THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: April 8, 2009 11:13 AM Wednesday; Rod Welch

Millie letter confirms UCSF schedules meeting Apr 23rd on treatment plan.

1...Summary/Objective
2...Schedule Meeting UCSF 090423 0830 Treatment Plan 8th Relapse IBC
3...Bumps Vertical Line about 2" Left Right Breast Possible IBC


..............
Click here to comment!

CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS D2 0000. ref SDS D1 0000.
040502 -
040503 -
040504 -
040505 -
040507 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - The letter today follows up patient history...
040902 -
040903 -        1.  Examination at Kaiser found significant
040904 -            recovery with sunitinib protocol
040905 -            at UCSF........................... 081219, ref SDS 44 QW5J
040907 -             ..
040908 -        2.  Primary care physician calls about
040909 -            Millie's fall and treatment in ER for
040910 -            separated shoulder the day before on
040911 -            090122; advises review of patient history
040912 -            requested in ER release instructions
040913 -            shows Millie does not need
040914 -            treatment for high
040915 -            blood pressure.................... 090123, ref SDS 56 ZI5I
040917 -             ..
040918 -        3.  Doctor Johnson indicated during call
040919 -            that Millie's patient history of CT
040920 -            tests over the past 7 years shows no
040921 -            evidence of distant metastasis, except
040922 -            in the axilla and supraclavicular
040923 -            regions, which are symptoms of IBC;
040924 -            at this time, shows IBC is
040925 -            only problem to
040926 -            solve............................. 090123, ref SDS 56 8K6K
040928 -             ..
040929 -        4.  Primary care physician cites Millie's
040930 -            blood test on 090116 shows cancer marker
040931 -            CA 15-3 303 rising to historic highs
040932 -            signals severe relapse of IBC for
040933 -            6th time; Millie needs immediate
040934 -            treatment at UCSF for her
040935 -            cancer as chronic
040936 -            disease........................... 090123, ref SDS 56 RK6O
040938 -             ..
040939 -        5.  Sudden reversal with severe relapse
040940 -            of IBC that requires immediate
040941 -            change of treatment reported
040942 -            from examination at
040943 -            UCSF.............................. 090130, ref SDS 59 4S8O
040945 -             ..
040946 -        6.  Doctor Rugo prescribes immediate
040947 -            treatment at UCSF in radiation
040948 -            oncology department for
040949 -            7th relapse....................... 090130, ref SDS 59 TZ6H
040951 -             ..
040952 -        7.  Urgent treatment was delayed a week
040953 -            due to communication problems
040954 -            at UCSF........................... 090130, ref SDS 59 AY8Q
040956 -             ..
040957 -        8.  Approval for Kaiser referral to UCSF
040958 -            was delayed by documentation
040959 -            errors............................ 090202, ref SDS 61 SP6H
040961 -             ..
040962 -        9.  Kaiser expedites referral authorization
040963 -            in order for UCSF to provide urgent
040964 -            treatment quickly enough for
040965 -            Millie to recover................. 090202, ref SDS 60 LC7H
040967 -             ..
040968 -       10.  UCSF proposes 3-week delay to begin
040969 -            planning Millie's treatment for
040970 -            recovering from 6th relapse of
040971 -            of IBC............................ 090202, ref SDS 61 SP7M
040973 -             ..
040974 -       11.  Doctor Rugo notifies medical team
040975 -            Millie needs urgent treatment quickly
040976 -            in time to be effective recovering
040977 -            from 6th relapse of
040978 -            IBC............................... 090202, ref SDS 62 Y15J
040980 -             ..
040981 -       12.  Millie's letter to UCSF implements Doctor
040982 -            Johnson's requests for UCSF strategy
040983 -            to treat Millie's cancer as a
040984 -            chronic disease................... 090203, ref SDS 63 278T
040986 -             ..
040987 -       13.  Doctor Rugo's letter explains planning
040988 -            to evaluate response to hyperthermia
040989 -            treatment and arrange continuing
040990 -            care based on another
040991 -            CT scan........................... 090204, ref SDS 65 278T
040993 -             ..
040994 -       14.  UCSF advances Millie's care in Radiation
040995 -            Oncology Department 3 weeks; scope of
040996 -            radiation and hyperthermia evaluated
040997 -            by Dcotor Hsu and Doctor
040998 -            Chang............................. 090205. ref SDS 67 0001
041000 -             ..
041001 -       15.  CT and xray tests taken, and layout
041002 -            of treatment fields performed to
041003 -            build molds for Millie's
041004 -            radiation......................... 090209. ref SDS 72 9R61
041006 -             ..
041007 -       16.  Examination primary care physician
041008 -            at Kaiser finds severe progression
041009 -            of IBC in 6th
041010 -            relapse........................... 090213, ref SDS 74 4W5I
041012 -             ..
041013 -       17.  Millie lucky to survive stage IV cancer
041014 -            for 8 years because cancer mutates to
041015 -            defeat treatments; and medical maladies
041016 -            increase which makes recovery
041017 -            more difficult to
041018 -            achieve........................... 090213, ref SDS 74 NY7L
041020 -             ..
041021 -       18.  Complexity of case management grows
041022 -            during long term survival prevents
041023 -            keeping a well ordered record
041024 -            essential for effective
041025 -            care.............................. 090213, ref SDS 74 9L8O
041027 -             ..
041028 -       19.  Emotional trauma occurs from surprise
041029 -            by medical professionals that Kaiser
041030 -            and UCSF have enabled long term surivial
041031 -            for a disease that normally is
041032 -            difficult to control.............. 090213, ref SDS 74 ML4I
041034 -             ..
041035 -       20.  Communication leverages synergy
041036 -            for Millie's care at Kaiser and UCSF
041037 -            which helps prevent problems from
041038 -            "falling through the cracks; fewer
041039 -            mistakes, and timely response
041040 -            helps the medical team
041041 -            increase longevity,
041042 -            also seems very
041043 -            annoying.......................... 090213, ref SDS 74 FZ4H
041045 -             ..
041046 -       21.  Doctor urges proactive management to
041047 -            plan Millie's next treatment because
041048 -            there will be less time to recover
041049 -            before cancer gets out of control
041050 -            for Millie's next
041051 -            relapse........................... 090213, ref SDS 74 UP6L
041053 -             ..
041054 -       22.  Millie's efforts the past 8 years to
041055 -            combine medical treatment with vigorous
041056 -            exercise was supported by research
041057 -            showing exercise can be a strong
041058 -            component of cancer
041059 -            care.............................. 090213, ref SDS 74 GC40
041061 -             ..
041062 -       23.  Indian fable illustrates long-term survival
041063 -            getting continuous treatment for cancer
041064 -            becomes increasingly difficult to perform
041065 -            complex clinical, logistical, and financial
041066 -            case management; study of Millie's patient
041067 -            history shows level of effort to maintain
041068 -            well ordered record for effective
041069 -            management increases exponentially
041070 -            into a crushing burden
041071 -            for patients and
041072 -            providers......................... 090213, ref SDS 74 IG5O
041074 -             ..
