CONTACTS 

SUBJECTS
CA 15-3 Reports Request 2 Blood Tests 070208 070215 Assess Rate IBC

1103 -
1103 -    ..
1104 - Summary/Objective
1105 -
110501 - Follow up ref SDS 9 VK5N.
110502 -
110503 - Millie facilitated the meeting tomorrow at UCSF with Doctor Rugo and
110504 - her staff.  Requested UCSF collaborate with Kaiser to obtain pending
110505 - reports on 2 CA 15-3 cancer tests for evaluating progression of
110506 - disease, and requirements for switching treatments. ref SDS 0 ED5H
110507 -
110508 -
110509 -
110510 -
110511 -
110513 -  ..
1106 -
1107 -
1108 - Progress
1109 -
110901 - CA 15-3 Tests Progression of Cancer Determine Switch Treatments
110902 -
110903 - Follow up
110904 -
110905 - Millie submitted ref DIT 1 0001 to Jackie, Clinical Research
110906 - Coordinator, at UCSF, with a copy to Arlette, administrative
110907 - assistance for the primary care physician at Kaiser, and saying...
110908 -
110909 -    1.  There are two (2) CA 15-3 test results pending for blood draws
110910 -        on 070208, ref SDS 5 2N5J, and a week later on 070215.
110911 -        ref SDS 6 2N5J  Can you please coordinate with Kaiser to get
110912 -        these test results for meeting with Doctor Rugo tomorrow
110913 -        afternoon.  In a letter on 061230, [the primary care physician]
110914 -        cited CA 15-3 as a diagnostic of measurable disease for IBC in
110915 -        my case, noted in the record meeting at UCSF on 070130.
110916 -        ref SDS 3 M652, ref DIT 1 0001
110918 -         ..
110919 -    2.  Since disease may be progressing on my arm, stomach and back
110920 -        [observed during meeting at UCSF on 070222, ref SDS 9 B64F],
110921 -        diagnostics on CA 15-3 provides a cross-check on rate of
110922 -        progression. ref DIT 1 MN6I
110924 -  ..
110925 - The primary care physician at Kaiser used CA 15-3 to decide on
110926 - changing treatment and switch to UCSF clinical trial, reported on
110927 - 061201. ref SDS 1 GJ5M  On 061230 CA 15-3 identifies measurable
110928 - disease. ref SDS 2 PO3V
110930 -            ..
110931 -           [On 070301 UCSF reported there wasn't enough time to
110932 -           coordinate with Kaiser on getting CA 15-3 test results from
110933 -           Kaiser's computer. ref SDS 10 MP58
110935 -            ..
110936 -           [On 070302 Millie reported UCSF taking decisions on
110937 -           continuing current treatment without CA 15-3 test results.
110938 -           ref SDS 12 EY5W
110939 -
110940 -
110941 -
110942 -
1110 -

