Kasier's letter to UCSF on 070108 and received
450515 -            in the record on 070110 fails to perform scope planned to
450516 -            assist UCSF evaluate measurable disease. ref SDS 61 9R3K
450517 -
450518 -
450519 -
450520 -
450521 -
4506 -

SUBJECTS
Patient Requests Kaiser Submit Text of Letter to UCSF on 070109 Requ

7203 -
7204 - 1143
720501 -  ..
720502 - Patient Requests Text of Kaiser's Letter to UCSF and CA 15-3 Results
720503 -
720504 - Millie submitted ref DIT 2 0001 responding to the letter from the
720505 - doctor, ref DIT 2 0001, and received earlier today, per above.
720506 - ref SDS 0 227N
720508 -  ..
720509 - Millie says to the doctor...
720510 -
720511 -    1.  Thanks very much for sending a letter to Doctor Rugo yesterday,
720512 -        as noted in your letter to me this morning, shown below.  When
720513 -        time permits, please submit the text of your letter to UCSF
720514 -        yesterday, so I am aware of communications on my case.
720515 -        ref DIT 2 0001
720517 -  ..
720518 - This implements procedures developed on 061227 for Kaiser to submit
720519 - the record of patient history on communications. ref SDS 55 KO3P
720520 -
720521 -            [On 070110 Kasier's letter to UCSF on 070108 and received
720522 -            in the record on 070110 fails to perform scope planned to
720523 -            assist UCSF evaluate measurable disease. ref SDS 61 9R3K
720525 -  ..
720526 - Millie says to the doctor continues...
720527 -
720528 -    2.  Please further submit results for the CA 15-3 test on 070104,
720529 -        which were not available during the meeting last Friday on
720530 -        070105, but may be posted now. ref DIT 2 1S6G
720532 -  ..
720533 - On 061227 CA 15-7 increased 10 points to 74. ref SDS 55 6P9F
720534 -
720535 -            [On 070110 CA 15-3 56 cancer marker drops dramatically
720536 -            significant improvement aligns with IBC rash intensity
720537 -            subsiding; continuing erratic changes. ref SDS 61 087J
720538 -
720539 -
720540 -
720541 -
720542 -
720543 -
720544 -
720545 -
720546 -
7206 -