041075 -       24.  Graph prepared by primary care physician
041076 -            shows Millie's good fortune surviving a
041077 -            very aggressive cancer with relatively
041078 -            high quality of life into an 8th year
041079 -            of continuous treatment that normally
041080 -            causes early demise due to emotional
041081 -            trauma and clincial failures from
041082 -            complex case management........... 090213, ref SDS 74 4W72
041084 -             ..
041085 -       25.  Millie felt life was slipping away in
041086 -            October when the 5th relapse was diagnosed
041087 -            leading Millie to ask what was going to
041088 -            happen to her; Doctor Rugo provided
041089 -            encouragement saying "We're not
041090 -            going to let anything happen
041091 -            to you"........................... 090213, ref SDS 74 F148
041093 -             ..
041094 -       26.  Collaboration between Kaiser and UCSF
041095 -            combines experience with research;
041096 -            communication optimizes Millie's care
041097 -            beating the odds for long-term survival
041098 -            by integrating Kaiser's team care
041099 -            practice with UCSF model
041100 -            of comprehensive
041101 -            care.............................. 090213, ref SDS 74 685I
041103 -             ..
041104 -       27.  Multiple relapse of cancer causes cells
041105 -            to mutate into disease that resists
041106 -            treatment; Millie surviving 6 relapses
041107 -            needs highly specialized care and
041108 -            so should ask Doctor Rugo to begin
041109 -            planning for the next relapse
041110 -            to treat Millie's cancer as
041111 -            a chronic disease................. 090213, ref SDS 74 R75G
041113 -             ..
041114 -       28.  Doctor Rugo has responded by scheduling
041115 -            a meeting with Millie at UCSF on
041116 -            090312............................ 090213, ref SDS 74 6P7G
041118 -             ..
041119 -       29.  Doctor Johnson underscored importance
041120 -            timely care for Millie by offering
041121 -            religious perspective on transition
041122 -            from a vigorous life that may end
041123 -            for Millie in less than a
041124 -            year.............................. 090213, ref SDS 74 646L
041126 -             ..
041127 -       30.  Hospice care helps patients and families
041128 -            cope with final days of life without
041129 -            suffering significant physical
041130 -            and emotional pain................ 090213, ref SDS 74 VW63
041132 -             ..
041133 -       31.  Life ending scenarios have been presented
041134 -            to Millie many times the past 5 years;
041135 -            case study reflects Millie's physical
041136 -            resiliance and strength of character
041137 -            that enables exceptional longevity
041138 -            for her aggressive
041139 -            cancer............................ 090213, ref SDS 74 L19H,
041141 -             ..
041142 -       32.  Collaboration on case management for
041143 -            long-term survivors of cancer becomes
041144 -            frustrating because everybody loses
041145 -            control of increasingly
041146 -            complex medical
041147 -            records........................... 090213, ref SDS 74 JL9L
041149 -             ..
041150 -       33.  Lab and CT test reports illustrate
041151 -            frustration, because providers do not
041152 -            have enough time to enter results
041153 -            from other doctorsrs in the medical
041154 -            chart, because doctors prefer to
041155 -            rely on local diagnostics
041156 -            rather than referral
041157 -            data.............................. 090213, ref SDS 74 NY4H
041159 -             ..
041160 -       34.  Cancer marker CA 15-3 wide disparities
041161 -            between Kaiser and UCSF illustrates
041162 -            why doctor's rely on local data
041163 -            rather than referral
041164 -            diagnostics....................... 090213, ref SDS 74 A46O
041166 -             ..
041167 -       35.  Case management takes a lot of will
041168 -            power for due diligence to
041169 -            maintain a well ordered
041170 -            record............................ 090213, ref SDS 74 J27J
041172 -             ..
041173 -       36.  Meeting at Kaiser changed to 4 week
041174 -            interval, rather than 8, as done the
041175 -            past 2 years, provides effective support
041176 -            for UCSF to start next treatment in
041177 -            time to avoid losing control of
041178 -            Millie's cancer................... 090213, ref SDS 74 QX5O
041180 -             ..
041181 -       37.  Millie requests explanation of treatment
041182 -            plan.  Doctor Rugo's letter to Kaiser on
041183 -            090129 discussed hyperthermia with Doxil,
041184 -            reported on 090130. Has the plan changed
041185 -            to use "lower dose" radiation rather
041186 -            than Doxil.  Will both be
041187 -            used, or some other
041188 -            agent............................. 090218, ref SDS 75 TH5W
041190 -             ..
041191 -       38.  Millie reports to medical team meeting
041192 -            with Doctor Johnson at Kaiser on 090213
041193 -            was optimistic Millie might have 3 - 6
041194 -            months of recovery, but will need
041195 -            treatment from Doctor Rugo for
041196 -            cancer as a "chronic
041197 -            disease".......................... 090218, ref SDS 75 TH6U
041199 -             ..
041200 -       39.  Millie requests reponse from UCSF to the
041201 -            letter on 090209 requesting explanation
041202 -            of treatments for side effects from
041203 -            radiation and hyperthermia described by
041204 -            Doctor Hsu during the meeting on
041205 -            090205. Does the treatment
041206 -            plan address side effects
041207 -            prospectively..................... 090218, ref SDS 75 TH7V
041209 -             ..
041210 -       40.  Radiation and hyperthermia begins
041211 -            at UCSF for Millie to recover from
041212 -            6th relapse of
041213 -            IBC............................... 090219, ref SDS 76 E57G
041215 -             ..
041216 -       41.  Millie's letter to UCSF requests
041217 -            explanation of radiation and hyperthermia
041218 -            treatments for recovering from
041219 -            IBC............................... 090220, ref SDS 77 EA4Q
041221 -             ..
041222 -       42.  Hyperthermia treatment planning
041223 -            on 090209 report received
041224 -            from UCSF......................... 090220, ref SDS 78 PR4Y
041226 -             ..
041227 -       43.  Hyperthermia science, theraputic
041228 -            rationale and applications with
041229 -            other modalities presented in
041230 -            BSD professional paper received
041231 -            from UCSF......................... 090220, ref SDS 78 GK6F
041233 -             ..
041234 -       44.  Millie's letter to UCSF requests work
041235 -            plan for radiation treatments to
041236 -            recover from 6th relapse of
041237 -            IBC............................... 090223, ref SDS 79 3N9J
041238 -            and asks for scientific paper
041239 -            using radiation to treat
041240 -            IBC............................... 090223, ref SDS 79 T49U
041242 -             ..
041243 -       45.  Radiation combined with hyperthermia
041244 -            treatment plan received from
041245 -            UCSF.............................. 090226, ref SDS 80 D452
041247 -             ..
