CONTACTS
SUBJECTS
Biopsy Breast Redness Invariably Reports No Cancer Found Therefore F
Biopsy Taken Redness Left Breast Examined by Surgeon Schedule Meetin
Masectory Treatment Prescribed Diagnose Skin Cancer Breast from Biop
Breast Cancer in the Skin Diagnosed from Biopsy Taken on 040419
Biopsy Redness Left Breast Examined by Surgeon Schedule Meeting to D
Surgery after Chemotherapy Meeting with Primary Care Physician in On
Chemotherapy Prescribed for IBC by Primary Care Physician in Oncolog
1909 -
1909 - ..
1910 - Summary/Objective
1911 -
191101 - Follow up ref SDS 15 0000. ref SDS 13 0000.
191102 -
191103 -
191104 -
191105 -
191106 -
191108 - ..
1912 -
1913 -
1914 - Discussion
1915 -
191501 - Biopsy Indicates Inflammatory Breast Cancer Check List for Treatment
191502 - Lesson Learned Timely Biopsy for Early Treatment Avoids Complications
191503 -
191504 - The doctor came into the chemotherapy clinic today, while Millie was
191505 - getting infusion connected to drip treatment IVs. This is the first
191506 - time in 3 years Doctor Johnson has visited Millie in the Infusion
191507 - Clinic. Today, he knelt down in front of Millie, reached out and put
191508 - his hands on the arm rests, presenting a very moving moment staring up
191509 - into her eyes as he spoke.
191511 - ..
191512 - The doctor initially said that the surgeon called him and reported
191513 - telling Millie during a meeting at Kaiser last week on 040429.
191514 - ref SDS 16 F66N, about results of the biopsy, which Millie requested
191515 - during surgery on 040419, because Doctor Johnson had refused to
191516 - diagnose rising inflammation in the left breast over the past year or
191517 - so. ref SDS 12 1572
191519 - ..
191520 - The doctor apologized for not calling Millie with results of the
191521 - biopsy 2 weeks ago. He related a hectic schedule being out of the
191522 - office all last week, attending a professional event on quality care,
191523 - and so could not call Millie to explain this sudden unfortunate turn
191524 - of events.
191526 - ..
191527 - The doctor said he was awfully sorry about mistakes delaying treatment
191528 - for Millie's recurrent cancer, because the biopsy performed on 040419,
191529 - was not ordered last year, when requested by Millie. He said that
191530 - Kaiser will do everything possible to fix this.
191531 -
191532 - [On 090609 0900 Doctor Hsu reported UCSF made the same mistake,
191533 - causing Doctor Rugo to delay Millie's treatment for cancer,
191534 - which was misdiagnosed as "reaction to radiation. ref SDS 23
191535 - 4C4M
191537 - ..
191538 - The doctor explained Kaiser standard of care to order a biopsy test
191539 - for breast cancer, when there is recurring redness (i.e.,
191540 - inflammation), as observed by the doctor on 030109, ref SDS 2 KW5F,
191541 - when at that time the doctor submitted a PET scan test which reported
191542 - the 3 symptoms of IBC, ref SDS 2 L66M, and which was reported again on
191543 - 030606, ref SDS 5 7C6W, noted in the CT test reviewed at Kaiser on
191544 - 030710, ref SDS 6 7C6W, and observed recently during examination on
191545 - 040318, and all treated for Cellulitus, ref SDS 7 IM6J, and then again
191546 - on 040402, but given a different classification of "normal side
191547 - effect" from radiation treatment given 14 months ago, ref SDS 9 HS56,
191548 - and examined again on 040416. ref SDS 11 IM6J The doctor said he
191549 - always follows standard of care and invariably pathology reports on
191550 - biopsies of breast redness have come back showing no cancer found.
191551 - So, this time a biopsy was not ordered, which saves money doing an
191552 - extra procedure.
191554 - ..
