CONTACTS 

SUBJECTS
Default Null Subject Account for Blank Record

0403 -
0403 -    ..
0404 - Summary/Objective
0405 -
040501 - Follow up ref SDS 15 0000. ref SDS 13 0000.
040502 -
040503 -
040504 -
040505 -
040506 -
040508 -  ..
0406 -
0407 -
0408 - Progress
0409 -
040901 - On 080208 requested diagnostics developed by Kaiser and UCSF that help
040902 - assess Millie's progress, and prognosis for continuing treatment or
040903 - changing treatment at UCSF on the clinical trial. ref SDS 13 6V5I
040904 - Neither UCSF nor Kaiser have responded.  Yesterday on 080213 submitted
040905 - follow up letter confirming prior requests. ref SDS 15 6V5I
040906 -
040907 -    1.  Subject:  Evaluate Adding Carboplatin; Status Change
040908 -        Date: Thu, 14 Feb 2008 08:25:56 -0800
040913 -         ..
040914 -    2.  Dear Rod and Millie,
040916 -         ..
040917 -    3.  Doctor Rugo is checking with the study to see we were able to
040918 -        give you the pictures.  They are considered part of the study,
040919 -        but we are asking.
040920 -
040921 -            [...below, letter notifies UCSF that Millie agrees the
040922 -            clinical trial study can get copies of patient history
040923 -            including photographs needed to assess response to
040924 -            treatment. ref SDS 0 VX8V
040926 -             ..
040927 -            [...below, Millie letter thanks UCSF for working on sending
040928 -            patient history photographs from the medical chart to the
040929 -            patient. ref SDS 0 4R5O
040931 -  ..
040932 - Jackie responds to the letter on 080208, ref SDS 13 OO8Y, requesting
040933 - copies of photographs taken at UCSF the day before on 080207, showing
040934 - status of IBC disease. ref SDS 11 GH57  This was requested again in a
040935 - follow up letter yesterday on 080213. ref SDS 15 7G9P
040936 -
040937 -            [...below, letter to UCSF patient agrees to share patient
040938 -            history and diagnostics with clinical trial management.
040939 -            ref SDS 0 VX8V
040941 -  ..
040942 - Jackie's letter for UCSF continues...
040943 -
040944 -    4.  Also, Brigid or Doctor Rugo should be the ones to give you the
040945 -        CA15.3 results.
040947 -  ..
040948 - Jackie responds to the letter yesterday on 080213 requesting results
040949 - of blood tests on 080207. ref SDS 15 7G9S
040951 -  ..
040952 - This morning during treatment the Infusion Clinic submitted results of
040953 - the prior blood tests showing CA 15-3 63 increased dramatically 400%
040954 - compared to prior mild increases. ref SDS 16 VR8N
040956 -  ..
040957 - Jackie's letter for UCSF continues...
040958 -
040959 -    5.  Doctor Rugo is not here next Thursday, 2/21.  We would like to
040960 -        reschedule Millie's appt to Tuesday, 2/19 at 11am with Dr.
040961 -        Rugo.  Millie can receive her infusion that day as well.
040962 -        Please confirm that you are available on 02/19.
040964 -  ..
040965 - This is the first time we were notified that the doctor planned to
040966 - visit Millie in advance of the regularly scheduling meeting to start
040967 - a new cycle, which will be in 3 weeks on 080306.
040969 -  ..
040970 - Scheduling a meeting ahead of schedule connotes an emergency review
040971 - that may relate to findings during the meeting last week on 080207,
040972 - ref SDS 11 GH5H, together with report today that cancer marker CA 15-3
040973 - 63 increased 12 points, 400% more than the increase for prior period,
040974 - per below. ref SDS 0 VX9T
040975 -
040976 -            [...below, letter commends UCSF taking immediate action to
040977 -            address possible progression of disease. ref SDS 0 VX9W
040979 -  ..
040980 - Treatment on Tuesday after meeting with the doctor at 1100 would
040981 - result in returning home across the Bay Bridge during the height of
040982 - commute traffic, which delay arrival until 1900 - 2000 depending on
040983 - how many accidents are encountered.
040984 -
040985 -            [...below propose having treatment in the morning at the
040986 -            regular time, and then meeting with the doctor at 1100.
040987 -            ref SDS 0 VX4P
040989 -             ..
040990 -            [On 080215 Millie asks about getting treatment on Thursday
040991 -            as regularly scheduled; making two trips is preferable to
040992 -            wasting time in traffic. ref SDS 18 RK6I
040994 -  ..
040995 - Jackie's letter for UCSF continues...
040996 -
040997 -    6.  Thank you
040998 -
040999 -        Jackie
041000 -
041001 -
041002 -
041003 -
041004 -
041005 -
0411 -

