THE WELCH COMPANY
440 Davis Court #1602
San Francisco, CA 94111-2496
415 781 5700
rodwelch@pacbell.net


S U M M A R Y


DIARY: May 14, 2007 02:23 PM Monday; Rod Welch

Millie letter to Kaiser on CT test pulmonary embolism, CA 15-3 results.

1...Summary/Objective
2...CT Test Scope Evaluate Pulmonary Embolism Cor Pulmonale Correct Errors
3...CA 15-3 29 UCSF 070426 Cross-check Compare Kaiser Test 070511


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CONTACTS 

SUBJECTS
CT Test Scope 4th Cycle UCSF Clinical Study Cetuximab Assess Effecti

2003 -
2003 -    ..
2004 - Summary/Objective
2005 -
200501 - Follow up ref SDS 8 T76M, ref SDS 7 VP4H.
200502 -
200503 -
200504 -
200505 -
200506 -
200508 -  ..
2006 -
2007 -
2008 - Progress
2009 -
200901 - CT Test Scope Evaluate Pulmonary Embolism Cor Pulmonale Correct Errors
200902 -
200903 - During the meeting at UCSF on 070510, Jackie disclosed that UCSF
200904 - coordinated with Kaiser to schedule another CT test, which Millie
200905 - needs for the cetuximab clinical study. ref SDS 7 519N  At that time,
200906 - Jackie explained that Kaiser scheduled the test too soon to meet study
200907 - requirements for testing on 8-week intervals, ref SDS 7 V36R, but that
200908 - getting Kaiser to correct the mistake was too stressful. ref SDS 7
200909 - V36O  The next day on 070511, Millie coordinated with Kaiser to
200910 - correct the mistake by changing the date of the CT test from 070514 to
200911 - 070520. ref SDS 8 T77M  During the meeting on 070510 at UCSF, the
200912 - medical team, also, advised that coordinating with Kaiser was too
200913 - stressful for UCSF to correct the scope of the CT test to evaluate
200914 - pulmonary embolism and Cor Pulmonale. ref SDS 7 TK8H
200916 -  ..
200917 - Millie submitted ref DIT 1 0001 to her primary care physician at
200918 - Kaiser saying...
200919 -
200920 -    1.  Thanks for your letter on 070330 submitting the record on
200921 -        meeting at Kaiser 070330. ref SDS 4 D64Q, ref DIT 1 0001
200923 -         ..
200924 -    2.  You mentioned at that time that the CT test on 070326 did not
200925 -        perform the thin slice spiral CT scan you ordered, as discussed
200926 -        on 070202. ref SDS 4 B74K, ref DIT 1 HO5N
200928 -         ..
200929 -    3.  Last week Arlette called and said that Kaiser scheduled another
200930 -        CT test for me, as part of the cetuximab clinical study.  The
200931 -        test was scheduled for 070514, which is today.  On Thursday,
200932 -        May 10th, the folks at UCSF discussed bumping the test date
200933 -        ahead one week to 070521 so that we stay close to 8 week
200934 -        intervals, called out by the cetuximab trial protocol.
200935 -        ref SDS 7 DT8I  The next day on 070511, Kaiser called and
200936 -        advised that the blood test at UCSF on 070426 was missing data
200937 -        on createnine, which Kaiser needs for the CT test. ref SDS 8
200938 -        T76M  Kaiser asked me to get a supplemental blood test to
200939 -        provide data for the CT test.  During this call, I asked about
200940 -        changing the date of the CT test to align with requirements of
200941 -        cetuximab treatments at UCSF.  Kaiser changed the date to
200942 -        070520. ref SDS 8 T77M, ref DIT 1 TQ6J
200943 -
200944 -            [On 070516 Millie notified UCSF schedule changed to meet
200945 -            requirements of clinical study. ref SDS 9 EF9M
200947 -         ..
200948 -    4.  Can you please check with the Imaging Department to verify they
200949 -        do the thin slice spiral CT test on 070520. ref DIT 1 ER7F
200950 -
200951 -            [On 070516 Kaiser discloses all CT scans are thin slice
200952 -            spiral technology; Kaiser chooses to review and analyse
200953 -            test data at different intervals; and since 061030, Kaiser
200954 -            has refused to assess Millie's lung and heart disorders.
200955 -            ref SDS 9 SE4L
200957 -             ..
200958 -            [On 070516 Millie coordinated with Kaiser to perform
200959 -            requirements of clincial study for monitoring lung and
200960 -            heart preconditions by comparing next CT test on 070520
200961 -            with prior testing that diagnosed pulmonary embolism and
200962 -            enlarged right ventricle (Cor Pulmonale) for trend
200963 -            analysis. ref SDS 9 Y76G
200965 -             ..
200966 -            [On 070517 Kaiser discloses policy position that costs do
200967 -            not justify benefits of performing clincial study
200968 -            requirements to monitor Millie's preconditions of lung and
200969 -            heart disorders in order to guide treatment decisions on
200970 -            saving lives, time, and money. ref SDS 11 OS5G
200972 -  ..
200973 - This aligns with planning by the doctor on 070202 to order CT testing
200974 - that evaluates pulmonary embolism and Cor Pulmonale. ref SDS 2 T85F
200975 - Earlier on 070130 Doctor Rugo planned vigorous testing to monitor
200976 - effects of cetuximab on Millie's preconditions. ref SDS 1 R68G  This
200977 - was discussed yesterday at UCSF. ref SDS 7 VP4H  At that time, the
200978 - medical team at UCSF explained that coordinating with Kaiser to align
200979 - the scope of CT testing with Millie's medical condition was too
200980 - stressful. ref SDS 7 TK8H
200981 -
200982 -
200983 -
2010 -