041248 -       46.  Blood test at Kaiser for meeting
041249 -            at UCSF on 090312 to evaluate
041250 -            effectiveness of radiation
041251 -            and hyperthermia after
041252 -            3 weeks........................... 090309, ref SDS 82 6Z4F
041254 -             ..
041255 -       47.  Agenda submitted to medical team to
041256 -            be prepared for productive meetings
041257 -            at UCSF scheduled on 090312 to evaluate
041258 -            response to treatment after getting
041259 -            3 weeks of radiation and hyperthermia
041260 -            to recover from 6th relapse
041261 -            of IBC............................ 090310, ref SDS 83 PR4Y
041263 -             ..
041264 -       48.  Called Kaiser to get results of blood
041265 -            test on 090309 for submission to medical
041266 -            team for being prepared to meet at
041267 -            UCSF on 090312; Florida says results
041268 -            pending from lab; says to call back
041269 -            on 090311 to get the report
041270 -            for distribution.................. 090310, ref SDS 84 JH4H
041272 -             ..
041273 -       49.  UCSF letter from Tara proposed canceling
041274 -            meeting scheduled by Doctor Rugo for
041275 -            090312 to evaluate response to
041276 -            treatment, and also Millie's
041277 -            concern about growing
041278 -            side effects...................... 090310, ref SDS 85 PR4Y
041280 -             ..
041281 -       50.  Millie letter to primary care physician
041282 -            at Kaiser coordinates getting report
041283 -            for blood test on 090309 for
041284 -            meeting at UCSF on
041285 -            090312............................ 090311, ref SDS 86 S84F
041287 -             ..
041288 -       51.  Blood test report for Millie's lab on
041289 -            090209 was not submitted by Kaiser to
041290 -            UCSF due to telephone and fax machine
041291 -            problems; UCSF relied on backup
041292 -            copy hand delivered by
041293 -            Millie............................ 090312, ref SDS 89 XE3K
041295 -             ..
041296 -       52.  Examination at UCSF Breast Care Clinic
041297 -            finds signs of recovery from 6th relapse
041298 -            of IBC; Millie responding well after
041299 -            3 weeks of treatment with radiation
041300 -            and hyperthermia; severe side
041301 -            effects observed.................. 090312, ref SDS 89 YX9F
041303 -             ..
041304 -       53.  Cancer marker CA 15-3 missing from
041305 -            blood test for Millie's lab at Kaiser
041306 -            on 090309; missing diagnostic
041307 -            complicates evaluating
041308 -            response to treatment............. 090312, ref SDS 89 YX5F
041310 -             ..
041311 -       54.  Doctor Rugo planning to implement
041312 -            request by Doctor Johnson at Kaiser
041313 -            for UCSF to treat Millie's cancer
041314 -            as a chronic disease.............. 090312, ref SDS 89 QQ9L
041316 -             ..
041317 -       55.  Examination at UCSF Radiation Oncology
041318 -            department concurs Millie recovering
041319 -            from 6th relapse of IBC by responding
041320 -            to radiation and
041321 -            hyperthermia...................... 090312, ref SDS 89 F88K
041322 -            discloses side effects severely
041323 -            blistering skin will worsen for a
041324 -            month, and then gradually
041325 -            recover........................... 090312, ref SDS 89 F860
041326 -            that radiation and hyperthermia
041327 -            will continue to destroy cancer cells
041328 -            for weeks and even months after ending
041329 -            treatments on
041330 -            090317............................ 090312, ref SDS 89 VL4O
041332 -             ..
041333 -       56.  After meeting with UCSF at 0800, called
041334 -            Kaiser at 1437; was on "hold" for 90
041335 -            minutes; Cisi in the Chemotherapy
041336 -            Clinic came online and advised that
041337 -            CA 15-3 was not listed in Kaiser's
041338 -            for Millie's lab on
041339 -            090309............................ 090312, ref SDS 90 JO8O
041341 -             ..
041342 -       57.  Millie's letter to medical team reports
041343 -            productive meetings at UCSF on 090312
041344 -            with favorable findings that Millie
041345 -            is recovering from 6th
041346 -            relapse of
041347 -            IBC............................... 090313, ref SDS 91 Q49L
041349 -             ..
041350 -       58.  Millie's final treatment at UCSF with
041351 -            radiation and hyperthermia to
041352 -            recover from 6th relapse
041353 -            IBC............................... 090317, ref SDS 93 9L7K
041355 -             ..
041356 -       59.  Millie received at UCSF orientation and
041357 -            medications for home care to treat severe
041358 -            side effects from radiation treatments
041359 -            that will get worse for a few weeks
041360 -            before starting to get
041361 -            better............................ 090317, ref SDS 93 M442
041363 -             ..
041364 -       60.  Arlette checked the computer and
041365 -            concluded a mistake occurred at the
041366 -            lab not testing for the cancer marker
041367 -            on the blood test for 090309.  Arlette
041368 -            entered a supplemental order for
041369 -            Millie to get another blood
041370 -            draw at no charge
041371 -            later today....................... 090317, ref SDS 94 Y04R
041373 -             ..
041374 -       61.  Kaiser reported CA 15-3 251 for blood
041375 -            test on 090317 that corrected problems
041376 -            with lab on 090309 which omitted cancer
041377 -            marker needed for the meeting at UCSF
041378 -            on 090312 to evaluate response to
041379 -            treatment; results today indicate
041380 -            strong recovery from 6th relapse
041381 -            of IBC............................ 090323, ref SDS 95 Y077
041383 -             ..
041384 -       62.  Millie's letter notifies medical team
041385 -            radiation and hyperthermia treatments
041386 -            were completed on 090317; submits agenda
041387 -            for meeting today evaluating response
041388 -            to treatment with, and recovery from
041389 -            side effects from radiation
041390 -            and hyperthermia on
041391 -            referral to
041392 -            UCSF.............................. 090324, ref SDS 96 PR4Y
041394 -             ..
041395 -       63.  Meeting at Kaiser reveiw response to
041396 -            treatment at UCSF for 6th relapse of
041397 -            cancer, planning arrangements
041398 -            for treating next
041399 -            relapse........................... 090325, ref SDS 97 E54L
041401 -             ..
041402 -       64.  Shoulder injury recovering on schedule
041403 -            following treatment in ER on 090122,
041404 -            physical therapy; increased energy
041405 -            after ending chemotherapy enables
041406 -            faster recovery with
041407 -            exercise.......................... 090325, ref SDS 97 YU6K
041409 -             ..
041410 -       65.  Examination finds strong response to
041411 -            treatment with radiation and hyperthermia
041412 -            at UCSF ended on 090317 aligns with
041413 -            significant decline in cancer
041414 -            marker reversing continuous
041415 -            rising tread for the
041416 -            past year......................... 090325, ref SDS 97 D452
041418 -             ..
