CONTACTS 

SUBJECTS
Meeting 080501 UCSF Start 3rd Cycle 2nd Arm  Cinical Study Treatment

0703 -
0703 -    ..
0704 - Summary/Objective
0705 -
070501 - Follow up ref SDS 6 0000, ref SDS 5 0000.
070502 -
070503 -
070504 -
070505 -
070507 -  ..
0706 -
0707 -
0708 - Progress
0709 -
070901 - Millie submitted ref DIT 1 0001 to Jackie that confirms understandings
070902 - from meeting with the medical team at UCSF to start the 3rd cycle on
070903 - the 2nd arm of the clinical study...
070904 -
070905 -    1.  Thanks for coordinating the meeting today. ref SDS 5 SR5M  I
070906 -        got the blood draw early enough to get results in time for
070907 -        Brigid to review during the examination, though some of the
070908 -        numbers took a little longer than usual today. ref DIT 1 0001
070910 -         ..
070911 -    2.  INR is 2.4 needed Kaiser's Coagulation Control clinic in
070912 -        Martinez, CA, to manage Coumadin for my pulmonary embolism
070913 -        problem; by copy to Gloria I am notifying her of results.
070914 -        ref SDS 6 PU7Y, ref DIT 1 LD5O
070916 -         ..
070917 -    3.  NEUTS are still a bit low at 1.34 (Kaiser ANC 1340).
070918 -        ref SDS 6 QY6H  Brigid is checking with the Study people for
070919 -        approval to give a full treatment today, despite low numbers.
070920 -        Keeping my fingers crossed. ref SDS 5 SR5M, ref DIT 1 LD6L
070922 -         ..
070923 -    4.  Brigid took down current medications.  This presents a
070924 -        continuing challenge, noted in the medical chart at Kaiser for
070925 -        the meeting on 080305. ref SDS 1 7Y6F, ref DIT 1 LD6M
070927 -         ..
070928 -    5.  A more complete list was submitted to Kaiser and to UCSF a few
070929 -        days later on 080306. ref SDS 2 RW3T, ref DIT 1 LD7N
070930 -
070931 -               [On 080502 Kaiser provided a complete list of Millie's
070932 -               medications. ref SDS 7 UF5M
070934 -         ..
070935 -    6.  Today, the list has changed again, and so presents a
070936 -        maintenance problem to coordinate Kaiser and UCSF activity, as
070937 -        Brigid noted during the meeting. ref DIT 1 LD8K
070939 -         ..
070940 -    7.  The treatment plan seems to be to stick with a full dose [of
070941 -        Carboplatin chemotherapy], and add Neupogen beginning with one
070942 -        treatment per week. ref SDS 5 CZ3N  I have enough refills for
070943 -        the current cycle and will pick this up at the Kaiser Pharmacy
070944 -        today or tomorrow, with the understanding that the best time
070945 -        for the treatment is 2 - 3 days after getting chemotherapy
070946 -        today. ref DIT 1 LD8P
070948 -  ..
070949 - Brigid wrote a reply saying to ignore the Chemo Orders, and go with 1
070950 - weekly Neupogen treatment. ref SDS 5 M658
070951 -
070952 -               [On 080529 Chemotherapy Orders for Carboplatin show same
070953 -               dose 175 mg as today, ref SDS 8 PVUQ, but there is a
070954 -               handwritten mark that says "error," dated 080529 with
070955 -               initials mg. ref SDS 8 F55F
070957 -                ..
070958 -               [On 080625 Millie asks medical team about error in
070959 -               Chemotherapy Orders discovered on 080605. ref SDS 9 PQWV
070961 -  ..
070962 - Millie's letter to UCSF continues...
070963 -
070964 -    8.  I meet with the primary care physician tomorrow and will
070965 -        discuss getting prescription for monthly refills to have
070966 -        Neupogen on hand for these treatments. ref DIT 1 LD9N
070967 -
070968 -               [On 080502 primary care physician at Kaiser orders
070969 -               treatment with Neupogen in the Kaiser Infusion Clinic,
070970 -               but worried that ordering treatment on Kaiser computer
070971 -               system is like using a "black box" nobody knows what
070972 -               will actually happen. ref SDS 7 NL4M
070974 -         ..
070975 -    9.  Megan did a great job this morning filling in for you, as you
070976 -        prepare to go off to law school.   When time permits, please
070977 -        submit contact information for Megan, e.g., name, title, phone,
070978 -        email, and a fax number.  Yesterday, Arlette called for a fax
070979 -        number to send you the CT test on 080425, and I could not find
070980 -        it.  Contact data is a big help.  Thanks. ref DIT 1 LD9S
070982 -         ..
070983 -   10.  Brigid explained today UCSF experience using the port with a
070984 -        Huber needle to solve problems using conventional IV in my
070985 -        right arm injecting contrast medium for CT tests. ref SDS 5
070986 -        766K  She recalled that UCSF adopted a policy last June of
070987 -        implanting only "Power Ports," which are designed to
070988 -        accommodate high pressures that occur with CT contrast medium
070989 -        injections. ref SDS 5 TQ6F  She was not aware of patients who
070990 -        undergo operations to replace standard port catheters with
070991 -        "Power Ports," and noted risks of surgery. ref SDS 5 TQ8P  This
070992 -        was presented to Kaiser in a letter on 080428. ref SDS 4 1H6Y,
070993 -        ref DIT 1 LD4Q
070995 -         ..
070996 -   11.  Brigid further related that in rare cases UCSF has approved
070997 -        using a standard port catheter like I have for injecting
070998 -        contrast medium when problems using conventional IV methods
070999 -        become unmanageable, ref SDS 5 JJ9N, as reported on 080425.
071000 -        ref SDS 3 9W9I, ref DIT 1 LD55
071002 -         ..
071003 -   12.  UCSF's experience will be shared with [the primary care
071004 -        physician] in a meeting tomorrow at Kaiser.  Thanks to Brigid
071005 -        for support on this issue. ref DIT 1 LD63
071006 -
071007 -               [On 080502 Millie had a meeting at Kaiser and discussed
071008 -               upgrading to a Power Port based on UCSF experience.
071009 -               ref SDS 7 J13G
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071016 -
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0711 -