SUBJECTS
CA 15-3 Cancer Marker Blood Test 070511 Kaiser Results Compare Cross

3003 -
300401 -  ..
300402 - CA 15-3 29 UCSF 070426 Cross-check Compare Kaiser Test 070511
300403 -
300404 - Follow up ref SDS 5 087J.
300405 -
300406 - Millie's letter to Kaiser continues...
300407 -
300408 -    5.  When I went to Kaiser at Park Shadelands on 070511 for the
300409 -        blood draw Kaiser requested, I asked for a CA 15-3. ref SDS 8
300410 -        B64J  Can you let me know the results.  Last month it went down
300411 -        to 29, so I am anxious to see if it stays down or is bouncing
300412 -        back as it has in the past. ref DIT 1 MS7K
300414 -  ..
300415 - Testing for CA 15-3 at Kaiser will support meeting with the primary
300416 - care physician on 070525, and provide a cross-check on work with UCSF,
300417 - who recently reported lower CA 15-3 29 on 070426, ref SDS 6 2N5J,
300418 - continuing previous remarkable improvement on 070307, and which seemed
300419 - too good to be true. ref SDS 3 U85L
300421 -             ..
300422 -            [On 070516 Kaiser reports CA 15-3 56 and describes this
300423 -            result as "stable," ref SDS 9 QN6M, which significantly
300424 -            conflicts with testing at UCSF. ref SDS 9 WV6L
300426 -             ..
300427 -            [On 070516 Millie asks Kaiser to verify accuracy of CA 15-3
300428 -            test on 070511, and to notify UCSF to be prepared for
300429 -            meeting with the patient on 070524. ref SDS 9 ZJ9N
300431 -             ..
300432 -            [On 070517 Kaiser advised that UCSF uses a different
300433 -            calibration method for CA 15-3 that cannot be compared to
300434 -            Kaiser test results, like comparing apples and oranges.
300435 -            ref SDS 11 NT3O
300437 -             ..
300438 -            [On 070517 Nurse's Notes show nurse practitioner ordered
300439 -            another blood test to verify elevated CA 15-3 56 reported
300440 -            in Kaiser's test on 070511; but did not perform the test,
300441 -            and decided to wait another week to address the issue.
300442 -            ref SDS 10 FG6H
300444 -             ..
300445 -            [On 070517 Brigid discloses that coordinating divided
300446 -            responsibilities on referral projects is difficult; and
300447 -            that UCSF recommends limiting laboratory work rather than
300448 -            empowering labs to cross-check tests for accuracy.
300449 -            ref SDS 11 466H
300450 -
300451 -
300452 -
300454 -  ..
300455 - Millie's letter to Kaiser continues...
300456 -
300457 -    6.  Looking forward to seeing you soon. ref DIT 1 5H9K
300458 -
300459 -
300460 -
300461 -
300462 -
300463 -
300464 -
3005 -