041419 -       66.  Disease trajectory graph shows Millie
041420 -            may be nearing a point of rapid
041421 -            decline with next relapse
041422 -            of cancer......................... 090325, ref SDS 97 P39M
041424 -             ..
041425 -       67.  Hospice care can be investigate in order
041426 -            to be prepared for smooth transition
041427 -            as patient enters decline phase
041428 -            of cancer trajectory.............. 090325, ref SDS 97 JS5I
041430 -             ..
041431 -       68.  Streamlined referral procedures
041432 -            delivering care required in order
041433 -            for the medical team to be
041434 -            prepared treating cancer
041435 -            as a chronic
041436 -            disease........................... 090325, ref SDS 97 P43G
041438 -             ..
041439 -       69.  Stress increases beyond capacity to cope
041440 -            managing chronic disease with procedures
041441 -            designed for routine cancer care;
041442 -            doctor approves Millie for
041443 -            vacation to get needed
041444 -            rest.............................. 090325, ref SDS 97 M35H
041446 -             ..
041447 -       70.  Lab mistakes and delays hamper delivering
041448 -            referral care in time to be effective
041449 -            treating stage IV cancer; patient facing
041450 -            7th relapse at risk; providers under
041451 -            stress angry that someone is
041452 -            changing doctor's orders
041453 -            for patient care.................. 090325, ref SDS 97 RB3G
041455 -             ..
041456 -       71.  Lab mistakes and delays chronic problems
041457 -            prevent treating cancer as chronic
041458 -            disease on referral to UCSF
041459 -            case study........................ 090325, ref SDS 97 KZ6N
041461 -             ..
041462 -       72.  Cancer chronic disease timely treatment
041463 -            essential for Millie's 7th relapse
041464 -            stage IV IBC; Kaiser has no chemotherapy
041465 -            agents for Millie's narrow patient profile
041466 -            triple negative; prescribes care
041467 -            on referral to UCSF;
041468 -            case study........................ 090325, ref SDS 97 L15M
041470 -             ..
041471 -       73.  Pain relief needed; Millie suffering
041472 -            physically and emotionally from severe
041473 -            radiation side effects; pain and
041474 -            suffering will get worse for several
041475 -            more weeks until Millie begins to recover
041476 -            from radiation burn; Doctor Johnson
041477 -            prescribes zink and Domeboro supplement
041478 -            treatment prescribed at UCSF for
041479 -            severe radiation side
041480 -            effects........................... 090325, ref SDS 97 P39I
041482 -             ..
041483 -       74.  Medical tests ordered at Kaiser for
041484 -            090413 for examinations at UCSF on
041485 -            090423 to plan Millie's treatment
041486 -            for the next relapse
041487 -            of IBC............................ 090325, ref SDS 97 P36O
041489 -             ..
041490 -       75.  Medical tests ordered 10 days prior to
041491 -            meetings at UCSF allows enough time
041492 -            for correcting mistakes and expediting
041493 -            delays so that data is delivered
041494 -            when needed....................... 090325, ref SDS 97 LX5I
041496 -             ..
041497 -       76.  Patient asked to coordinate on correcting
041498 -            mistakes in CT Department by consolidating
041499 -            findings in a single report, rather than
041500 -            publising multiple reports for
041501 -            each test......................... 090325, ref SDS 97 P53O
041503 -             ..
041504 -       77.  Letter to Kaiser confirms understandings
041505 -            from meeting on 090325 that reported a
041506 -            favorable response after completeing
041507 -            treatment at UCSF on 090317 with
041508 -            radiation and hyperthermia
041509 -            protocol.......................... 090326, ref SDS 98 5V7O
041511 -             ..
041512 -       78.  Kaiser plans visual examination with
041513 -            CT tests to evaluate response to treatment
041514 -            at UCSF with hyperthermia and
041515 -            radiation......................... 090326, ref SDS 99 1V4N
041517 -             ..
041518 -       79.  Millie submits patient history showing
041519 -            Kaiser has had problems relying on visual
041520 -            examination and CT tests to assess IBC;
041521 -            she submits research showing enhanced
041522 -            MRI is reported to be effective
041523 -            supplementing visual and
041524 -            CT test modalities................ 090326, ref SDS A0 5V7O
041526 -             ..
041527 -       80.  Millie's letter asks about progress
041528 -            reviewing research to solve problem
041529 -            of diminishing treatments for
041530 -            Millie's expanding patient
041531 -            profile........................... 090326, ref SDS A0 QM3V
041533 -             ..
041534 -       81.  Millie's letter notifies medical team
041535 -            meetings scheduled at UCSF on 090423
041536 -            will evaluate response to radiation and
041537 -            hyperthermia treatments that ended
041538 -            on 090317, and develop plan
041539 -            to treat Millie's cancer
041540 -            as a chronic
041541 -            disease........................... 090326, ref SDS 98 DW4R
041543 -             ..
041544 -       82.  Millie's letter notifies medical team
041545 -            Doctor Johnson scheduled lab and CT
041546 -            tests 10 days early on 090413 in order
041547 -            to have enough time to submit reports
041548 -            to UCSF for preparing to have a
041549 -            productive meeting on 090423
041550 -            that will plan next
041551 -            treatments........................ 090326, ref SDS 98 DW5Y
041553 -             ..
041554 -       83.  Millie's letter thanks Doctor Stritter
041555 -            for continued interest in her case, and
041556 -            advises that Stritter 2nd opinion research
041557 -            to solve problems of diminishing treatments
041558 -            for Millie's expading patient profile
041559 -            were submitted to the medical
041560 -            team.............................. 090326, ref SDS A1 1V4N
041562 -             ..
041563 -       84.  Millie's letter reports to Doctor
041564 -            Stritter suffering caused by radiation
041565 -            side effects; does not feel well
041566 -            after 4 weeks of intense
041567 -            treatments........................ 090326, ref SDS A1 PX6Y
041569 -             ..
041570 -       85.  Doctor Johnson responds to Millie's
041571 -            submission of research showing enhanced
041572 -            MRI technology can effectively supplement
041573 -            visual and CT modalities to assess
041574 -            response to treatment of IBC 6th
041575 -            relapse, saying he will talk about
041576 -            it at the next visit in 6
041577 -            weeks............................. 090326, ref SDS A2 T64N
041579 -             ..
041580 -       86.  Doctor Johnson responds to Millie's
041581 -            request for progress reviewing research
041582 -            to solve problems of diminishing treatments
041583 -            for expanding patient profile, saying
041584 -            he will talk about it at the
041585 -            next visit in 6
041586 -            weeks............................. 090326, ref SDS A2 T64N
041588 -             ..