SUBJECTS
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0503 -
0504 - 1012
050501 -  ..
050502 - Submitted response to UCSF saying...
050503 -
050504 -    1.  Subject: Evaluate Adding Carboplatin; Status Change
050505 -        Date: Thu, 14 Feb 2008 10:15:43 -0800
050513 -         ..
050514 -    2.  Jackie,
050516 -         ..
050517 -    3.  Thanks very much for timely response in your letter today
050518 -        addressing Mil's treatment and assessment. ref SDS 0 N94Q
050520 -         ..
050521 -    4.  As seen during the meeting on 080207, photographs comparing
050522 -        current conditions with the baseline comprise a core diagnostic
050523 -        to evaluate progression of disease, being treated on referral
050524 -        from Kaiser. ref SDS 11 GH5H  Millie is pleased to share
050525 -        assessment data with study management.  Patient history shows
050526 -        evaluation of IBC can be problematic.  Everyone working
050527 -        together will continue to yield good results, as Doctor Rugo
050528 -        has demonstrated at UCSF in Millie's case this past year.
050530 -         ..
050531 -    5.  Distribution of patient data to the study, the patient, and to
050532 -        the referral authority, here Kaiser, will increase chances that
050533 -        snafus resulting in loss of data, as reported last week on
050534 -        080207, ref SDS 11 GH57, will be minimized.
050535 -
050536 -            [...below, Millie letter thanks UCSF for working on sending
050537 -            patient history photographs from the medical chart to the
050538 -            patient. ref SDS 0 4R5O
050540 -         ..
050541 -    6.  CA 15-3 63 for the test on 080207 (correlates to over 80 on
050542 -        Kaiser's scale, based on patient history).  This 12 point rise
050543 -        from 51 on the test last month justifies increased scrutiny.
050545 -  ..
050546 - Jackie's letter received earlier this morning referred Millie to
050547 - Brigid and Doctor Rugo for results of CA 15-3 from labs last week on
050548 - 080207. ref SDS 0 N94U  While getting treatment in the Infusion Clinic
050549 - this morning,  Millie received a copy of the labs on 080207 that
050550 - reported CA 15-3 63. ref SDS 16 VR8N
050552 -  ..
050553 - Accelerated rise of CA 15-3 from 51 to 63 for the labs on 080207, may
050554 - be due in part to trauma the body suffered from the severe fall on
050555 - 080125, ref SDS 10 N65K, reported in Millie's letter to UCSF later
050556 - today, per below. ref SDS 0 WH7H
050558 -  ..
050559 - Letter to UCSF continues...
050560 -
050561 -    7.  Millie greatly appreciates Doctor Rugo scheduling a meeting on
050562 -        080219 for expedited review. ref SDS 0 N94Y  We prefer to meet
050563 -        earlier between 0700 and 0900, since we arrive at UCSF OA 0630.
050564 -        If 1100 works better for the Doctor we will work to her
050565 -        schedule.
050567 -         ..
050568 -    8.  Can Mil get treatment on Tuesday, 080219, at 0830, her regular
050569 -        time, and then see Doctor Rugo after that?  Typically, she
050570 -        completes treatment by 1030.  The 1 hour rest sometimes extends
050571 -        toward 1130.  The rest period was actually reduced by Brigid to
050572 -        30 minutes, so there is flexibility on this point.
050574 -         ..
050575 -    9.  Assume, the following week, Millie will return to treatment on
050576 -        Thursdays??
050578 -         ..
050579 -   10.  By copy will alert Doctor Johnson of evolving circumstances,
050580 -        and request consultation prior to meeting with Doctor Rugo.
050581 -        This can be accomplished by telecon, at his convenience.
050583 -  ..
050584 - The letter yesterday on 080213 asked about progress getting the CT
050585 - test results from Kaiser, so there is time to prepare for meeting with
050586 - the doctor, and this includes consulting with the primary care
050587 - physician. ref SDS 15 7G4R
050588 -
050589 -            [...below Millie thanks Clinical Trial Coordinator for
050590 -            coordinating to get photographs sent to Kaiser for
050591 -            collaboratio between primary care physician, who has the
050592 -            most experience working the problem, and the UCSF medical
050593 -            team headed by Doctor Rugo. ref SDS 0 4R5O
050595 -  ..
050596 - Letter to UCSF continues...
050597 -
050598 -   11.  Did you get the data from Kaiser for the biopsy on 040419,
050599 -        which Doctor Rugo requested on 080207 to assess status change?
050600 -        ref SDS 11 6S6G
050602 -  ..
050603 - The letter to UCSF with copy to UCSF on 080213 asked about the biopsy
050604 - report. ref SDS 15 7G9V
050605 -
050606 -            [On 080215 Millie asks again if UCSF has received the
050607 -            report from Kaiser. ref SDS 18 ID6Q
050608 -
050609 -            [On 080219 UCSF receives report for biopsy on 040419 and
050610 -            determines there is no change in Millie's triple negative
050611 -            status, which would increase treatment options. ref SDS 21
050612 -            VX6G
050614 -             ..
050615 -            [On 081016 letter to medical team confirms Doctor Rugo's
050616 -            request for Kaiser to biopsy of lymph node in left
050617 -            supraclavicular, and orders evaluation of triple negative
050618 -            to investigate expanding options to treat Millie's 5th
050619 -            relapse of IBC. ref SDS 23 J36R
050621 -  ..
050622 - Letter to UCSF continues...
050623 -
050624 -   12.  Thanks for excellent coordination.
050626 -         ..
050627 -   13.  Sincerely,
050629 -         ..
050630 -   14.  Rod
050631 -
050632 -
050633 -
050634 -
0507 -