191555 - As a result of delaying biopsy from 030109, and from 030606, when
191556 - Millie expressly requested testing for cancer, ref SDS 5 P97J,
191557 - treatment to recover from advancing cancer was delayed for over a year
191558 - (he used an acronym like IFB or maybe IFD) in this case, because
191559 - discovery was delayed for over a year from 030109, until the biopsy
191560 - was performed by the surgeon on 040419. ref SDS 12 1572
191562 - ..
191563 - The doctor feels these findings are unexpected and disappointing.
191564 -
191565 - Unexpected findings were reported previously by Kathleen's
191566 - oncologist two (2) years ago, after she died in the kitchen
191567 - spitting up blood and choking to death while washing dishes with
191568 - mother. ref SDS 1 0001
191570 - ..
191571 - Requirements for biopsy may suggest an area of review for improvement.
191572 -
191573 - [On 081202 Doctor Daamen commended investigating pathology
191574 - on biopsy to evaluate status change that could increase
191575 - treatment options; required 50 tasks over 2 months that
191576 - yielded negative results. ref SDS 22 4P5H
191578 - ..
191579 - On 030508 the patient requested a biopsy which was not approved to
191580 - evaluate a growing lump under the left arm causing discomfort, also,
191581 - on the same side as cancer in the left breast, and which was
191582 - periodically inflammed with a red rash. ref SDS 4 7C98 On 040227 a
191583 - biopsy was ordered for lumps in the neck, again, on the same side of
191584 - cancer in the left breast, and it disovered cancer, similar to the
191585 - report on 04429 that a biopsy on the left breast shows cancer, as
191586 - reported by the doctor today. Why timely biopsy and treatment is
191587 - needed in one case and not another is not clear in the record.
191589 - ..
191590 - [On 040517 the pathology report on the biopsy diagnoses
191591 - metastatic Carcinoma involving dermal lymphmatics consistent
191592 - with inflammatory carcinoma of the breast. ref SDS 18 7D6F
191594 - ..
191595 - [On 040517 research showed that a biopsy is common practice for
191596 - diagnosing redness (inflammation) of the breast after several
191597 - weeks of non-response to treatment with antibiotics.
191598 - ref SDS 18 WM8K
191600 - ..
191601 - The doctor noted that treatment is unchanged by findings of new
191602 - cancer, because chemotherapy is needed for a period of 4 - 6 months to
191603 - reduce inflammation in the breast in order to have surgery. He will
191604 - consult with the surgeon on when to perform a masectomy to treat the
191605 - new condition, per meeting with the surgeon on 040429. ref SDS 16 SD7F
191606 -
191607 - [On 040517 research indicates surgery after chemotherapy
191608 - standard treatment for IBC. ref SDS 18 JK8L
191610 - ..
191611 - [On 040517 Tumor Board minutes discuss planning for surgery,
191612 - and possibly further radiation. ref SDS 18 F77M
191614 - ..
191615 - [On 040614 the doctor described dilemma patient faces difficult
191616 - decision on having surgery or staying on Avastin trial; needs
191617 - more data, and PET scan tests not approved. ref SDS 19 ER9I
191619 - ..
191620 - [On 040812 the doctor indicated surgery may not be an
191621 - appropriate treatment for IBC in Millie's case, further
191622 - compounding dilimma presented to the patient on 040614.
191623 - ref SDS 20 T75L
191625 - ..
191626 - [On 041210 doctor proposes surgery to treat IBC; case study
191627 - reviews history considering surgery for Millie. ref SDS 21 ZV5J
191629 - ..
191630 - The doctor further said that findings of new cancer from the biopsy
191631 - reported on 040429 will not be submitted to the Tumor Board. The
191632 - basis for withholding diagnostic information on patient pathology was
191633 - not explained. This can be clarified when Millie meets with the
191634 - doctor later this month.
191635 -
191636 - [On 040517 the pathology report on the biopsy diagnoses
191637 - metastatic Carcinoma involving dermal lymphmatics consistent
191638 - with inflammatory carcinoma of the breast. ref SDS 18 7D6F
191640 - ..