041589 -       87.  Millie letter from Doctor Stritter asks
041590 -            to be notified about progress considering
041591 -            2nd opinion options for solving problem
041592 -            of diminishing treatments for
041593 -            Millie's 7th relapse
041594 -            of IBC............................ 090326, ref SDS A3 Q16O
041596 -             ..
041597 -       88.  Millie letter to medical team reports
041598 -            rising pain from radiation side effects,
041599 -            asks about using Domeboro
041600 -            to supplement
041601 -            silvadene......................... 090328, ref SDS A4 4S9W
041603 -             ..
041604 -       89.  Millie reports continued recovery from
041605 -            IBC after completing radiation and
041606 -            hyperthermia 2 weeks
041607 -            earlier........................... 090328, ref SDS A4 4S4V
041609 -             ..
041610 -       90.  Doctor Hsu letter to Millie schedules
041611 -            examination to relieve pain and suffering
041612 -            side effects from radiation side
041613 -            effects following treatment
041614 -            to recover from IBC that
041615 -            ended on 090317................... 090328, ref SDS A5 H27I
041617 -             ..
041618 -       91.  Millie's letter to UCSF confirms meeting
041619 -            with Doctor Hsu on 090401 to get pain
041620 -            relief from radiation side
041621 -            effects........................... 090328, ref SDS A6 H27I
041623 -             ..
041624 -       92.  Doctor Hsu asks Millie to change time
041625 -            of meeting on 090401 to afternoon
041626 -            to accomodate tumor board
041627 -            meeting........................... 090328, ref SDS A7 SA4J
041629 -             ..
041630 -       93.  Millie letter to UCSF asks Doctor Hsu
041631 -            to meet on Monday 090330, rather than
041632 -            Wedensday 090401 to expedite
041633 -            pain relief....................... 090328, ref SDS A8 CM5K
041635 -             ..
041636 -       94.  Doctor Hsu agrees to advance examination
041637 -            of Millie for prescribing pain relief
041638 -            proposes meeting on 090330 in the
041639 -            afternoon......................... 090328, ref SDS A9 4Z6I
041641 -             ..
041642 -       95.  Millie letter to UCSF asks to meet on
041643 -            090330 0800 rather than in the
041644 -            afternoon to expedite getting
041645 -            pain relief....................... 090328, ref SDS B0 MR3K
041647 -             ..
041648 -       96.  Doctor Hsu letter schedules meeting
041649 -            at UCSF 090330 1200 to expedite pain
041650 -            relief for Millie from radiation
041651 -            side effects...................... 090328, ref SDS B1 F34O
041653 -             ..
041654 -       97.  Millie letter confirms meeting at
041655 -            UCSF 090330 1200 to expedite pain
041656 -            relief from radiation
041657 -            side effects...................... 090328, ref SDS B3 W55N
041659 -             ..
041660 -       98.  Meeting at UCSF Doctor Hsu advises
041661 -            Millie shows response to treatment
041662 -            with radiation and hyperthermia
041663 -            treatments........................ 090330, ref SDS B3 E54L
041665 -             ..
041666 -       99.  UCSF prescribes increase Silvadene
041667 -            1% Cream to reduce severe pain
041668 -            suffering from radiation and
041669 -            hyperthermia treatment side
041670 -            effects........................... 090330, ref SDS B3 9A66
041672 -             ..
041673 -      100.  Writing things down reduces mistakes
041674 -            at UCSF so people do not forget complex
041675 -            details; prevents things from falling
041676 -            through the cracks, because people
041677 -            can find the "needle in a haystack"
041678 -            essential for effective
041679 -            comprehensive care................ 090330, ref SDS B3 9B65
041681 -             ..
041682 -      101.  Vitamin E plus pentoxifylline (Trental)
041683 -            prescribed by UCSF when severe side effects
041684 -            from radiation and hyperthermia continue
041685 -            2 - 3 months after completing
041686 -            treatments........................ 090330, ref SDS B3 T487
041688 -             ..
041689 -      102.  Vitamin E plus pentoxifylline (Trental)
041690 -            to recover from radiation and hyperthermia
041691 -            side effects, this will be a
041692 -            minimum 6 month
041693 -            treatment......................... 090330, ref SDS B3 T54H
041695 -             ..
041696 -      103.  Millie letter reports to medical team
041697 -            results of interim, exigent examination
041698 -            at UCSF that finds severe radiation side
041699 -            effects subsiding slowly as expected,
041700 -            and Millie is recovering from 6th
041701 -            relapse of IBC; prescribes
041702 -            increased dose of
041703 -            silvadene cream................... 090330, ref SDS B4 E54L
041705 -             ..
041706 -      104.  Millie requests correction of error
041707 -            scheduling meeting with Doctor
041708 -            Rugo on 090402, since meeting
041709 -            already scheduled for
041710 -            090423............................ 090330, ref SDS B4 6F8Y
041712 -             ..
041713 -      105.  Millie's letter notifies medical team
041714 -            new symptoms chills and elevated
041715 -            temperature 99.4 fever; experienced
041716 -            unusual, prolonged shortness
041717 -            of breath while
041718 -            hiking............................ 090331, ref SDS B5 E54L
041720 -             ..
041721 -      106.  Slight red blotches sprinkled on lower
041722 -            left arm can signal Cellulitis; however,
041723 -            concerned may be 7th relapse of
041724 -            IBC............................... 090331, ref SDS B5 Q69V
041726 -             ..
041727 -      107.  Doctor Hsu letter asks beside fever and
041728 -            chill any other symptoms? cough, pain, etc.
041729 -            Did Silvadine help with the skin
041730 -            pain.............................. 090401, ref SDS B6 E54L
041732 -             ..
041733 -      108.  Doctor Hsu letter says rash on
041734 -            lower left arm likely
041735 -            IBC............................... 090401, ref SDS B6 R24X
041737 -             ..
041738 -      109.  Millie reports to medical team temperature
041739 -            came down to 97.8 with aspirin, and
041740 -            drinking water; no other symptoms
041741 -            of cough and pain responding
041742 -            to Doctor Hsu's
041743 -            inquiry........................... 090401, ref SDS B7 AE4G
041745 -             ..
041746 -      110.  Millie advises medical team that UCSF
041747 -            instructions on 090330 to apply generous
041748 -            thickness of Silvadine cream may relieve
041749 -            pain slightly from radiation
041750 -            side effects...................... 090401, ref SDS B7 RE6V
041752 -             ..
041753 -      111.  Millie more resolved to tolerate severe
041754 -            side effects from radiation and hyperthermia
041755 -            in order to recover from 6th relapse of
041756 -            IBC because examination at UCSF shows
041757 -            results; and further side effects are
041758 -            subsiding in some areas; signs of recovery
041759 -            helps overcome the trauma of dressing
041760 -            the wound several times a day;
041761 -            which is very scary to
041762 -            observe............................ 090401, ref SDS B7 RE6Y
041764 -             ..