SUBJECTS
Default Null Subject Account for Blank Record

0603 -
0604 - 1610
060501 -  ..
060502 - Dental Care Teeth Cleaning Scheduled Tomorrow
060503 -
060504 - Millie submitted a letter supplementing the letter this morning, and
060505 - following her treatment at UCSF, saying...
060506 -
060507 -    1.  Subject: Dental Cleaning Tomorrow Conflict with Blood Counts?
060508 -        Date: Thu, 14 Feb 2008 16:14:21 -0800
060513 -         ..
060514 -    2.  Jackie,
060516 -         ..
060517 -    3.  Just letting you know, I have an appointment tomorrow at 8
060518 -        o'clock in the City for dental work.  It's only for cleaning,
060519 -        which is usually okay, but with low labs lately, thought I
060520 -        should mention it.
060521 -
060522 -            [...below, Brigid approves dental care for non-invasive
060523 -            procedures. ref SDS 0 LS6F
060525 -             ..
060526 -            [On 080215 Millie dental treatment teeth cleaning.
060527 -            ref SDS 17 J25G
060529 -             ..
060530 -            [On 080215 Millie notified UCSF that meeting on dental
060531 -            issues was successful. ref SDS 18 ID5U
060533 -         ..
060534 -    4.  Thanks.
060536 -         ..
060537 -    5.  Millie
060539 -         ..
060540 -        CT Test Results Requested from UCSF for Test at Kaiser
060541 -
060542 -    6.  PS.  Have you gotten anything on my CT test from Kaiser?
060544 -  ..
060545 - Millie asks for results of the CT test on 080212, ref SDS 14 FP5H,
060546 - that is part of the diagnostics that will be evaluated in the
060547 - emergency meeting the doctor scheduled today for next Tuesday, on
060548 - 080219, per Jackie's letter today, above. ref SDS 0 N94Y
060549 -
060550 -              [...below Jackie has not received the report, but plans
060551 -              to get the report from Kaiser in time for meeting with
060552 -              the doctor next week. ref SDS 0 I56N
060554 -               ..
060555 -              [On 080215 Millie thanks Jackie for expediting getting
060556 -              the record on the CT test on 080212; Millie sends copies
060557 -              to Kaiser explaining requirements to receive data in time
060558 -              to have enough time to be prepared for the meeting the
060559 -              doctor scheduled on 080219. ref SDS 18 ID5X
060561 -               ..
060562 -              [On 080215 Millie received from Kaiser the report for CT
060563 -              test on 080212. ref SDS 19 XV9J
060565 -               ..
060566 -              [On 080219 notify UCSF patient received report on CT test
060567 -              performed 080212. ref SDS 20 1K7X
060568 -
060570 -  ..
060571 - CA 15-3 63 Dramatic Rise May be Caused by Traumatic Fall
060572 -
060573 - Millie's letter to UCSF continues...
060574 -
060575 -        With CA 15-3 getting active, everything else may be moot.
060576 -        ref SDS 0 VX9T  I know it's clutching at straws, but possibly
060577 -        my bad fall a few weeks ago somehow or another caused a
060578 -        compound rise in the marker?? ref SDS 10 N65K
060580 -  ..
060581 - Millie's reference to CA 15-3 getting active refers to the report that
060582 - the cancer marker increased from 51 for the test on 080110 to 63 for
060583 - the blood test last week on 080207, which was received this morning
060584 - during treatment in the Infusion Clinic. ref SDS 16 VR8N
060585 -
060586 -            [On 080219 Doctor decided to defer increasing treatment by
060587 -            adding Carboplatin until starting the next cycle on 080306,
060588 -            ref SDS 21 I35G; allows time to assess next blood test to
060589 -            see if trauma of serious fall on 080125 could have caused
060590 -            cancer marker to rise in test on 080207, rather than
060591 -            signaling greater advance of IBC. ref SDS 21 CL4I
060593 -             ..
060594 -            [On 080306 CA 15-3 59 falls for first time in about 6
060595 -            months, ref SDS 22 A16M; declining 4 points from a high of
060596 -            63 on 080207. ref SDS 12 A16M
060598 -  ..
060599 - This big increase in CA 15-3 was cited in the letter to UCSF earlier
060600 - this morning, per above. ref SDS 0 VX9T
060602 -  ..
060603 - Millie's letter to UCSF continues...
060604 -
060605 -        Thanks for helping me get the pictures; I think you said Doctor
060606 -        Rugo is checking with the study. ref SDS 0 N94Q  I want Doctor
060607 -        Johnson to take a look, if he has time to comment before next
060608 -        Tuesday.  I haven't heard from him so he may be out of town, or
060609 -        just really busy.  Thanks again.
060611 -  ..
060612 - Millie confirms notice in the letter this morning, per above, that the
060613 - primary care physician at Kaiser should collaborate with UCSF
060614 - evaluating progression of disease. ref SDS 0 VX4V
060615 -
060616 -
060617 -
060618 -
060619 -
0607 -