191641 - [On 040517 research indicates inflammatory breast cancer is a
191642 - very rare and serious form of cancer. ref SDS 18 TO7L
191644 - ..
191645 - [On 040517 Tumor Board did not consider IBC in the review of
191646 - patient's condition and recommendations. ref SDS 18 4R59
191648 - ..
191649 - [On 040614 Doctor Johnson proposed not asking the Tumor Board
191650 - to revise findings and recommendations based on evidence
191651 - available prior to the hearing on 040419, but not submitted,
191652 - and then confirmed by a new diagnosis of IBC, until after a few
191653 - months to assess response to treatment on the Avastin and Taxol
191654 - chemothrapy trial protocol. ref SDS 19 4R59
191655 -
191656 -
191657 -
191658 -
191659 -
191660 -
1917 -
SUBJECTS
Chemotherapy Taxol Avastin Bevacizamub VEGF Treatments 1st Cycle 3rd
2003 -
200401 - ..
200402 - Chemotherapy Taxol and Avastin Treatment Today
200403 -
200404 - Today, Millie gets both Taxol and Avastin since this is the 3rd
200405 - treatment in the 1st cycle.
200407 - ..
200408 - Kaiser was about 30 minutes late today, due to a heavy patient
200409 - schedule. So treatment began at 1315, by the time Millie was hooked
200410 - up.
200412 - ..
200413 - Bonnie is the nurse today.
200415 - ..
200416 - Bonnie did a good job connecting tubing equipment for infusion to the
200417 - port catheter.
200419 - ..
200420 - Millie asked about the blood test results?
200422 - ..
200423 - Rosalie said the white cell count and other criteria are good today.
200425 - ..
200426 - Bonnie later submitted the report.
200428 - ..
200429 - The nurse administered compazine for nausea, as was done last week.
200431 - ..
200432 - Treatments begin with tagimint and dexatron for prevention of allergic
200433 - reaction.
200435 - ..
200436 - Benedrill was administered again for allergic reaction.
200437 -
200438 - It has a side effect of making the patient sleepy, reported on
200439 - 040427, ref SDS 15 Q675, and Millie was able to sleep for awhile
200440 - during the treatment today.
200441 -
200443 - ..
2005 -
2006 -
2007 - 1356
2008 -
200801 - Bonnie went to lunch, and Kathy filled in.
200802 -
200803 - Taxol is started.
200805 - ..
200806 - Millie is hooked up again for continuous blood pressure tests, about
200807 - every 15 minutes. Like last week, they are taking Millie's
200808 - temperature every 15 minutes, but Millie was asked to do this, as she
200809 - was last week.
200811 - ..
200812 - Kathy explained that every 15 minutes the patient, and in this case
200813 - the patient's helper, can press the Start button when the beep sounds.
200814 - Kathy wrote down some information on a form that is on one of the
200815 - small table-arms which extend from both sides of the patient chair.
200816 -
200817 -
200819 - ..
2009 -
2010 -
2011 - 1454
2012 -
201201 - Bonnie is back from lunch.
201202 -
201203 - Taxol completed.
201205 - ..
201206 - Avastin treatment begun.
201207 -
201209 - ..
2013 -
2014 -
2015 - 1606
2016 -
201601 - Treatment ends.
201602 -
201603 - Got home about 1635.
201605 - ..
201606 -
201607 -
201608 -
201609 -
201610 -
2017 -
SUBJECTS
Tired Wobbly on Feet after Treatment In Asleep by 1900
2103 -
2104 - 1621
210501 - ..
210502 - Tired and Wobbly Today After Treatments
210503 -
210504 - Follow up ref SDS 15 F54N.
210505 -
210506 - When we got home, Millie was tired and so laid down for a nap. She
210507 - slept until about 1835; then she was up and had some dinner. Mil ate
210508 - for about 20 minutes, then laid down. Reminded her to take the eye
210509 - drops that have been prescribed, so she got up and did that, and then
210510 - went to bed.
210511 -
210512 -
210513 -
210514 -
210515 -
2106 -