041765 -      112.  Millie's letter to medical team reports
041766 -            UCSF has not clarified schedule for meeting
041767 -            with Doctor Rugo on Thursday 090402,
041768 -            which seems like a
041769 -            mistake............................ 090401, ref SDS B7 RE8S
041771 -             ..
041772 -      113.  Doctor Rugo advises Millie will not be
041773 -            ready for examination on 090402 to plan
041774 -            treatment for 7th relapse of IBC; proposes
041775 -            meeting at UCSF on 090416; notes Millie
041776 -            suffering wound from radiation
041777 -            side effects, and advises
041778 -            treatment will be very
041779 -            effective.......................... 090401, ref SDS B8 K56O
041781 -             ..
041782 -      114.  Millie's letter to medical team explains
041783 -            Kaiser's schedule for medical tests on
041784 -            on 090413 to support meetings at
041785 -            090423............................. 090401, ref SDS B9 R43V
041787 -             ..
041788 -      115.  Millie cites concern about new IBC on
041789 -            lower left arm and asks UCSF to
041790 -            confirm meetings on
041791 -            090423............................. 090401, ref SDS B9 R43V
041793 -             ..
041794 -      116.  Telecon Kaiser Outside Referral Department
041795 -            advises the referral for Millie's treatment
041796 -            at UCSF expires on 090602 is automatically
041797 -            extended 1 year to 100202 in order
041798 -            to implement Kaiser prescription
041799 -            for UCSF to treat Millie's
041800 -            cancer as a chronic
041801 -            disease............................ 090401, ref SDS C0 KT8G
041803 -             ..
041804 -      117.  Kaiser Outside Referral Department lists
041805 -            UCSF professionals providing services
041806 -            for Millie's care to ensure
041807 -            continuity of treatment to
041808 -            resolve IBC........................ 090401, ref SDS C0 5W4G
041810 -             ..
041811 -      118.  Millie's letter notifies medical team
041812 -            Kaiser Outside Referrals indicates
041813 -            current authorization enables continuity
041814 -            of care at UCSF from Doctor Rugo in Breast
041815 -            Care Clinic, and Doctor Hsu in
041816 -            Radiation Oncology................. 090401, ref SDS C1 LG4G
041818 -             ..
041819 -      119.  Millie's letter notifies team that Kaiser
041820 -            Outside Referrals authorizes continuity
041821 -            of care by automatically extending
041822 -            payment for 6 months until
041823 -            100202............................. 090401, ref SDS C1 WC6Y
041825 -             ..
041826 -      120.  Doctor Rugo thanks Millie for facilitating
041827 -            Kaiser clarifying referral authorization
041828 -            for UCSF to treat Millie's 7th relapse
041829 -            of cancer as a chronic disease; and
041830 -            advises information should be sent
041831 -            to the UCSF authorization
041832 -            person............................. 090402, ref SDS C2 LA6H
041834 -             ..
041835 -      121.  Doctor Rugo advises that clarifying
041836 -            confusion in scheudling next meeting
041837 -            should be resolved by UCSF schedule
041838 -            department because UCSF has a
041839 -            complex schedule system............ 090402, ref SDS C2 117O
041841 -             ..
041842 -      122.  Millie letter asks Doctor Rugo if Lena
041843 -            who called Millie in February about
041844 -            scheduling meetings with the doctor
041845 -            can clarify the schedule in
041846 -            April, as requested by
041847 -            the doctor......................... 090402, ref SDS C3 WM8M
041849 -             ..
041850 -      123.  Millie sent a letter to Glenna who
041851 -            coordinated Millie's treatment on pior
041852 -            sunitinib clinical trial, and asking
041853 -            for assistance finding who to notify
041854 -            about Kaiser referral authorization,
041855 -            who can assist clarifying the
041856 -            schedule for meeting with
041857 -            Doctor Rugo........................ 090402, ref SDS C4 WM8M
041859 -             ..
041860 -      124.  Glenna called and advised she coordinated
041861 -            contacts at UCSF for Millie's referral
041862 -            authorization, and to clarify schedule
041863 -            for Millie to meet with Doctor
041864 -            Rugo on planning treatment
041865 -            for the 7th relapse
041866 -            of IBC............................. 090402, ref SDS C5 JA6L
041868 -             ..
041869 -      125.  Millie letter notified medical team
041870 -            elevated temperature 99.7 fever occurred
041871 -            again; icing upper left arm, and is
041872 -            monitoring fever to
041873 -            evaluate........................... 090402, ref SDS C6 684J
041875 -             ..
041876 -      126.  Millie letter to medical team thanks Doctor
041877 -            Rugo for Glenna's support coordinating case
041878 -            management on referral authorizations,
041879 -            and on scheduling a meeting to plan
041880 -            treatment for recovering from 7th
041881 -            relapse of IBC..................... 090402, ref SDS C6 H94R
041883 -             ..
041884 -      127.  Millie letter to Doctor Rugo's assistant
041885 -            requests confirmation of schedule to
041886 -            with the doctor at UCSF on 090423
041887 -            for planning treatment of
041888 -            Millie's 8th relapse of
041889 -            cancer............................. 090403, ref SDS C7 375Y
041891 -             ..
041892 -      128.  Millie letter notifies medical team that
041893 -            temperature 99.7 subsided by midnight;
041894 -            cough and shortness of breath persisted
041895 -            and prevented sleep; evantually
041896 -            recovered about
041897 -            0400............................... 090403, ref SDS C8 XZ6I
041899 -             ..
041900 -      129.  Doctor Hsu letter asks Millie to get
041901 -            examination at Kaiser for
041902 -            pneumonia.......................... 090403, ref SDS C9 Z66M
041904 -             ..
041905 -      130.  Doctor Rugo letter asks Millie to
041906 -            get examination at Kaiser for
041907 -            shortness of breath................ 090403, ref SDS D0 3G3N
041909 -             ..
041910 -      131.  Millie notifies medical team that UCSF
041911 -            recommends examination for pneumonia
041912 -            with symptoms of shortness of
041913 -            breath............................. 090403, ref SDS D1 NW4N
041915 -             ..
041916 -      132.  Millie notifies medical team fever occurs
041917 -            for 3rd time with temperature 99.4; explains
041918 -            home care has previously been
041919 -            effective.......................... 090403, ref SDS D1 DX7S
041921 -             ..
041922 -      133.  Millie notifies medical team side effects
041923 -            of radiation and hyperthermia skin "burn"
041924 -            healing, and pain subsides
041925 -            substantially...................... 090403, ref SDS D1 DX8R
041927 -             ..
041928 -      134.  Millie letter to Doctor Johnson 090403
041929 -            2012 supplements letter sent 20 minutes
041930 -            earlier 1941 to explain symptoms subside
041931 -            proposes monitoring and then assess
041932 -            need for examination at
041933 -            Kaiser............................. 090403, ref SDS D2 ZG7H
041935 -             ..
