CONTACTS 

SUBJECTS
Millie Changing Treatments to Doxil Hyperthermia Recover 7th Relapse

3103 -
3103 -    ..
3104 - Summary/Objective
3105 -
310501 - Follow up ref SDS 29 0000. ref SDS 28 0000.
310502 -
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310504 -
310505 -
310507 -  ..
3106 -
3107 -
3108 - Progress
3109 -
310901 - Communicate Cancer Patient Cope Debilitating Cancer Uncertainties
310902 -
310903 - Follow up ref SDS 29 PW5H, ref SDS 28 PW5H.
310904 -
310905 - Background on Laura dealing with progression of disease, while trying
310906 - to continue working, reported on 081014. ref SDS 18 PW5H  Expanding
310907 - health issues require careful management, but reduces capacity to
310908 - cope. ref SDS 18 9R5R  Laura plans to take medical leave if
310909 - progression of disease is diagnosed. ref SDS 18 KM5X
310911 -  ..
310912 - On 081019 Millie submitted information on Doctor Stritter's clinical
310913 - advocacy practice to help cope with rising problems. ref SDS 21 SE4U
310914 - On 081023 Millie received a letter from Laura saying a treatment did
310915 - not work, so she was being put on chemotherapy. ref SDS 22 GA57
310917 -  ..
310918 - Millie sent a letter in the morning on 081124, asking how Laura is
310919 - doing with the change in treatment. ref SDS 24 LE3H  Millie received a
310920 - letter in the afternoon from Laura saying UCSF prescribed Xeloda
310921 - (capecitabine). ref SDS 25 6M3K  On 081124 Millie sent a letter
310922 - relating experience with capacitabine (Xeloda), including side effects
310923 - and good response to treatment. ref SDS 26 LE3H
310925 -  ..
310926 - On 081218 after meeting with the medical team,  Millie visited with
310927 - Laura and her mom in the waiting area.  Laura did not look well, and
310928 - related that treatment with capecitabine was not effective, and so she
310929 - has to change to another treatment. ref SDS 27 8I3N
310931 -  ..
310932 - On 081222 Millie sent a letter to Laura with best wishes for
310933 - Christmas. ref SDS 28 8I3N
310935 -  ..
310936 - On 081224 Millie received a response from Laura saying she is doing
310937 - better on a new treatment.  Getting a letter is a very good sign that
310938 - she has maintained a strong will to fight and recover from her cancer.
310939 - ref SDS 29 OP5J
310941 -  ..
310942 - Last week on 090129, we saw and spoke with Laura and her mom briefly
310943 - in the Breast Care Clinic.  Laura looked a lot better, further
310944 - indicating a good response to the new treatment.
310946 -  ..
310947 - Today, Millie sent a letter explaining what has been happening the
310948 - past week to start hyperthermia treatment...
310949 -
310950 -    1.  Subject: New Adventure Hyperthermia Treatment
310951 -        Date: Wed, 04 Feb 2009 21:51:51 -0800
310958 -         ..
310959 -    2.  Great to see you and your mom last week.  I was thrilled to see
310960 -        you looking well and sounding in good spirits.  Your mom too!
310961 -
310962 -            [On 090616 we saw Laura and her mom in the waiting room for
310963 -            the Breast Care Clinic at UCSF.  Cancer was diagnosed in
310964 -            the brain; Laura seemed to get successful treatment with
310965 -            "gamma knife" radoology surgery. ref SDS 33 LR40  Cancer
310966 -            has since spread with treatment using clinical trials;
310967 -            Laura was discouraged, and did not look well.  She planned
310968 -            to end care at UCSF and move back to Minnesota with her
310969 -            mom. ref SDS 33 ZY73
310971 -         ..
310972 -    3.  I asked Doctor Rugo about abraxane [during the meeting at UCSF
310973 -        on 090129, and requested by UCSF during telecon with Glenna on
310974 -        090121, ref SDS 30 NJ9M, later submitted to UCSF on 090127 for
310975 -        proactive case management planning transition to new treatment,
310976 -        ref SDS 31 TY6S], since you are getting a good response.
310977 -        Thanks again for the tip.  However, Rugo shuttled me off to
310978 -        radiation oncology in the basement for something called
310979 -        "hyperthermia." Research looks promising.  Just wonder why it
310980 -        has never been discussed in 8 years of treatment???
310982 -         ..
310983 -    4.  Sooooo...tomorrow starts a new adventure!  The past week has
310984 -        been a whirlwind; just glad I made it this far.  Had to scare
310985 -        up a competitive quote to get the medical bureaucracy at UCSF
310986 -        and Kaiser to move [reported in case study today on 090204.
310987 -        ref SDS 32 RG6O  Remembering the Legend of Prometheus, reported
310988 -        on 991108, ref SDS 1 5810, proactive planning has proven
310989 -        difficult in health care, similar to AIG, Bear Sterns, Merril
310990 -        Lynch, Enron, all the places where smart folks hang out.
310992 -         ..
310993 -    5.  I probably won't see you tomorrow, but you are in my thoughts
310994 -        and prayers.
310996 -         ..
310997 -    6.  Always your friend.
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