SUBJECTS
Default Null Subject Account for Blank Record

0703 -
0704 - 1733
070501 -  ..
070502 - Millie received letter from Brigid at UCSF saying...
070503 -
070504 -    1.  Subject:  Dental Cleaning Tomorrow Conflict with Blood Counts?
070505 -        Date: Thu, 14 Feb 2008 16:20:54 -0800
070510 -         ..
070511 -    2.  OK to go to the dentist but no invasive procedures!!
070513 -  ..
070514 - Brigid responds to Millie's letter earlier today notifying that she
070515 - has dental work scheduled for tomorrow. ref SDS 0 C36L
070516 -
070517 -            [On 080215 Millie dental treatment teeth cleaning.
070518 -            ref SDS 17 J25G
070520 -             ..
070521 -            [On 080215 Millie notified UCSF that meeting on dental
070522 -            issues was successful. ref SDS 18 ID5U
070523 -
070544 -
070545 -
070547 -  ..
0706 -
0707 -
0708 - 1738
0709 -
070901 - Millie also received a response from Jackie to Mil's letter with PS
070902 - asking about getting the CT test from Kaiser.
070903 -
070904 -    1.  Subject:  Dental Cleaning Tomorrow Conflict with Blood Counts?
070905 -        Date:  Thu, 14 Feb 2008 16:43:38 -0800
070910 -         ..
070911 -    2.  Hi Millie,
070913 -         ..
070914 -    3.  I have not recieved the CT scan results yet.  I will try
070915 -        tomorrow but we will definitely have it in time for you appt
070916 -        with Dr. Rugo next week.
070918 -  ..
070919 - Jackie responds to Millie's letter this morning, per above.
070920 - ref SDS 0 C45U  Getting reports "in time for meeting with the doctor
070921 - next week is not sufficient time to be prepared for an effective
070922 - meeting.  Research on 960205 reported people waste 70% of the day in
070923 - unproductive meetings because people are not prepared. ref SDS 1 5902
070924 -
070925 -            [On 080215 Millie notifies UCSF with copy to Kaiser that
070926 -            the report from Kaiser is needed in time to prepare for
070927 -            meeting with the doctor, rather, than during the meeting.
070928 -            ref SDS 18 ID5X
070930 -             ..
070931 -            [On 080215 Millie received from Kaiser the report for CT
070932 -            test on 080212. ref SDS 19 XV9J
070934 -  ..
070935 - Jackie's letter to Millie continues...
070936 -
070937 -    4.  The only available time next Tuesday is at 11am.  I can check
070938 -        with Dr. Rugo to see if you can be treated before your appt.
070940 -         ..
070941 -    5.  Thanks
070942 -
070943 -        Jackie
070944 -
070945 -
070946 -
070947 -
070948 -
070949 -
070950 -
070951 -
070952 -
070953 -
070954 -
070955 -
070956 -
070957 -
0710 -