041936 -      135.  Letter from Doctor Johnson responds to
041937 -            Mil's first letter sent 090403 1954,
041938 -            ref SDS D1 NW4N, but not this 2nd letter
041939 -            sent 20 minutes later, and reporting symptoms
041940 -            subside, see 090403 2012, ref SDS D2 OA4R;
041941 -            doctor evidently did not see the 2nd letter;
041942 -            asks Millie to call Kaiser and schedule
041943 -            a meeting, recommends medical team use
041944 -            Kaiser's internal proprietary Knowledge
041945 -            Management system for email to
041946 -            increase efficiency
041947 -            performing case
041948 -            management......................... 090406, ref SDS D3 M19I
041950 -             ..
041951 -      136.  Millie letter to medical team relates
041952 -            report in Millie's 2nd letter on 090403
041953 -            that symptoms have not repeated, and
041954 -            so proposes deferring examination
041955 -            at Kaiser.......................... 090406, ref SDS D4 OC5F
041957 -             ..
041958 -      137.  Called UCSF talked to Roy, who advises
041959 -            there is no record scheduling meeting
041960 -            on 090423; Roy plans to notify Amanda,
041961 -            who is another assistant for Doctor Rugo,
041962 -            about scheduling meeting on 090423
041963 -            0830, which Doctor Rugo
041964 -            ordered............................ 090407, ref SDS D5 PP8X
041966 -             ..
041967 -      138.  Amanda called, she assists Doctor Rugo;
041968 -            advised UCSF cannot find Millie's letter
041969 -            to medical team on 090401 1520, ref SDS C1
041970 -            LG4G, and further advised that UCSF has no
041971 -            record Kaiser has authorized referral for
041972 -            Millie to meet with Doctor Rugo on 090423,
041973 -            and so a meeting has not been scheduled;
041974 -            Millie's letter on 090401 1520 was
041975 -            resubmitted to Amanda
041976 -            at UCSF............................ 090407, ref SDS D7 MV5K
041978 -             ..
041979 -      139.  Amanda called after receiving Millie's
041980 -            letter on 090401 1520, and schedules
041981 -            Millie for another meeting with Tara,
041982 -            because Doctor Rugo will be
041983 -            out of town again
041984 -            on 090423 0830..................... 090407, ref SDS D7 4N3F
041986 -             ..
041987 -      140.  Called Kaiser CT Department Loretta confirmed
041988 -            test scheduled on 090413 allows 10 days
041989 -            for Kaiser to send report in time to meet
041990 -            at UCSF 090423; CT Department changes time
041991 -            for test from 1520 to 1500 requested by
041992 -            Interventional Radiology Services to avoid
041993 -            overtime for Millie's CT test; Loretta
041994 -            asks Millie to coordinate with Chemotherpay
041995 -            Infusion Department to change the time
041996 -            for Millie's blood on 090413 from
041997 -            1500 to 1430, so that the CT Department
041998 -            can make use of the nurse accessing
041999 -            Millie's Power Port with a Huber
042000 -            needle that can be used to
042001 -            inject contrast medium
042002 -            for the CT test
042003 -            at 1500............................ 090407, ref SDS D8 L76N
042005 -             ..
042006 -      141.  Kaiser CT Department discloses the
042007 -            computer indicates somebody changed
042008 -            doctor's order for consolidating findings
042009 -            into single report to correct mistakes
042010 -            in past reports; Loretta to investigate
042011 -            why doctor's order was
042012 -            changed............................ 090407, ref SDS D8 1163
042014 -             ..
042015 -      142.  Called Kaiser Oncology Department and
042016 -            changed time for blood draw from 090413
042017 -            1500 to 1430 to facilitate request by
042018 -            IS to avoid overtime
042019 -            expense............................ 090407, ref SDS D6 R16X
042021 -             ..
042022 -      143.  Kaiser CT Department called back; Katie
042023 -            advised that the doctor's order for Millie's
042024 -            CT test was changed by the department
042025 -            to eliminate requirement for consolidated
042026 -            findings because government regulations
042027 -            require separate reports for scans above
042028 -            the neck from scans below the
042029 -            neck............................... 090407, ref SDS D8 L87J
042031 -             ..
042032 -      144.  CT Department called back and Katie advised
042033 -            test scheduled on 090414 1500, which
042034 -            conflicted with doctor's order for
042035 -            test on 090413..................... 090407, ref SDS D8 YK64
042037 -             ..
042038 -      145.  CT Department called back and advised
042039 -            an error occurred in data entry changing
042040 -            the time for the test on 090413 from 1520
042041 -            to 1500, resulting to scheduling the
042042 -            test on 090414; Katie corrected
042043 -            mistake............................ 090407, ref SDS D8 W47V
042045 -             ..
042046 -      146.  CT Department investigates why doctor's
042047 -            order for consolidating findings into
042048 -            a single report for each CT test
042049 -            was changed........................ 090407, ref SDS D8 YZ95
042050 -
042051 -
042052 -
0421 -

SUBJECTS
Default Null Subject Account for Blank Record

0503 -
050401 -  ..
050402 - Schedule Meeting UCSF 090423 0830 Treatment Plan 8th Relapse IBC
050403 -
050404 - Follow up ref SDS D2 E54L, ref SDS D1 E54L.
050405 -
050406 - Millie sent a letter to Amanda to confirm schedule for meeting with
050407 - Tara at UCSF in Breast Care Clinic on 090423 0830...
050408 -
050409 -    1.  Subject: Meeting with Tara for Doctor Rugo April 23rd 0830
050410 -        Date: Wed, 08 Apr 2009 11:25:08 -0700
050422 -         ..
050423 -    2.  Thanks for your call yesterday morning [on 090407 1121]
050424 -        scheduling a meeting, ref SDS D7 4M6F, with Tara on 090423
050425 -        0830.  You indicated the doctor will not be in the clinic on
050426 -        the 23rd.  During the meeting on 090312 [0800], Tara planned to
050427 -        consult with Doctor Rugo on treatment ideas. ref SDS 89 SS4F
050428 -        Doctor Rugo's letter on [090401 0121] reported expectations
050429 -        that radiation and hyperthermia treatments would be very
050430 -        effective. ref SDS B8 K56O, Accordingly, hoping we can begin
050431 -        consideration of work plan options requested by Doctor Johnson
050432 -        to treat my cancer as a chronic disease. [shown in case study
050433 -        during meeting with Doctor Johnson on 090325 0830. ref SDS 97
050434 -        L15M]
050436 -         ..
050437 -    3.  Examination [at home] this morning shows significant recovery
050438 -        from radiation side effects, including pain reduction and a big
050439 -        rise in energy.  My feeling is that treatment of IBC has been
050440 -        very effective.
050442 -         ..
050443 -    4.  There is remaining concern about...