SUBJECTS
Coordination Plan Draft Submit During Meeting at UCSF on 070301 CA 1

1703 -
170401 -  ..
170402 - Coordination Plan Facilitate Collaboration UCSF Kaiser Common Care
170403 -
170404 - Follow up ref SDS 9 VK5N, ref SDS 4 RM4G.
170405 -
170406 - Millie's letter to UCSF continues...
170407 -
170408 -    3.  You mentioned in our meeting on 070222 that UCSF and Kaiser
170409 -        need a coordination plan to facilitate collaboration on my care
170410 -        going forward under the clinical study. ref SDS 9 VK5N  Is
170411 -        there a draft of this plan available for review? ref DIT 1 MN6N
170413 -  ..
170414 - Scope of coordination planning listed on 070222 includes emergency
170415 - procedures. ref SDS 9 KL5G
170416 -
170417 -            [On 070301 there wasn't enough time to review draft
170418 -            coordination plan. ref SDS 10 HH7H
170420 -  ..
170421 - Millie's letter to UCSF continues...
170422 -
170423 -    4.  Blood tests tomorrow for the clinical study include INR for
170424 -        pulmonary embolism.  Should they include CA 15-3 for measurable
170425 -        disease diagnostics.  How will test results be submitted to
170426 -        Kaiser, so that when I meet with [the primary care physician],
170427 -        he has patient history on file in his computer for accurate
170428 -        analysis.  Similarly, INR reports need to go to Gloria at
170429 -        Kaiser's Coagulation Control Clinic in Martinez.  This
170430 -        coordination should be developed in a plan so that data is
170431 -        routinely provided, rather than ad hoc calls and email.
170432 -        ref DIT 1 MN7J
170433 -
170434 -            [On 070301 during meeting at UCSF with Doctor Rugo, Brigid
170435 -            reported INR 2.5; UCSF asked Millie to coordinate
170436 -            communications with Kaiser. ref SDS 10 FE9I
170438 -             ..
170439 -            [On 070301 after meeting with Doctor Rugo, Millie received
170440 -            treatment in the Infusion Clinic; Pauline submitted the
170441 -            blood test report described earlier by Brigid showing INR
170442 -            2.5. ref SDS 11 SE6N
170444 -             ..
170445 -            [On 070302 Gloria at the Kaiser Coagulation Control Clinic
170446 -            in Martinez, CA called and left a message saying that since
170447 -            Kaiser did not receive results of the blood test at UCSF
170448 -            the day before on 070301, Millie should get a blood test
170449 -            for INR the following week on 070308 to evaluate Coumadin
170450 -            treatments for pulmonary embolism. ref SDS 12 U24Y
170452 -             ..
170453 -            [On 070302 Millie called back and left a message for Gloria
170454 -            at the Kaiser Coagulation Control Clinic in Martinez, CA,
170455 -            and Millie sent a letter to Arlette in the doctor's office
170456 -            at Kaiser's oncology clinic in Walnut Creek; copies were
170457 -            sent to Gloria, and to Jackie, the Clinical Research
170458 -            Coordinator at UCSF confirming the telephone message to
170459 -            Gloria that reported the blood test on 070301 shows INR
170460 -            2.5, ref SDS 12 K14H, and so testing for INR would occur
170461 -            with the next blood test on 070329 for the next cycle of
170462 -            cetuximab treatment for IBC. ref SDS 12 X84G
170464 -             ..
170465 -            [On 070305 entering results of the blood test on 070301
170466 -            showed a big difference in the way UCSF and Kaiser set the
170467 -            "normal" range for INR, ref SDS 11 SE6N, Millie wrote a
170468 -            letter notifying Jackie at UCSF with copies to Arlette and
170469 -            Gloria at Kaiser, ref SDS 13 XG5H; and asking UCSF for
170470 -            clarification to facilitate managing Millie's Coumadin
170471 -            treatments for pulmonary embolism. ref SDS 13 3A4Y
170473 -             ..
170474 -            [On 070305 Millie requested that Gloria coordinate directly
170475 -            with UCSF on interpreting the UCSF blood test report for
170476 -            prescribing Coumadin to treat pulmonary embolism, and
170477 -            reminded that UCSF has ordered another blood test on
170478 -            070308, so that INR can be tested again if needed.
170479 -            ref SDS 13 3A6S
170481 -             ..
170482 -            [On 070305 Brigid advised INR 2 - 3 is the correct range
170483 -            for prescribing Coumadin to treat Millie for pulmonary
170484 -            embolism, despite being 100% over the normal range in the
170485 -            report for the UCSF blood test on 070301. ref SDS 13 SN5O
170487 -             ..
170488 -            [On 070305 UCSF did not make distribution to coorindate
170489 -            communciations with Kaiser; Millie sent a letter thanking
170490 -            Brigid for timely response to INR question, and sent copies
170491 -            thanking Jackie for timely coordination, and also copies to
170492 -            Arlette at Kaiser in Walnut Creek, and to Gloria in
170493 -            Kaiser's Coagulation Control Clinic in Martinez, CA for
170494 -            managing Coumadin that treats Millie's pulmonary embolism.
170495 -            ref SDS 13 B18H
170497 -             ..
170498 -            [On 070306 Millie requests feedback from Gloria to verify
170499 -            accuracy of understandings that Kaiser is satisfied with
170500 -            UCSF blood test on INR for prescribing Coumadin to treat
170501 -            pulmonary embolism, and advises current regimen will
170502 -            continue until further notice. ref SDS 14 FJ9K
170504 -             ..
170505 -            [On 070307 Gloria confirmed Millie's current Coumadin
170506 -            treatment should be continued based on UCSF blood test
170507 -            reporting. ref SDS 15 UH4M
170509 -             ..
170510 -            [On 070330 coordination failing, medical chart at Kaiser
170511 -            shows lab at UCSF, rather than entering the blood test
170512 -            report to aid patient care. ref SDS 17 4T4L
170514 -         ..
170515 -    5.  In the meeting on 070222, ref SDS 9 KL5G, and earlier in your
170516 -        letter on 070216 you raised emergency treatment procedures.
170517 -        ref SDS 7 AM4N  This looms large in my case.  I would like to
170518 -        keep in place past practice of going to the ER at Kaiser in
170519 -        Walnut Creek when my temperature reaches 100.5, rather than
170520 -        have to drive across the bridge to UCSF for emergency care.
170521 -        ref DIT 1 MN8J
170523 -  ..
170524 - This references analysis in Millie's letter to UCSF on 070217.
170525 - ref SDS 8 AM4N and ref SDS 8 BD8T
170526 -
170527 -
170528 -
170529 -
1706 -

SUBJECTS
Dry Face Cetuximab Side Effect Treatment IBC Request Remedy During M

2103 -
210401 -  ..
210402 - Face Very Dry Side Effect Cetuximab Treatment IBC Request Remedy
210403 -
210404 -
210405 - Millie's letter to UCSF continues...
210406 -
210407 -    6.  A heads up for the meeting tomorrow...
210409 -         ..
210410 -    7.  My face seems suddenly very dry.  I am using the prescription
210411 -        Brigid issued on 070222 for the rash problem, but it does not
210412 -        seem to treat facial dryness. ref SDS 9 UM32  Can something
210413 -        more be done to relieve this new problem?
210414 -
210415 -            [On 070301 UCSF prescribed Curel lotion to treat rising
210416 -            facial dryness caused by cetuximab treatments for IBC.
210417 -            ref SDS 10 5V73
210419 -             ..
210420 -            [On 070308 Millie reported Curel treatment has brough some
210421 -            relief to facial dryness. ref SDS 16 JS6M
210423 -         ..
210424 -    8.  To facilitate coordination, sending a copy to Arlette at
210425 -        Kaiser.
210427 -         ..
210428 -    9.  Thanks very much.
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210443 -
2105 -