050445 -             ..
050446 -        1.  Condition in the right axilla, which did not get radiation
050447 -            according to the treatment plan received on 090226 1342.
050448 -            ref SDS 80 D452  The left supraclavicular was given
050449 -            radiation even though the CT test on 081230 reported no
050450 -            evidence of swelled LN [shown in review on 090107,
050451 -            ref SDS 48 QS7G, which had been reported on the prior CT
050452 -            test on 081107 [reviewed on 081113, ref SDS 40 5O6N].
050453 -            Thus, by 081230 treatment with sunitinib reduced the LN in
050454 -            the left supraclavicular below detectable size for CT
050455 -            tests.  But everyone could feel the LN had swelled again in
050456 -            the left supraclavicular, noted by Tara during the meeting
050457 -            on 090129, then by Doctor Hsu on 090205.  By contrast, CT
050458 -            testing has shown 3 LNs of stable size in the right
050459 -            axillary for 12 months, but these have been more difficult
050460 -            to palpate, perhaps they are deeper.  Possibly, the CT test
050461 -            Doctor Hsu did at UCSF on 090209 did not support giving
050462 -            radiation treatment to the right axilla.  The report on the
050463 -            this test has not submitted for review.  The CT test at
050464 -            Kaiser next week on 090413 will enable review of these
050465 -            issues [ordered at Kaiser on 090325, ref SDS 97 TE4O].
050467 -  ..
050468 - Bumps Vertical Line about 2" Left Right Breast Possible IBC
050469 -
050470 -
050471 -        2.  While the [left] chest seems significantly clear of IBC
050472 -            nodules, this morning I noticed ...a few very small bumps
050473 -            about an inch below the breastbone area.  These may have
050474 -            been present all along and are still getting smaller.
050475 -            Don't recall this issue being considered previously.  Tara
050476 -            will make an assessment on 090423.
050478 -             ..
050479 -        3.  Sprinkles of red blotches on lower left arm seem to be
050480 -            getting lighter [reported in letter to medical team on
050481 -            090331 2047, ref SDS B5 Q69V, and identified by Doctor Hsu
050482 -            on 090401 0032, as IBC, ref SDS B6 R24X], as I had hoped,
050483 -            based on patient history of similar condition on right arm
050484 -            in 2007; so, maybe there is no IBC at that location.
050485 -            Tara's examination on 090423 will evaluate. [it would be
050486 -            the 8th relapse of cancer, reported on 090331 2047.
050487 -            ref SDS B5 Q64R]
050488 -
050489 -                [On 090412 2241 Millie reports IBC getting worse on
050490 -                left arm, requests treatment before leaving town for 2
050491 -                weeks, in order to prevent losing control. ref SDS E0
050492 -                9S8Y
050494 -             ..
050495 -        4.  Cancer spreading internally which has not been evident in
050496 -            patient history [shown by CT tests listed on 090107,
050497 -            ref SDS 48 GM3N], but could be a factor without getting
050498 -            chemo for 3 months, also will be assessed with the CT test
050499 -            on 090413.
050501 -         ..
050502 -    5.  On 090325 Doctor Johnson scheduled a blood draw in the Infusion
050503 -        Clinic at Kaiser in Walnut Creek next week on 090413 1500.  A
050504 -        CT test is scheduled half an hour later at 1530, ref SDS 97
050505 -        TE4O, so that I have time to get the blood draw and walk from
050506 -        Infusion on the 2nd floor to CT in the basement about quarter
050507 -        mile through the halls, and so that the CT Department can use
050508 -        the port accessed in the Chemotherapy Clinic for injecting
050509 -        contrast medium.  Results of tests on 090413 should be
050510 -        available for review a few days prior to meeting at UCSF on
050511 -        090423 so that people can be prepared.
050513 -         ..
050514 -    6.  Yesterday [on 090407 1442], Kaiser changed the time of the CT
050515 -        test from 1530 to 1500 in order to avoid overtime expense for
050516 -        the IS staff who observe the test under Kaiser's interpretation
050517 -        of regulations using Power Port technology. ref SDS D8 L76N
050518 -        This requires changing the time of the blood draw to access the
050519 -        port from 1500 to 1430 [on 090407 1442 called Kaiser
050520 -        Chemotherapy Infusion Clinic to changed the time of the blood
050521 -        draw on 090413, ref SDS D8 W43J], or possibly earlier, if the
050522 -        CT folks want more current creatinine data than the prior test
050523 -        at UCSF on 090129.  We have a week to sort this out at Kaiser.
050524 -        Since I have not had chemotherapy for 3 months, seems like
050525 -        creatinine should be okay, unless radiation can have an
050526 -        effect??
050528 -         ..
050529 -    7.  I have not had a high temperature for several days in a row,
050530 -        and there has been no repeat of cough and shortness of breath
050531 -        reported once on 090402 1947. ref SDS C6 H93P  Doctor Johnson
050532 -        was notified as requested on 090403 by Doctor Hsu and Doctor
050533 -        Rugo, 090403 1954, ref SDS D1 NW4N]. and made arrangements [on
050534 -        090406 1353] to see me at Kaiser, ref SDS D3 M19I].  Since
050535 -        symptoms have subsided, we may not need another examination.
050536 -        Arlette coordinated with Doctor Johnson yesterday [on 090407
050537 -        1009] to follow up, since he was off-site. ref SDS D6 TB8M
050538 -
050539 -            [On 090409 1537 telecon Doctor Johnson deferrs examination
050540 -            because symptoms of radiation side effects subside.
050541 -            ref SDS D9 TH5G
050543 -         ..
050544 -    8.  With respect to coordinating Kaiser's Outside Referrals
050545 -        department to include Doctor Rugo on the current authorization,
050546 -        I assume that Amanda has taken appropriate action, as discussed
050547 -        yesterday [on 090407 1121, ref SDS D7 4M6F].
050549 -         ..
050550 -    9.  By copy notifying Gloria at Kaiser's Coagulation Control
050551 -        Department in Martinez that my next blood test will be on
050552 -        090413, and will include INR and PT to assess Coumadin
050553 -        treatment for PE.
050555 -         ..
050556 -   10.  Amanda, yesterday you planned to coordinate with Doctor Rugo
050557 -        about meeting on a day other than April 23rd so that she can
050558 -        support examination, since she is not in the clinic on the
050559 -        23rd.  Please call to let me know if there is a change.  In any
050560 -        case, results for the CT and blood tests will be submitted to
050561 -        the medical team for review several days prior to the 23rd, so
050562 -        Doctor Rugo can discuss with Tara, as needed, for meeting on
050563 -        the 23rd. This provides flexibility for comprehensive care.
050564 -
050571 -
050572 -
050573 -
050574 -
050575 -
050576 -
050577 -
050578 -
050579 -
050580 -
050581 -
050582 -
050583 -
0506 -